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Posted on: Sun, 12/28/2003 - 11:31pm
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

If a family needs an epipen and can't afford one, why should they not get assistance? I pay $50 (American) for each epipen with my lousy pharmacy coverage. That's a whole lot of money, and for many the difference between being able to make the rent/mortgage payment, eating or not.
This is a subject very close to my heart, as my mother's monthly pharmacy bill is as much as her rent. Yes, her $650 per month rent. Simply outrageous, and it is depleting her meager savings quickly.
As for learning to adapt and avoiding peanuts, if only it were that easy. I find it hard to believe anyone who has been living with this allergy for any length of time would actually believe that. How many of our children had accidental exposures, especially soon after diagnosis? Until we can actually trust labelling, saying "just avoid it" is very, very naive.
Do you know what makes [b]me[/b] sick? People who are thoroughly lacking in compassion.
Enjoy the spirit of the holiday season.
Amy
[This message has been edited by Going Nuts (edited December 29, 2003).]

Posted on: Mon, 12/29/2003 - 12:32am
kelly01's picture
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Joined: 03/19/2001 - 09:00

I am going to regret this, but...
Just wanted to make a few points:
*JRMitchell NEVER said that folks who cannot afford an Epi-Pen, OR medication should be denied help. I believe that in one of the posts it states that "outside of purchasing the Epi..."
*She mentioned that "parents that try to take the easy way out" make her "sick". Yes, a somewhat harsh statement, but I DON'T think she said "everyone that posted in this topic makes me sick". Unfortuately there are lots of folks out there (I am not talking about in this thread) that DO try to take advantage of public funds. Would I prefer more compassion? Sure, but everyone's experiences are not the same.
I guess I would also prefer that folks not jump all over people when they make an unfortunate statement. It is one thing to point it out and rebut it, but quite another to continue on and on...
Kelly
*I don't necessarily agree with the poster, just think that this is being blown WAY out of proportion. I am sure that folks will disagree with me...but that is fine.

Posted on: Mon, 12/29/2003 - 5:18am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Just wanted to post a few comments while I am enjoying my vacation. I saw a reference to this thread in the off topic section and wanted to check it out.
To the poster--keep in mind that you do not know the entire story of the people on this board. I don't believe that you were making a direct comment --at least I hope you were not but do remember that no one can just apply for SSI benefits just because--you must qualify first (like Sandra already stated).
Since there is not alot of background information for any particular person, I can see how someone would take a particular statement and make a general comment. It's easy to get caught up especially if she perhaps has witnessed the system being taken advantage of.
For the record, through dh's work we have the best coverage a family can get. Not bragging by any means but we have 100% of everything paid for--that means, no co-pays, no cost of prescriptions, etc.-- no nothing. We are EXTREMELY lucky and I feel very spoiled that we are blessed with this coverage as I know it will not last forever. I WISH THAT EVERYONE COULD HAVE THIS TYPE OF COVERAGE--WOULD MAKE A BETTER WORLD FOR ALL.
I would hate for ANYONE to be denied any prescription because they simply cannot afford it--especially children AND especially for an Epi-pen that could save their life.
Happy New Year everyone!!

Posted on: Mon, 12/29/2003 - 6:50am
Anonymous's picture
Anonymous (not verified)

kelly01, since JRMitchell chose to post her comment in this thread, in particular, I can only attribute that "parents trying to take the easy way out" means PA parents and to that, I take offense. I find it offensive. I find it offensive for *good* reason. A lot of what I have posted in the low income thread in particular, has been to help PA parents of low income. So some time and effort of mine has gone into that. The thing was I checked with Chris before I even started the thread to make sure it was okay.
It is not a thread, nor is this one, that is going to get a lot of responses in it but there may be a heckuva lot of people reading and using the information to help make lives better for their PA children.
We post when there are free Epi-pen trainers available. I believe there was a thread started re free asthma meds in American (I would have to do a search under Main Discussion for that one). The information is posted here because it is needed here.
In the thread in low income, I have posted about the friend who applied for ACSD for her child in Ontario. Now, IMHO, and probably even her's, her daugher isn't "severely disabled". She runs and jumps with the best of them. But the monthly cheque she gets from the Ontario government does help this family with costs involved in having to leave a small town and drive to the city where the child's medical treatment is received, even if it's only twice a year. She does receive the cheque monthly and again, she had to prove herself to be in both the financial and the medical position to require that monthly cheque.
As far as everyone replying, I did ask for *mass* consensus. If the *mass* of PA.com is sickened by a thread that they can easily avoid or feel that someone coming here that reads or posts in that thread makes them SICK, well, then, I would ask Chris to remove the threads.
I think it takes a lot of moxy to post in this thread and the low income thread (and I don't mean the type of post I do where I put the information "out there") and for someone to come in and say something so horrible was simply inexcusable. It is difficult enough if you are struggling financially, dealing with PA, have managed to find this board, post in a thread and then find a member (albeit a young and new one) say that parents looking for an easy way out make her SICK.
None of us, in dealing with PA daily, surely even the poster herself, has found an easy way out of this. But I, for one, have found a heckuva lot of information here.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 12/29/2003 - 6:59am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Hey, Cindy--leave the thread!!
btw, is "moxy" your new word of the week? [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] hehe (only trying to get you to laugh--not picking on you--because I actually like the word myself LOL)

Posted on: Mon, 12/29/2003 - 7:55am
Anonymous's picture
Anonymous (not verified)

Moxy when it comes to this thread and the other low income thread, yes, e-mom. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] You know? I don't even know how the word popped into my head except I wanted some kind of alternative to words that were popping into my head like brave, etc. and one that stood out. Haven't heard it in a long time, seems like an old-fashioned kinda word to use. Maybe it was in the Susan Hayward biography I just finished reading.
My sister e-mailed me the other day because she had sent my kids' Christmas parcel to my previous address. The re line had something about her being a spaz. I replied that I hadn't heard that word since I called her one thirty years ago! It was funny. Spaz. I truly haven't heard it in quite some time.
Oh, and I do have to correct one point I made in the above post. In the Epi-pen posting I made under Low Income about Trillium Drug Insurance and how you get that or how you qualify for that, I am speaking from experience because that's the prescription drug insurance we have with my DH as a student. Our quarterly deductible is $184.00 for our family size (4) and then you pay $2.00 per prescription after that (unless the pharmacy doesn't charge you the $2.00 which some in Ontario won't - the larger chains like Shopper's Drug Mart usually do). So, in that, I am speaking from experience.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 12/29/2003 - 10:22am
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

kelly01,
I agree with you that it's wrong for everyone (including me) to pile up against one poster. I apologize to the original poster if my response seemed overly harsh. I think I had a knee-jerk reaction to the strong language.

Posted on: Tue, 12/30/2003 - 12:00am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Alternative to Mainstream:
[b] It was funny. Spaz. I truly haven't heard it in quite some time.[/b]
One of my many "nicknames" in High School.
Quote:Originally posted by Alternative to Mainstream:
[b]Oh, and I do have to correct one point I made in the above post. In the Epi-pen posting I made under Low Income about Trillium Drug Insurance and how you get that or how you qualify for that, I am speaking from experience because that's the prescription drug insurance we have with my DH as a student. Our quarterly deductible is $184.00 for our family size (4) and then you pay $2.00 per prescription after that (unless the pharmacy doesn't charge you the $2.00 which some in Ontario won't - the larger chains like Shopper's Drug Mart usually do). So, in that, I am speaking from experience.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[/b]
[i]Socialized Medicine doesn't cover prescriptions 100%??????[/i] SAY IT ISN'T SO.

Posted on: Tue, 12/30/2003 - 11:09am
Anonymous's picture
Anonymous (not verified)

Momma Bear, socialized medicine doesn't pay for prescription medications at all. That's why if you don't have prescription drug coverage, eye glass coverage and other types of coverage, a lot of people will get Liberty Health coverage (which IMHO is quite costly, but then again, so is paying for the prescriptions, dental coverage, etc.).
Our socialized medicine only pays for visits to the doctor, including specialists. It also covers the costs of x-rays and other tests that need to be done if the doctor orders them.
But no, that's it. Prescription drugs are not covered.
Now, as I posted in the low income thread in TAKE ACTION, if you are on the Ontario Works program (welfare) or Ontario Disability Supplement Program (disability) you receive a drug card each month. Depending on the drug store you deal with, you *might* have to pay $2.00.
The coverage that we got for our family, because we don't have any prescription drug coverage, and it's for prescription drugs only (not eye glasses or dental) is through the Ontario Ministry of Health and it's called the Trillium Drug Plan. You apply with your income tax return from the previous year and they take your family size and income and decide what deductible you should pay on your prescription medications. Our family's current deductible is $184.00 per quarter (of course, this deductible can then be used later when it comes to medical costs when doing your income tax return). With the Trillium Drug Plan (so named probably for our provincial flower), you also have to pay $2.00 per prescription depending on the pharmacy you use.
When covered, a long time ago, by Canada Post insurance, you would pay for your whole prescription and then submit it monthly or whatever to be fully reimbursed (Canada Post, at that time, 10+ years ago had a great plan).
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Fri, 01/02/2004 - 12:28am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Question: Just because someone has a "disability", does that necessarily qualify someone for Social Security Disability?
Does the definition/qualifying characteristics of "Disability" for ADA for example, differ from the definition/qualifying characteristics of "Disability" for Social Security Disability?
Disclaimer: I am not offering advice in any manner or form.

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