So what now??? Input please!

Posted on: Sat, 11/29/2008 - 2:33pm
GeriKY's picture
Joined: 11/29/2008 - 21:03

Wow, where to start? Well, my 1YO has been dx as having a peanut allergy 3/4+. After coughing fits the last 4 months+ during the night/day, our DR rec'd testing. Other +'s were +1 to tobacco, dust & mite. So, after reading, I see that 1/3 are false positives for peanuts? I'm overwhelmed, exhausted and second-guessing our DR. He is an allergy-asthma-immunology guy. My boy is BF, natural birth, unvax'd w/the exception of 2HIB, raised on home-made or organic food (mostly, few exceptions), everything that I thought would be best for him, given his father's asthma. So I was terribly surprised to see + test for Peanut. I personally thought the staff was subpar. The crazy lady taking my info kept asking me if I thought his issues were seasonal, and I kept telling her, HE'S ONLY 1 YO! DUH. The tech did not tell me how long it would take to do the test, no pt education. THEN, after finding out it was peanut, I was freaking. The Dr. assured me he did not think it would be the anaphylaxis type, sensitive to being exposed to peanuts period, would he know? Was there some indicator? Then, I get generic handouts on food allergies, an RX for an epi pen, albuterol PRN for wheezing, QVAR 80 mcg BID w/a spacer, oral pred for 6 days and a decongestant for PRN use. We have a re-check on the 8th of Dec. I have so many questions now, and could kick myself for being so dumbstruck there...I was freaked after all the horror stories about peanut allergies. then, as a nutritionist, I think about all the alduteration of our foodstuffs w/peanuts & GMO foods. So, I've ordered a book from Amazon, the peanut allergy answer book, 2nd ed. So, any insight, advice, anything from you pro's would be appreciated. I need to kick back & breathe, I know, but I feel so uneducated. Thanks in advance. Geri

Posted on: Sat, 11/29/2008 - 6:28pm
pfmom2's picture
Joined: 01/22/2006 - 09:00

Hi Geri,
Sorry to hear you have to join this board, but glad you did. Read, Read, Read as much as you can about peanut allergy and those books are an excellent start. Educate everyone who will be around your child and if necessary care for him.
My child was officially diagnosed at a year old too. It is overwhelming but you adjust as time goes on. I recently went to a support group meeting where a behavior counselor spoke to allergy parents and said that you go through the grieving stages (disbelief, anger, resentment, guilt, acceptance, etc.) when your child is diagnosed and then anytime something causes it all to surface again (reaction, dealing with relatives, friends, schools, holidays). And it is sooo true as I have been dealing with life-threatening food allergies for many years.
So everything you are feeling is normal and YOU DID NOT cause this to happen. No one knows why so many children and even onset adults are ending up with life-threatening allergies. There are a lot of theories but no one doctor could tell you why.
I did not see was this a skin test or blood test? If it were my child I would definitely keep them away from peanut. It is possible when diagnosed so young to sometimes outgrow it later on in life, so avoiding is the only way to make sure there is no reactions. Being his father has asthma it seems there is genetic history. And, I really don't believe the allergist can say who is going to have anaphylaxis or not, but people with asthma are more prone to life-threatening reactions. Strict avoidance in my opinion would be the best thing for the peanut allergy.
Your child is only one years old. I felt it was helpful when diagnosed so young, because my child didn't really ever know what they were missing when I took out allergens out of her diet. Now that she is older, she is more curious, but I tell her that she eats healthy and not with all the "junk manufactured" food. And hope and pray when not in my sight that she decides to test something herself by eating it.
Also, read labels carefully and if necessary, contact manufacturers if you are uncomfortable with a label or aren't sure what their "cross-contamination" policies are and research on the boards here.
Remember it takes time to adjust and feel comfortable with all of this, but if you start feeling overwhelmed, take a break from reading the books, the websites, and just have fun with your one year old.
Best wishes, and I hope some of my post is helpful.

Posted on: Sun, 11/30/2008 - 10:42am
GeriKY's picture
Joined: 11/29/2008 - 21:03

He was pricked on the skin w/48 different allergens. It looked like serum. He had quite the erythema and a pretty good hive. They graded it 3+ out of 4+ THANKS!

Posted on: Sun, 11/30/2008 - 8:46pm
pfmom2's picture
Joined: 01/22/2006 - 09:00

You are welcome. I would definitely treat your son as peanut allergic. I don't know the ratio of false positives/negatives. Go on his history more than the test, kwim?
I was just tested and believe I suffered from 2 allergic reactions. What I saw on the test was positive to what I thought I had the reaction to, but my doctor said, clinically I was not allergic. The wheel was smaller than the control. I think there is still a lot not understood about allergies. So, I decided to eat a little of the thing that I was "clinically" not allergic to, and I started with congestion and asthma. I will be eliminating it from my diet for now.
There is just a lot of unknowns in my opinion with allergies. Best to treat your son like he is peanut allergic in my opinion.
What I found very interesting about your post is your child had only 2 immunizations. My one severe allergic child has all except second MMR and never gets flu shot. My other child has all but never gets flu shot. I always felt they had something to do with it, but maybe it's a combination of a lot of things or something research hasn't even discovered yet. Definitely need more allergy research.
Keep us updated and maybe go to your appointment with all your questions.

Posted on: Sun, 11/30/2008 - 10:44pm
GeriKY's picture
Joined: 11/29/2008 - 21:03

I decided long ago to not do the vaccines. I kinda laughed when the allergist said he should get the flu shot after he got over this hump...whatever. It is my belief that the reason why there are so many issues now is because we have poor immune systems. I researched my decision to not vaccinate well. He gets probiotics and Vitamin C supplements. We had RSV @ 10 wks w/2 days hospitalization, but he was not horribly sick, never ran a fever, just couldn't breathe. I really feel, given my hx with household allergies and outdoor allergies to grass and my hubby's, that if I had not done these things, he would have tested + to many other things! I can't wait to get my books in. He had a rough w/e. I think he was having bronchospasms during the night & they manifested in the AM. He was gasping for air when he woke up, then did it again later. Eyes rolled back, scared me to death. I have NO clue what did it. Going back today to Dr & hope to get neb. sigh.......thanks again.

Posted on: Mon, 12/01/2008 - 1:50am
pfmom2's picture
Joined: 01/22/2006 - 09:00

I am so sorry to hear how much trouble your son had this weekend. I have been there done that, and unfortunately we have three nebulizers, one for the school, the house and one for travel. It seems like you want to treat "holistically" and if it works, great. Unfortunately for my daughter and myself now (just recently for me) we are both on a daily controller medicine for the asthma.
I also have a friend who's daughter had RSV, hospitalized as a baby, etc, and is on two controller medicines daily. There is certainly something up with all of this allergy/asthma issues.
Good luck and I hope he is doing better now.

Posted on: Mon, 12/01/2008 - 6:21am
Mom2angels's picture
Joined: 02/07/2008 - 20:14

So sorry, Geri. It totally caught me off guard, too. It just breaks your heart because you try so hard to do everything right and be so careful. The only advice I can give you is to be more "safe than sorry". Even if you have doubts about your doc, it's not something you want to fool around with. Just arm yourself with knowledge. BTW--where in KY are you? I live in Winchester---originally from Georgetown. Well, keep us posted.

Posted on: Tue, 12/02/2008 - 10:41am
GeriKY's picture
Joined: 11/29/2008 - 21:03

We live in Salvisa. Yeah, I've had time to chill a bit, but am still totally freaked given his spasms this weekend. We went back to Dr. yesterday and got a nebulizer w/treatments. I hate giving him all of these meds, but I don't want to go through another weekend like this one past! Thanks all!

Posted on: Sat, 12/06/2008 - 1:10pm
mom1995's picture
Joined: 11/09/2004 - 09:00

I was told by our first allergist that you are not suppose to give a child under the age of two any nuts to start with. Their immune system is not fully developed and they can not break down the protiens. So I would look into that. That would explain a showing of reaction now but may not mean long term. I agree with anyone to advoid all untill he is older and then re-test.
Good luck.

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