Son just diagnosed, new to this site.

Posted on: Mon, 06/04/2001 - 5:48am
anonymous's picture
Joined: 05/28/2009 - 16:42

pHi,Just yesterday our son was diagnosed with a PA. We found out hard way, after a violent reaction to a few bits of one Ritz cracker in which I scraped off just about all of the peanut butter. He seemed to enjoy it but very quickly Symptoms started, swollen tongue and lips hives, and rash,vommiting violently, and a raspy breath. I have never been so scared. He recieved quick treatment, the doctors stated he could have died from the anaphylactic shock. Now worried with ??'s/p

Posted on: Mon, 06/04/2001 - 7:51am
e-mom's picture
Joined: 04/23/2000 - 09:00

Welcome Evan's Dad!! I'm sorry about your little one. I hope that he is ok now.
You will find that this website will provide you with many answers to your questions. I suggest to do a search before posting, though.
At first this allergy is very overwhelming (at least it was for me) but after a short while you will become to get comfortable with it. The best thing that I can recommend to you is to completely educate yourself as well as others about this allergy.
Everyone is here for support and information. If you need help with anything (i.e., using the search feature), please let me know.

Posted on: Mon, 06/04/2001 - 8:01am
Onejuju's picture
Joined: 04/02/2000 - 09:00

Welcome Evan's Dad! I'm sure you'll find lots and lots of answers here. We have know that our daughter (now 2 1/2) is PA for a about a year now. We have two older kids, so adjusting to NO PB&Js was real fun... lol. Things will get easier, and the support on this board will help alot! Hang in there with us [img][/img] ....... How old is Evan?

Posted on: Mon, 06/04/2001 - 9:04am
katiee's picture
Joined: 05/09/2001 - 09:00

Hi an welcome Evan's dad! I'm sorry to hear your son had a bad reaction, in reading your post it was like reading about my son Wade's first reaction at 18 months (he's now 3). It is so overwhelming at first, but things do get better. You've found a great place for support and advice.
I noticed that the doctor who treated your son advised you of the severity of the allergy. I'm hoping that he also gave you a prescription for epi-pens (injectable epinephrine) which can buy you valuable time in the event of accidental exposure to peanuts. If not, you need to get one, it can save you son's life.
If you get the chance, a visit to the Food Allergy Network and Calgary Allergy Network sites would be well worth it. Both are great sources of information.
Hope this helps a little.
Katiee (Wade's mom)

Posted on: Mon, 06/04/2001 - 4:05pm
MattsMom's picture
Joined: 09/17/2000 - 09:00

Welcome to the boards! I hope Evan is feeling much better now. I'm sure he gave Dad QUITE a scare! My son's worst reaction to date (and hopefully for all time) involved swelling of the face and hands, itchy, watery eyes, runny nose, and sneezing. That was his 2nd reaction. His first was sever swelling of the face, which was actually scarier for me than the 2nd at the time. That has everything to do with the fact that I had NO idea he was having an anaphylactic reaction the 2nd time around, and also because I got the antihistamines in him within maybe 2min of exposure (as opposed to about 15min the first time), so the swelling never progressed to the scary point. Looking back, though, the 2nd reaction is the one that gives me the willies thinking about it, since I know what "anaphylactic" means now.
I do hope you have a prescription for some EpipenJrs! We have a handful of them. I like to keep them all over the place. =) I am SO glad you had a dr give you the right information and quickly! We declared our son allergic to peanuts on our own at 6mo, and made it "without a doubt" at 10mo, but our dr never said word one about it, other than to say "no more pb+j sandwhichs for him, then, huh?". It wasn't until stumbling across this site last Oct that we realized what we were dealing with and just how lucky we had been for the last year and a half. We switched drs at that point, and BOY have I ever been glad since! =)
The initial couple of months after learning about PA is the hardest, I think. It's all just so overwhelming and terrifying!! But once you really start figuring things out and you get into a groove that keeps you reaction free, it gets easier. That's not to say you let your guard down. You never stop looking at the seemingly innocent and wondering if it truly is, or if it in fact, contains a deadly poison. You never stop worrying, you just find that it really IS 'manageable'. That's the key, I think. Realizing that there is a LOT you can do to protect your child, and that there are also things you can do to help your child if/when reactions do occur.

Posted on: Wed, 06/06/2001 - 5:08am
Liamsmom's picture
Joined: 02/21/2001 - 09:00

Welcome to the boards, Evan's Dad! We discovered our son was allergic to peanut just 3 1/2 months ago, after he sampled a Thai-style pasta sauce containing peanut butter. He too enjoyed the taste, but within 1 1/2 hours he was in the ER with enormous weals and hives from from head to toe. Two weeks later, skin tests confirmed his allergy to peanuts, and also to tree nuts.
We now carry Benadryl and several Epi-Pen Jrs. wherever we go. We're still learning about severe food allergies and their implications for everyday living. What we find most frustrating is that PA sounds like a trivial condition to many people -- an inconvenience more than anything else -- but its impact on your lifestyle can be profound. We've found a lot of useful and encouraging information on this site, and hope you will also. As previously recommended, you might want to check out and/or join the Food Allergy and Anaphylaxix Network (FAAN) -- our allergist feels their information is very reliable. We'd also recommend the book "Caring for Your Child with Severe Food Allergies" -- I can't recall the author's name right now, but she is frequently mentioned on the boards. I suspect it is listed in the Books forum. Good luck to you and Evan!

Posted on: Wed, 06/06/2001 - 6:53am
McKenziesMom's picture
Joined: 03/05/2001 - 09:00

Welcome from another new member! My daughter is 11 and reaction free since age 5, so don't panic. Just be vigilant and proactive!
There are a lot of helpful people on these boards and lots of great advice. Lots of compassion and even some humor.
Good luck to you!

Posted on: Wed, 06/06/2001 - 11:04pm
Lisayas's picture
Joined: 03/16/2001 - 09:00

Welcome Evan's Dad! I am Evan's mom. (Different Evan of course)

Posted on: Tue, 06/12/2001 - 12:40pm
willistl's picture
Joined: 06/12/2001 - 09:00

I'm new to the site and new to the peanut allergy phenomenon. I've learned a lot very quickly, but I did not anticipate nor was I prepared for the discrimination posed by the uninformed. My ten year old daughter was diagnosed with a peanut allergy about two weeks ago. The reactions are not violent and we have received proper counsel (and the Epipen) from our allergist. We proceeded with our lives fully prepared to manage this situation. Our daughter was attending a "sea camp" at the Maritime and Seafood Industry Museum in Biloxi. We informed the employees about her condition and provided them with literature regarding the epipen. On her first day she drank after a friend who had eaten peanut butter and may have had a mild reaction. She administered her epipen like a pro and asked to be taken to the emergency room. No problem. We were home in two hours. To our dismay the museum informed us that our daughter would not be allowed to take a much anticipated schooner ride to a nearby island because of her allergy. This is a very critical period where we are trying to teach her that her allergy should not be a barrier, that she must respect it, be prepared for it, but not live in fear of it. We met with her allergist who confirmed our position and provided documentation stating that it was safe to take the trip. We passed this information to the appropriate personnel at the sea camp and was told that "they" had decided that she could not attend. I explained how crucial this time was to my daughters self esteem and received only more defiance. When I told my daughter that she could not attend her response was, "Now I'm known as a freak." I have read notes from others who have pursued relief via the Americans with Disabilities Act and I am in the process of doing the same. I would appreciate hearing about your experiences in this area and how you dealt with them. But even more importantly, I would appreciate a note of response/support directly to the Maritime and Seafood Industry Museum at [email][/email]. Our children should not be subjected to behavior borne of ignorance. Let the education effort begin!

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