social ramifications of PA

Posted on: Wed, 05/16/2007 - 5:05am
nursemom's picture
Joined: 05/16/2007 - 09:00

I am new to this message board and so glad to have found it. I am the parent of Maddie- a 7 year old with severe PA- Class VI. I am really struggling with the affect this is having on her social activities and how to give her as much normalcy as possible. She is at a table, sometimes alone in the cafeteria and excluded from some activities such as field trips to candy factories, etc. I also don't allow her to go to other children's homes unless I am there or they are very close friends of mine that I trust with her. She is starting to get upset by these rules. When do you allow more freedom with your children? She knows how to read labels and is very knowledgeable on her allergy, but was walking by a table at school last week and accidentally touched residue of peanut butter and had a severe hive reaction- no anaphylaxis yet. She went to the ER. How do other mom's deal with the social school age child?

Posted on: Wed, 05/16/2007 - 9:31am
Chicago's picture
Joined: 04/21/2001 - 09:00

My dd is TNA and PA and 12 years old.
She does sit in the school cafeteria at a PN free table that is cleaned with seperate bleach wipes. Other kids are there too, because of allergies or just the freedom to sit somewhere else (all other seating is assigned by table, but if you are buying lunch at school or are pn free by claim - this is a grey area as the teachers can't really check everything - like homemade cookies). So at any rate she always has people sit with her.
At BD parties she just brings her own "cake". After a few years of calling, checking, staying etc... we decided that her bringing and eating her own treat was easier for all. Now all the kids know that and it is no big deal.
Your dd is maybe too young to self carry an Epi, so you can 1) talk/ train the parents at the party 2) sit on the side and read like the invisible woman or 3)help with the party - often extra hands are welcome.
Any bullying or teasing should be reported to the school asap. That is unacceptable.
Trust me it gets, well maybe not easier, but different. I also think that having food allergies helps make our kids more sensitive to others. Your child will make friends that understand!

Posted on: Wed, 05/16/2007 - 12:17pm
Chicago's picture
Joined: 04/21/2001 - 09:00

Sometimes contact with others can help. FAAN ( has a great kids newsletter. Or if she would like an older email buddy dd would write to her!

Posted on: Fri, 05/18/2007 - 11:08pm
MarkiesMom's picture
Joined: 02/23/2006 - 09:00

I recently attended a meeting led by a pediatric allergist and hosted by our area's FA support group. The allergist had mentioned a case in which a child had severe PA, so much so that he had to eat in a classroom, often alone. Apparently the shcool suggested that he choose one or two friends to eat with him (for which his mom would provide a safe lunch for everybody). The concept became so popular with his friends that they were all begging him to be picked for that day. Just an opportunity to get out of the noisy cafeteria and get to eat in a special location were considered a treat. I believe he was in high school, but it was a sweet story. [img][/img]

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