Survey/Poll

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Just curious to see what everyone has choosen to have in their lives out of the following items?

1. The Clean Shopper (or similar) 2. The Clean Diner (or similar) 3. Peanut-free signs (at home, school or somewhere else?) 4. Peanut-free stickers 5. Peanut-free gear (which ones? hats, shirts..etc) 6. epi-pen carrier belts (or fanny pack...etc.) 7. Medical Braclet/necklace 8. Sunbutter or Soybutter (or similar) 9. Video tapes, books and stuff, memberships

TIA~Cindy

(Edited to add Cindy's (hehe...other Cindy) idea's for #9)

[This message has been edited by Mom2Sariah (edited June 14, 2004).]

On Jun 14, 2004

I have none of the above.

Although before my ds goes to Kindergarten this Fall I will purchase him a medic alert bracelet.

We tried the Soybutter but the kids didn't really care for it. Didn't hate it, didn't love it.

Starting this Fall ds #2 will be attending a new preschool (to accommodate for location to ds #1 school) and I know that his preschool has peanut free signs (including "may contains" etc.)

On Jun 14, 2004

6. epi-pen carrier belts (or fanny pack...etc.) We have an duo-epi pen pouch (with inhaler room that we use for benadryl)

7. Medical Braclet/necklace (See reaction story -- Will be ordering medic alert bracelet)

8. Sunbutter or Soybutter (or similar) Soynut butter went over well for mths. Then they decided they didnt want it. Their sandwich du jour is now cream cheese and jelly (one soy, one cows milk)

Jason

On Jun 14, 2004

Cindy, not sure if it really depends on the age of your PA child or not, what you end up having out of all of this "gear", but here goes:-

1. The Clean Shopper (or similar)

No. 2. The Clean Diner (or similar)

No.

3. Peanut-free signs (at home, school or somewhere else?)

Yes, for my son's classroom, fifth year in a row now (He's 8-1/2) that I got from another PA.com member and whose link is posted here.

4. Peanut-free stickers

No.

5. Peanut-free gear (which ones? hats, shirts..etc)

I did have, when my son was wee, say 4, "peanut free" pins for him to wear. He absolutely hated them. Not because of what they said or anything, just didn't want a pin stuck to him. I ended up sending the three or four of them I had to other PA.com members that wanted them and thought their children would wear them.

6. epi-pen carrier belts (or fanny pack...etc.)

Yes, since the age of 3-3/4. First a fanny pack for JK and SK. Then a MedicAlert Epi-belt for Grades One and up. I consider it an essential.

7. Medical Braclet/necklace

Same as above.

8. Sunbutter or Soybutter (or similar)

No, feel no need to sub since I hate pb anyway and I did see one of the butters and just didn't feel comfie with how it looked so much like pb (understanding that it is *my* problem and may not be my son's).

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jun 14, 2004

Quote:

Originally posted by Alternative to Mainstream: [b]Cindy, not sure if it really depends on the age of your PA child or not, what you end up having out of all of this "gear", but here goes:-

[/b]

Alternative to Mainstream~Yeah, it does depend on the age of the child but I also hoped that if they were used in the past they'd post even if the child is too big, does not need, etc. anymore.

I've just really been curious to see what other's use. Thanks~Cindy

On Jun 14, 2004

Cindy (sorry, I love typing your *real* name rather than your UserName since it's the same as mine [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ), I think, for me, when my son was first diagnosed, we didn't have the internet and so I didn't know a LOT of different products were out there that we may have thought about getting.

Also factored into my decision was that we lived in a one horse town from the time he was 2-1/2 'til almost 6, so we knew all of the restaurants that we were going into, there was only one grocery store, etc.

At the age of 3-3/4, he was required by his school to wear his Epi-pen, so thus the fanny pack.

Still, in thinking about it now, and seeing what different products are out there (I know one member regularly sends me an e-mail with her different allergy gear in it), I'd still probably do things the same way we've done them. Epi-belt and MedicAlert bracelet.

For me, I'm more concerned with getting the allergy bedding for his bed to help with his asthma and stuff like Hepa filters.

Personally, for me, I wouldn't mind a PA.com t-shirt, but only because it's where I spend all my time! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

There was something else that came to mind that *may* be considered "gear" but it blipped out of my head as fast as it came in.

Oh, video tapes, books and stuff, memberships.

I do have, somewhere in the school system floating around which they cannot find, a home-made tape another member made for me of I believe three FAAN videos.

I'm not a member of Anaphylaxis Canada, but I do receive up-dates from them because I do have my son registered in their registry as being anaphylactic.

The pins I spoke about above, the ones my son didn't care for or want to wear, I actually found those through AAIA, who I was receiving written information from because, for me, it was pre-internet.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jun 14, 2004

Quote:

Originally posted by Mom2Sariah: [b]Just curious to see what everyone has choosen to have in their lives out of the following items?

1. The Clean Shopper (or similar) NO 2. The Clean Diner (or similar) NO 3. Peanut-free signs (at home, school or somewhere else?) YES, AT SCHOOL 4. Peanut-free stickers NO 5. Peanut-free gear (which ones? hats, shirts..etc) NO 6. epi-pen carrier belts (or fanny pack...etc.) YES, CAMERA TYPE BAG 7. Medical Braclet/necklace YES, BRACELET 8. Sunbutter or Soybutter (or similar) YES, SUNBUTTER FOR NON PA SIBLING

TIA~Cindy[/b]

On Jun 14, 2004

Cindy....lol....Sorry I didn't call you by your name...I was afraid I'd use to many "Cindy's" and confuse you or myself. ROFL I to prefer to use names instead of Nicknames.

Thanks for all your info. You are such a great poster to this site. I appreciate all your info I've read!

Cindy

On Jun 14, 2004

1. The Clean Shopper (or similar) NO

2. The Clean Diner (or similar) NO

3. Peanut-free signs (at home, school or somewhere else?) NO - however DS's Sunday School teacher posted his action plan on the classroom wall on her own.

4. Peanut-free stickers NO 5. Peanut-free gear (which ones? hats, shirts..etc) NO

6. epi-pen carrier belts (or fanny pack...etc.) YES - Epimate is great for us!

7. Medical Braclet/necklace YES - had a medic alert bracelet but he was allergic to it. Since it broke we haven't replaced it, but I just found a new product that looks promising...ID on Me...I emailed the company and in the fall their new bracelets will include the medical symbol on the front!! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

8. Sunbutter or Soybutter (or similar) YES - DD outgrew her PA and likes PB, but since we maintain a peanut free household for DS and myself she gets IM Healthy Soybutter (creamy, honey kind) instead. My friends can't tell much, if any, difference between it and real pb.

9. Video tapes, books and stuff, memberships NO

Good survey! Rebekah

edited to change spacing.

[This message has been edited by rebekahc (edited June 14, 2004).]

On Jun 14, 2004

Cindy, it's okay you didn't use my *real* name, we usually don't here, we do go by the UserName because a lot of people don't even have their *real* names anywhere on the board for privacy reasons. I was new to the internet when I found PA.com so I actually used my *real* full name, right out there, Cindy Spowart Cook, when I started posting here. After it blipped out, I chose a different name.

Most people call me ATM which makes me feel like a bank machine, albeit an empty one.

Glad I could help.

I'm just reading through the list now, and not that any thread ever has a definitive answer, but looks like most people answering have the Epi-belts (or something similar) and the MedicAlert bracelet and don't worry about other stuff.

As I say, even if I had to do it over again, with all of the information I now have with products out there, I'd probably still do the same.

I think if you're out and about for different social gatherings and stuff and have a wee one, the PA pins or stickers could be quite helpful.

Oh, what I have purchased before are the BE A PAL stickers to hand out to my son's classmates at the end of the year along with the BE A PAL certificates. I think FAAN probably has a lot of *good* things that are school friendly, but with the experiences I've had the last two years (this one and last year) with my son's schools, I've even gotten away from those.

I also get up-dates from the Canadian Food Inspection Agency which has alerts re foods that have not been labeled properly.

Another website I use often to check out manufactuers, [url="http://www.nuconnexions.com"]www.nuconnexions.com[/url] , a fellow PA.com member, they now have e-mails you can subscribe to as well, but that continues to be on my "to do" list.

I think I'm trying to avoid going to bed because I have to go on ANOTHER field trip tomorrow and I'm not looking forward to it, although I have never been to a mushroom farm before. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jun 14, 2004

No peanuts signs in the house

Medicalert bracelet since she was 3

Epi pen belt holder she has been wearing since she was 4

Alexander the Elephant Video

No Nuts For Me Book

On Jun 15, 2004

1. The Clean Shopper (or similar) No 2. The Clean Diner (or similar) No 3. Peanut-free signs (at home, school or somewhere else?) No 4. Peanut-free stickers No 5. Peanut-free gear (which ones? hats, shirts..etc) Shirt that says "Don't feed me, some foods may be safe are like poison to me", also peanut allergic buttons for church 6. epi-pen carrier belts (or fanny pack...etc.) No 7. Medical Braclet/necklace Yes-MedicAlert bracelet 8. Sunbutter or Soybutter (or similar) Sunbutter 9. Video tapes, books and stuff, memberships Alexander video, Alexander books

------------------ Tina Trevor age 2 -PA Harmony age 1 -KNA It's a BOY!!! due June 24, 2004

On Jun 15, 2004

1. The Clean Shopper (or similar)NO

2. The Clean Diner (or similar) NO

3. Peanut-free signs (at home, school or somewhere else?)NO

4. Peanut-free stickers NO

5. Peanut-free gear (which ones? hats, shirts..etc)NO

6. epi-pen carrier belts (or fanny pack...etc.) Medical bags from FAAN

7. Medical Braclet/necklace Medic alert bracelets

8. Sunbutter or Soybutter (or similar)Tried it kids didn't like it 9. Video tapes, books and stuff, memberships Member of FAAN.. have video, books and activity pages

I do make stuff for the nurse and teacher to have at the school but it isn't portrayed like a sign.

On Jun 15, 2004

1. The Clean Shopper (or similar) NO 2. The Clean Diner (or similar) NO

3. Peanut-free signs (at home, school or somewhere else?) YES 4. Peanut-free stickers NO 5. Peanut-free gear (which ones? hats, shirts..etc) Yes, Shirts 6. epi-pen carrier belts (or fanny pack...etc.) Yes, fanny pack 7. Medical Braclet/necklace Yes 8. Sunbutter or Soybutter (or similar) Yes 9. Video tapes, books and stuff, membe Yes, FAAN and PA, Alexander books and videos

On Jun 15, 2004

1. The Clean Shopper (or similar) NO

2. The Clean Diner (or similar) YES- but not for PA child, just because those restaurant high chairs are NASTY!

3. Peanut-free signs (at home, school or somewhere else?) No

4. Peanut-free stickers NO

5. Peanut-free gear (which ones? hats, shirts..etc) No

6. epi-pen carrier belts (or fanny pack...etc.) No, have in red FAAN bag in diaper bag with Medic Alert tag on outside of bag.

7. Medical Braclet Yes 8. Sunbutter or Soybutter (or similar) Yes, prefer Sunbutter.

9. Allie the allergic elephant.

On Jun 15, 2004

Quote:

Originally posted by Alternative to Mainstream:

Oh, what I have purchased before are the BE A PAL stickers to hand out to my son's classmates at the end of the year along with the BE A PAL certificates. I think FAAN probably has a lot of *good* things [/B]

ATM (hehe...I like that), The stickers just say BE A PAL? I'll have to check into those. Thanks for that info.

Here is my info on what we use/have: 1. The Clean Shopper (yes) 2. The Clean Diner (yes) 3. Peanut-free signs (at home) 4. Peanut-free stickers (Not Yet..but going to make some for vacations and playdates) 6. epi-pen carrier belts (fanny pack or diaper bag....dd is still young and never leaves dh or my side) 7. Medical Braclet (yes) 8. Sunbutter (yes) 9. Books (The Peanut Allergy Answer book & A preschoolers guide to Peanut Allergy)

We bought the Clean Shopper before we found out about the PA because my dd caught pink-eye from a shopping cart. I was glad to have it after I found out dd was extremely contact reactive and after my friends son (same age) caught RSV from a shopping cart. The Clean Diner was a gift from dd's Uncle because we love to eat out.

The Sunbutter is for dh/myself in which we really enjoy.

The sign is on our home door because people keep bringing "death" to our door (lol...that's dh & my joke).

I often feel like I can't be safe enough. Although, I don't feel like I'm paranoid (yet...lol) I am always curious as to what others choose to do.

THanks~Cindy

On Jun 15, 2004

is the clean diner like table toppers? We use table toppers but we would use them even without PA/TNA. We also have soy butter, a video and some books, and I just ordered a bracelet (not medicalert) for dd. We don't have a carrier that is made for epis but I have a first aid kit that I emptied and I use the container (canvas type fabric, zip shut with pockets inside) for 2 epis and a bottle of benadryl-they fit in there perfectly.

------------------ ============== [b]~Gale~[/b]

On Jun 15, 2004

Cindy, yes, the stickers just say BE A PAL. They're really for the friends of your PA child or you can use them to help educate people. Even though I do disagree with some things regarding FAAN, I really believe in their BE A PAL program, which you wouldn't really have to think about until your child enters school.

This year, I am supposed to be handing out BE A PAL certificates to my son's classmates. After the response I got from his principal, I'm not sure right now if I'm going to bother or not.

But when I did do it, when Jesse was wee, in JK and SK, I saw young children beaming with pride. Empowered. Thanked. That they had taken "peanut free" lunches and snacks for the whole year and my soul, someone noticed.

What we handed out "back then" were BE A PAL certificates, BE A PAL stickers, a personal thank-you letter from my DH and I and Alexander the Elephant Who Couldn't Eat Peanuts Colouring Books.

I have seen small faces beaming because they were thanked for their compassion.

In Grade One, I honestly can't remember if we did the certificate or not, but we did send home a personalized thank-you letter along with a box of Smarties to each of my son's classmates.

Last year, I had a horrid year with both Jesse's teacher and the parents of the children in his class so I didn't do anything (yes, I am ashamed [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ).

This year, again, not sure now after the response from the principal what I'm going to do.

I have also sent Jesse's picture in to FAAN for the Kids' Newsletter. It ended up getting printed a couple of years after I sent it in, and only because California Mom is a member of FAAN and receives the newsletter did she even notice that my guy was in it and very graciously sent me a copy.

I was lucky when Jesse was younger, that No Nuts for Me had their website up and running and he could read the book on-line and do a puzzle as well. It was really good too.

I haven't been to the FAAN website in quite some time, for a variety of reasons (one of them being that I'm Canadian so I check out Anaphylaxis Canada first), but I think their website is [url="http://www.faan.org"]www.faan.org[/url] You may like to have a look there.

As far as other products available, and my soul, there are tons of things out there, I used to go to the Calgary Allergy Network, just not clear of their website, run by another PA parent. They have links to an assortment of products (chocolate included).

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jun 15, 2004

gw_mom3: The Clean Diner covers the wooden restaurant highchairs completely. You can find those at [url="http://www.cleanshopper.com/"]http://www.cleanshopper.com/[/url]

ATM: Thanks for the BE A PAL info!

Cindy

Edited to correct web addy.

[This message has been edited by Mom2Sariah (edited June 16, 2004).]

On Jun 15, 2004

Oh, and at one point, when we had glass as part of our front door, I did have a "peanut free" zone sign taped to the door. I got it from the PA.com member's website that is posted here under Links.

We don't get a lot of visitors/company at all so I haven't felt the need since living where I live now. Might need a new one within a couple of months though.

I have always provided the school with posters, but of course this year, with the principal I was dealing with, he chose just the generic "peanut free" classroom posters.

There are really some wonderful posters out there. I believe Jana R. also has some great ones on her website.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jun 16, 2004

1. The Clean Shopper (or similar)NO 2. The Clean Diner (or similar) NO

3. Peanut-free signs (at home, school or somewhere else?)NO

4. Peanut-free stickers - YES for Pre-K and church

5. Peanut-free gear (which ones? hats, shirts..etc)NO

6. epi-pen carrier belts (or fanny pack...etc.) YES

7. Medical Braclet/necklace YES - Medic alert bracelet

8. Sunbutter or Soybutter (or similar)NO - don't want to confuse him on which "butter" is safe, plus I know he wouldn't even try it or like it if he did

9. Video tapes, books and stuff, memberships YES - Member of FAAN - my son loves the kids newsletter that shows pictures of other kids, we have a few children's books and two adult books

On Jun 16, 2004

Peanut-free signs at school - provided by school as well as his picture outside the classroom door and in the staff room so teachers know the allergy children's faces quickly.

He wears a fanny pack ALL THE TIME when not at home. He carries two epipens and his puffer (exercise induced asthma) along with alot of other treasurers I clean out from time to time. Medical alert used to make a "medicine pouch" that was perfect for kids and clearly identified that medicine was inside. Now he just has a plain black one. He is 9 now and because he is getting to be "cool" he covers his pouch by wearing his t-shirts over it.

Yes to a medical alert braclet (with a hockey team logo) although he often doesn't wear it.

No to sunbutter or soybutter but recently he tried soybutter and wants us to buy some.

We have the book, "No Nuts for Me" and I have a couple of memberships.

------------------

On Jun 16, 2004

1. The Clean Shopper (or similar) NO 2. The Clean Diner (or similar) NO 3. Peanut-free signs (at home, school or somewhere else?) NO, but we do have the ingredient listings in bright yellow on our fridge 4. Peanut-free stickers NO 5. Peanut-free gear (which ones? hats, shirts..etc) NO 6. epi-pen carrier belts (or fanny pack...etc.) NO 7. Medical Braclet/necklace YES 8. Sunbutter or Soybutter (or similar) NO 9. Video tapes, books and stuff, memberships YES, Member of FAAN, literature from them, Ally the Allergic Elephant, Alexander's the Elephant First Plane Ride

As my son gets older (he's 2), I do expect him to use more of the items listed.

On Jun 16, 2004

1. The Clean Shopper (or similar) What is this? 2. The Clean Diner (or similar) Or this? 3. Peanut-free signs (at home, school or somewhere else?) No 4. Peanut-free stickers No 5. Peanut-free gear (which ones? hats, shirts..etc) A pin and a T-shirt that he LOVES 6. epi-pen carrier belts (or fanny pack...etc.) Epi-Mate (one for Dad, one for Mom, and one for Mike) 7. Medical Braclet/necklace Yes 8. Sunbutter or Soybutter (or similar) Sunbutter for the non-pa child in the house - PA son doesn't like it. 9. Video tapes, books and stuff, memberships Alexander the Elephant video

------------------ Sherlyn Mom to 4 year old twins Ben & Mike - one PA & the other not. Stay Informed And Peanut Free!

On Jun 17, 2004

I only have the following items:

7. Medical Braclet/necklace 8. Sunbutter or Soybutter (or similar) 9. Video tapes, books and stuff, memberships

We carry his epi pens in my bag or (now)sister's diaper bag. He has a medical braclet that he wears only on a few occasions (like large parties with potluck foods) We have soybutter in our pantry, and have only eaten it a few times. Son doesn't like it, husband thinks it is okay, and I have only had it once. We have the Allie the Allergic Elephant book, and he loves this. We read it often, and I also belong to FAAN and get the kids newsletter for him (although he can't read) I read it to him.

On Jun 17, 2004

I had a thing to wrap on a shopping cart handle since my dd would immediately chew on such a bar(DS s going to be the same) but it had nothing to do with allergies.

DD owns a medic alert bracelet and does not keep it on the few timew I tired. I had her wear it on a field trip and I was there and a few times she had in in her hands, even though she thought it was cool. Not sure what to do about this as I want her to wear one on the bus and to K in another year.

We use soy butter and sunbutter and have a video and book about PA for children. becca

On Jun 17, 2004

1. The Clean Shopper (or similar)NO

2. The Clean Diner (or similar) NO

3. Peanut-free signs (at home, school or somewhere else?) NO

4. Peanut-free stickers NO

5. Peanut-free gear (which ones? hats, shirts..etc) NO

6. epi-pen carrier belts (or fanny pack...etc.)YES - Fanny pack with 2 epi-pens, inhaler and benadryl.

7. Medical Braclet/necklace - YES. Purchased for dd at age 9 when dd started to become more independent and going out with friends.

8. Sunbutter or Soybutter (or similar) NO

9. Video tapes, books and stuff, memberships NO

Maggie

On Jun 17, 2004

1. The Clean Shopper (or similar) [b]No[/b] 2. The Clean Diner (or similar) [b]No[/b] 3. Peanut-free signs (at home, school or somewhere else?) [b]No[/b] 4. Peanut-free stickers [b]No[/b] 5. Peanut-free gear (which ones? hats, shirts..etc) [b]No[/b] 6. epi-pen carrier belts (or fanny pack...etc.) [b]No[/b] 7. Medical Braclet/necklace [b]No, but will be ordering one soon.[/b] 8. Sunbutter or Soybutter (or similar) [b]Dd tried it. Wasn't all that impressed.[/b] 9. Video tapes, books and stuff, memberships [b]Epi Trainer Tape, pamphlets[/b]

[This message has been edited by cyberguy (edited June 18, 2004).]

On Jun 18, 2004

Fanny pack

Medical Braclet

Video tapes, books and stuff, memberships

Love this site Synthia

On Jun 20, 2004

1. The Clean Shopper (or similar)

Never heard of it.

2. The Clean Diner (or similar)

Never heard of it.

3. Peanut-free signs (at home, school or somewhere else?)

My kids' preschool has them outside the classroom.

4. Peanut-free stickers

No.

5. Peanut-free gear (which ones? hats, shirts..etc)

I've thought about getting DS a shirt to wear to picnic-type events, but haven't.

6. epi-pen carrier belts (or fanny pack...etc.)

Yes. We have a carrier belt and a FAAN medicine pouch. Hopefully DS will wear the belt when he starts kindergarten (assuming the school will allow it).

7. Medical Braclet/necklace

DS has a MedicAlert bracelet.

8. Sunbutter or Soybutter (or similar)

No. I don't want DS to confuse them with PB.

9. Video tapes, books and stuff, memberships

We have the "Alexander the Elephant" video, the "No Nuts for Me" book, and the "Peanut Allergy Answer Book." I really, really wish that they sold a "No Nuts for Me" video or DVD. I think that the "No Nuts" book teaches a lot more than the "Alexander" video does.

I also bought "The Peanut Butter Jam." I did not like it, so we haven't read it to DS.

We belonged to FAAN for a while, but quit because we disagreed with some of their policies (mainly telling people that bans are bad, and that peanut oil is safe). It's frustrating trying to explain to people why FAAN has a different comfort level than we do.

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