thanksgiving er room

Posted on: Sun, 11/28/1999 - 4:18am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

I know this site is primarily for pa, but i know that a lot of the mothers have kids with other allergies also so I thought I would post. I just got back my sons rast test and it was cows milk and eggs (very high) also of course peanuts. My PE told me to continue to give milk until I talked to allergist since he wasnt showing any reaction other than an occational light rash. WELL on Thanksgiving we gave him Feta cheese(which he has had plenty of times) and off to the ER we went. (From experience is it better to drive or to call the ambulance? we tried to drive and had to call for help midway because of vomiting and raspy breath)
Anyway, until we can get to the allergist no dairy or eggs, I used to think life was tough avoiding peanuts, now I don't know what to do, the poor kid can't eat any of his favorites foods(eg mac and cheese, cookies,cakes, yogurt,etc) and of course Im afraid to feed him because I flipped out on thanksgiving and I know I need to react better. Do others with the milk and egg allergy abstain themselves from these products? I don't even want them in the house!! Also the Feta was sheeps milk and the Dr says there is no test for it, so just avoid it!!! (the DR are very relaxed about these things)anyone with the milk allergy I wanted to warn about the sheep milk!!! One more thing, The emt in the ambulance told me to administer the epi pen too soon can really increase the heartrate one such a young child(2 yrs) and yet my PE told me I should have administered it after he vomited? Any suggestions!!!!

Posted on: Sun, 11/28/1999 - 6:13am
dhumphries's picture
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Joined: 02/02/1999 - 09:00

I got the same reply from the emergency room doctor during my son's last allergic episode. I didn't administer the epi because my son wasn't having breathing problems (vomiting and sneezing only), and the emergency room doctor said I did the right thing. However, the allergist on call really let me have it! He said that I should always administer the epi, even if breathing problems aren't present. Food allergies and the doctor's opinions are so confusing sometimes!

Posted on: Sun, 11/28/1999 - 2:48pm
Susan K's picture
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Joined: 08/13/1999 - 09:00

You will soon learn how many foods include milk and eggs. My son drinks soy milk and uses soy products. Be careful of byproducts and learn the names (whey and casein for milk and lecithin for egg are the most commonly used labels). I would buy a food allergy cookbook to learn how to bake and cook. It is overwhelming at first, but you will become comfortable with the idea.
As for the epi-pen, I just posted some info under "which reaction is worse". My allergist said the quicker the pen is used, the faster it can work. Waiting too long and the pen is less effective, having to reverse reactions in multiple organs. There is a difference between severe and violent (especially with hives) vomiting and having the flu type vomiting.
You are welcome to email me for more info. My son is allergic to milk, eggs, wheat, peanuts and lamb. He cannot eat cow's meat because the protein in milk is similar to red meat protein. Good luck!

Posted on: Mon, 11/29/1999 - 1:37am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

susan,
Thanks for the info on the byproducts , It looks like I have purchased some things I can't use (haven't yet anyways because Im too scared).And yes, during my recent shopping I have noticed that many many items contain at least one of his allergens. Do you have a cookbook in particular you can reccommend? Also, do you know of a good cheese substitute? I have all these questions because even though the ER doctor urged us to see an allergist ASAP, my PE is having a hard time getting us in and the next appointment is end of January.
My Email is [email]Scollofamily@prodigy.net[/email] if you prefer to also!
Thank you again

Posted on: Mon, 11/29/1999 - 5:07am
kristene's picture
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Joined: 09/27/1999 - 09:00

I am also a milk and egg allergy mom. My son's allergies are very severe, to the point of being anaphylactic from contact.
I'm not sure what a PE is, is it a pediatrician?
I can't tell you if it is better to drive, or use an ambulance. That would depend on where you live. Where I live, it would be much better to drive. The ambulance is volunteer, it's a tenny town, no traffic, etc.
Did you say how old your son is? Mine is two.
Our house is *almost* milk and egg free. It's just not worth the risk. During the holidays, I do bake with egg and dairy. And I keep a small jar of mayo and a tupperware container with sliced cheese for hamburgers. That's it.
Eli's allegrgist told us to give it early. As soon as we make him spit out the food (if we visualize him eating a no-no), we administer it. Go with what your allergist says. You will hear a lot of nonsense about the epi-pen can cause heart attacks, if you hit an artery you can kill the child, etc. My allergist said the only danger with the epi-pen is, not giving it quickly enough!
I have some great links if you want them. Most of them are at my computer at home. Here is a great one that gives you all the alternate names of milk and egg.
[url="http://users.aol.com/katherinez/kath2.htm"]http://users.aol.com/katherinez/kath2.htm[/url]
I'd also recommend that you join the Food Allergy Network.
[url="http://www.foodallergy.org/"]http://www.foodallergy.org/[/url]
Good luck,
Kristene
[email]kristene@ivillage.com[/email]

Posted on: Mon, 11/29/1999 - 3:24pm
Cheryl's picture
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Joined: 09/08/1999 - 09:00

Very informative. My eight month old son has multiple allergies. The only reason that we discovered this was he had a reaction from "peanuts" at five and a half months old (lick of drumstick after Dad had eaten all the peanuts off). I would not shut up to my doctor until Todd was tested by a pediatric allergist. In hind sight I am very glad. I had been giving him milk, oats, and potatoes - all which tested positive.
The different names for milk and egg on this topic was sure helpful. I am in the same boat as you - do we get rid of milk and eggs completely or what? I think my cupboards will be bare and I am not sure how to explain this to my two older children - 2 and 7 years.
We did have a scare yesterday as Todd picked up some Kraft Dinner after his sister dropped it on the floor and put it in his mouth only before we grabbed him. He got red in the face and a hive on his chest. A good wash in the bath and some Benadryl and things were okay. By the way Todd does not get dopey from Benadryl. He was up really late last nite.
With regards to the ambulance and calling it I spoke with our Ambulance Manager and he said it depends where you live. It would take as long for us to get to town ourselves as for the ambulance to arrive to our house. I think you have to look at where your home is situated as compared to the hospital and the ambulance. Talk with ER staff and Ambulance techs.
Good luck. If you have any more insigth let me know.

Posted on: Tue, 12/07/1999 - 1:36am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

Just a quick update! We saw the allergist and had the skin prick on milk products and eggs. The milk was rather low, and the egg medium reaction. My allergist said as long as he hasn't ever had a reaction to either of them go ahead and continue to feed him the milk and cheese (of course still avoid the sheeps milk and peanuts). I am doing so but am still apprehensive!. As I said before he did test positive on his rast to milk and eggs!!!!. I know a lot of you also have children with the milk and egg allergy, if it isn't severe (shows no signs of reaction) do you go ahead and feed them the milk and eggs products? I don't know if I should follow his advice or get a second opinion!!! He did say he will probably outgrow the allergies to the dairy but not the sheeps milk or peanuts. He also said that the PA is a hot research right now for vaccines and HE THINKS that there will be a cure in 5 to 10 years!!!!!

Posted on: Tue, 12/07/1999 - 2:46am
Donnamarie's picture
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Joined: 11/16/1999 - 09:00

I'm glad to see that you got the results of your allergy tests back. Use your own judgement when feeding milk and eggs to your child; a lot of allergists and pediatricians will offer different advice--but you're the person who is witnessing the reactions (or lack of reactions) 24 hours a day. Trust yourself. My son was allergic to cow's milk, but could eat goat's milk and sheep's milk. Ironically, my daughter never had a problem with goat's or cow's milk--but has had a strong reaction to sheep's milk. Feta cheese can be manufacturered with either cow, goat or sheep's milk, depending on the factory (even though it's traditionally made from goat). For others who are allergic to milk, be forewarned that many soy and rice cheese substitutes do contain casien, which is a milk derivative.

Posted on: Tue, 12/07/1999 - 4:26pm
Susan K's picture
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Joined: 08/13/1999 - 09:00

Personally I would wait to give the child milk and eggs. Even though the allergy is mild, the body cannot outgrow the allergy if it is constantly "fighting" with the food. Does that make sense?
My son's wheat allergy is mild and while it's tempting to give him wheat products, I would rather wait until he outgrows it completely than take the chance of a lifelong allergy.
I know a few adults that had mild allergic reactions to foods as children and now are severely allergic. My understanding is that the body needs complete rest from the food to mature.

Posted on: Wed, 12/08/1999 - 1:23am
Anonymous's picture
Anonymous (not verified)

Hi,
I've been through this too with my son-he was positive for egg on skin prick and later"passed the egg challenge"- He is now off eggs again as CAP RAST levels are higher than 5. His levels for the egg allergy are down more than 10points from last year but are still at 20.1 way to high for John Hopkins allergist to do food challenge- or allow flu shot(egg based). IN childhood chances are best that with complete avoidence that egg allergy might be out-grown. I wish I would have pushed for CAP RAST testing sooner as my son is now 9-See Ricky's story in introductin board. I'm so pleased that since that post he's out grown four food allergies. Please seek second opinion and try to get CAP RAST done on as many items as doctor recommends.
JanB.
------------------

Posted on: Thu, 12/09/1999 - 1:52am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

Jan,
I specifically asked my allergist if he had a better chance to outgrow it with avoidance and he said it didnt matter, Why are there so many different opinions!!!! If I ask for a second opion will my doctors think I only want to hear what I think is the right answer!!. What is the RAST CAP test?

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