Taking epi belt off

Posted on: Thu, 04/12/2007 - 12:20am
seanmn's picture
Joined: 10/01/2003 - 09:00

My son announced this morning he did not have his belt on him to put on for school. I said where was it. He said "Well, it must have fallen off by my locker." So, we looked all over the house for it, it's not here. We go through the same routine every day. He comes home, takes his belt off and puts it in the same exact place. I guess I was not looking very carefully yesterday.

So, to make a long story short, my mother picked him up to go to school to look for it. We pinned one of our belts on his waist and off he went with grandma. Thank goodness it was exactly where he said it was.

His teacher called me and told me he has taken it off a few times in school and she told him he could not do that.

I don't know if I should punnish him or what to do. What would you do? I told him to tell me if the belt bothers or irritates him, but instead he takes it off. How do your kids deal with their belts? I can imagine it does get annoying at times, especially when he sweats, but I am not sure what exactly I can do about it.


Posted on: Thu, 04/12/2007 - 12:35am
anonymous's picture
Joined: 05/28/2009 - 16:42

How old is your son? And at what age did he start wearing the belt?
I can't really offer any advice as mine does not wear his yet, he is 5 and in SK. I believe next year he will have to being in grade one and going out for recess. However, I know how upsetting this must be too you, but I am not sure punishing him is the answer. I would just really keep trying to explain the importance and maybe rewarding him for keeping it on.
I would be interested in how everyone else with older kids anwswers this and at what age it is appropriate to starting wearing the belt?
[This message has been edited by ccm'smom (edited April 12, 2007).]

Posted on: Thu, 04/12/2007 - 12:38am
seanmn's picture
Joined: 10/01/2003 - 09:00

Ryan is 7 and is in first grade. He has been wearing his belt for 3 years.

Posted on: Thu, 04/12/2007 - 12:39am
Spoedig's picture
Joined: 09/17/2004 - 09:00

I don't have the answer but...
My 4th grader has "forgotten" to wear his epi-belt to school twice this year. One morning he threw it down and slammed out the door.
At least in his case (don't know your son's age) I KNOW he is becoming too aware of being different and wants to minimize this. In 3rd grade he started wearing only shirts that will cover the belt.
I do agree that at times it must be uncomfortable - especially in gym and recess.
I, personally, would not punish him but try to explain how important, etc. I have been looking for a different situation for my son to carry also.
We have an immediate neighbor with a teenage PA/TNA son -- she has home schooled his entire time so he is not physically wearing a belt all day...She told me he "FORGETS" to wear the belt at times when they go out.
He started wearing it at school in 2nd grade.
[This message has been edited by Spoedig (edited April 12, 2007).]

Posted on: Thu, 04/12/2007 - 1:02am
Timsmomct's picture
Joined: 04/07/2007 - 09:00

Please educate me about this belt? DS (almost 6) is not contact or inhalation allergic, just ingestion allergic (hope it stays that way) and I was wondering what the belt is vs. an Epi-Pen Jr.
Thank you!
Timmy- 4-25-01 PA/TNA/Sesame/banana - asthmatic
Jordan Marie 10-4-13 NKA -avoiding peanuts, treenuts and sesame
Avoiding fish/shell fish with both

Posted on: Thu, 04/12/2007 - 1:25am
anonymous's picture
Joined: 05/28/2009 - 16:42

The belt holds the epipen, like a fanny pack.

Posted on: Thu, 04/12/2007 - 1:38am
Timsmomct's picture
Joined: 04/07/2007 - 09:00

Thanks, I put too much thought into what it was. I was picturing some sort of new high tech thing - along the lines of a diabetic's insulin pump that has to be worn at all times.
Since we never had to us Epi on DS (thank goodnes, but after reading some posts here, I probably should have as I mistakened at least one reaction as an asthma attack even though I knew it was triggered by food consumption).

Posted on: Thu, 04/12/2007 - 2:09am
Corvallis Mom's picture
Joined: 05/22/2001 - 09:00

If you look on the boards (living with PA, I think), we have been dealing with this problem with our 7 yo DD over the past eight or nine months, as well.
We have taken the tactic that it is [i]simply unacceptable[/i] behavior, just like not wearing a bicycle helmet or not fastening a seatbelt in the car.
We've also gotten better about mentally checking for them periodically.
She still takes them off once in a while, but each time we scare the pants off of her about it. Fortunately, her allergist has also been incredibly helpful in that respect.
I have also started pointing out to her that in most fatalities, one of the underlying causes is any delay in getting epinephrine. I should point out that DD has known her PA could be fatal in a visceral kind of way for so long that there has never really been a discussion of it needed.... she just knows. I think she came so close with the last reaction that she had an understanding of things that you wouldn't expect in a young child. Hope that makes sense.
If she didn't, this rule about keeping them on all the time would be much much harder to enforce/explain. She also pays attention to the news-- both print and broadcast, so we often can't really shield her from fatalities when they happen.
Once they get old enough to start making these choices for themselves, you have to tell them what the consequences of their actions are. JMO, and one that I know others may disagree with.
Another strategy might be to explain that Dr. So-and-so 'says' that you have to wear them all the time. No cheating. (Sometimes kids at this age listen better if it comes from a secondary authority figure that they don't know as well as Mom and Dad.)

Posted on: Thu, 04/12/2007 - 2:15am
seanmn's picture
Joined: 10/01/2003 - 09:00

Thanks for all your responses. I guess it just makes me worry because he has never done this before. He just turned 7, so now maybe he thinks he is a "big boy" and does not have to wear it as often. I thought of scaring him too, instead of a punnishment. Just telling him just what could happen if he does not have it on him.
I just don't know what to do. Do any of your children wear their's outside their clothes in a belt or pack?

Posted on: Thu, 04/12/2007 - 2:48am
Anonymous's picture
Anonymous (not verified)

Jan, is it the e-belt that your son is wearing? To me, it seems to be the least cumbersome. My son wears his, sometimes under his clothes, sometimes over -- depends on his mood and whether or not he had been teased.
He doesn't take his off, other than for the bathroom, or when climbers are set up at school. He does forget to put it back on though. He doesn't seem to object to it -- he just has *air-head* moments. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Posted on: Thu, 04/12/2007 - 3:01am
seanmn's picture
Joined: 10/01/2003 - 09:00

I don't know what brand it is. It clips around the waist and there is a tube you put your pen in, it's black. I think it's the e-belt.
I don't think I mentioned that he lied about it. He told me it just fell off, but really he took it off. I am guessing this is not the first time it has happened.
I guess I am just scared he will leave it somewhere and then he won't have it when he will really need it.
He has never had a reaction other than his first when he was 16 months old, so maybe he just thinks nothing will happen to him.
Mabye I will just have to put a light cloth around his waist under his shirt where the belt will be and hopefully he won't realize it is there.


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