The unthinkable,....

Posted on: Sun, 08/13/2000 - 2:05am
rilira's picture
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Joined: 11/11/1999 - 09:00

Note; original post on this thread was deleted by office at posters request.

(edited)-

I would have done exactly the same thing you did. I know the cold feel of fear passing through when you realize you forgot the epi-pens. Luckily we were closer to home than you were. We have forgotten them twice once on a local shopping trip and once we realized as we were sitting in our seats halfway through a major league ball game! I will never forget the conversation with my husband- both of us going I thought you were getting them!

I think carrying your epi pens with you 100% of the time is the right balance between being careful and living. In my opinion, this allergy or allergies don't need to hold you back at all as long as you are prepared for the unexpected by having the epi. Nobody plans a reaction, they happen in the most unlikely of places with the most unlikely of circumstances.

I think you did exactly the right thing because it was what was the right decision for you. We all have different comfort levels. (edited) yours (and mine) is to always have the epi's and mkruby's is to not always carry the epi's.

We could debate forever whose opinion is the "more correct" but it doesn't matter. We each do what we feel is the "best" in our own lives.

Linda

Posted on: Sun, 08/13/2000 - 6:30am
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kar
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Joined: 02/05/2000 - 09:00

Hi, I just wanted to give you my support. Throughout the three years of our life with allergies, I've found that my instinct is almost always right. If I'm uncomfortable with a situation, we steer clear, regardless of what others think. I was told that my child would never need the epi. Having it saved his life. I was told that he wouldn't be allergic to touch. He is. Your judgement that day may have saved you and your child from a terrible experience. Way to go, Mom!

Posted on: Sun, 08/13/2000 - 7:00am
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Joined: 05/01/2000 - 09:00

(edited) Having more info helps though, my first reaction was thinking it was crazy to not let a child go to the bathroom because you left the epi behind. To answer your question, I have seen my child go into anaphylaxis and it is scary. I have also seen my child stop breathing from a seizure and also from an asthma attack. I have also seen my child work hard to even breath. I have seen my one son be tested for cancer twice, both of my sons be tested for cf, and have seen many painstaking medical procedures done on my kids. I am not cold hearted or anything like that, I am actually a very warm and caring person, it just pains me to see people beating themselves up on this board and being so afraid of the allergy that they forget to enjoy life and relax a bit. I guess for me though, I have so much to contend with, with the kids, that freaking out about stuff doesn't help my situation, it just makes it worse. Being away from home you definately need your epi, forgetting it doesn't make you a bad mom, it makes you human. I bet you will never forget it again though... [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img](edited)

Posted on: Sun, 08/13/2000 - 8:39am
Noslo's picture
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Joined: 04/25/2000 - 09:00

Everyone wants balance in their lives. Mkruby has had such enormously wonderful advice to offer this board. Know that, Mkruby, and believe that what you say..whether you are 'in a mood' or not, matters! I just want to say "thank you" for adding wisdom to this effort of sharing our lives. This allergy brings out emotions that none of us like sometimes. I will add just one more thing...I too, have forgotten the epi (or asked my husband and son to got to the store and forgot to pass it along with them) but I feel strongly that a Mother does what she can and God (higher power..something much greater than us) watches over us and our children. This is only what I find to be true and it gives me a peace that I cannot achieve on my own. We all bless one another by our own experiences..thank God for our brains, our lives and this internet!

Posted on: Sun, 08/13/2000 - 4:30pm
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Sue
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Joined: 02/13/1999 - 09:00

(edited),
Please don't worry about what others may think is under or over reacting. I can tell you that I have done both when it comes to our daughter. She is peanut and egg allergic.
I am finally trying to not be so hard on myself when others second guess my motives. Go with your gut feeling and do not be so hard on yourself. We are all going to have plenty of times we second guess our actions and motives.
All we can do is the best we can for our situation. If I had been you in your situation I know I would have been a total wreck.
Guess it all boils down to the fact that you did the right thing because she is no worse off from having to wait to go pee and she remained safe.
Please know that a lot of us on this board are stressed and frustrated so sometimes we don't respond as caring as we should, but 99.9 % of the board members have great advice and a very sympathetic ear (when we are not having one of our really bad days [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] )
Sue in Sunny Arizona

Posted on: Sun, 08/13/2000 - 11:41pm
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Joined: 10/08/2006 - 09:00

What about carrying a prescription for an EpiPen in your wallet and that way if you ever forget your EpiPen again, perhaps you can run to the nearest pharmacy and get one.

Posted on: Sun, 08/13/2000 - 11:48pm
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Joined: 06/13/2000 - 09:00

I have an Epi in my purse and it never leaves my purse. And of course, I don't leave the house without the purse. I tend to be absent-minded as I age :-) and that way I know that I will always have an Epi when I leave the house with my son. I INSISTED that the Dr write a prescription for several Epi's so we have a couple at home, a couple at daycare, one at Grammies and the one in the purse.

Posted on: Mon, 08/14/2000 - 5:35am
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Joined: 05/01/2000 - 09:00

Hi (edited)...My kids both tested negative to cf, but I do have one son now that is failure to thrive for the third time and he is going to be going to a specialist..possibly do the growth hormone treatment.
I come from all of this at such a different perspective, that sometimes I forget how I used to be. I did the freaking out thing for a bit too, and need to remember it is what we go through as we learn how to deal with this life threatening circumstances we deal with. Since my son was 6 months old, (now almost 9), I have dealt with major medical problems with all of my kids, my second started at 3 months and my third started at 3 1/2 weeks. I had from July of 1999 until July 2000 basically off from having to deal with complicated health issues, and now I am back in it full swing.
With all that I do contend with, I can't afford to panic anymore, I have to stay in control of the health issues at all times, even when I make a mistake, as my kids are depending on me to come through for them. I am not saying that you don't at all...I am just stating how I have to deal with things and when I read certain posts what angle I am coming at it from...I think understanding my perspective helps understand my post a bit better..but regardless my post was rude and for that I apologize..it was out of my character.

Posted on: Mon, 08/14/2000 - 12:40pm
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Joined: 05/28/2009 - 16:42

Wouldn't it be great if we could pick up an Epi at a pharmacy by showing a Medical Alert bracelet? I wonder if that would be legal and how we could initiate it. That way, if the kid is there we could get an epi anywhere we are!

Posted on: Mon, 08/14/2000 - 12:53pm
mkruby's picture
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Joined: 05/01/2000 - 09:00

That would be great! What I wonder about the script and having one with you if needed, in case you forgot your epi, is...aren't the doctors only licensed in one or two states? And if so, if you went out of state, doesn't that script need to be written by a doc who is licensed in the state you are visiting, therefore making the script useless? Anyone know for sure about that?

Posted on: Mon, 08/14/2000 - 2:40pm
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Joined: 08/07/2000 - 09:00

I am some what new to PA, although my stepson, (don't tell him I used the "step") has been allergic to it his whole life. (he's 16) He had an anaphylaxis attack from peanut oil (we didn't know this when it first started). We gave him Benadryl and he said he was feeling better. He insisted on going for a walk,which we had planned on doing after dinner. Instead of following our gut feelings (mine and my husbands) we went for a walk, trusting he was telling us everything. One and one quarter mile from the car it hit him hard. He was very strong (thank God) and insisted on walking back to the car. That day my husband saw his (my stepsons)guardian angel. He never believed in them before. She let him know everything was going to be o.k. If it would have taken 30 seconds more to get to the ER, my stepson would not have made it. GO WITH YOUR INSTINCTS! Luckily for him and us, things worked out o.k.

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