The mom of the PA kid in Waldoboro

Posted on: Fri, 09/03/2004 - 7:16am
themom's picture
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Joined: 09/03/2004 - 09:00

I am not sure where to start except I have found my self in an amazing battle in my town. My son is the child in question of the BAN at the school. There has been bad press out there and it has not properlly been delt with.
We arrived in Waldoboro last year after moving here from Europe. We are Americans. I walked through the school now in the hot seat last year before school started. I saw how much was a potential site for pb oil, books, games, playground, waterfountains etc. I tried homeschooling. It didn't work. My son needs special ed. If he did not need special ed I would not put him in school. But should I have to feel like my kid does not belong in the public school because of something that we have no power to change is part of him? I knew there would be people upset, but I have a hard time with all the press. I has been on the front pages of the press for the last two weeks here. The school does not allow soda or candy as a rule, but that was not protested. Now I have a hard time going to the store or the post office without hearing jokes or people still upset. We have not gone public with our names because we want our son to be a kid. He knows he is allergic and he knows not to take food from other people, but he is still a kid. I dont want people to see his face when they are discussing this openly and being mean. Does anyone have suggestions about the balance of getting into out and keeping identiity from the general public? OUr names will be out there sooner or later, but I dont want anyone to finger my son. Last year his first week of school a kid tried to put peanutbutter in his mouth. My son did the right thing and went to the teacher and the school did handle that well, but I dont want to face that over and over again. This is my first visit to this site and I wish I had found it earlier.
The Mom

Posted on: Fri, 09/03/2004 - 7:49am
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Joined: 08/29/2004 - 09:00

First of all I have to tell you that I am so completely sorry for my previous actions. I am Lisa T. I have spoken with a friend of yours, JB, and I hope you understand that I was not trying to hurt or harm your son in anyway, I would really like for you to call me. You can block your number if you feel more comfortable doing that.
I have come up with a plan that I have posted here under "THE ASE PROGRAM" I have been waiting for your imput thru JB to let me know whatyou think of it, but now that you are here, you can let me know yourself.
and let me just say, the people here are absolutely terrific. They helped me to understand the peanut allergy a little more and in doing that they helped me to come up with what I think is the solution to the problem.
I called Susan with my proposal and she loves it, as does the superintendant. I plan on presenting it to the school board tuesday night. I was hoping that you could look at it and add anything you might think is appropriate and I could present is as OUR plan.
Keep an open mind about me... I am really not a bad person.
again I am SO SORRY!!!
Lisa T

Posted on: Fri, 09/03/2004 - 8:28am
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Joined: 09/23/2002 - 09:00

Something struck me. (okay, okay, run with it folks............)
My cub is in a specialized instruction program at *a* school in our area. Not *the* school assigned to our address. Anywhooooooooo, just some background. He has an IEP which outlines this [i]accommodation[/i]. He also now has OHI (other health impairment) for several other needs, including "Peanut Allergy and Asthma". We are working on another designation under his IEP, possibly, "Orthopedic Impairment."
I mean, as I didn't need other parents putting their seal of approval on his educational programming, I don't remember his OHI depending on input from anyuone except those [b]designated[/b] to give it.
[i]As with other matters requiring a degree of privacy, qualified assessment and intervention, etc...... and just frankly *my own family's business* , I wouldn't expect it to.[/i]
Trying to imagine how I would feel if another parent decided to show up at my cubs IEP meetings and give their two cents. I mean, I just don't think *it happens*. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
His OHI, by the way, as I understand it, is a designation under his IEP. I could be wrong, and maybe [i]I just don't get it[/i]. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
General Disclaimer: I am not offering advice in any manner or form. Just relaying my own, individual, highly personal, and unique situation.

Posted on: Fri, 09/03/2004 - 8:52am
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by MommaBear:
[b]His OHI, by the way, as I understand it, is a designation under his IEP. I could be wrong, and maybe [i]I just don't get it[/i]. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img][/b]
(I talk to myself alot. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] )
As I understand it, and I could be wrong...........it involves such concepts as [b]Least Restrictive Environment and Free and Appropriate Public Education[/b].
And by the way, and I could be wrong, I don't *remember* anything about "reasonable" being a criteria. That and I have yet to be shown how a Peanut Allergy could possibly change the [i]educational[/i] programming of an entire school. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
But, if anyone else does, feel free to explain.
Anyone?
General Disclaimer: I am not offering advice in any manner or form. Just relaying my own, individual, highly personal, and unique situation.

Posted on: Fri, 09/03/2004 - 8:56am
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Joined: 09/23/2002 - 09:00

[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001477.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001477.html[/url]

Posted on: Fri, 09/03/2004 - 9:04am
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Joined: 09/03/2004 - 09:00

Lisa,
I have read all your posts here, or atleast all that I have found and can really appreciate the time you have put into trying to really learn about this allergy. I have no angry feelings for you, just the opposite, not many people are willing to publicly admit they were wrong and spoke out in anger. I thank you for that and for the time you have put into coming up with what I think is reasonable. I see your plan as being both protective of my son and willing some room for those who just dont feel they can comply or are afraid that they may have sent something in that may contain nuts. The only thing is to make sure the kids are washed properly, good ol' soap and water are just fine so long as they wash long enough. My poor kid had rough hands last year because he washed his hands endlessly last year.
Your support at the board meeting means more than I can say. You have helped take some serious stress off me and my family. Thank you. I never wanted peaches or any pit items banned, in talking with the "group" I had to inform them that he cant eat those items but I do not believe they are dangerous for him to be around. Someone in the group either did not listen or did not understand. There is a long list of things he cant have but may not be dangerous, just a normal allergy. Nuts and seeds and Soy bean protien are things that are dangerous. The other things are cross-related foods that we should avoid.
Does that help?

Posted on: Fri, 09/03/2004 - 9:22am
themom's picture
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Joined: 09/03/2004 - 09:00

Lisa,
In re-reading some of your posts I just wanted to correct some of your info.
My son did go to Miller half the year last year. No food was banned from the lunch plan or in the classroom. I kept him home on the half days the school insisted on serving peanutbutter sandwiches IN THE CLASSROOM because that was just too dangerous. On a day they served trail mix with nuts in it I picked him up normal time, his ear was swolled and red. He had not hit it, not a bug bite, took him to the nurse and we gave him benadryl and it went away, an allergic reaction most likely to the nuts that were in the school. I kept him home all days that nuts were served after that. His teacher was great and fully understood the allergy, but that left him issolated often. The school proposed NUT FREE. FYI

Posted on: Fri, 09/03/2004 - 10:57am
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Joined: 08/29/2004 - 09:00

Quote:Originally posted by themom:
[b] The only thing is to make sure the kids are washed properly, good ol' soap and water are just fine so long as they wash long enough.[/b]
The reason I suggested the wipes was to eliminate the possibility of contamination in the bathrooms, but I know the kindergarten classrooms all have sinks and bathrooms in them. I wonder if some of the other rooms do too?! (I think the little seats would be too small for the 4th 5th and 6th graders lol)
How would you suggest to reword that section? and do you know if prehaps there is more than one bathroom in the school so if the kids do need to wash up in the bathroom, it can be limited to one and your son could use the other?
[img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] Get crackin lady!!! we have to do this before tuesday!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Thanks
Lisa

Posted on: Fri, 09/03/2004 - 11:09am
themom's picture
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Joined: 09/03/2004 - 09:00

It has been suggested that the kids with questionable items clean up in the schools kitchen bathroom. I have to think this through some more and discuss this with a key person to see what they think. Still thinking about lowering the guard to let peanut in is kind of risky. I want to be reasonable but want to be as safe as possible. There will be a closed session between me and the board after the general session. I really do appreciate the effort and work you are doing, not sure if I can co-offer this solution? I need to think a day or so. Problem with wipes is that they could just smear it around some more, the peanutbutter instead of rinsing away......

Posted on: Fri, 09/03/2004 - 11:22am
turlisa's picture
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Joined: 08/29/2004 - 09:00

I understand your fear about letting peanut butter in. Maybe I could add a clause stating that this will be on a trial period. If we cant contain the peanut butter to this room and your son has a reaction the only thing left to do then, would be to completely take peanut butter out of the school.
[This message has been edited by turlisa (edited September 03, 2004).]

Posted on: Fri, 09/03/2004 - 11:26am
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Joined: 08/29/2004 - 09:00

and the wipes.. yeah with such small children using them they would tend to smear rather than clean.
I'll work some more! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
It'll all work out.. you'll see.

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