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Posted on: Thu, 05/27/2004 - 12:45am
CarrieK's picture
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Joined: 06/29/2001 - 09:00

E-mom,
Your situation is very similiar to mine. We met with our DD's future Kindergarten for next year and they agreed to many of the things your school did. I was wondering a couple of things in your situation:
-Did you cover handwashing for the entire school? Do all the kids wash their hands after lunch?
-Do the kids eat in a large cafeteria, and if so, will Ethan be monitored by anyone?
These are the stumbling blocks for us, since our school doesn't practice handwashing after lunch consistently (student body 780), and the teachers don't eat with the kids so there is no one but the lunch monitors (only 2) to check on my DD during the lunch hour.
Also, our school staff was, like yours, very cooperative and agreeable to everything but doing a 504 for our DD. This is when the tide turned and we were told that we didn't need that.
Just wondering where you are with it all. It's so overwhelming, and I don't want to rock the boat since my staff seemed so ready to help us, except with making anything formal with 504.
Thanks,
Carrie

Posted on: Thu, 05/27/2004 - 2:28pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

I don't know if I already said this in this thread but Ethan's first and only reaction was when he was 17 months old. He ate some peanut butter and his reaction was a swollen lower lip (half his lower lip) and about 12 hives around his mouth. His visible reaction vanished on it's own (no medicine was given) after about 10 minutes. He was not having any other problems (i.e., breathing) and was playing as he had been. His reaction didn't seem to bother him at all.
He has since been around peanut butter on occasion whether it was smelling it in the air on the airplane when someone opened a bag of peanuts or sitting next to his cousin as he ate a peanut butter sandwich. Ethan did not react whatsoever.
Ethan has been in homes of friends and relatives who eat peanut butter on a regular basis. I do not ask them if they have washed everything down. I am completely relaxed with that.
Quote:Originally posted by CarrieK:
[b]-Did you cover handwashing for the entire school? [/b]
At the time, no. Reason being, Kindergarten is only a half day program. Kindergarten does not offer a lunch, however, does provide a peanut-free snack.
All snacks that Ethan will be eating will be supplied by me only. I will most likely do the same as I did with his preschool--keep a variety of snacks on hand at school for the teacher. I will also have the teacher let Ethan get his own snack with his own hands (meaning, his teacher will have to get his container and take lid off for him but then Ethan will do the rest.
Quote:[b]
-Do all the kids wash their hands after lunch?
[/b]
Honestly, I have no idea. I'm quite comfortable with his allergy. The children at his preschool had a hand washing routine but that wasn't put into place because of me. They already had that as their policy just because it helps keep toys and books clean as well as the classroom itself.
Quote:[b]-Do the kids eat in a large cafeteria, and if so, will Ethan be monitored by anyone?[/b]
When Ethan enters First Grade, I will need to re-evaluate a few things as he will be at school all day. I definitely do not want Ethan to be singled out and be treated any differently from the other children. As of now from what I understand, the school has a peanut-free table. The school
also does not serve peanut butter.
Another thing, the grades do not take lunch or recess together. I'm not exactly sure how it's arranged but I do know they don't all eat together.
Ethan has become more and more responsible for his allergy. I know that as he gets older he will be able to take care of his allergy completely. If I would let him, he would be able to carry his own epi-pen while in Kindergarten. However, I think he is too young to be responsible for that. I am completely comfortable knowing that his epi will be in the teacher's desk as well as another one with the nurse.
Quote:[b]Just wondering where you are with it all. It's so overwhelming, and I don't want to rock the boat since my staff seemed so ready to help us, except with making anything formal with 504. [/b]
This is my opinion of it all. Work [b]WITH [/b]the school and teachers, however, don't kiss anyone's a$$. Educate them about the allergy. Volunteer as much as you can--meaning, if you expect the teacher to help you, you need to help her/him. When things are going well--remember to thank them.
Always communicate things clearly. Keeping a daily journal might not be a bad idea for a little while (especially in the beginner as you have a brand new experience with a brand new teacher and she has 20 new faces to remember).
I still am not sure if having a 504 will do anything for me except to give me leverage to sue if anything happens.
So, I have no idea if any of this will help you at all. This is my comfort zone and compared to others on this board it tends to be on the lax side.
Good luck with everything [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 05/28/2004 - 12:36am
synthia's picture
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Joined: 10/05/2002 - 09:00

Well said e-mom![b] With [/b] one of many [b] key words [/b].
Love this site
Synthia
[This message has been edited by synthia (edited May 28, 2004).]

Posted on: Fri, 05/28/2004 - 3:39am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

e-mom, I don't look at having a 504 for leverage to sue. I think the most valuable reason for having it, everyone [b]knows[/b] these precautions, etc, [b]have[/b] to be taken, and that the situation is serious enough to warrant a 504. It also gives the school, principal the power to enforce the plan for staff that isn't doing it, for whatever reason.
Most importantly, the school system knows they can lose federal funding if they don't follow the plan.
You may have a principal that works well with you now, but what if they leave for whatever reason, and the new principal thinks pa is all in the parents head and he doesnt need to take all these precautions?
I feel like it is a safety net for us, even though they work well with us. I know that they can't just decide to stop doing certain things anytime they decide to.

Posted on: Fri, 05/28/2004 - 3:43am
NutlessMOM's picture
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Joined: 09/17/2003 - 09:00

I am sooo happy for you e-mom!!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 05/31/2005 - 2:50am
e-mom's picture
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Joined: 04/23/2000 - 09:00

I just got back from watching my son and his class put on 3 little skits for all of us parents. It was soooo cute. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Afterwards everyone was invited back to the classroom for punch and cookies. Some of the cookies were off limits for Ethan but I was fine with those cookies being there. This is my comfort zone.
I'm happy to say that everything was smooth sailing this year. We will see how things we be next year when he's at school all day. I'll have to figure out what exactly I want him to do for lunch. Obviously, he will bring his own but I have looked over the menu and he actually could have the school lunch every day.
I need to schedule another meeting with the principal. I'm actually looking forward to it, too [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
With a wonderful year of kindergarten behind, us we are looking forward to first grade next year.
Hope that you all have had a good year too!
[This message has been edited by e-mom (edited May 31, 2005).]

Posted on: Tue, 05/31/2005 - 4:28am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by e-mom:
[b]Should I get a 504? If so, why?
What advantages are there to having a 504?
Anyone? [/b]
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001854.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001854.html[/url]

Posted on: Tue, 05/31/2005 - 11:12am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Ahhh yes, I have noticed that thread [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Will keep it in mind in case I need it.

Posted on: Wed, 06/01/2005 - 1:25am
Gail W's picture
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Joined: 12/06/2001 - 09:00

e-mom, I'm glad your school meets your child's needs. That's the bottom-line. I hope that is always your and Ethan's experience. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] This:
Quote:Originally posted by e-mom:
[b]I definitely do not want Ethan to be singled out and be treated any differently from the other children. [/b]
especially struck a chord with me. I wish this for every child.
Quote:Originally posted by e-mom:
This is my opinion of it all. Work [b]WITH [/b]the school and teachers, however, don't kiss anyone's a$$. Educate them about the allergy. Volunteer as much as you can--meaning, if you expect the teacher to help you, you need to help her/him. When things are going well--remember to thank them.
Always communicate things clearly.
Amen. Card carrying member of your opinion, e-mom. I've lived by your words for 6 years: Volunteer, event committee chair, blah, blah, blah. I mean, I don't think I was kissing a$$, and I don't view myself in terms of winning a popularity contest.... but I do consider it a [i]vote of confidence[/i] that the [i]school staff [/i] nominated me for positions and that other [i]parents [/i]elected me to them. Several. (Not to mention the countless hours I've volunteered for jobs at the school).
BUT, it would be a mistake if anyone misconstrued your statement to mean more than what you posted. I know you're not saying this, but it's important to point out that even when a parent DOES cooperate and "work WITH the school" that [i]there can still be problems.[/i]
If a school district isn't doing what they should [b] by law[/b] the [i]parent's behavior is irrelevant.[/i]
A parent can work WITH the school in an exemplary way and the school might still "not get it". Or the school district administration may not provide the protection and education to it's staff (e.g. nurses, teachers). This is my personal experience.
Quote:Originally posted by e-mom:
I still am not sure if having a 504 will do anything for me except to give me leverage to sue if anything happens.
It's unfortunate that parents and schools don't see how Section 504 is an advantage for both the child [i]and the school district.[/i]
[This message has been edited by Gail W (edited June 01, 2005).]

Posted on: Wed, 06/01/2005 - 1:31am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Gail W:
[b] It's unfortunate that parents and schools don't see how Section 504 is an advantage for both the child [i]and the school district.[/i][/b]
Hallelujah. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
It's all about comprehending [i]clearly defined duties[/i] and acting on them.
Why should anyone have to guess, or "try to do their best", when it *should* be delineated beforehand? Why not lay it out in black and white? I mean, it's the simplest and most common form of [i]professional courtesy[/i] I know. No *professional* [b]I[/b] know [i]should[/i] be offended by it. On either side.

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