Taking epi belt off

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My son announced this morning he did not have his belt on him to put on for school. I said where was it. He said "Well, it must have fallen off by my locker." So, we looked all over the house for it, it's not here. We go through the same routine every day. He comes home, takes his belt off and puts it in the same exact place. I guess I was not looking very carefully yesterday.

So, to make a long story short, my mother picked him up to go to school to look for it. We pinned one of our belts on his waist and off he went with grandma. Thank goodness it was exactly where he said it was.

His teacher called me and told me he has taken it off a few times in school and she told him he could not do that.

I don't know if I should punnish him or what to do. What would you do? I told him to tell me if the belt bothers or irritates him, but instead he takes it off. How do your kids deal with their belts? I can imagine it does get annoying at times, especially when he sweats, but I am not sure what exactly I can do about it.

Jan

On Apr 12, 2007

How old is your son? And at what age did he start wearing the belt? I can't really offer any advice as mine does not wear his yet, he is 5 and in SK. I believe next year he will have to being in grade one and going out for recess. However, I know how upsetting this must be too you, but I am not sure punishing him is the answer. I would just really keep trying to explain the importance and maybe rewarding him for keeping it on. I would be interested in how everyone else with older kids anwswers this and at what age it is appropriate to starting wearing the belt?

[This message has been edited by ccm'smom (edited April 12, 2007).]

On Apr 12, 2007

Ryan is 7 and is in first grade. He has been wearing his belt for 3 years.

On Apr 12, 2007

I don't have the answer but...

My 4th grader has "forgotten" to wear his epi-belt to school twice this year. One morning he threw it down and slammed out the door.

At least in his case (don't know your son's age) I KNOW he is becoming too aware of being different and wants to minimize this. In 3rd grade he started wearing only shirts that will cover the belt.

I do agree that at times it must be uncomfortable - especially in gym and recess.

I, personally, would not punish him but try to explain how important, etc. I have been looking for a different situation for my son to carry also.

We have an immediate neighbor with a teenage PA/TNA son -- she has home schooled his entire time so he is not physically wearing a belt all day...She told me he "FORGETS" to wear the belt at times when they go out.

He started wearing it at school in 2nd grade.

[This message has been edited by Spoedig (edited April 12, 2007).]

On Apr 12, 2007

Please educate me about this belt? DS (almost 6) is not contact or inhalation allergic, just ingestion allergic (hope it stays that way) and I was wondering what the belt is vs. an Epi-Pen Jr.

Thank you!

------------------ Kathy Timmy- 4-25-01 PA/TNA/Sesame/banana - asthmatic Jordan Marie 10-4-13 NKA -avoiding peanuts, treenuts and sesame Avoiding fish/shell fish with both

On Apr 12, 2007

The belt holds the epipen, like a fanny pack.

On Apr 12, 2007

Thanks, I put too much thought into what it was. I was picturing some sort of new high tech thing - along the lines of a diabetic's insulin pump that has to be worn at all times.

Since we never had to us Epi on DS (thank goodnes, but after reading some posts here, I probably should have as I mistakened at least one reaction as an asthma attack even though I knew it was triggered by food consumption).

Kathy

On Apr 12, 2007

If you look on the boards (living with PA, I think), we have been dealing with this problem with our 7 yo DD over the past eight or nine months, as well.

We have taken the tactic that it is [i]simply unacceptable[/i] behavior, just like not wearing a bicycle helmet or not fastening a seatbelt in the car.

We've also gotten better about mentally checking for them periodically.

She still takes them off once in a while, but each time we scare the pants off of her about it. Fortunately, her allergist has also been incredibly helpful in that respect.

I have also started pointing out to her that in most fatalities, one of the underlying causes is any delay in getting epinephrine. I should point out that DD has known her PA could be fatal in a visceral kind of way for so long that there has never really been a discussion of it needed.... she just knows. I think she came so close with the last reaction that she had an understanding of things that you wouldn't expect in a young child. Hope that makes sense.

If she didn't, this rule about keeping them on all the time would be much much harder to enforce/explain. She also pays attention to the news-- both print and broadcast, so we often can't really shield her from fatalities when they happen.

Once they get old enough to start making these choices for themselves, you have to tell them what the consequences of their actions are. JMO, and one that I know others may disagree with.

Another strategy might be to explain that Dr. So-and-so 'says' that you have to wear them all the time. No cheating. (Sometimes kids at this age listen better if it comes from a secondary authority figure that they don't know as well as Mom and Dad.)

On Apr 12, 2007

Thanks for all your responses. I guess it just makes me worry because he has never done this before. He just turned 7, so now maybe he thinks he is a "big boy" and does not have to wear it as often. I thought of scaring him too, instead of a punnishment. Just telling him just what could happen if he does not have it on him.

I just don't know what to do. Do any of your children wear their's outside their clothes in a belt or pack?

Jan

On Apr 12, 2007

Jan, is it the e-belt that your son is wearing? To me, it seems to be the least cumbersome. My son wears his, sometimes under his clothes, sometimes over -- depends on his mood and whether or not he had been teased.

He doesn't take his off, other than for the bathroom, or when climbers are set up at school. He does forget to put it back on though. He doesn't seem to object to it -- he just has *air-head* moments. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

On Apr 12, 2007

I don't know what brand it is. It clips around the waist and there is a tube you put your pen in, it's black. I think it's the e-belt.

I don't think I mentioned that he lied about it. He told me it just fell off, but really he took it off. I am guessing this is not the first time it has happened.

I guess I am just scared he will leave it somewhere and then he won't have it when he will really need it.

He has never had a reaction other than his first when he was 16 months old, so maybe he just thinks nothing will happen to him.

Mabye I will just have to put a light cloth around his waist under his shirt where the belt will be and hopefully he won't realize it is there.

Jan

On Apr 12, 2007

Quote:

Originally posted by seanmn: [b]I don't know what brand it is. It clips around the waist and there is a tube you put your pen in, it's black. I think it's the e-belt.

I don't think I mentioned that he lied about it. He told me it just fell off, but really he took it off. I am guessing this is not the first time it has happened.

I guess I am just scared he will leave it somewhere and then he won't have it when he will really need it.

He has never had a reaction other than his first when he was 16 months old, so maybe he just thinks nothing will happen to him.

Mabye I will just have to put a light cloth around his waist under his shirt where the belt will be and hopefully he won't realize it is there.

Jan[/b]

It sounds like you have a couple of things happening... he's decided he'd rather not wear it. He's also become independent enough to lie to you about it and go against your wishes, because he doesn't see any logic to the rule about wearing them all the time.

DD wears her epipens externally because she needs to carry an inhaler, benadryl and two epipens (too bulky for anything but a fanny pack/small messenger bag).

I'd have a fairly 'formal' family meeting with you and DH to talk to him about it.

1. Emphasize that this is a rule like wearing a seatbelt-- not to be broken for comfort or convenience. Being 'big'/responsible means knowing enough to not break the rules, even when it might be easier to do so. I wouldn't spend too much time figuring out 'why' he did it. Like my DD, there probably isn't a great rational reason, and anyway, there is only so much you can do to make it easier. It has to be this way, right? I mean, I don't negotiate 'why' she might forget to put her seatbelt on, either-- but I do make it clear that it is NOT allowed.

2. Tell him what you said above-- that it worries you to think he might not have them when he needs them!!

3. What if someone else found them and accidentally injected a finger?? (This was very meaningful for my own DD, who is extremely empathetic.)

On Apr 12, 2007

Our view is the same as Corvallis Mom's--simply unacceptable not to wear it.

However, I think boys are luckier than girls in this way. The epibelt can be hidden under clohtes much more easily than a lot of the body conscious styles that girls wear.

Virtually no one knows/can tell Ryan wears an epibelt. His teachers/the administrators know, a few friends know, but no one else does. He wears more of the over-sized shirts and unless you are specficially looking for an epi "bulge" of some sort, it is just not evident.

This has really helped us. He doesn't stand out visually as being any different than his friends. And that's a really important thing for kids.

He started wearing his when he was 4 when we would leave the house. It has become such a part of him that he has left it on several times when going to bed. And he sleeps on his stomach! The only time he doesn't like to wear it (and this is fine by us because we're with him at every baseball practice and game) is when he's playing baseball. He doesn't like sliding or batting with the epibelt around his waist.

On Apr 12, 2007

I just MADE my 3 year old put her shoes on and then read this--I guess different ages have their 'thing'

I don't know if this will help, but the fanny pack our DD (6) wears was made special by her nana. My mom has an embroidery machine. She put her name, NO PEANUTS, our emergency numbers, and a picture DD picked out on the top flap. They made it something she is proud of and loved showing her friends. If you don

On Apr 12, 2007

DS hates the e-belt. He doesn't like the way it rubs on his skin under his clothes, or how it looks/fits over them. So we got him a different holder, one that I found the lnk for here, but I don't remember the thread. It can hook onto a belt loop, or go on a lanyard. He usually wears it on a beltloop, but if he doesn't have one, he puts it on a lanyard.

------------------ [url="http://www.the3day.org/boston07/deedaigle"]http://www.the3day.org/boston07/deedaigle[/url]

On Apr 12, 2007

Does anyone make some sort of holster type holder that kids could wear under their pant leg to hold the epipen?

On Apr 12, 2007

(edited)

Regarding wearing the epi in pockets of pants, do you find it uncomfortable at all? I have been thinking of looking for pants/shorts for my 10 year old son but wondered if it would be uncomfortable to fall on, or when playing/running at school.

Any advice?

On Apr 12, 2007

Quote:

Originally posted by Nutforce: [b]Does anyone make some sort of holster type holder that kids could wear under their pant leg to hold the epipen? [/b]

I have never seen one, but I have thought for *years* what a [i]great[/i] idea that would be (I used to date a cop and the ankle holster is what gave me the idea, lol.)

[b](edited)[/b], whenever I wear cargo pants I stick my son's Epi in the pocket - it's very convenient! When dh is with him, he can fit the Epi and a bottle of Benadryl is his cargo pocket [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 13, 2007

I sew clothes and embroider various things and often thought if I had a girl with PA (my girls don't have food allergies though), I'd buy several holsters, cover them with embroidered fabric, and embellish them. Like a fashion statement. Whatever embroidery she would want, whatever crystals, beads, etc.

But as for an epi holster worn under the pants, this would worry me, especially w/Ryan's prior reactions. In the time it would take to get the epi out from under his clothes, he might not be able to get it injected in time. I've seen him go from perfectly healthy to extremely ill in 20 seconds. He would be in no shape to be searching for an epi under his clothes.

Just a thought to throw in there.

I'd consider buying him a holster and embellishing it with embroidered footballs and baseballs, but think he might be getting a little old for that. He's 10 1/2, so a plain holster (when he decides he wants one over the belt) might be just as "cool".

On Apr 13, 2007

My now 7 year old -started wearing his epi-belt outside of the house when he was 4. We have lost it once--he took it off in a mall bathroom. I really think it took us about a year to get to the point that he doesn't have to think about it--and he feels weird without it. His current school uniform requires a tucked in shirt--and he needs to carry his inhaler with him. We have to remind him to take it off for swimming and soccer---It has really become a part of him. People ask him what it is --but he hasn't really made a big deal about it. Before he wore an epi-belt he had a little backpack he always wore--and he was better about remebering it--than we where. Of course I have Epis in my purse/diaper bag and there is an extra epi-belt by the back door for his Dad.

My younger son presently 4-- carries a leapster sling bag--we will move him to an epi-belt later this summer. I know he will be more of a challenge. Personality.

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