Severe Food Allergies and Eczema

Posted on: Sun, 07/06/2003 - 1:01pm
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Hi. I have a 1 yr. old son who has Severe food allergies(peanut,dairy,egg,beef,wheat,corn,rice,soy,bananas,melons,peas,greenbeans and on and on)and eczema that was so bad at one point he was hospitalized.He has had quite a few severe reactions. This past week he had a very bad reaction to wheat.Even though he had tested positive on a skin prick test to wheat the allergist said to try it.It took me about a month to get the courage to try it. For about an hour after having pasta he was okay ,then he broke out in huge welted hives all over and he had SEVERE facial swelling ,was coughing and sneezing.What a nightmare.I have never been so scared in my life.I am nursing him and unable to get him to tolerate any formula.I have tried Allimentum and Neocate.Has anyone had a child who could not tolerate Neocate and if so what were you able to us?Thanks for any feedback.

Posted on: Sun, 07/06/2003 - 11:38pm
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I am so sorry for you and all the allergies that you are dealing with. What a scary situation with the wheat. I would be very concerned with an allergist who recommended a food challenge on an infant and not in a hospital setting. Anyone here will tell you that is not a good idea on the doctor's part. Keep reading and you may want to find a new allergist. Hang in there!

Posted on: Sun, 07/06/2003 - 11:47pm
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I'm sorry you're going through such a hard time. That's a huge list of allergies! I don't have any advice regarding formula's, as it looks like from your list of allergies just about everything would be ruled out (soy, dairy, wheat)... The allergist didn't make any recommendations?
I would also look into another allergist. I would have been scared to do a food challenge, too! I'm sure if you asked around on this board, you could probably get some first hand recommendations for allergists in your area who might fit your 'comfort zone' a little better...
Take care and good luck! Hope to see you around the board...
~Melanie

Posted on: Mon, 07/07/2003 - 11:22am
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I am so very sorry to hear about your son. That must be so stressful. I remember reading about some studies in which infants who could not tolerate neocate were given an amino acid mixture. According to the studies it worked well. I don't remember the reference for the study. I think I found it searching MedLine. You could ask your Allergist to do a search. You might also ask your allergist to speak with a pediatric gastroenterologist about alternative nutrition sources for infants. Best of luck.

Posted on: Mon, 07/07/2003 - 1:15pm
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Thankyou for your responses.I am currently looking for a new allergist. I have a posting under the doctor board looking for any recommendations for an allergist that is capable of dealing with an infant with severe food allergies and eczema.The allergist my child goes to know is suppose to be a top doc ,but I have had to many experiences that make me question that at least in my childs case.The allergist told me when I said that I was concerned that my son could only eat a few foods that there are people worse off than him.After this past severe allergic reaction to wheat ,the allergist's advice was not to feed him anything with wheat in it.Wow like we ever would give him wheat after having his face so swollen up and me thinking he was going to die.(Mind you this was the same allergist who said to try him on wheat after he skin tested positive for it.) In all fairness 7 months back he had a neg. skin prick for wheat so maybe the allergist thought it was worth it to try just to have my son be able to eat something.The allergist was aware that my child did have an ambulance ride to the ER the first and only time he ever had a teething biscuit which had wheat in it and then the test about a month ago where he skin pricked positive.Back when he had the reaction to the biscuit the allergist said no it couldn't be wheat it must have been something else.Well now I know it probably was the wheat.Still looking for any suggestions from moms that had to switch there infants over to formula what they could drink. Thanks.

Posted on: Tue, 07/08/2003 - 2:05am
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I am not sure how your son would do with it but there is a Goat's milk formula available I believe, we tried Meyenberg's goat milk which is pretty available at most health food stores or wegmans, perhaps that would be an option. My ds was not able to do the goat's milk,but some dairy allergic can tolerate it. I certainly don't think I'd try it more than 2 feet from the ER though. You sound like you have a full plate, can I be nosy and ask what your child eats? Your list of allergies is quite long, I am just curious.
Wendy

Posted on: Tue, 07/08/2003 - 3:19am
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Welcome Researching Mom!
I'm afraid I don't have much info to offer you - my pediatrician had advised me not to even try Alimentum or Nutramigen when my son was a baby because he was so sure he wouldn't be able to tolerate them. I don't recall Neocate being around back then. I truly feel your pain.
I hope you can find a solution (as well as a new allergist!) quickly. Check the All About Doctors forum to see if there are any posts about doctors in your area.
Amy

Posted on: Tue, 07/08/2003 - 3:58am
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Wendy he eats carrots,chicken,turkey,apple and blueberry jarred baby food.My husband feeds him lamb which makes his eczema flare.I have tried just about all jar forms of baby food and cereals MANY TIMES.Some I try to rotate back in like pears on occasion,but others like peas or green beans will make him itchy,hivy,flare his eczema out and keep him up all night so all legumes are off limits.I have even tried watermelon and cantaloupe and it really messes him up and that was with a very small amount.There are no words to express how frustrating this is and for that matter how extremely concerned I am about how he will function as he starts to get older.I am searching to find answers WHY he is so allergic and trying to get in touch with other moms who may be able to give me some feedback on solutions that were helpful with their children.

Posted on: Tue, 07/08/2003 - 7:10am
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Hi researching mom,
My son (now nearly five) has had multiple food allergies. He tested positive to 17 of 19 things at one time between food and environmental allergies. He was dairy, soy, peanut, treenut, green bean, peas, corn, etc. based on CAP RAST. We took him to Dr. Wood in Baltimore who read his CAP RAST with ease and determined some of the "positives" were cross-reactive results. Corn was an example. It really helps to have a specialized allergist in that situation.
My son was able to tolerate Nutramigen, but had alot of Benadryl as an infant as we learned about multiple FA. I ended up nursing him longer than I ever planned to....he was able to go to enriched rice milk at two years of age. He remains dairy, peanut, treenut allergic. I don't give him legumes either.
Where do you live? Have you contacted FAAN? They were instrumental in guiding me toward Dr. Wood.
I can understand where you are at....those years are a blur! Let me know if I can help in any way.
CS

Posted on: Tue, 07/08/2003 - 9:10am
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We did our own research and consulted a holistic chiropractor for my son's eczema shortly after he was a year old. The chiropractor was the one who cued us into dietary changes using kinesiology, not for everyone but it put us on the path to recognizing his eczema as allergies which was something his pediatrician said was not the cause.
We used fortified rice milk. Is your son able to tolerate oats? I did a little research today after I remembered seeing oat milk. Both my son and 16 month old daughter are on rice milk, I just add olive oil to their meals for fat content. There is also a Vance's Dari-Free which is I think potato based, I didn't check all the ingredients though because my kids get rashy from too much potato. I also remember in the NICU there was a fortifier they were adding to the pumped breast milk I had for my son, I'm not sure exactly what was in it but I believe Enfamil has info on it on their website. Perhaps if you could find another "milk" product he could tolerate you could use a fortifier of some sort to make up the fat/vitamins that he may be missing. My son was also intolerant of most formulas and even the breast milk and I remember the NICU docs mentioning elemental formulas, although I don't know how much more elemental they get than Neocate, have you had a GI specialist consult? Are you located near a children's hospital? Just trying to throw out ideas of things we tried. If it's any consolation my ds seems to be tolerating alot of the fruits and grains he was sensitive to at your son's age, I don't know about your families allergy history but my family is LOUSY with allergies on both sides. Best of luck, keep us updated.

Posted on: Tue, 07/08/2003 - 3:52pm
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You might want to look up POFAK (parents of food allergic kids) at groups.yahoo.com.
[This message has been edited by krasota (edited July 01, 2007).]

Posted on: Tue, 07/08/2003 - 6:55pm
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Welcome,
Oh,does this sound familiar. Here's an old mom's thoughts. Seems like at one point child is allergic to almost everything. Thankfully, many food allergies are outgrown-not necessarily in the order or time frame we want or even what the average atopic kid does.
I think hunting for a good dermatogist is worth the work. I gave up too quickly on them when my child was young- some were afraid to touch my child- some were in complete denial that foods cause flare-up of the skin. I think at age two Protopic is available and can really help clear up, heal wounds and cracks of eczema reducing the need for antibotic to keep infections at bay. I applied this to sleeping child the first two weeks because one possible side affect is stinging of the skin. Why not let child sleep through that side affect which reportingly stops after short time. I did lots of lotioning while child was asleep just because everything could be so painful when awake. also good to do cool,baths,silghtly warm gentle force showers and lotioning right away after cleansing. Having a good dose of anti-itch medicine is also very important-but whenever school aged(if doesn't outgrow by this time) double check with doctor on times for medication-my child stayed on a.m and p.m. dosing until end of one school year and got too sleepy to pay attention in school.
I agree with above poster that having CAP RASTS done and having Dr. Wood or someone who is very knowledgeable in reading these is very important-- to know what to avoid and to know what to try and when to have controled food challenges in a hospital setting. Findout if doctor recommneds child to not smell certain foods being cooked. We have several we avoid in that manner- and one that child can now be around somewhat as we learned that food will likely not be outgrown. I wish I'd tried more safe foods- as childs familiar foods even now as a teenager are limited.
Be wary of holistic doctors because sometimes they use try and see approach-high doses of natural food can sensitze child to yet another food.
Well, I hope this is helpful. I'm not usually up this early but have one child off on flight with group of kids/chaperones out of the country for a week of fun.
Does your child have asthma also?
Glad you are able to nurse for long time. I was able to this with first child but had to stop at 8 months per doctors stating too many ezcema flare-ups and had restricted my diet from many different foods without baby getting improvement. Nutramigen was then used
sucessfully.
Hang in there,
Blair

Posted on: Wed, 07/09/2003 - 5:05am
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Thankyou all for your feedback and support.I live in Connecticut.I brought my son to a nutritionist at CT Childrens Medical Center.She gave me a paper with a standard hypoallergenic diet with the main staple in diet as rice. I did tell her he had vomitted rice several times and it would make his skin flare with the little bit that I could get into him. It was a few weeks after this that the allergist did skin prick him and he tested positive for rice much to the allergist surprise.The nutritionist was nice but I did not find her to be any help at all.I have found more information from reading and doing alot of research on my own.No my son does not have asthma thank god. There is no family history of asthma or food allergies but my motherinlaw developed eczema after the birth of my husband but it always has been a little patch once in a while.

Posted on: Wed, 07/09/2003 - 8:11am
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HI ResearchingMom
I know what you mean about finding out more info from moms through these support groups than from doctors. My dd who's now 2, has multiple allergies as well(milk, egg, wheat, peanuts, cantaloupe, s. potato, tomato...etc!) I found out a LOT of info from POFAK (the yahoo group) b/c lots of moms there went through the same thing you're going through now. It's weird, my ped. allergist told me to do the samw about wheat even when she had a positive SPT at 1 y/o! [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img] She DID react to wheat in my breastmilk so I didn't feed her any...I too am breastfeeding LONGER than expected (still am!) Because your son is allergic to milk, DON'T feed him goats milk (it's HIGHLY probable he'll react to it). Wow..I'm really bummed he actually tested positive to rice too! *Have you heard of leaky gut syndrome? I just recently came across this and it may explain why your son may have so many food allergies. Basically, it's saying that the intestines are so inflamed causing food proteins to leak out into the body causing this allergic reaction. What you can do is help 'cure' this leaky gut syndrome through use of probiotics (helps increase the good bacteria in the intestines). I have yet to try this myself (fear of anything new to give to dd). I'm sure you'll find out some info through web searching (sorry, I don't have any links at hand to direct you to). I do hope you have an epipen. And I'm glad you're switching allergists. We're on our third one and I just don't feel that happy with any ... just seems parents of food allergic kids know tons more than allergists so far. And yes, do agree with Blair's post about being wairy w/holistic doctors (we tried that route and did NOT work...but that was just our experience.) Feel free to email me if you have any questions (I'm sure I won't know all answers but will help you find them!) God bless you and your son...Jen

Posted on: Mon, 07/14/2003 - 12:29pm
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Yes I have heard and read MANY articles about leaky gut syndrome .My sister just gave me an article about antibiotics increasing the risk of allergies in children.In one study they found that infants who were given one course of broad spectrum antibiotic before age one had double the risk of becoming asthmatic compared to other children.Another study found children given one dose of antibiotics had a four-fold increase. In both studies,those given additional courses of antibiotics had even greater risk.It says scientists believe that the antibiotics may destroy certain types of bacteria that are beneficial.My son had three courses of antibiotics by the time he was about 7 months old .By the way he ended up being allergic to the keflex antibiotic . Yes this is one reason why I think he is so allergic .The other is he had an adverse reaction to his 2 month vaccinations and they told me that it was safe to vaccinate him at the 4 month visit and his health went downhill after .I can not find a probiotic that is free of all the things he is allergic to.

Posted on: Tue, 07/22/2003 - 5:22am
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Hi, I just wanted to add a quick note, like you I to am new to the board and have a child (DD) who has severe eczema and multiple food allergies. My husband and I noticed that when her eczema acted up, she became more sensitive to foods (ie made her itchy). Of note, the foods where not ones she is allergic to and to I am pretty sure it was the eczema which caused her to be sensitive to some foods and not the other way around. She is now 3 and in the last 6 months her eczema has really improved. My husband and I followed the same strategy as Blair. Hang in there, time seems to help on the eczema front, which I hope in turn will help on the food allergy front. I tried my second daughter on Nutramigen, but she hated the taste. My experience with a Naturopath was extremely bad, so beware they can cause more harm than good. A good dermatologist will work wonders, I finally found one associated to our local children's hospital. My thoughts are with you.

Posted on: Fri, 07/25/2003 - 7:46am
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Chuser I am sure each person is different but in my sons case his ECZEMA IS CLEARLY CAUSED BY FOOD Allergies.I highlight this because my family and I see it before our eyes. He will look pretty good then we try to reintroduce a food and he gets all red and blotchy sometimes more severe than others.We tried feeding him butternut squash and he turned a real bumpy red mess on his face within a half hour or less and today he still looks terrible.Believe me this is the same story with other foods. I am so frustrated.When he looks like this I can't take him anywhere because people ask me whats wrong with him like he has some contagious disease.

Posted on: Mon, 08/11/2003 - 4:01am
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Dear Researching Mom:
I know how it feels, when your child's eczema has flared up and people are looking. It is difficult, what got me through the tough flares ups was the thought that in 20 years the eczema will be a boring story Mom and Dad like to tell. I am part of an allergy support group, and there is a couple who has a child with similar allergies and eczema. Their allergist affliated with a children's hospital says eczema in children is only caused by food. My allergist who is affliated with another children's hospital disagrees. I know that for my DD, the weather/environment has a huge impact. Since we are on a very limited diet it does not change seasonally, but there is a period from end of January to middle of February where she has no eczema. Hang in there, what really helped my daughter was 3 baths a day (cool water, 5-10minutes) take her out Do Not Dry, put the moisturizer on their wet bodies. What this does is seal in the moisture. It works, I tried it on myself. It took about a year but her skin got progressively better.
Hang in there, you are a great mom,

Posted on: Wed, 08/13/2003 - 1:51am
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Yes I have heard and read MANY articles about leaky gut syndrome .My sister just gave me an article about antibiotics increasing the risk of allergies in children.In one study they found that infants who were given one course of broad spectrum antibiotic before age one had double the risk of becoming asthmatic compared to other children.Another study found children given one dose of antibiotics had a four-fold increase. In both studies,those given additional courses of antibiotics had even greater risk.It says scientists believe that the antibiotics may destroy certain types of bacteria that are beneficial.My son had three courses of antibiotics by the time he was about 7 months old .By the way he ended up being allergic to the keflex antibiotic . Yes this is one reason why I think he is so allergic .The other is he had an adverse reaction to his 2 month vaccinations and they told me that it was safe to vaccinate him at the 4 month visit and his health went downhill after .I can not find a probiotic that is free of all the things he is allergic to.
Researching mom - Do u happen to have the information on the articles about antibiotics. My PA DD is supposed to start an antibiotic for an extended period of time due to UTI infection and I want to tell the Doc this info.
Thx

Posted on: Wed, 08/13/2003 - 11:25am
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Danielle the article my sister gave me about the antibiotics and food allergies was from a magazine put out by Bristol Hospital called Health Sense.The article was on page 4 in the Spring 2003 issue.Their website is [url="http://www.bristolhospital.org.At"]www.bristolhospital.org.At[/url] the bottom of the article in brackets it says Pulse, April 29, 2002 which probably is the source for that article.The tittle of the aricle is Do antibiotics increase risk of allergies in kids?

Posted on: Wed, 08/13/2003 - 12:50pm
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Thx researching mom!!!!!

Posted on: Tue, 08/19/2003 - 2:29am
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I understand your frustration with your baby. My son pretty much had eczema from the first few weeks after he was born.
I had trouble with formulas, but was able to use alumentum.
i also noticed that a lot of the baby food would aggravate his hands. I realized later that it was likely the soybean oil/products and the peas.
I have had a great deal of success feeding my child a pretty much natural diet, fruit, vege, meat, things that are not processed.
Additionally, i have added Coromega to his vitamin taking ritual. This is Omega 3 fish oils and comes in a packet that is flavored with orange. it does not smell or taste fishy. this has improved his skin tremendously.
i continue to have trouble with finding the right cream. one will work for a while, then start to irritate him. i just try to keep rotating them.

Posted on: Mon, 09/01/2003 - 7:54am
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raising for mom/w?

Posted on: Mon, 09/01/2003 - 9:30am
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Thanks researching mom! I also have heard about Ultracare as another type of formula. Ultracare from what I have heard is rice based. My son is allergic to both corn and rice so we might consider trying Ultracare. The thought is that Neocate might be causing his IGE to be elevated. He also still itches.
Nicole

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