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Posted on: Fri, 06/01/2001 - 12:41pm
katiee's picture
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Joined: 05/09/2001 - 09:00

I'm happy to hear that Flo Vent is working so well for you. Wade has been on Flo-Vent 125 and Ventolin since about age 2. Unfortunately, we still don't have good control of his asthma. The doctor suggested Singulair to be "added" to the drug regimen, but because it is not recommended for children under 6 (in Canada) he has opted to wait. I'm just frustrated with the number of episodes and would like to find something other than Decadron or Pediapred to get control of the situation.
Thanks for the input.
Katiee (Wade's mom)

Posted on: Fri, 06/01/2001 - 1:14pm
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Joined: 12/02/1999 - 09:00

Logan is 4.5 years but he only weighs about 31 pounds (more like a 2 yo) and has been on Singulair 5 mg for the past 18 months. He also takes Flovent, Pulmicort respules, albuterol, and Xopenex. We also tried Serevent, but he was allergic to it.
Does 5 mg sound like too much for his size? It seems like a lot if everyone else is doing 2.5 to 4 mg...
Rebekah

Posted on: Fri, 06/29/2001 - 7:53am
cathlina's picture
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Joined: 06/29/2001 - 09:00

I noticed that a child had an allergic reaction to Serevent. Severvent has soy lechitan in it.
Please be sure to check all the extra ingredients in every medicine. My pharmacist even called her drug rep to get information for me.

Posted on: Wed, 07/18/2001 - 7:48am
Anonymous's picture
Anonymous (not verified)

Just wanted to let any of you know that if you are concerned about your child/children consuming aspertame/nutrisweet that Singulair DOES contain this... got this info straight from the manufacturer about a year ago.
FYI,
Valerie

Posted on: Mon, 07/23/2001 - 12:46pm
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Joined: 07/23/2001 - 09:00

Hi
Hate to sound like a don't have a clue, but is there a link between PA and asthma? I have a 3 yo with PA (found out at 5 months) and asthma (found out about same time), also had a really bad case of excema which still gets mild spots of it from time to time. My son doesn't seem to have any obvious triggers to his asthma, but his father is an asthmatic. He has been on cromolyn sodium, which worked for us, he also at the same time took albuterol with nebulizer for any attacks. At the beginning of this year he was hospitalized for several days with exaberation of asthma. They couldn't really seemed to figure out why he wasn't getting better, since he was being treated quite heavily. When we came home we went on pulmicort for a month and now he seems to have wheezing at least once a week. I am so paranoid that I am doing something wrong or that I am the major cause to my son's allergies that I give him a nebulizer treatment as soon a he becomes wheezy.
I have to say that I am so glad that I found this web site for the information and support. I would like to read all the posting and responses, but don't think time will ever allow that.
thanks for the time,
tuttles (Nicholas' mommy)

Posted on: Thu, 08/09/2001 - 6:26am
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Joined: 08/09/2001 - 09:00

My two year old daughter has suffered from asthma and a milk allergy since she was 6 months old. We had 4 hospitalizations from the asthma. We started her on Singuliar in January..it was the best thing we ever did for her. Her attacks are now months as opposed to weeks apart and on a scale of 1 - 10, they are a 5 rather than a 10. We just discovered that she has both PA and TNA. I highly recommend Singulair.
Hugs!
Jayne (Elizabeth's mom)

Posted on: Thu, 08/09/2001 - 11:26am
Anonymous's picture
Anonymous (not verified)

My son was on Singulair for a few months but it did nothing to help control his asthma. Now he is on Flovent and it has worked wonderfully. I just hope that it continues to have the same affects on him several yers to come.

Posted on: Thu, 08/09/2001 - 12:23pm
Anonymous's picture
Anonymous (not verified)

My 5 yr old son, Timmy, also has asthma and PN, Shellfish, Cat and Dog allergies (these are just the ones that are life-threatening!). He had his first asthma attack at 8 months old. He had really bad eczema when he was a baby... his face would bleed. We finally found it was the formula he was allergic to. He has been hospitalized 4 times for Pneumonia and has had it plenty of times and NOT been hospitalized because we have the Nebulizer and all at home and the Dr felt that I could deal with it (I'd love to see HIM deal with it some time with 4 kids at the time 4 and under!!!) Anyway [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I also have a 4 year old daughter who had her first asthma attack at 12 months old. It was pretty severe for a couple of years (almost lost her during the first attack... very severe!) But... the good thing is that she has almost completely outgrown the asthma now! She tested a 1 out of 4 for PN about a year ago and the Allergist did not seem at all concerned. I am going to have her retested now after seeing what could happen as I've never restricted her (although none of the children are exposed much because of the severity of Timmy's PN allergy). My concern is that we may need to keep an Epi Pen with her also. When I asked the Allergist about it he said that he didn't think it was neccesary and I didn't know any better!
Anyway [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Both Timmy and Rebekah were on singulair, and now just Timmy. Obviously it was a tremendous help with getting Rebekah's asthma under control.
Bethany, my 3 year old, does not have asthma but the Allergist insists that at some point she will because of the severity of her eczema and had the nerve to ask me why in the world I would want to bring another allergic child into the world when I was pregnant with her and insisted that each childs allergies would be worse than the last... so far that has not been at all true! Bethany is only allergic to Peaches, Lettuce and Cocklebur weeds and so far no asthma! (Sorry to rant...but he really upset me!)
Valerie

Posted on: Fri, 08/17/2001 - 10:50pm
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Joined: 08/16/2001 - 09:00

Boy do I feel for you parents who have posted here. Yes to the parent who asked if there is an association between PA and asthma. We were told when I was little that a very high percentage of asthmatics also have PA but a lot of people don't realize it believing that a PA reaction is just a bad asthma attack, this includes ER and PCP doctors. Listening to you I wonder if things have improved at all in 35 years. About Singulair I was one of the first patients who tried its relative drug Accolate and switched to Singulair when it came out because it was easier to take. I love it I am not off any of my other meds but I don't use my rescue inhaler hardly at all anymore, except for my trigger seasons. I also take a theophylline drug which I didn't hear any of you mention. Children can take this. A lot of us do not have the correct amount naturally in our systems and need to get it by medication. Your child can be tested to check their level and then given the dose needed according to the test. Watch your inhalers parents some of them have a peanut filler in them found out the hard way [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img] and almost all use soy lechitan [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]. I really can't understand this since they are treating a condition that is associtated with allergies to both of these things. I want to warn you to read the ingredients of your medications the same way you do the food because the alleries are in them too and the ingredients change as quickly in the meds as in foods. Did you know that some of the meds are made in facilities that also make foods? I hate to put a new scare into any of us but I had to find out the hard way and I would hate any of you guys to. My biggest gripe is that I need these meds to live and they put things in them they could kill me. As for Serevent if you use the diskus instead of the puffer you can avoid the soy, I unfortunely can't make the switch so I just have to be careful and watch my reactions to it. Good Luck Parents and never quit trying!
[This message has been edited by btbear1 (edited August 18, 2001).]

Posted on: Sat, 08/18/2001 - 1:43pm
Anonymous's picture
Anonymous (not verified)

<<>>
Which ones? Is it a certain brand? Do they say Peanut on the label or is it another name for peanut fillers??? My son uses the inhalers quite often at times!
Anxiously awaiting your reply!!
Valerie

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