Severe Food Allergies and Eczema

Posted on: Sun, 07/06/2003 - 1:01pm
researching mom's picture
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Hi. I have a 1 yr. old son who has Severe food allergies(peanut,dairy,egg,beef,wheat,corn,rice,soy,bananas,melons,peas,greenbeans and on and on)and eczema that was so bad at one point he was hospitalized.He has had quite a few severe reactions. This past week he had a very bad reaction to wheat.Even though he had tested positive on a skin prick test to wheat the allergist said to try it.It took me about a month to get the courage to try it. For about an hour after having pasta he was okay ,then he broke out in huge welted hives all over and he had SEVERE facial swelling ,was coughing and sneezing.What a nightmare.I have never been so scared in my life.I am nursing him and unable to get him to tolerate any formula.I have tried Allimentum and Neocate.Has anyone had a child who could not tolerate Neocate and if so what were you able to us?Thanks for any feedback.

Posted on: Sun, 07/06/2003 - 11:38pm
PattyR's picture
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Joined: 04/12/2002 - 09:00

I am so sorry for you and all the allergies that you are dealing with. What a scary situation with the wheat. I would be very concerned with an allergist who recommended a food challenge on an infant and not in a hospital setting. Anyone here will tell you that is not a good idea on the doctor's part. Keep reading and you may want to find a new allergist. Hang in there!

Posted on: Sun, 07/06/2003 - 11:47pm
MeCash's picture
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Joined: 04/18/2001 - 09:00

I'm sorry you're going through such a hard time. That's a huge list of allergies! I don't have any advice regarding formula's, as it looks like from your list of allergies just about everything would be ruled out (soy, dairy, wheat)... The allergist didn't make any recommendations?
I would also look into another allergist. I would have been scared to do a food challenge, too! I'm sure if you asked around on this board, you could probably get some first hand recommendations for allergists in your area who might fit your 'comfort zone' a little better...
Take care and good luck! Hope to see you around the board...
~Melanie

Posted on: Mon, 07/07/2003 - 11:22am
soccermom's picture
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Joined: 01/16/2003 - 09:00

I am so very sorry to hear about your son. That must be so stressful. I remember reading about some studies in which infants who could not tolerate neocate were given an amino acid mixture. According to the studies it worked well. I don't remember the reference for the study. I think I found it searching MedLine. You could ask your Allergist to do a search. You might also ask your allergist to speak with a pediatric gastroenterologist about alternative nutrition sources for infants. Best of luck.

Posted on: Mon, 07/07/2003 - 1:15pm
researching mom's picture
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Thankyou for your responses.I am currently looking for a new allergist. I have a posting under the doctor board looking for any recommendations for an allergist that is capable of dealing with an infant with severe food allergies and eczema.The allergist my child goes to know is suppose to be a top doc ,but I have had to many experiences that make me question that at least in my childs case.The allergist told me when I said that I was concerned that my son could only eat a few foods that there are people worse off than him.After this past severe allergic reaction to wheat ,the allergist's advice was not to feed him anything with wheat in it.Wow like we ever would give him wheat after having his face so swollen up and me thinking he was going to die.(Mind you this was the same allergist who said to try him on wheat after he skin tested positive for it.) In all fairness 7 months back he had a neg. skin prick for wheat so maybe the allergist thought it was worth it to try just to have my son be able to eat something.The allergist was aware that my child did have an ambulance ride to the ER the first and only time he ever had a teething biscuit which had wheat in it and then the test about a month ago where he skin pricked positive.Back when he had the reaction to the biscuit the allergist said no it couldn't be wheat it must have been something else.Well now I know it probably was the wheat.Still looking for any suggestions from moms that had to switch there infants over to formula what they could drink. Thanks.

Posted on: Tue, 07/08/2003 - 2:05am
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Joined: 05/03/2003 - 09:00

I am not sure how your son would do with it but there is a Goat's milk formula available I believe, we tried Meyenberg's goat milk which is pretty available at most health food stores or wegmans, perhaps that would be an option. My ds was not able to do the goat's milk,but some dairy allergic can tolerate it. I certainly don't think I'd try it more than 2 feet from the ER though. You sound like you have a full plate, can I be nosy and ask what your child eats? Your list of allergies is quite long, I am just curious.
Wendy

Posted on: Tue, 07/08/2003 - 3:19am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Welcome Researching Mom!
I'm afraid I don't have much info to offer you - my pediatrician had advised me not to even try Alimentum or Nutramigen when my son was a baby because he was so sure he wouldn't be able to tolerate them. I don't recall Neocate being around back then. I truly feel your pain.
I hope you can find a solution (as well as a new allergist!) quickly. Check the All About Doctors forum to see if there are any posts about doctors in your area.
Amy

Posted on: Tue, 07/08/2003 - 3:58am
researching mom's picture
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Wendy he eats carrots,chicken,turkey,apple and blueberry jarred baby food.My husband feeds him lamb which makes his eczema flare.I have tried just about all jar forms of baby food and cereals MANY TIMES.Some I try to rotate back in like pears on occasion,but others like peas or green beans will make him itchy,hivy,flare his eczema out and keep him up all night so all legumes are off limits.I have even tried watermelon and cantaloupe and it really messes him up and that was with a very small amount.There are no words to express how frustrating this is and for that matter how extremely concerned I am about how he will function as he starts to get older.I am searching to find answers WHY he is so allergic and trying to get in touch with other moms who may be able to give me some feedback on solutions that were helpful with their children.

Posted on: Tue, 07/08/2003 - 7:10am
CS's picture
CS
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Joined: 07/07/2003 - 09:00

Hi researching mom,
My son (now nearly five) has had multiple food allergies. He tested positive to 17 of 19 things at one time between food and environmental allergies. He was dairy, soy, peanut, treenut, green bean, peas, corn, etc. based on CAP RAST. We took him to Dr. Wood in Baltimore who read his CAP RAST with ease and determined some of the "positives" were cross-reactive results. Corn was an example. It really helps to have a specialized allergist in that situation.
My son was able to tolerate Nutramigen, but had alot of Benadryl as an infant as we learned about multiple FA. I ended up nursing him longer than I ever planned to....he was able to go to enriched rice milk at two years of age. He remains dairy, peanut, treenut allergic. I don't give him legumes either.
Where do you live? Have you contacted FAAN? They were instrumental in guiding me toward Dr. Wood.
I can understand where you are at....those years are a blur! Let me know if I can help in any way.
CS

Posted on: Tue, 07/08/2003 - 9:10am
wendysco's picture
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Joined: 05/03/2003 - 09:00

We did our own research and consulted a holistic chiropractor for my son's eczema shortly after he was a year old. The chiropractor was the one who cued us into dietary changes using kinesiology, not for everyone but it put us on the path to recognizing his eczema as allergies which was something his pediatrician said was not the cause.
We used fortified rice milk. Is your son able to tolerate oats? I did a little research today after I remembered seeing oat milk. Both my son and 16 month old daughter are on rice milk, I just add olive oil to their meals for fat content. There is also a Vance's Dari-Free which is I think potato based, I didn't check all the ingredients though because my kids get rashy from too much potato. I also remember in the NICU there was a fortifier they were adding to the pumped breast milk I had for my son, I'm not sure exactly what was in it but I believe Enfamil has info on it on their website. Perhaps if you could find another "milk" product he could tolerate you could use a fortifier of some sort to make up the fat/vitamins that he may be missing. My son was also intolerant of most formulas and even the breast milk and I remember the NICU docs mentioning elemental formulas, although I don't know how much more elemental they get than Neocate, have you had a GI specialist consult? Are you located near a children's hospital? Just trying to throw out ideas of things we tried. If it's any consolation my ds seems to be tolerating alot of the fruits and grains he was sensitive to at your son's age, I don't know about your families allergy history but my family is LOUSY with allergies on both sides. Best of luck, keep us updated.

Posted on: Tue, 07/08/2003 - 3:52pm
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Joined: 04/24/2000 - 09:00

You might want to look up POFAK (parents of food allergic kids) at groups.yahoo.com.
[This message has been edited by krasota (edited July 01, 2007).]

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