Thanks everyone and concerns...

Posted on: Tue, 04/06/1999 - 1:49am
Shan's picture
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Joined: 04/05/1999 - 09:00

Thanks everyone for all the responses. I posted last night and awoke this morning to seven replies! Thanks Noreen, Lynda, Tracy, Lisa, Laura, Christine, and Connie! I did nurse for nine months and never knew to avoid peanuts during pregnancy or nursing. Also, I wish I would have known to wait on giving peanuts until my dd was older. Our ped did not give us an Epipen and really no information. [img]http://client.ibboards.com/peanutallergy/frown.gif[/img] She still has her rash this morning. I really feel this is different from her hives and might be due to her MMR. I really wish her ped could have given me some answers. I did call an allergist today and they said our insurance (HMO) would not cover a RAST, only a skin prick test, but they would give her one at her age, despite what our ped told us. She urged me to continue to push him for a referral. This is really irritating. I hate insurance! He said we would discuss it at her next check up (fifteen months) and I need to worry about her current rash first. I agree with that, but isn't her peanut allergy just as important? I quess I need him to give us an Epipen if he will not refer me. Thanks everyone again! This place is great! Shan

Posted on: Tue, 04/06/1999 - 3:01am
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Jan
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Joined: 01/26/1999 - 09:00

Hi Shan,
I see you found this web site I was telling you about. Its great, I have learned so much. I hope you can get in to see the allergist soon. My son is also allergic to eggs and had the MMR and nothing happened. He is now 16 months old and today he went for more allergy testing, this time doing a skin test. He did fine with it. I don't know why your doctors would tell you she is too young.
I know on the parent soup board you menetioned Walt Disney world heres the number I called 407-824-5967 and I spoke to Brenda Bennett. Good luck with everything and keep in touch.

Posted on: Tue, 04/06/1999 - 4:37am
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Joined: 01/22/1999 - 09:00

Hi Shan,
Just wanted you to know my child had 2 skin prick tests done, one at 14 months and one at 17 months old. She had the kind of prick test were they do 8 pricks simultaneously. It is very quick and both times she wasn't even aware they did it, it didn't bother her at all--she had absoultly no pain and not even itching.
Also, do not ask your ped for an epi-pen--INSIST on it. Peds are reluctant to prescribe them, they prefer the allergist do it. Like everyone else has said, it is very important to see a board certified allergist. Insist the ped refers you an allergist and if he won't, it would be worthwhile for you to go without his referal and pay for it out of your pocket. Good luck!

Posted on: Tue, 04/06/1999 - 4:59am
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Joined: 03/08/1999 - 09:00

Shan: I agree that you should at the very least insist that he prescribe an EpiPen for your daughter. I would also be persistent about the referal. I wonder if you could switch peds, maybe one who is more agreeable to what you want. Afterall, you are the client paying the bill. Lynda [img]http://client.ibboards.com/peanutallergy/smile.gif[/img]

Posted on: Tue, 04/06/1999 - 11:06am
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Joined: 03/13/1999 - 09:00

Shan - I had the same problem with our ped. Our Spencer was hospitalized in Feb 1998 with a strange "rash" that covered him head to toe and because of the openings in the rash he developed strep and then RSV on top of it. Once released, the ped did the RAST test to find out that we were a category IV allergy for both eggs and peanuts. At that time they told us there was nothing they could do except have us avoid those foods. Can you believe that???
Well we did until we found this wed site and Connie recommended that I take Spencer to the allergist. I totally side-stepped the ped (who I figured had a year to help us and didn't) and made an appointment myself.
We had our first visit last week and will meet again on the 15th to get the second round of RAST test back to determine the additional allergies that Spencer may have. When we explained what brought us to his office the doctor just shook his head in disbelief.
I am very lucky because my insurance covered the $100 initial visit. I have to tell you though after reading some of the stories from other parents here I would have sold my soul to get him there. I was truly that scared.
As it turned out I had good reason to be sacred too. Spencer's sister went to an Easter Egg Hunt and when she came back she apparently still had some type of egg protein on her because Spencer immediately turn into hives all over (one of his milder attacks)! I have learned my lesson.
Take Care! You are in my thoughts!
--Kelly--

Posted on: Tue, 04/06/1999 - 11:59am
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Joined: 02/23/1999 - 09:00

Shan:
My ped didn't take my daughter's reaction to peanut butter seriously either. I nursed too and wish I had known not to eat PB and to keep Kelsey away from PB. I thought 15 months was old enough! Luckily our insurance didn't require a referal, and we were able to see an allergist. The skin prick test didn't bother Kelsey at all. It is frustrating to be told that this is a life threatening condition, and then to have the peds not treat it seriously. I hope you are able to switch peds or get to an allergist some way. Make sure to write back and let us know what happens! Julia M

Posted on: Wed, 04/07/1999 - 1:25am
Shan's picture
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Joined: 04/05/1999 - 09:00

Thanks Kelly. I sent you an e-mail but it came back to me. I'll try to resend it later. Shan

Posted on: Wed, 04/07/1999 - 9:52am
Kelly Morse's picture
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Joined: 03/13/1999 - 09:00

Shan - My email is [email]Kmorse9790@AOL.com[/email]. I think I put it wrong when I registered and now I don't know how to fix it! I would love to hear from you. You could also e-mail me at work at [email]morsek@state.mi.us[/email].
Thanks! Kelly

Posted on: Wed, 04/07/1999 - 2:07pm
Lynda's picture
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Joined: 03/08/1999 - 09:00

Kelly....my son Sean is bordering a level 5 for egg and a 3 for peanuts. He had a severe anaphylaxis reaction to egg. It was very very scarey. He again reacted one day because my daughter handed him something after she cracked an egg. From that time forward, we have no eggs in our home and for Easter the 2 older children went to Grandmas to color eggs. I am terrified of him having another reaction to the eggs or peanuts. Lynda

Posted on: Wed, 04/07/1999 - 11:39pm
Anonymous's picture
Anonymous (not verified)

Hi Kelly,
You can fix your e-mail address on the board by clicking "profile" on the top right corner of your screen. You can modify any of your information.
I, too, had written you back some time ago and it was returned. I will try again!
Stay safe!
[This message has been edited by Connie (edited April 08, 1999).]

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