Hello all, My PA daughter is 7 now and she has abnormally large tonsils and adnoids. We have decided to finally have them removed before she gets any older. My question is has anyone else had any surgeries with their PA child and are there any things I should be looking for. I have told the doctor so far to please make sure nobody has eaten PB before my daughters surgery, it is the first or second in the morning. I am hoping this helps her breathe better, she suffers horribly from sleep apnea and has alot of problems with breathing when seasonal allergies are bothering her. I am also very worried about the whole process being she has alot of problems with being sick, not a fun thing. Just wanted to get a little advice.. Thank you all Cindy
On Oct 29, 2002
momof4, Chris had his removed when he was 3. It was one of the best things i ever did. He seemed to be less sick and the allergy thing was not a problem. I think your handling it right just by letting them know about it.One thing I always do when Chris has any surgery is ask his regular DR. what should be avoided as far a medications they may use on this surgery. He will always get in touch with the surgeon and discuss the case and get back to me. It always works out best because both doctors talk the same lingo and if i am missing something he will aware me of it. My 2 child had hers out and she stopped snoring. she used to wake the house up she snored so loud. I think you will find out that having them removed is great. Make sure you have alot of freeze pops when you get home. However Christopher had no pain at all. My daughter had the pain. Another thing is to bring an extra shirt for yourself. Some kids vomit from anesthesia and that can make for a long day when it sets on you. Good luck to you all. let us know how you make out. claire
On Oct 29, 2002
my son had jaw surgery this past july. he was in the hospital for 3 days. the put a red alert bracelet on his wrist stating he had allergies and they also had a poster outside on his door and behind his bed stating that he was allergic to peanuts and eggs. i did however bring my own food such as pudding, yogurt, and soup. i didn't feel comfortable with the food that came from the caf.
On Oct 29, 2002
I am an ENT nurse and it is not a fun surg. you will not like her doctor for the 10 days after surg. but medication should handle the pain. i would tell the nurse when you check in the day of surg and tell everyone you talk with on the day of the surg (anesthesia, your doctor etc.. to remind them) good luck let us know how she does.
On Oct 30, 2002
Mom of 4,
Been there done that and will be doing it again. lol
My pa child had his tonsils out at 3 years old too. He has had tubes placed in his ears three times now.
My now 3 year old had tubes put into his ears about a 1 to a 1 1/2 years ago.
My now 11 year old has had tubes in his ears twice and will now be going and getting his tonsils out on the 11th of November and getting tubes in his ears also.
Ask to speak to the doctors before hand and to the anesthesia department before hand to go over procedures. If you are worried don't wait until the day of surgery for it.
I spoke with them before my pa sons surgery and stressed all of his allerigies that he has.
I asked the boys doctor why they get so many ear infections, he told me they have "my" bad genes, because they are not around smoke or anything harmful to their ears.
Hope this helps,
ps: I also stressed when we were at the hospital to every single hospital staff personnel that we came in contact with about Drew's allergies. I over saw everything except for the operating room. We made everyone very contientious about the allergies.
[This message has been edited by Renee111064 (edited October 31, 2002).]
On Oct 31, 2002
My DS was in the hospital for a peanut reaction and the next day when they brought his tray for breakfast it was full of dangerous items. He has a nut and egg allergy. On his tray they brought Honey Nut Cheerios (NO KIDDING), a muffin containing (I can only imagine), and scrambled eggs. I couldn't believe it!! My only advice is to really stay on top of what comes from the cafeteria. They brought these things after getting a hand delivered slip stating his allergies!!!
On Oct 31, 2002
Hi Talking with the anesthesia ahead of time is great and I assume that you have already told the doctor about hte peanut allergy, BUT tell everyone about it the day of the surg. because you do not know who be on that day (as far as nurses & maybe even who you get for anesthesia)It will fresh in evdryones mind!!
On Oct 31, 2002
Originally posted by esmom: [b]Hi Talking with the anesthesia ahead of time is great and I assume that you have already told the doctor about the peanut allergy, BUT tell everyone about it the day of the surg. because you do not know who be on that day (as far as nurses & maybe even who you get for anesthesia)It will fresh in everyones mind!! [/b]
On Nov 1, 2002
Thank you all for your replies. I did talk to the staff about the allergies. When I filled out the papers for pre-op I borrowed one of their highlighters and wrote life threatening peanut allergy at top and bottom of the chart and highlighted it all. I called the hospital three times to remind them all of the allergy and called the doctors office to remind them there too. I will again do so on monday and I am sure they will get it, they are dealing with me to top it off [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I also do get to stay with her until she is asleep and will be right beside her before she is awake. So at least that will be nice. I have noted to pack extra clothing for myself too(thank you much for that information). I also talked to them about calling in the pain meds to the pharmacy so we can drive through on the way home, which they have agreed to do for me. I am cutting pictures out of foods she will be allowed to have and putting them on her wall next to her head so she can point to what she wants and also one for the bathroom so she can point. I have bought her a dry erase board and markers so she can have fun writing what she can. Plus she has many gifts from all my family in washington state to open as she feels better and we have several for her too. Plus she gets a new art kit since she loves making things(this will help keep her still). Only thing left is to borrow a baby gate for her door to keep it open and keep the baby out so she doesn't get hurt. I will let you all know how she is. THANK YOU ALL FOR YOUR SUPPORT!! Cindy(saphyre's mommy)
On Nov 8, 2002
Thanks for all the info. My little v is 31/2yo and has to see a ENT to get her tonsils out to promble adnoids to scared to. Never thought of the change of clothes. Hows the little tike doing? synthia
On Nov 10, 2002
Hello all, Saphyre did have the surgery on monday..didn't know that they couldn't use the normal anesthisa since she has egg allergy. They said they had to use something stronger(will find out what again next week, forgot the name) because of hte egg allergy. Anyhow, she was okay for a day, then started throwing up and not drinking or getting any meds in her. Two days later, she was drinking better, and taking some meds. Yesterday she started throwing up again, gave her a suppository which fixed it. She also has been crying alot the last few days in pain...finally willing to take some pain meds. She refused for two days, I didn't feel good about forcing it down her throat like you do with a baby. Since she had been throwing up. Anyhow, she is better today, got both doses of anitbiotics in her. Drinking more and trying to eat finally, but will make her stay home this week also, she is pretty weak. She sure got me scared with all her problems this week. I had to go on a few walks around my neighborhood from being upset she was fighting me on taking meds. Hubby got to stay with the kids while i tried to calm down and unwind. It would take me 45 minutes of begging her to take the meds before she would finally do it. Normally I wouldn't play that game, but worried about forcing her since she gets upset so easy. Thank you all so much for your replies. It really helps knowing people are there. Hope this also helps others if they go through it too.
On Nov 10, 2002
es mom , Thank you for your information. Did you know about the anesthsia(sp) being egg related?? I am curious about that one for future information. Also, as you can see, been very worried about things. I called the doctor many times and was ignored the first 4 hours she was throwing up, then the next day for 9 hours..just needed to know what to do for her. We changed her liquid pain meds to pills i crushed up and added a 1/2 tsp liquid to, and that was alot easier and less meds to drink. cindy
On Nov 11, 2002
The anaesthetic you are concerned about is Propofol (brand name Diprivan here in NZ), it contains egg lecithin, but there are many alternatives that can be used instead. From what I understand the medical grade lecithin is much more refined and hence safer than food grade lecithen although of course is best avoided with egg allergy when possible. This question was recently asked in the NZ allergy forum and it was surprising how many anaesthetists were unaware of this potential problem with Propofol, so its always best to bring this information up for them as Propofol is very commonly used.
[This message has been edited by poppys mummy (edited November 11, 2002).]
On Nov 11, 2002
Interesting...my 7 year old allergic to milk, eggs, and peanuts has had general anesthesia three times without any problem. No one ever mentioned the egg issue. Guess we got lucky or something, the only time in her life she ate egg, she had two bites and I had to use the Epipen. It is good to know this in case she ever has to have anesthesia again.
On Nov 11, 2002
Hi, At least the surg. is behind you. I did not know about the egg allergy and anesthesia.it will be a tough 10 days sometimes it gets easier and sometimes not. I talk to parents everyday(thats my job) do not be ignored ( the squeaky wheel gets the oil) someone is always on call. make sure she drinks tons! Good luck!!!
On Nov 12, 2002
Renee and all:
On top of being PA, my son is also high functioning autistic and has CAPD (central auditory processing dysfunction). He has not had surgery for anything, so I'm not responding on that, however.. here's some advice offered by my son's audiologist:
If your child is having surgery, DO NOT allow the surgeon/anethesiologist to put your child on IV antibiotic CECLOR. Ceclor is an ototoxic antibiotic. Anything in the CECLOR family is ototoxic (means it damages the ears and can cause hearing loss or deafness). Some people are more susceptible to ear damage from drugs than others, but children are especially. In the U.S. ALL surgeries are performed with IV antibiotics being administered. Just BE SURE to insist that it NOT be CECLOR or any related ototoxic drug! You will need to speak with BOTH the surgeon AND the anesthesiologist.
CAPD is NOT a loss of hearing specifically. It is a disorder in which the actual pure tone hearing is usually uneffected, however, the way the brain and ears interpret information is vastly different than that in normal hearing. It can be helped (not completely cured, mind you, but definitely improved) through AIT (Auditory Integration Training).
My son could hear, however he could not differentiate sounds and also had hypersensitive hearing (would cover his ears and scream at sounds he thought were loud, but weren't for anyone else). For example: If the cat was on one side of the room playing with an aluminum ball or piece of paper and I walked in and said, "Hi, Gaelen" he would not hear me until I'd said it four or five times and was yelling. I thought for the longest time he was ignoring me or his hearing was bad, but he kept passing the "pure tone" hearing tests. In school, he was CONSTANTLY distracted and the doctors thought he was ADD (NOT!). It's kind of like.. lets see... your at a bar and the music is loud and all these people are talking and your friend is yelling in your ear, but no matter how hard you try, everything comes in at the same level and you simply can't differentiate sounds. That's kind of what my son was going through.
Things have VASTLY improved since AIT, although he can never wear headphones again (they damage the ocilles in the ears and destroy anyones 400mgh hearing range, so STOP if you do it!) and I always have to ask "is this an ototoxic drug?" anytime my son is prescribed anything.
But, hey! I read labels to everything now with two PA kids. The pharmacist has both "no ototoxic drugs, no peanut" warnings on file for him. It's not like adding that to the list is going to change anything about my life! Or yours!
So.. before surgery just say, "NO OTOTOXIC DRUGS!"
Good luck. Having tonsils out isn't so bad. I've lived without mine for 27 years now! ~Melanie
On Nov 12, 2002
Thank you for the heads up on Ceclor.
My children never ever had it. THank goodness.
On Nov 13, 2002
I would check with a phamacist or a doctor re: the ceclor being ototoxic. I am not sure if that is correct. There are several antibiotics that are but I do not think that is one of them. I do not know everything, but I would hate to have the wrong infomation sent around. I would just check.
On Nov 13, 2002
I too have never heard of ceclor as being ototoxic and my daughter has been on it for about 18 months now continuosly (she has kidney reflux). I will certainly check it out though.
On Nov 13, 2002
If you check out this weblink, it gives some of the drugs which are listed as ototoxic. However, the sheet I was given by our audiologist who did my son's AIT training distinctly said CECLOR, as well. This list does not include it.
This is the blub of importance and effects all of us, especially since Benadryl is also on this list:
Some medications have ototoxic side-effects that may result in auditory hypersensitivity and/or other auditory system problems such as tinnitus and vestibular dysfunction. Dr. Guy Berard cautions against the use of antibiotics in the aminoglycocide family, including erythromycin, gentamicin, garamycin, neomycin, tobramycin, etc. Other medications with known ototoxic side effects include: Advil, aspirin (salicyclates), Benadryl, Beta blockers, Desipramine HCI (Norpramin), Empirin, Imipramine (Tofranil), Motrin (ibuprofen), Naltrexone (Trexan), Sel-dane, Tavist, and Tegretol. Author Elaine Suss reports in her book, When the Hearing Becomes Hard, that diuretics are also known for ototoxicity and must be used with caution.
~I have put a call in to the audiologist to get information supporting the original document she gave us stating Ceclor was ototoxic and will let you know.
On Nov 20, 2002
momof4 Hay little v goes tomorrow to get her tonsils out and adnoids,and scrape inside her nose to she if something is growing.Icant thank you anough for raising this thread on tonsis,abot the drug to knock her out the one that as peanut oil they wont use it.My dh made signs about pa and gave one to the surgen,going to pass them out at the hospital and post them on her bed as well as the door.dh said he will put the signs on this sight as well as faan jus incase any one wants to use them.Little a came down with a 103.4 fever today.dad gets to take him to the doc tomorrow Lets see whats up with this child.
Thanks to All the info is great Love this site Synthia :}