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Posted on: Tue, 08/24/1999 - 3:06pm
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

Hi,
We are off to a good start this year at the new school as our little girl enters kindergarten. (the first part of this topic is filled with our struggles from the last school year)
The new school team members that worked with us on the peanut allergy concerns have written a wonderful health plan (emergency medical plan).
The school nurse has done a fantastic job of training almost every adult at the school about our daughter's peanut allergy. She has been so supportive. The whole IEP team has gone out of their way to try and keep Haylee safe. The bus driver keeps the EpiPen on the bus. The school principal has provided a cell phone for the bus. I could go on and on about each of the team members and the special things that they have suggested or done, but I think you can feel the relief we have this year compared to our struggle and frustration last year. What a difference a team makes!
We know that accidents can happen, but we feel that the team is ready to respond very quickly and they have done so much to help our daughter.
I just had to share this news with people that can relate to our relief and joy at not having to fight every step of the way. We have been there and it is so stressful and dangerous.
We hope that by sharing our progress, it will show some light at the end of the tunnel. We know that the struggle of educating people about life threatening allergies will be a never ending job, but for now we seem to have gotten a lot of help at school!!!
Sue [img]http://client.ibboards.com/peanutallergy/smile.gif[/img] in Sunny Arizona

Posted on: Thu, 09/02/1999 - 12:56am
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FDC
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Joined: 09/02/1999 - 09:00

I have met with my son's school Principal and Vice. all of his teachers, he has 4 this year now that he is in the 5 th grade. They have been terrific about helping to make my son's day safe. I have full cooperation. But they also thought it was great that I was willing to remove Mike from the cafeteria completely... And in turn they have made thier rooms off limits to any food. Also off limits to any other outside functions that may use the school, such as after care use.
If their is going to be a party it will take place in the cafeteria and no nut products will be allowed. His "POD" which is a building with 4 classrooms and a teachers room accomodates 100 pupils. They have posted a Peanut warning on both entrance doors and in the hall ways. The children put their lunch boxes in a crate in the teachers room and when they come back from lunch they have clean their hands with wipes. The children have been great support to my son it is a few parents that I could do without....
I just think that we have to try our best to educate the public what this terrible allergy is all about and the mental stress that goes along with it for our children....
------------------Once a month I will be having a pizza party for all of the children it will be my way of saying thank you to them and the teachers... I am going to ask Domino's to sponsor a portion of it as a community service...
As you said Sue it is beginning
FDC
[This message has been edited by FDC (edited September 02, 1999).]

Posted on: Tue, 09/07/1999 - 3:06pm
Chris PeanutAllergy Com's picture
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Joined: 04/25/2001 - 09:00

This was e mailed to us.>>>
We have a five year old son who has been diagnosed with a peanut allergy.
We have been doing research and reading your chat-room postings. We do not
know what a 504 plan is can you please advise?
Is this a statute? If so please provide the chapter and statute number.
Thank you.
------------------
Stay Safe
[email]"Chris@PeanutAllergy.Com"[/email]

Posted on: Tue, 09/07/1999 - 3:36pm
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

Section 504 refers to the Rehabilitation Act of 1973 (Section 504)
A web site that I find very helpful on this issue and the ADA (Americans with Disabilities Act) is:
[url="http://www.edlaw.net/frames.html"]http://www.edlaw.net/frames.html[/url]
Sorry, but I can't remember how to enter the site address so that you can just click on it.
Hope this helps,
Sue in Sunny Arizona

Posted on: Wed, 09/08/1999 - 7:20am
Anonymous's picture
Anonymous (not verified)

Hi Sue,
Here is the direct link for the site you posted [url="http://www.edlaw.net/frames.html"]www.edlaw.net/frames.html[/url]
Stay safe.

Posted on: Tue, 11/30/1999 - 2:58pm
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

Hi,
I think there are a lot of answers here to the many recent questions about schools on this board. LauraP and others have posted many excellent suggestions about the ADA and schools. I think they are worth another review by many of us, but will be very helpful to the most recent board members.
Hope this helps.
Sue in Sunny Arizona

Posted on: Thu, 01/20/2000 - 6:03am
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

[This message has been edited by Sue (edited October 06, 2001).]

Posted on: Thu, 04/20/2000 - 3:19pm
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

[This message has been edited by Sue (edited May 20, 2001).]

Posted on: Mon, 06/05/2000 - 6:59am
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

Jennasmom,
Lots of stuff on school and 504 in this thread. Hope some of it helps.
Sue in Sunny Arizona

Posted on: Sun, 09/03/2000 - 2:13am
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Joined: 09/03/2000 - 09:00

Hi! I need some help for my son who is PA.He is seven years old and will be attending a Special Needs school for ADHD, depression, and PA. This school,told me that they would be able to provide him with lunch and they had a Nutritionist on board to help with this issue. They called me during the summer to tell me that they would take awaythe alternate lunch of PB&J and would help to make the school safe. A week before school starts, they tell me that they cannot provide lunch or snacks to my son because of this serious allergy. This special needs school provides lunch and snacks and special Holiday Meals to all of their students, but not to mine. As a part of my son's classification in order to get the help he needs, it was best to say "Other Disabilities Impairment". We were accepted at this school with the understanding that they would be able to accomodate him and his needs and would not make him feel different from the other children. He has been in therapy for two years because of feeling different and on anti depressants. This is a crucial part of well being and how others see him, and how he sees himself. I offered to go in to the school to read labels, offered to help the teachers and aides how to read labels. They said we would have a meeting. How can they serve children with special needs yet deny mine of his? He will be the only child bringing in lunch from home while all the others will have hot lunches and snacks that are free with the program? I'm emotional and pissed about it. I don't know who to contact first. The school didn't return my calls for the past two days and now it's a holiday weekend. Any ideas or am I crazy? Jeanelle

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