The first UK trial the anti Ige peanut \'cure\' .

Posted on: Sun, 05/18/2003 - 3:13am
williamsmummy's picture
Offline
Joined: 03/26/2002 - 09:00

William has been offered a place on the first UK trial and I really need to know a little more about it.
I contacted someone from the boards and she gave me loads of info and I am very grateful. ( big, big, thank you!!!!) However, I would love to hear from parents who have children that have been though or are going through this experience.
I will get lots of info from St Marys hospital, but would like to be prepared with the best questions!!!!
I know that the treatment requires the commitment of a trip to the hospital once every two weeks . Then there is the worry of my son spending the whole of his life taking an experimental drug etc.
But the impact on his quality of life could be huge!

thanks,
sarah

Posted on: Mon, 05/19/2003 - 1:12am
austin2001's picture
Offline
Joined: 05/03/2002 - 09:00

Sarah, I wish you and William the best of luck in this trial...You are both so brave! My thoughts and prayers are with you!
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] allison

Posted on: Tue, 05/20/2003 - 11:12am
Danielle's picture
Offline
Joined: 04/08/2003 - 09:00

Wow - how exciting and scary at the same time. I will say a prayer for you and your son. Please keep us posted.
Best of luck!

Posted on: Wed, 05/28/2003 - 8:59am
ajinnj's picture
Offline
Joined: 05/13/2003 - 09:00

it definitely is a HUGE time committment but well worth it. i go every 4 weeks and will be increased to every 2 weeks if and when we move into the next phase, but it really will make a big difference in your son's health. is he enrolling in the xolair study or for in the peanut study? both drugs have helped mhy asthma and food allergies. as far as time is concerned, i bring my homework with me and have actually made friends in the study. good luck with making you decision and keep us updated
allison

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Displaying 1 - 20 of 20
Latest Post by diannabarry578916925 Sun, 10/13/2019 - 7:54pm
Comments: 0
Latest Post by ClydeCance Sat, 10/12/2019 - 10:25pm
Comments: 0
Latest Post by GeorgeGoage Sat, 10/12/2019 - 10:23pm
Comments: 0
Latest Post by ClydeCance Sat, 10/12/2019 - 10:16pm
Comments: 0
Latest Post by Italia38 Tue, 10/08/2019 - 12:19pm
Comments: 3
Latest Post by Italia38 Tue, 10/08/2019 - 12:18pm
Comments: 1
Latest Post by Italia38 Tue, 10/08/2019 - 12:16pm
Comments: 0
Latest Post by penelope Mon, 10/07/2019 - 7:19pm
Comments: 2
Latest Post by penelope Mon, 10/07/2019 - 7:16pm
Comments: 10
Latest Post by penelope Mon, 10/07/2019 - 7:13pm
Comments: 13
Latest Post by penelope Mon, 10/07/2019 - 7:10pm
Comments: 9
Latest Post by mom2two Mon, 09/16/2019 - 1:03pm
Comments: 18
Latest Post by desmond Mon, 09/16/2019 - 1:00pm
Comments: 1
Latest Post by desmond Mon, 09/16/2019 - 12:58pm
Comments: 19
Latest Post by TeddyCan Mon, 09/09/2019 - 4:32pm
Comments: 10
Latest Post by DTurner Mon, 09/09/2019 - 4:31pm
Comments: 5
Latest Post by B.M.18 Mon, 09/09/2019 - 4:30pm
Comments: 3
Latest Post by abolitionist146 Mon, 09/09/2019 - 4:28pm
Comments: 2

More Articles

There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...

Not all oils are created equal. Some oils are high in saturated fats or in trans-fatty acids – not good for general health. Some are partially...

It may never be safe to begin feeding peanut butter to your baby or toddler if you have peanut allergies in your family. If either parent or one...

What is a peanut allergy? It is a reaction that occurs in the body after eating peanuts or peanut...

For those with severe food allergies, flying can be a stressful process. Here are...

More Articles

More Articles

Approximately one out of 13 children under age 18 are allergic to at least one food, though many of them will outgrow their allergy by the age of...

Fact 1: Over a third of food allergy reactions happen after the first known oral...

The reason why some people are affected by allergies while others are not begins in their genes. Allergies are passed down from generation to...

Here’s a tip that might someday save your life, or that of a loved one: two to four times a year, review the proper way to use your epinephrine...

Lactose intolerance is the inability to process lactose, a sugar found in milk, caused by the lack of a needed enzyme. Those with lactose...

Food Allergen Labeling and Consumer Protection Act (FALCPA)

An important part of peanut allergy awareness was enacted on January 1, 2006...

Tomato allergies are very rare. They are a "type 1 allergy," which means a contact allergy. When a person with this type of allergy touches a...

Milk allergies are becoming more common, especially in babies and small children. There is some confusion about what is an allergic reaction and...

Recognizing food allergy in babies or toddlers is not always easy, but there are specific risk factors and signs that parents and other caregivers...

Burlap bags are often used to store and ship coffee beans, potatoes, rice, seeds, nuts, and peanuts. They can be one of the disguised...

People with pollen allergies need to stay away from some foods. If you have allergic rhinitis in the spring or fall, you may not realize that you...

Of course, everyone knows that if you have a peanut allergy that you should avoid peanuts, peanut butter, peanut butter cookies and foods that...

Eating at a nut-free lunch table in school is a safety precaution that causes some students to feel isolated from their peers. Unfortunately,...

Kyle Dine, food allergy advocate, and educator, recently shared some food allergy tips geared specifically for teens. Dine’s tips are worth...

Although allergies affect many people worldwide, there are currently no universal allergy symbols. It is estimated that about 25 percent of...