My 6 year old kindergartner has spent the last 3 years telling us and others he is allergic to peanuts, we have been telling him he just doesn't like them.
Well ... after eating a bite size snickers he was vomiting, broke out in head to toe hives and was begging for his nebulizer. Looks like he knew all along. His RaSt test came back as >100. Fortunately he doesn't like nuts or nut butter, so nothing to take away there ... but we are now dealing with how to handle breaking the allergy in mid school year (there is another pa kid in his class ... so we are part way there).
What I would really like is a check list of all the people and places I need to go talk to. I immediately went to his teacher, but partly because I was in denial until his blood test came back (last week) and party because I didn't think about it, I totally forgot about the lunch room and child care. Any "don't forget to tell ..." is appreciated ... dad is his cub scout leader, so that is covered.
His Dr has prescribed 2 epi-pens to be given 5 minutes apart ... what is the best way for my husband to carry them?
Sorry for the randomness ... I am still working through this.
By Mrsdocrse on Jan 30, 2011
Hi Ellen, After speaking with the teacher, I would speak to the school nurse if you have one. If not, I would speak to the principle to see what their policy is for food allergies. I would speak to the allergist and get and "action plan" written out. If you have a cafeteria speak to the person who is in charge. Make sure the teachers are trained on how to recognize and treat the allergy. As far carrying the epi pens, my husband put them in his pocket. But I recently went on line and bought a case especially for epi pends. It come with a clip and a strap that can go on a belt loop or strap to fasten to handlebars on a bike. Other than that we have a fanny pack. Hope that helps.
By cervonil on Jan 31, 2011
It's funny that your son "knew". I think mine did too - he is 4 now and he has always been disgusted by the smell of peanut butter - even if he smelled it on your breath he would run away saying how gross it smelled. So he never ate it until by accident he was eating chocolate candy eggs given to him at pre-school and one was a butterfinger egg. He ate it and said "Mommy I just ate peanut butter" (how he knew since he never tried peanut butter in his life) and started wheezing, coughing, clearing his throat" progressed to vomiting violently and had to be rushed to the ER. But it blows my mind because I swear he KNEW.
Basically you have to think about it absolutely everywhere you go now. Good luck, it is a tough challenge.
By mcgee on Feb 11, 2011
MnKids, Welcome, I just joined recently too. I can relate to your 'denial' ==it still hasn't hit me yet either that my son has PA and there is no family history whatsoever of food allergies, his 6 yo sister is not PA either. I guess it's time for me to truly accept it and make the necessary changes :(
By jennifersargent on Feb 12, 2011
Church is a place to not forget.. Mine was great in Ohio. They sent a note home with the children in his class asking the parents to not feed their children peanut products on Sunday morning. I went and taught the volunteers how to use the epi and they assigned his classroom only staff that volunteered not to eat peanut products and comfortable with using the epi. Other parents seemed willing for the most part. Granola bars are the kicker.. People don't realize they are deadly...
By jmw on Apr 7, 2011
My soon to be 4 year old girl was just diagnosed with a Peanut Allergy (blood test 6 very High)and although she didn't tell us she was allergic always told us she didn't like peanut butter or peanuts. She's always been a bit of a picky eater so since she never had any obvious (to us) allergic reaction we never thought it was allergies until we had her tested. Now we have an EPI Pen and trying to figure out how to deal with the whole situation (school, babysitters, restaurants, etc...). Can't wait to go back to the allergist with her in two weeks because now I have a million questions. I keep going back now and thinking about the times she got sick or ran a sudden high fever and trying to figure out if this was the cause. Me and my wife have always had peanuts and peanut butter around the house so she's had some exposure to it. She made a birdfeeder with peanut butter at school a couple of weeks ago. She eats walnuts and pistacchios and tested allergic to tree nuts also although not as high. Also tested positive for milk although she drinks it all the time. First reaction after finding out is to go online and search peanut allergies and get scared to death by all of the horror stories. Well there's my opening rant as I try to absorb it all.
By PA Mommy on Apr 7, 2011
I keep reading about all these kids who hate peanut butter...my PA son loves it! (Well, loved it, anyway). He still asks for it. We tried sunbutter but he isn't falling for it. Oh well.
JMW, try to take a deep breath. Lots and lots of PA kids go through life without peanuts. It's probably harder for us parents than the kids. You'll learn how to navigate through it, and you'll teach her. It will get better. There is lots of help here and lots of things she'll be able to eat. Keep your chin up.
By Samantha418 on Apr 11, 2011
I am 22 years old and have had a severe peanute and tree nut allergry my entire life. Right now I am between phases: Someone who has grown up with a peanut allergry, and someone who could one day soon mother a child with the same allergy. I give my mom a lot of credit for pretecting me to the extent that she has. It is very hard to be a child with a peanut allergy. Many schoolmates didn't believe me, and would even try and give me peanut butter to see what would happen. I like to think my personality saved me because I liked to be different, and didn't care about being mocked. I have been hospitalized for this allergy, and those are the times that shake me. The best advice I can give to a child with a peanut allergy is that you are not alone and it is ok, and even great to be different. Make sure you read the ingredients on EVERYTHING, and if you have any doubts DON'T eat it. My advice to any mother with a child who has a peanut allergy, have PATIENCE. I went through a lot of phases where I tried to convince myself I wasn't allergic which probably put my mother through h*ll. Just stand by your child as mine did, and they will appreciate it immensely down the line.