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Posted on: Sun, 08/31/2003 - 12:38am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

If we are to start being reimbursed for medical/healthcare hardships in our lives, I will get in line. No reservations here. I've had my fair share. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] I'm thinking a "tax credit" maybe. Don't know if one exists for such things, but the idea intrigues me.
We have a fairly comfortable lifestyle. My husband works 3 jobs. One "full time", two "part-time". ([i]Still[/i] has much "time off" if carefully managed). I work one. (I have LOTS of "time off" AND homeschool my oldest) BTW, NONE of my husbands three jobs require a college education. [i]They DO, however, require perserverence, a clean background check, and absolutely no fear of hard work.[/i]
By no means must my husband work three jobs OR do I need to work. We just see it as prudent and helping add to financial stability in a precarious world. In no way does it interfere with our relationship with out children. We often have neighbors ask "What DO you DO??? (when noticing how much family time we have together) I think part of it is we aren't in the M-F, 9-5, ---7pm if you count traffic "grind".
Anywhoo, just sharing a *personal, unique, and highly individual perspective".

Posted on: Sun, 08/31/2003 - 1:36am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Just thought I'd share the difference almost a year in the current administration (US) makes in one's perspective. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
(Note my prior post to the last one I made.)
Times are a changin!

Posted on: Sun, 08/31/2003 - 1:40am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by MommaBear:
[b]Just thought I'd share the difference almost a year in the current administration (US) makes in one's perspective. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
[/b]
With regards to:
"If we are to start being reimbursed for medical/healthcare hardships in our lives, I will get in line. No reservations here."

Posted on: Fri, 12/12/2003 - 8:38am
TAS's picture
TAS
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Joined: 12/12/2003 - 09:00

Have you ever consider becoming a member of Pre-Paid Legal (PPL)? They will help the members to find the right government departments, contact persons, etc., and will give you the right advice to get the information you need. PPL also will write letters on your behalf at no cost (only to members). To write a letter usually cost arund $80.00 but as a member, no charge. If you need more information, contact me at [email]tasppl@yahoo.com[/email]. TAS.

Posted on: Fri, 12/12/2003 - 9:10am
Anonymous's picture
Anonymous (not verified)

TAS, welcome! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I was really surprised when I got notification about this thread because I had forgotten I raised the question three years ago. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]
However, TAS, your information would also be quite welcome and *good* IMHO in the thread under TAKE ACTION re help for low-income families dealing with PA. I know that I just re-raised it within the last week to post about very specific, Ontario province, information re getting Epi-pens if you have limited or no drug coverage.
Again, welcome! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 12/28/2003 - 12:10pm
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Joined: 08/30/2003 - 09:00

M'sMom:
It's been awhile since I checked this posting. I'm not quite certain what your perception is of Alabama and the "southern states". However, I would like to point out that if your 20 year mortgage was that low, you either lived here a LONG time ago or in a lower-standard housing arrangement. That being said, my view point is not innocent. My brother, having kidney failure, was on SSI. I work as a Paralegal and see ppl daily within our firm who deserve and should get SSI, and our firm helps them do so. However, having PA is not a true disability in the actual sense of the word. Those looking for monetary handouts for being peanut allergic are ridiculous. Does it make life harder? Certainly, for both the caregivers and especially the PA individual. Do I believe my government should monetarily compensate me for being PA? Absolutely not. Any intelligent individual with PA can and will learn to adapt to their surroundings and avoid contact with allergens. Parents looking for the easy way out make me sick.
-- Julie

Posted on: Sun, 12/28/2003 - 2:09pm
Anonymous's picture
Anonymous (not verified)

Julie, okay, as the person who raised this thread in the first place, as a question, I don't think that anyone who posted here was looking for an easy way out when it comes to dealing with PA. I'm not even American so not even quite clear what SSI is.
However, I do post regularly in another thread I started under TAKE ACTION about help for low income families in dealing with PA and again, I don't think I'm posting for people that are looking for an easy way out.
I remember posting more than a couple of years ago about going grocery shopping on a very limited budget. The woman in front of me was able to fill her cart with "may contain" sale cookies that my children would have loved to have had (I think they were The Grinch or something like that) and an assortment of other foods that were either "may contain" or just plain not safe for my PA child. I bought what I could with my money and I certainly could not purchase as much.
However, in posting that story here on PA.com, I never heard anyone say anything to me like what you just posted. No one said, well whoa is me, Cindy. Or too bad you didn't have enough money for groceries, that's your problem.
If you look at the cost of cereal, which I'm sure you must, since you are now an adult and PA, there is a BIG difference between "safe" name brand cereals and no name cereals. My two children can consume a box of cereal within two days. Would I like to pay $2.00 or less per box? Darn straight.
But no, I have to, because of my son's *hidden* disability (and I'm sorry, I also disagree with your statement re PA not being a disability - even in America it is covered with 504 Plans in schools because of the Americans with Disabilities Act) purchase cereal that is a lot pricier.
If you visit a food bank, you will automatically hand back HALF of the food that you were allotted because PA is involved (have volunteered at the local food bank).
Your parents did what they did for you, Julie. Each and every one of us here is trying to do the very best that we can for our children. If the day came where it meant I ate nothing so that my PA son had "safe" food, then so be it.
But I don't think people should be chastized, especially if they did have the moxy to post in this thread (or the other low income thread) because they are looking for assistance of some sort.
PA does not just hit middle or high income families. It can also hit low income families.
Tell us about being PA. Share your experiences with us. Be a *true* member. But Chrikey, don't berate people in your early posts when they may simply be *exploring* an option for their family that may help them.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 12/28/2003 - 2:19pm
Anonymous's picture
Anonymous (not verified)

Also, Julie, if I get *mass* consensus on the board that threads such as this make people sick (I can't even believe you said that so bold-faced), I will ask Chris to remove the threads. When I first thought about the low income thread under TAKE ACTION, I made sure I contacted Chris before I even started the thread to make sure it was okay. He thought that it was.
A lot of people are not going to post in the threads (this one and the one under TAKE ACTION) because people don't want to wear their income on their sleeve if it's low or considered poverty level.
But again, if I can get *mass* consensus on this board that these threads, initiated to help explore avenues for low-income PA parents/people make *most* of the members of PA.com sick, then I'll ask that they be removed.
Quite frankly, and only because you said it first, your lack of compassion is something that turns my stomach.
But again, *mass* consensus and I'll ask that these threads be removed. Personally, again, they were started to HELP people dealing with PA.
I just looked at M's Mom's post. She is paying $32.00 per Epi-pen in America. The cost per Epi-pen in Canada, as posted by arachide in her thread under Living with PA is now $92.00. To a lot of people, when you require four of them, that's a huge chunk of change if you have no prescription drug coverage. All of the information I have posted here to HELP people, I don't think it would sicken anyone, except perhaps you.
But again, get me that *mass* consensus and I'll ask Chris to remove the threads.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 12/28/2003 - 2:59pm
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

Here's what makes me sick: People judging low income families that are trying to do the right thing for their kids.
If a family thinks their child might benefit from a govt program that they are *entitled* to, then a responsible parent will do the work necessary to apply for the benefit. My parents applied for Pell grants for me and I couldn't have attended college without them. Not a lot of fun filling out the paperwork, I'm sure, but I am grateful my parents were informed enough and diligent enough to get financial aid for me.
If people don't qualify for SSI, the govt will deny the benefit. There is no harm in applying if someone thinks they might qualify.
Applying for govt benefits is not the "easy way out." The easy way out is to have enough money so you don't need to apply. I am very fortunate that I have been able to take the easy way. Anyone who has been LUCKY enough to do it the easy way shouldn't judge someone else who has to do it the hard way.

Posted on: Sun, 12/28/2003 - 3:27pm
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Joined: 05/28/2009 - 16:42

Julie -
If *six years* is a LONG time, then you've got me! Our house was far from sub-standard. It was the first home built by the son of a well-respected developer -- really quite nicely done. Not huge, by McMansion standards -- just under 1400 square feet -- but a sweet little house for newlyweds. I'd move back into it in a heart beat -- pretty area, just down the road from a state park.
I will hold to my point about innocence, *with regard to the matter of affording the obvious and hidden costs of PA*, if you are not married and/or raising a family. Things change. Our insurance, and some prioritizing, mean that we aren't looking for SSI. But I would take no issue, whatsoever, with a family that was doing all it responsibly could to cope with PA, and still needed some assistance.
I need to get back to my task at hand -- I just wandered in here while taking a break from separating the wheat from the chaff. Literally. Like the beleagured Henney Penney, I bake our "safe" bread from scratch, from grain I've sorted and ground. Just one more thing I do while looking for the easy way out!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
Have a happier New Year -
Sue

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