sons pa

Posted on: Sat, 03/02/2002 - 4:31am
sherry healy's picture
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Joined: 03/02/2002 - 09:00

hi my name is sherry healy, and i have two sons, sean 4 years old and quinn 2 years old. sean is anaphlactic to peanuts. we almost lost sean a year ago due to his severe allergy. he mistakinly got his hands on a sample of peanut butter custard at the mall. is was horrible, but i'm glad her is here today. recently he was diagnosed with eczema, and seasonal allergies and now takes zyrtec, and nasonex. for his eczema we use cortaid when he has flare ups and bathe him with cetaphol and use aquaphor for moisturizer. i also changed the soap we use to a non allergen product. when he was diagnosed with his allergy, i never dreamed so much more would follow concerning different allergies. i feel really ad for him, and wish i could take it away, but i can not and i'm trying very hard to deal myself with all that has happened these past 4 years. sean was diagnosed at 2 years old after having 3 reactions, yes, his pediatrician believed that testing him at a young age would be inconclusive. i now know that is totally incorrect. pediatricians are definately uneducated when it comes to this allergy, and i wish someone would help out with mis diagnosing or not diagnosing such a severe allergy. i actually work with the pediatrician's office now, and i'm actually sharing my experiences with them. this morning a call came in and it was a very frantic mom calling to say she just gave her 1 1/2 year old peanut but, and the child reacted immediately--my first response was get him benadryl now and i will transfer you to the nurse. after the call i asked the nurse what she told her, and she replied "well the mother was frantic, and i told her to calm down that is wasn't that big of a deal," and i almost lost it. first of all i said to her," it is a big deal, and the mom should be very concerned." i continued to explain my son allergy to her, and she called back the mom to be a little more understanding and patient with her and her concers. so see, how uneducated the medical profession can be concerning pa. oh well, i hope i helped this mother out in away with just getting someone to understand what just happened. i hope this doesn't turn out to be to long, but i wanted to give some history and introduce myself and of course my precious son, sean. thank you.

Posted on: Sat, 03/02/2002 - 1:07pm
Jandy's picture
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Joined: 05/21/2001 - 09:00

Hi Sherry,
Welcome to the boards. Your son and mine have lots in commen re eczema, allergic rinitis, food allergy(ies) My son is 11 has asthma, but it is mild usually. You will learn much here and it's a great place to be able to ask questions express concerns, fears and finding "comfort zone".
Take Care,
Jandy

Posted on: Mon, 03/04/2002 - 4:59am
sherry healy's picture
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Joined: 03/02/2002 - 09:00

thanks jandy for your welcoming responce. when was your son diagnosed with his allergies, and when was he diagnosed with asthma. i was told that my son will more than likely develop asthma too. she told me that it is rare for a child with severe peanut allergies not to have asthma. we hope he does not develop it but with everything else developing i'm not ruling out the possibilities. thanks again and look forward to staying in touch with this website, i'm really learning and enjoying most of the boards.

Posted on: Mon, 03/04/2002 - 10:01am
Jandy's picture
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Joined: 05/21/2001 - 09:00

Hi Sherry,
For my son they all happened very early in his life- took awhile for Drs. to tell us what everything is. As newborn- severe eczema- so much so that Dr. said to just breast feed- wait on foods- however he had many times when we knew it was something he was reacting to from breast milk- so I went on food elim diet- but at 8 months eventually had to stop and start him on non-milk, non-soy, formula.
Asthma started as newborn too- Drs finally saw it and gave meds at 9 months. We intro foods very slowly- never had lots of foods. Did some food elim. until 3 1/2 when he got skin testing- lots of high results, more skin testing at 6 follow by CAP RASTS blood work- finally got EiPen after results show off the charts.- before this he was treated with Prelone for his reactions- we took him in for nighttime care many times.
Last month was first minor reaction without eating the food (PA/TN open in home we visited) So now we request no nuts at famly events. Last event went well- but he picked up cold as has fever now of 102. I hope this is not the flu as he can't get flu shot re egg allergy. He's only gotten the flu once before in the past 5 years. I'll be home with him tomorrow. His eczema is considered severe but has greatly improved since Protopic used now for a year. He's on same nose spray as your child but he doesn't always remember to use it.
Take Care,
Jandy

Posted on: Tue, 03/05/2002 - 4:54am
sherry healy's picture
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Joined: 03/02/2002 - 09:00

wow, you really have your share, too. sean's first pa reaction was when he was 1 year old after eatinga tiny bite of nabisco ritz cracker w/peanut butter. he did not react right away it took about an hour, but when he did react, oh my god, he blew up like a balloon, hive all over and eyes so swollen that his eyes were completely closed. we gave him benadryl and he was fine in an hour. the 2nd reaction wasn't as severe, and we believe it was from a bakery cake he ate, his eyes got swollen and we gave him benadryl and he was fine within an hour. the 3rd reaction was a scary one because we did not know it was a reaction. it was xmas night, and he was fine until i put him to bed, he called screaming, and when i got to his room he was throwing up all over, but no facial or body reactions like previous times, so i cleaned him up and his room and put him back to bed, no sooner i got back downstairs and he was screaming for us, he again was throwing up. we ended up putting him in our bed and i gave him sudafed and motrin because i thought he came down with the virus. he finally fell asleep, and we put him back in his bed. the next morning he called me, and when i got to his room, he was swollen around the eyes so much that one eye was completely closed. at that moment we knew he had a reaction to a nut. since there were so many desserts the night before we have know idea what he had.
again we gave him benadryl and the symptoms went away. he was two years old at the time, and the finally tested him for peanuts/tree nuts and found he is deadly allergic to peanuts. we were given the epipen and some real strong advise to keep him away from all nuts and peanuts. unfortunately, we had our most deadly reaction last january, and almost lost sean. he tried a sample of custard thinking it was vanilla, turns out it was peanut butter custard. immediately his throat closed up, he started throwing up, hives immediately appeared all over his body and to touch him he was red hot, i used the epipen and got him to the emergency room, and at that time he was a mess, but everything turned out ok-thank god, we stayed over night. sean was just diagnosed with eczema, seasonal allergies and of course the peanut allergy is still the same. it's a scary allergy and sometimes very hard to deal with. he also is starting to get hives once in while and we really do not know what that is from, but the allergist told me that he is so very allergic to peanuts that his histamines are working in overdrive and most likely just the smell or to be touched by the allergen will affect him. so, he is only getting worse with this dreadful allergy and there is so much to be learned about it, but we are doing pretty good, just coming on line like this helps. venting is the best medicine for me. thanks for sharing your story and responding to mine. sherry.

Posted on: Tue, 03/05/2002 - 12:50pm
Jandy's picture
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Joined: 05/21/2001 - 09:00

Sherry,
Glad you acted quickly when EpiPen was needed and the son is OK-ie that last reaction.
My DS last major reaction was when we were at the beach just before he turned six. We didn't have EpiPen prescribed then and weren't concerned about egg cross- contamination as he'd passed a egg challenge in a local doctors office.(He really is still egg allergic) For days his skin was affected(hard to discribe almost marroon color small spots of"normal skin", mild asthma, feeling terrible. Some vomiting. No swelling. Asthma flared. I treated with Prelone and Albuteral as doctor had done the time before thinking skin prob. was part of severe eczema flare and never having been given clear info on major reactions. I almost called 911 back then. Son finally improved. When back home I made sure that I demanded availability of EpiPen from doctor- to this day I'll never know for sure what food he reacted to as he had tiny bite of hotdog and bun. (egg, white potato, peanut, shellfish, chicken was the list we were tring to avoid back then.) I'm so glad that he can have white potato, chicken, oranges, soy now. And that wheat is OK as well as dairy.
Well, I must stop now as SD is in bed and hopefully will sleep through the night without fever shoting back to 103. He does have the flu and has been a good patient today. Tomorrow I'm going to try to get lotions on him for skin- let it slide tonight as would feel too cold with fever.
-today was liquids- fever reducing med's and asthma preventive med. and Benadyrl.
Again, I'm glad you acted quickly with your son. It seem like I'm prepared if I need to use EiPen just hope I can act quickly enough if called upon.
Take Care,
Jandy

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