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Posted on: Sun, 06/06/1999 - 1:16pm
shirleyct's picture
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Joined: 02/15/1999 - 09:00

Hi Laura, Yes I came with that women because her son and my nephew are in the same class so my sister brought us together. so anyway I do know that her son has an aide on the bus BUT, the aide is doing this as a favor because i was told she felt bad for the peanut allergic child and was willing to drive to this childs house-leave her car there - take the bus with him-(she happens to be the class aide also) then she takes the bus home with him -then- gets in her car and drives home....So again I really don't know if 504 covers an aide on the bus?? My daughter is already asking why she can't go on the bus with the other kids!!well thanks for getting back so fast and if I find out anything at my PPT meeting JUNE 10th I'll post it..thanks again---Shirley in wolcott,ct.

Posted on: Wed, 06/09/1999 - 4:17am
Lidia's picture
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Joined: 04/25/1999 - 09:00

I asked about filing for a 504 plan and was told that the district has other pn allergic children and they don't have a 504.Also said was that it is not needed to put a plan in place for my child. If the school complies to all my stipulations ( highly doubtful) Do I still try to get a 504? and If I do try and they don''t want to comply is my only next step to obtain legal counsel?

Posted on: Thu, 06/24/1999 - 1:14pm
Mark's picture
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Joined: 01/19/1999 - 09:00

The following is a link to an article in The Boston Globe about a recent decision about the Americans With Disabilities Act. Might these decisions "weaken" the case for 504's under this act for those with peanut allergy?
[url="http://www.boston.com/dailyglobe2/174/nation/Justices_limit_who_can_sue_over_disability+.shtml"]www.boston.com/dailyglobe2/174/nation/Justices_limit_who_can_sue_over_disability+.shtml[/url]
Mark

Posted on: Fri, 06/25/1999 - 5:33am
Noreen's picture
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Joined: 01/24/1999 - 09:00

Thanks for the link to the Boston Globe article, Mark. I wonder if the Supreme Court would consider a peanut allergy "correctable," given that Epi-Pens prevent deaths. Seems to me the ruling is vague enough that the ADA is doing the right thing by seeking clarification as to who is covered and who isn't.
Also, I'm not sure the ruling effects school-aged children as it seems only to apply to adult employment. I guess it's possible a peanut-allergic adult could be fired in sales if they refused to do all those power lunches. Still, I'm finding it hard to imagine how a peanut allergic adult would suffer from job discrimination.
Chris, are you contacting the ADA on this issue?
Noreen

Posted on: Fri, 07/23/1999 - 3:53pm
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

Hi,
It is getting close to the new school year and I am getting very nervous about our 5 year old peanut allergic daughter (ingestion and touch) starting school.
She will have an IEP. The IEP covers her PA and her emergency plan (written by her allergist). I would like some opinions on some ideas I have for her safety at school.
The school has agreed to send a note home to the parents of her classmates that they are not to send in any peanut product snacks to the classroom. The kids eat a snack from home, in the classroom. I made some stickers on my computer that say, "This snack contains peanuts" and I want to ask the teacher to send the snack back home with the student with the sticker on it as a reminder not to send in peanut product snacks.
Your comments on this approach will be appreciated.
Also, I have made a white T-shirt with the big red circle with a red line through it saying no peanut products or eggs. I want to ask the teacher to have our daughter wear it if they go on field trips or there is a substitute teacher. By the way, our daughter loves the shirt. Any comments on this approach.
One other thing I am planning to do is add a line to her medical emergency plan that states that NO ONE that has eaten peanuts that day, including breakfast, is to give her CPR/mouth to mouth. This scares the heck out of me. She has already had two severe reactions to kisses.
I just hate the thought of all those parties with food at school, in the classroom.
Hope you don't mind these silly questions, but it's nice to get all the opinions, before I do these things.
Thanks,
Sue in Sunny Arizona

Posted on: Sat, 07/24/1999 - 12:27am
Kathryn's picture
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Joined: 02/17/1999 - 09:00

Hi Sue, at this time last year I was also worried because Troy was starting school and even though plans were in place I wondered how successful they would be. Well, for the most part the plans worked. Troy is touch, smell and ingestion sensitive.
We were fortunate that either my husband or myself were able to arrange our schedules so that either he or I could be a helper in the classroom on party days where foods were offered. If we could not determine that a cake or cupcakes etc. were safe then the teacher did not offer them. By the end of the year there was a bigger percentage of parents sending fruit trays, vegetable trays, pizza etc. than baked goods because it was easier on them.
On a couple of occasions there were supply teachers and Troy informed us that he made sure that the teacher looked at his bracelet and the posted emergency plan with his picture and the Allerex poster showing how an Epi-Pen is administered. I was really proud of him because I hadn't considered substitute teachers. I like the T-shirt idea too!
We were also fortunate that there was an educational assistant assigned at snack time to check snacks. On a fairly regular basis (once every 2 or 3 weeks) she found snacks that were problematic and substituted them. Unsafe snacks and snacks with unknown ingredients were sent home with a note. After a while parents paid attention and began listing ingredients on home baked goods that they sent and not sending "may contain" items.
At every school wide event such as hot dog sales at a penny sale evening or fun fair or sports day all the foods offered by school staff were checked and were safe.
It was a good year for Troy. On a couple of occasions there were close calls, such as when a student teacher distributed Easter eggs without asking the teacher first and when a child pulled a piece of peanut butter cookie out of his pocket where he apparently had placed it while still at home!
There were so many more positives, really good experiences, for Troy than there were negative ones that I look back at this time last year when I was so worried and I thank God for His blessings.
Take care.
[This message has been edited by Kathryn (edited July 24, 1999).]

Posted on: Sat, 07/24/1999 - 1:10am
CathyT's picture
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Joined: 07/11/1999 - 09:00

Noreen--I beg to differ, about adults and discrimination. It can be very subtle, but affect your employment. For 13 years I worked for a very well known, large company. I did very well, and got my fair share of promotions. However, it does come at a price--I travelled a lot, and held tissues over my nose because of the smell of peanuts on the plane. My coworkers and VIPs of the other companies I travelled with loved peanuts. I found that the higher up I went, the less tolerance there was, due to the enormous pressure of the job. I never spoke about my allergies, because I quickly found out that my coworkers were petrified of having to possibly help me and give me an injection. When I was pregnant with my first son, I went to a few close coworkers and explained the situation. When I showed them the epipen, they told me they could not inject me because they would feel guilty about possibly hurting the baby with this medication. This was said after they understood that I could die without it. That was the last time I talked about it, as I knew that I was on my own, still.

Posted on: Sat, 07/24/1999 - 5:00am
Noreen's picture
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Joined: 01/24/1999 - 09:00

Thanks, CathyT, for the correction. We are so fortunate to have you and other adult anaphylactics post frequently on this group. Otherwise, how would we know such information. Thanks again, and please post , post, post... [img]http://client.ibboards.com/peanutallergy/smile.gif[/img]
Noreen

Posted on: Sat, 07/24/1999 - 8:20am
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Joined: 05/28/2009 - 16:42

Sue - We have printed up t-shirts in every color for Spencer. They say:
Front: Just Say NO Peanuts!!
Back: PLEASE! Do NOT Allow Me to Eat ANYTHING With PEANUT Ingredients! I have A Dangerous Allergy.
The "o" in NO has a line through it and the words "PLEASE" "PEANUT" and "Dangerous Allergy" are all in bold.
The preschool is instructed to use the shirt (one left at preschool at all times) if there is a sub or if he leaves the room for ANY activity. We plan to us it when we go out to activites that are considered risky (e.g the annual OX Roast).
Hope this helps!
------------------
Kelly M
Another Mom in Michigan

Posted on: Sat, 07/24/1999 - 4:28pm
Sue's picture
Sue
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Joined: 02/13/1999 - 09:00

Kathryn and Kelly,
Thanks so much for the suggestions and support. I'm so glad I posted.
I love the pizza treat idea instead of a birthday cake at school -
I am so glad you mentioned wearing the shirt when leaving the classroom - I recently found out that the kids leave the classroom for (I think) science and computer. Those are classrooms shared by everyone.
I am so happy to hear about Troy and all the wonderful people at his school.
Thanks for the help and suggestions.
Sue in Sunny Arizona

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