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Posted on: Mon, 04/26/2004 - 5:28am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Just to add... at the FAAN conference Dr. Wesley Bucks from Duke Univ stated:
You must RESPECT the allergy.. you cannot live in fear of it! Be prepared and live your life!

Posted on: Mon, 04/26/2004 - 6:46am
smack's picture
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Joined: 11/14/2001 - 09:00

You know when I first read this thread, my response after reading e-moms reply was [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
and not because I thought it was funny mean, because it's what I think sometimes but would never say(in fear of being stomped upon).
I have read threads that talk about their kids having their own keyboards at school, not being allowed to use fountains, making all the kids in the class wipe their hands after lunch...things that I still haven't ever done nor will do for that matter.
So, some may be a tad paranoid to me as well
but at the end of the day
I'm glad I keep my comments to myself but I'm glad that e-mom has the guts to offer a perspective that is shared by some.

Posted on: Mon, 04/26/2004 - 6:55am
Kim M's picture
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Joined: 06/09/2001 - 09:00

Perhaps you should read CVRTB's story about how her son ended up in the hospital with a reaction from a contaminated keyboard. Just because there are precautions others chose to take that you don't doesn't mean they are irrational or unreasonable.
[This message has been edited by Kim M (edited April 26, 2004).]
[This message has been edited by Kim M (edited April 26, 2004).]

Posted on: Mon, 04/26/2004 - 7:24am
Anonymous's picture
Anonymous (not verified)

smack, the keyboard *issue*, yes, well. Jesse actually attended school and used the computer keyboards and mouse there for what, almost four years? Nothing ever happened.
Then I read, as Kim M. posted above, Valerie's post about her son having a reaction to residue on a keyboard. I know that it was after Jesse had had his anaphylactic reaction to residue at school last year, so I was suffering from what I will readily admit was post traumatic stress syndrome of the PA kind because his reaction was not something I could control in any way whatsoever.
So, when Valerie posted her story, I thought, okay, perhaps it is something I could mention to the principal, who I did get along well with.
She immediately, and interestingly enough, without looking at me like I was being a paranoid over-reacting Mother, got a keyboard and mouse for Jesse. Immediately.
Since Jess switched schools this year, she even had it forwarded to the new school for him. What a cool woman. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]
I remember when I first read the To-day's Parent article re PA and how the child with their own keyboard/mouse was presented. As though the parents were extremists. There were differing "comfort zones" presented in the article. This was before I had the internet and PA.com.
It was something that was kinda noted in the back of my head that I *may* want to follow-up with Jesse one day with regard to. Not an immediate "to do" but something in the back of my mind.
I didn't care for how the parents were presented as extremists - they obviously had their reasons for wanting their child, at that time, to have her own keyboard/mouse.
That's why I made the decision last year to "reduce the risk" to Jesse, in a school where he had already had a reaction to residue, after I read Valerie's thread here.
Drinking fountains. Again. Jesse managed to survive JK and SK I believe drinking from water fountains. When another PA.com member wrote up Jesse's written school plan for me, it had the no drinking fountain clause in it. She used it for her child. To me, and only because of Jesse's reaction history (and this would have been previous to the one at school last year), it was another lightbulb moment, if you will, and I thought, okay, makes sense.
As I've posted here, I don't wipe things down when we're out. We just got home from riding public transit and I never think twice about getting on the bus and what peanut enemy may be awaiting us. We also just went into the grocery store to pick up a couple of things, and again, I don't wipe the grocery cart down.
But, I will never question or comment on those PA parents who do choose to do that because, as I posted above, with both the examples I gave (katiee's squirrels with peanuts in the backyard thread and Danielle's current thread re conditioner), it is something that I need, and only personally, to have in the back of my head "just in case".
There may come a day that yes, Jesse does have a reaction by touching a grocery cart. Then, obviously, I have to re-think what I'm doing.
Also, I think a LOT of the parents that are doing things that we may consider "extreme" are PA parents whose children haven't even had a reaction but parents who are trying to prevent a reaction and give their child that 20% chance.
Had I found PA.com before Jesse had his first anaphylactic reaction, I honest to God can't say how my "comfort zone" would be different than it is now. Had I not blown his 20% chance of outgrowing his allergy by my ignorance and his Father's denial, our life *might* be very different than it is now.
I do think that my comfort zone is fairly tight although I also recognize, and only through posting here, that there are some areas that I *could* tighten up on and really, I'd only be tightening them up if Jesse did have a reaction. Isn't that kinda a sad statement for me to make?
I remember when I read katiee's thread about the peanuts in the backyard and I honestly did think, okay, is this something I have to worry about? At the time, for whatever reason(s), it wasn't. A year or so later, it was.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Mon, 04/26/2004 - 7:42am
smack's picture
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Joined: 11/14/2001 - 09:00

Where does one stop or draw the line to this allergy. What happens to the allergic child when every reaction you read about on these boards, you think can happen to your child.
So, you put every safeguard in place possible?
How are these children coping?
If everyone accomodates their children's allergy so they don't feel left out or if they're always going out of their way to make them super sonic safe....how will these children ever expect any different?
I would rather my child be used to being left out at times so that when someone goes the extra mile of including him, he actually appreciates it.

Posted on: Mon, 04/26/2004 - 8:11am
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by smack:
[b]So, you put every safeguard in place possible?.........I would rather my child be used to being left out at times so that when someone goes the extra mile of including him, he actually appreciates it.
[/b]
Hi Smack,
You don't need to put every single safeguard into place - as a PA person you don't need to be left out of anything. As logn as you are careful and alert, most activities should be an option (with a few exceptions such as Thai restaurants).
Growing up, I was never left out of anything - I didn't even have a peanut-free classroom... and I was safe. Maybe I do occasionally get left out not beign able to eat baked goods in restaurants, but as you say, when I hit a restaurant where baked goods are safe, I really appreciate it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 04/26/2004 - 8:20am
Kim M's picture
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Joined: 06/09/2001 - 09:00

smack, you don't have to implement every safeguard that you hear of. But just because you don't and someone else does, doesn't make them wrong, or stupid, or overprotective, or paranoid.
They're called comfort zones people!
[This message has been edited by Kim M (edited April 26, 2004).]

Posted on: Mon, 04/26/2004 - 8:38am
Mama S's picture
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Joined: 01/28/2004 - 09:00

Quote:Originally posted by Kim M:
[b]They're called comfort zones people![/b]
Aaahhh...someone who understands. I love it! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Mon, 04/26/2004 - 8:53am
Anonymous's picture
Anonymous (not verified)

I actually think my son is coping just fine. Can he sometimes be anxious about his allergy? Certainly. Is there something wrong with that? I actually don't think so.
I have migraines, as I've posted about here.
At times, yes, I get anxious about my migraines. And he**, they're not even life threatening.
I think my son is coping quite well. I can't even imagine having a life threatening food allergy.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 04/26/2004 - 9:09am
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by Alternative to Mainstream:
[b]I think my son is coping quite well. I can't even imagine having a life threatening food allergy.[/b]
Hi Cindy,
Your son will be fine. A life threatening food allergy is not difficult to manage once you have several years of experience and know what you're doing. I can't imagine life without it.
(since I have had it all my life)

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