Child's Allergy Not Taken Seriously

Posted on: Sun, 05/27/2018 - 3:54am
michelle.michael's picture
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Joined: 05/27/2014 - 10:43

My son has a laundry list of allergies from nuts to shellfish to dogs. He is at severe risk for anaphylactic shock. I feel school administrators do not take this seriously. He does have a 504 plan. However, that seems to isolate him further. Any suggestions out there that might help?

Posted on: Tue, 05/27/2014 - 1:56pm
mom1995's picture
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Joined: 11/09/2004 - 09:00

That is unacceptable. The very purpose of a 504 is to provide EQUAL accessability to everything the same as any other kid. INCLUSION seems to be the word that is forgotton.
The 504 Plan must meet his medical needs AND include him in all activities. Without knowing the paln and withour knowing what they are doing that isolates him it is hard to give advise.
Many of my daughters plans were very specific in our requests. One year a certain teacher decieded she did not want to bother with keeping up with who or what around dd allergy so she would make her sit in what was known as the punishment desk in the cafateria. That went for a two weeks until dd told me. At first the teacher told me it was her lunch room and dd would sit where ever she deemed it neccessary. It took a short walk to the principals office and back with the principal to help that teacher understand she was not in charge of punishing dd for her allergy.
When you live in smaller towns sometimes people try to have power any way they can and unfortunately that is at the exspence of our children.
Give more specifics and I am sure there are many that will answer your call

Posted on: Tue, 06/03/2014 - 4:48am
Miracle_Thomas's picture
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Joined: 09/02/2013 - 18:21

I was going to enroll my son in school until I had a meeting with the school nurse. My son has a life threatening peanut allergy and a long list of other allergies. We had a meeting and we established a 504 Plan.
During our meeting, a young child came into the office very upset. She told the nurse her stomach was aching. The nurse directed her out of the office and did not help the child.
My mind was racing; that could have been my child, having an allergic reaction to nuts; trying to get help.
I immediately went into "Mother Lion" mode and decided that I would continue to sacrifice and homeschool my son because I can't trust the school system to keep him safe. I also shared this incident and my concerns with members from the School Board.
I don't know if homeschool is an option for you. However, you should consider it. I enrolled my son with a wonderful and affordable online curriculum called Time4Learning. It is less than twenty dollars a month. My mother is an educator and she looked the website over and gave it two thumbs up.
Good luck!

Posted on: Tue, 06/03/2014 - 11:21pm
rudy117's picture
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Joined: 01/06/2014 - 19:38

I developed a good relationship with my daughter's school nurse and each individual teacher from 1st to 4th grade. I had great luck that the teachers and school nurse truly cared about my daughter's safety and emotional/social well being. I took an emotional approach. There were times when the allergy was newly diagnosed and I let the school nurse/teachers see my tears when a reaction happened at school or I had a concern. I was very clear about the life-threatening nature of the allergy, clearly stating "my daughter has a life-threatening allergy" and asking how to keep her safe. I also showed my great appreciation when the teachers/nurse went out of their way to keep her safe. The very first school year end I sent flowers to the teacher to let her know we were so thankful. The subsequent teachers were more than happy to be helpful and I cant thank them enough!

Posted on: Sat, 09/20/2014 - 1:08pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

We pulled my son from his school and cyber school him because they couldn't get it right. He was a mess at school didn't trust anyone or anything...Sent him home with M&M's on the 100th day of school. Peanut Candies on Halloween. A mother brought in homemade baked good that no one could tell us if it was safe but they gave it to him anyway. My list goes on and on...It needs to be a culture shift by the school and that usually involves an ambulance at the school. My advice is to take matters into your own hands and don't let the school say they can't help because they can if you make them.

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