(The fear) of People not understaning how bad this Peanut allergy is for our kids

Posted on: Sat, 12/06/2003 - 10:50am
synthia's picture
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Joined: 10/05/2002 - 09:00

To night fear has got a hold of me.
After looking back on the last 21/2 years of my dd's life dealing with her allergies,I have become to relize how bad her peanut allergy is.

After a accidently ingestion ,and a contact kiss from her sister, and smelling pb on the liabiary books,and visiting friends house with peanuts in the house and eating possible May contains,and visiting in laws with horses that ate there feed which had peanuts in it,and then the last exposure was at the doctors office.I thought this was strange,but now I get the big picture.

At the doctors office a little boy had come up to dd and was touching her arm and she had pulled away and said don't touch me and the little boy touched her other arm, (now mind you this child LOVES people). I didnot think anything of it(then). I had noticed a redness on both arms but still did not put 2 and 2 together.We left the doctors office at noon by 4:OO dd was wheezing.After trying to figure out what triggered the wheezing it dawned on me (the little boy).

So now I have a different level of fear to deal with,and now my nightmare has begun.

I have 8 months to prepare her for school and to try to get people to understand this thing she has, called the (PEANUT ALLERGY)

I have meet people and childern that really understand this peanut allergy and then I have meet people that don't want to understand,Those people that I have meet that don't want to understand are in places I wish they were not(meaning our childern's schools).
If I could just get thur to them our childerns life depend on them educating themselfs on the severity of this peanut allergy.After all Knowledge is Power right?

I have many eyes in this school that will and want to help dd.I sill am not sure.

I can only hope that the lord guides me to get thur to people on how we can work togeather and save a life.I know this is not going to be a easy road to go down ,but I am willing to go down this road.I cry for my dd tonight.
NOT ONE MORE CHILD LOST TO ALLERGIES.
Thanks for letting me get this off my chest.
Love this site
Synthia

[This message has been edited by synthia (edited December 06, 2003).]

Posted on: Sat, 12/06/2003 - 11:14am
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Joined: 03/14/2003 - 09:00

Synthia, I understand your fears. They were mine a couple months ago. But once things got in motion and ds started school things pulled together. I think the thing that made the biggest diff. is they got a nurse from the hospital to come in and explain anaphylaxis to them and train them with the epi-pen.
At the end of the training a lot of them were very worried that the school wasnt doing enough. That they should ban pb. And all of them took it seriously.
You have to be strong and keep your chin up. You will just have to keep your eye on things at school and see how it goes. My biggest fight if I were you would be for her to have a full time one on one aide that will be with her at ALL times. Fight with all you've got.
If theres anything I can do let me know. I'll be thinking of you. My email is in my profile if you want to talk.
Hang in there!

Posted on: Sat, 12/06/2003 - 1:35pm
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Joined: 12/29/2002 - 09:00

Synthia,
I absolutely freaked out when we left our son at college in September. My DH too. Both of us scared to death. And DS pretty scared himself!
It went well, So far everything is going well.
We did not understand the severity of his PA until he was almost a teenager. All of those years exposed to other kids eating PB at school. He just stayed away from them because he hated the smell. Lucky huh?
Your daughter did the right thing. She told that child to stop touching her. Make sure she knows that. That was a big brave thing for her to do and a big thing for her to realize something was wrong.
As long as she can keep that up and all of those people at your school keep their eyes open, you watch, she'll be fine.
You will be scared and you have the hardest job, not letting her know you are so scared. Just like momma2boys said, keep your chin up!
And use my email any time you need to.
Peggy

Posted on: Sun, 12/07/2003 - 12:53am
synthia's picture
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Joined: 10/05/2002 - 09:00

momma2boys,and Peg541
Thank you very much,there are days like yesterday,my fears get a hold of me and I try not to answer the door when they(the fear)knocks.For some reason I answered the door.
At times I think dd(at 4 1/2 years old) is more aware of her allergies then her mom.I am learning from dd as well as this bb.
Thank you both for your support,and Chris thanks for this site.
Love this site
Synthia

Posted on: Sun, 12/07/2003 - 5:37am
erik's picture
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Joined: 05/15/2001 - 09:00

Hi Synthia,
Education, hard work, planning, caution, etc... these things will help you to succeed. There are many of us here who live normal lives, and managed to pass through childhood/teenagehood (is that a word [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]) and we are fine.. PA may seem overwhelming to you at times, but looking at people here with older kids (Peg541, Claire) and the older people with PA here (Gwen Thornbury, myself, etc) is an inspiration to let you know that it can be done.
I hope we are all able to provide help, support and assistance to you in the future and that we'll be here when you need us for advice, etc. Best wishes [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 12/08/2003 - 12:18pm
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Joined: 05/28/2009 - 16:42

Hi Synthia,
I am so sorry to see your post. I know how you feel - I guess we all do.
I went through the fear thing also when Cam started school this year. In fact, leaving him the first time in the summer program was by far the hardest thing I have ever had to do - I remember sitting in the parking lot for 15 minutes balling like a baby...the thing is, it didn't hit me until I walked out of the doors at school - and it was like I was walking against a hurricane! Prayer is the only thing that got me out of that parking lot that day...it got easier as the days went by. But when he started school in August, it was totally different and the big difference was the education that was given and the comfort I had in knowing that the staff really grasped what I (and the training video/RN) had told them...now I will have to say there was an incident in school on Friday that has made me reconsider the fact that the teachers really "get it" because one of two things have happened- either they never grasped it like I thought and really think I'm so lunatic OR they have gotten lax b/c no reactions have happened - I'm leaning more towards the latter. That's why I feel constant watching and re-education throughout the year is important. Which I will be discussing w/the RN after Christmas break.
My heart goes out to you girl. And your DD's story is just more proof that sometimes our kids instincts are worth noting everytime. Just like a baby/young child spitting out food - alot of times we later find out they were allergic to that particular food.
You know my email addy and if you need it PLEASE use it anytime [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Lana

Posted on: Sat, 12/20/2003 - 12:06am
synthia's picture
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Joined: 10/05/2002 - 09:00

Cam's mom
It is good to hear from you,I sure do miss talking to you,I will E-mail you soon.
DD has had two more exposures sense this post.
There are days I wish it (allergies) would all go away.
momma2boys,Peg541,erik,cam's mom
Thank you for posts,
Love this site [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Synthia

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