Should we see an allergest?

Posted on: Sun, 02/17/2002 - 10:39am
wood145's picture
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Joined: 09/10/2001 - 09:00

Our son, Dylan was diagnosed in Sept. 01 with PA. He's 5 years old and had eaten pb and peanut containing products his whole life until one day he said his mouth was itchy and developed hives while eating a pb sandwich. I immediately suspected peanut allergy when 2 days later the same thing happened. I took him to his ped. who sent him for a cap rast. He was a level 2. (I don't know the exact number). The ped. gave me Rx for epi-pen told me what to do, benedryl, first, if he gets worse then use Epi-pen. Dylan is very comfortable with his allergy. Always asks and tells people to double check packaging when served anything at school or a friends house. He always has a fanny pack with him with epi-pen, benedryll a list of foods he can not have and an emergency list about what to do if he has a reaction. Now, my question. We've never taken him to an allergist, the reasons being, 1. I feel very comfortable with all the information I have and that we are doing everything possible to keep him safe; and 2 I don't want him to go through a barrage of tests to see what else he might be allergic too. I'd like to know other opinions on this, do you think there is anything useful we could learn by going? Are we foolish not to take him? I really respect everyone's opinions, this board has been a such a help in dealing with this. Thanks!

Karen

Posted on: Sun, 02/17/2002 - 11:15am
kelly01's picture
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Joined: 03/19/2001 - 09:00

Hi wood145: my son with PA is also 5 years old and we, too, have never seen an allergist. Our pediatrician was very knowledgable regarding the PA, and immediately perscribed Epi-Pen,warned about cross contamination, etc. Upon coming to these boards, I feel comfortable that our Ped. has handled this situation well. At this point, we would only consider going to an allergist if:
*he appeared to have allergies to multiple foods (at this point, both his initial blood test and his lack of allergic reactions to other foods indicate he is PA only)
*if a blood test indicated he had outgrown the allergy...I would consult with an allergist knowledgable about PA before considering a scratch test or oral challenge. (We have not re-tested his blood,yet).
*if there were breakthoughs in treatment (that I would hopefully be aware of, because I try to keep up with the info on sites such as these) that may only be available through an allergist.
Hope this helps. I am interested in the feedback you will get, as I find myself asking the same question.
kelly

Posted on: Sun, 02/17/2002 - 1:08pm
amymarie's picture
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Joined: 01/13/2001 - 09:00

Hi! Well, I did go to an allergist & thought it was a waste of my time & money. My son had a reaction when he was about 14 months old. My impression based only on this one allergist is that no one intereprets the testing the same way & it really means very little. After spending 2 hours waiting for the doctor to see me to "read" the tests, she basically said she based her decision on his reaction mostly-that testing means nothing without a reaction. Very frustrating day. I think if your son has no other problems you are on the right track. I am having my son retested in 2 years to see if he outgrew it. Besides that I have no intention of seeing an allergist again. Take care, Amy

Posted on: Mon, 02/18/2002 - 3:05am
wood145's picture
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Joined: 09/10/2001 - 09:00

Kelly and Amy,
Thanks for your responses. I'm glad that we aren't alone in thinking that at this point we don't feel seeing an allergest is necessary. I had a few people say they were surprised that we hadn't taken him to one, and that we should. My husband is severely allergic to melons, touch and smell sensitive also and he hasn't been to an allergest in about 25 years! Thanks for your input.
Karen

Posted on: Mon, 02/18/2002 - 6:17am
n5vox's picture
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Joined: 04/17/2001 - 09:00

Wood145,
Just wanted to jump in here for a minute. My PA son is 10 years old and we went for our first ever appt. with an allergist. I also saw no reason to have tests done for something so obvious as his PA problem. However, I am glad that we went, as my son was having difficulty with getting enough air into his lungs on a day to day basis (which I didnt know about) - the doctor is doing a two week test using a flow meter and has given Matt an inhaler to use for that two week period. I guess hidden reasons are about the only reason I can see for going. I never knew about his lung capacity problem as he appeared perfectly fine - of course that is as long as he stays away from nuts [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I would just watch and see how things develop. We made it 10 years without going - and honeslty we only went this time because I am requesting a 504 plan at school for Matt and KNOW that I will have to have something from a doctor and that coming from and Allergist seemed better. I am very curious about the melon allergy - does your husband have severe reactions like with nuts? Take care. Amy

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