scared again today

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Hi I have a thread for this type of thing somewhere,but can not find it. Anyway I took the kids out shopping today. We were in the Guitar store because Christopher loves it there. When all of a sudden the owner and her little girl comes walking from the backroom. I was looking at how adorable the child looked all dressed up and things like this. I notice that Christopher is looking very pal. He said he could smell a weird smell but could not figure it out. He said it smelled odd and sweet. I noticed the lady was eating a big bag of peanuts and her little girl had mixed in a good sized bag. I got a whiff and told the kids to run from the store because the lady was touching all of the merchandise. I have never gone anywhere without the epi-pen until today and realized I left it in the bathroom at home. If anything had ever happened to Christopher I don't think I could have forgiven myself. I took the pen from my purse because I needed to let my husband take it when the two were going somewhere. We have usually got at least 5 epi-pens but I am in the middle of getting new ones at the pharmacy. That is another long story. Christopher admitted that he was scared because he thought he was going to have a reaction. I am shocked that nothing happened. The only good thing is Christopher was up towards the front and I was in the back near her. So maybe the distance helped. I have never been so scared because we were a long way from known territory to us. Take care and i just needed to get this out of my head with people that can relate. Thanks claire

On Apr 20, 2001

Claire, that must have been so terrifying to realize you didn't have your epipen! I'm so glad your son was ok. Maybe you can reassure Christopher that he protected himself with his sense of smell, and it was good for him to mention it and trust his body and instincts. That is how he will deal with this allergy.

[This message has been edited by BENSMOM (edited April 20, 2001).]

On Apr 20, 2001

bensmom, Thank you for the words of encouragment that I needed to hear. You know I just reread my post and started to fill right up. I just am feeling so happy that nothing happened and relieved to have people from this web site to talk to. I do know that I am going to call the store soon and explain that it was a life threatening situation to us. I think they should realize no eating should also mean the owners and employees. For some reason the peanut grease is more dangerous than the soda a customer may bring in. I was so speechless and panicking at the time so I never addressed the store help. Thank you for letting me have you people to talk with about this. Claire

On Apr 20, 2001

Claire,

Glad to hear no reaction, Oh but the fear of this without the EpiPen... We all try so hard to always have it with us... Last time we had mishap was when DH took PA son to ball practice and game and I left for FAN conference earier in the a.m. so I wasn,t there to remind. Thankfully nothing happened and I didn't know about it until they got back home.

JaBP

On Apr 20, 2001

My PA son is only 3. His allergist gave him a special back pack to keep his epi and benadryl in. When we go anywhere I ask him if he has his backpack. If he doesn't he will go get it. But just in case we would forget the backpack I keep epi and benadryl in my purse and in my car. Once the weather changes I know I won't be able to keep the meds in the car any longer.

Clair I dread the day we forget the epi. I know it will happen sometime. Thank goodness Christopher was OK. Kim

On Apr 21, 2001

I'm not sure if this will be of any help to you, but we went through a few "forgotten" epi-pen episodes too, luckily all turned out well. Both times it was dh who forgot to remind him to wear it.

After this we made up a HUGE stop sign poster and across it wrote...."STOP, do you have your epipen?" We pasted this to the back of our door. My son was young at the time and couldn't read but the stop sign would be enough of a reminder and we would notice it too. We also bought a small hook and he has now become accustomed to taking off his pouch and hanging it right next to the entrance, as finding the darn thing was more work then remembering to put it on sometimes. I can't remember a time when he forgot it since doing this. Now we don't even put the sign on the door, it's just a habit, I think hanging it right by the door helped the most.

On Apr 21, 2001

We have a hook by the door too. We did just have a trip over an hour away where we forgot it, though. It ruined our day. My son grabbed the fanny pack but then tied the shoes and left it on the garage floor. We realized when we arrived at the museum and it was just this horrendous feeling. We stayed at the museum, but only after we looked at the map and got our bearings for the closest fire station and hospital. We headed straight home afterwards and he was afraid to even chew a stick of gum while we were out. Knowing that epi-pen could mean life or death makes it quite a heavy duty emotionally charged fanny pack!!!

On Apr 21, 2001

Yep we have all done this! When I had my second reaction, my epipen was in my office and I was at the other end of the building!!! AND I AM A NURSE!!!!!! Don't kick yourself....I'm just thrilled that nothing happened and that your child is fine .... *hugs* Sharon

On Apr 21, 2001

Thank you to all of you people for helping me feel o.k. I wanted to kick myself for my panicking and not telling the woman why we were leaving. She will be getting a call from me just to let her know that I really planned on allowing him to purchase an item and she made it so unsafe. The Guitar he wants is in there but now I want to make sure it will be safe of peanut grease. I think these people will listen to me because the gentleman was nice. He probably never even heard of the allergy and thought I was a nut running around the way I did. I am going to explain to them there should be no food on the things in there,because nothing is packaged and the customers are free to try them out. Well thank you to all claire

On Apr 21, 2001

Claire, So glad to hear Christopher was okay. We have forgotten our pack a couple times... it sent chills up my spine every time I realized it.

I just have a couple questions, if you don't mind. I was wondering if Christopher's sensitivity has always been that high, or if it has gotten worse over time?? Does Christopher attend a school that allows peanut products? If his sensitivity has increased over time, do you think that exposures have caused it - i.e. PB in school, if that's allowed??

I ask because our son is touch sensitive, but we're not sure about airborne. He'll start Kindergarten in 2002. I'm worried that just being around PB every day will increase his sensitivity to the point of being airborne reactive.

Again, I'm so glad Christopher was okay. Take care, Tammy

On Apr 22, 2001

Lam, as for Christopher changing in his reactions any NO. He has always been as bad. He was very fortunate in school because the kids parenets had so much respect for our situation so he was not really around peanut butter. However there was PB in his school. I know that he missed a lot of school in Elementary due to asmatic conditions. I would imagine due to the allergy. He is in JR.High and has missed hardly any school,and when he was absent it was minor things this year. The thing is there is no PB in this school.I now think it was due to the fact that in elementary school there was exposure enough to get him ill. He has only had few accidental bad reactions from eating nuts. These were from mistaking. We have never had any nuts in our home and neither has my family so he is never exposed to them. We have made this such a life style that being careful is so day-day and we never realize it anymore. My little guy had a small bag of chips yesterday and Christopher wanted to know if he could have a drink of his Soda because Christopher didn't have one of his own. I grabbed the chips from Stephen and read the ingredients,and he says to me" is it safe for Chris". The woman I was with was just amazed at this little 3 year old.and hear it never even surprised methat he would say this. The thing Lam is that when your child starts school and you need to deal with the issues of the PB. Please be understanding of the children,because they have no clue. I have seen a lady actually scold a child for eating PB. We also need to realize that they aren't aware like we are so be sure not to yell at them if you see something like this. Talk with the teachers and parents. Feel free to stand up at school meetings and make everyone aware I do. Take care claire

On Apr 25, 2001

Hi, I just sent Christopher to school. Today is his first track meet,and I can not possibly make it. The reason is they gave him this meet all of a sudden and I have committed to taking my daughter to softball practice and another child with us. My husband has a very late dy on Wednesdays so he will not be home.I told Christopher I would go out and get him some gatorade for the meet and drop it at school,but he said no he really didn't want anything because he is so nervous. Christopher was excited,but nervous which is understandable. The thing that bothers me is I have never missed anything he has done in my life. I did give him a water bottle after much convincing. I called my parents and they are going to the meet and that is wonderful,but deep down I am feeling like I should be with him just in case he does loose and is upset. I know that he is tough and all,but he even commented on me not being there for the first time. I was in tears when he went to school this morning and I felt like it was his first day of school. I really don't know how parents can emotionally miss their children's games and events that come up. I know that by 6 tonight I am going to be a wreck. When he was leaving he said "don't worry mom I am going to win because I am so fast". I hope that he is. Thank god for my parents because they will be very supportive and they have spoiled him so bad anyway that I bet he will be glad they are there. He only knows my dad may be there,but gramma is going also. I can just see him smile when he sees someone there to watch. I just don't want my daughter to think I am not interested in her softball,but it is just practice. I can't wait for her games. I think I just worry about Christopher in such a different way. Jennifer I worry will get hit with a pop fly. Christopher I worry will have an attack and not be able to breathe. OK I think now I can go on with my morning. Best wishes everyone Claire

On Apr 25, 2001

Wow! I just found this web site today and I feel such a sense of relief! There are other people out there living my life. We have found the best way to always ensure we have a epi-pen for my son is for him to wear an epi-belt around his waist.It hangs it on a hook by our front door where he can reach it (he's five). It is the part of a routine the same as shoes. He finds th epibelt very unintrusive.

On Apr 25, 2001

Well I was a wreck for no reason!! Around 4:30 my dad called from the track to tell me the meet was running very late and I would have plenty of time to get there. I still had Jennifer to deal with and her practise. My brother was at the meet and he asked if he could take her to the practise and I could watch the meet. He had seen one event that Chris ran so he didn't mind. Well Chris said it was a neat feeling hearing us yell for him as he got 2nd place. He didn't do well in the first race,but said he was scared to death. he did have fun and that is alls that matters. Who would think that peanut butter would be an issue at a track meet. ME of course. I realized that he was in a relay wich means baton passing. I started my usual lecture about making sure none of the kids on the team ate peanut butter then touched the baton. chris said only I would think about that,he would not have. I am so Happy right now it is an amazing feeling. Jennifer was happy because I made it in time to watch a lot of her practise also. Take care claire

On Apr 30, 2001

I remember when we went to vote last year, I forgot the EpiPen. I was standing at the back of a very long line when I finally moved up a little, I noticed a snack table with all kinds of brownies and cookies and stuff for sale. I ran home and got the EpiPen and came back. Why does food have to be everywhere I look?

On Apr 30, 2001

You know I never minded food being everywhere until I had the allergy to deal with. Now I just worry. Not like I used to when he was little,because he is old enough to know that he should not take it. When they are little though you never know what they will grab. I fortunatly had to deal with Christopher first so that the other 2 kids just grow up knowing never to touch anything because it may contain something christopher will react to. We have always been so good at having the epi with us. the particular day I didn't I had set it in the bathroom on the counter. I think it would be a good idea to attach one Epi pen to my set of keys because I am always the driver when we go with anyone. take care claire

On Jun 8, 2001

Hi everyone, I felt that this was the place to post this. Yesterday I had a bit of a fright with Christopher. Everyday at 2:55 I watch him get off the bus on the corner and walk into the house and my little boy hides and pretends he isn't home. I alwasy pretend with christopher that Stephen is lost and Christopher goes with the joke. It just has become a habit and Stephen is to young to realize that Christopher and I would never loose him. Anyway yesterday at 2:55 Christopher did not get off the bus,and had no permission to stay after from myself. I know he is 15 and he should be able to stay after,and that is fine,but I have the right to know where he is. He is excellent about this and respects my wishes very well. I started freaking out,because i didn't even see his bus go by the house. Apparently I was in the other room. anyway I called the school and they of course think i am a nervous mother over things anyway. Well the secretary comes back,and is laughing because she has found Christopher. He stayed to wrestle with intramurals. He gets on the phone all out of breath and realized that he had not told me,but told my husband. Lack of communication seeing as dad was in bed and I had not talked with him since christopher told him. That is only because we went to a party and my husband left early to get to bed. Not a big deal that he told dad and not me. I mean my husband is capable of saying yes or no. The thing is I was thinking maybe he was exposed to something he was allergic to and the bus was waiting somewhere for an ambulance. Christopher was so upset and did not mean to scare me in anyway,but the things that went through my head were awful. My husband talked to Christopher and explained that he should have let me know in the morning when I said goodbye. My husband is like many and is so busy that everyone in the house knows that Mom takes care of everything like where the kids are,and when. this morning I told Christopher to please call me if he ever stays after. Not that I distrust him just that it eases my mind a great deal. Now I know what we put our parents through. take care claire

On Jun 8, 2001

Hi Claire! I can sort of related to the "where the he** is he!" thing but not with my PA son. My boss (a dentist) always parks his car by the dumpster in the lot since it is the safest spot to not get a door ding. Well a couple of weeks ago, his dad (retired dentist) stopped by the office. They left, and I finished closing up the office. My son happened to be with me that afternoon. Well we walk into the lot and his car door is WIDE open, digital camera on the front seat and keys in the ignition. Well I was thrown into a total and full blown panic. You see he is anaphylactically allergic to bee stings and of course does NOT carry an epi-pen.(DUMMY!!) Since his car is parked by the dumpster, I immediately think he is stung by a bee since there are big fat juicy ones flying around the dumpster. Well I run into the office, and call his wife and leave an odd message on their machine. Then I call the damn emergency room to see if a Dr.***** has been brought in with a bee sting. OK now I'm getting irrational. Of course he wasn't and as I am hanging up the phone, he walks in with the MD from next door. "I'M GONNA KILL YOU!!!" I scream and he said "What? have I been a bad man?" and I told him what I did with tears in my eyes. He came over and gave me a big hug. I think it touched him to think that I really care about him (to hell with him I need the job! LOL! of course not just joking!). Well after, his wife called me on my cell and I told her the story and she cracked up laughing. "Oh he does that all the time! leaves doors open or leaves the house and is gone for 2 hours and I didn't even know he left."

I don't think this was a rational reaction. But given the circumstances that we live with, at a moments notice our lives can change forever. I immediately reacted with fear that someone I love (eeww! not THAT way!)may have had an anaphylactic reaction. Anyone else probably would have realized he might have been in another part of the building. This goes to show you how programmed with fear we are. So Claire I do understand the fear you had when you say you didn't see your son. I would have reacted the same way. Blessings to you!

On Jun 9, 2001

BCUZILUVHIM,I think I would have been frightened over the whole thing as well. Yesterday when my mom and I went to the store there was a car running and no one in it or even near it. We were a little nervous ourselves just wondering why would someone leave there car on and windows wide open unless something happened to them and they had an Emergency.Your right probably because we have to keep allergies and things like this on our minds. Not that we have a problem just that our guard has to be wide open at all times. The one time it isn't could be the time it should be. Take care,claire

On Jun 10, 2001

I've turned it into a game at our house. Jesse tries to catch me "forgetting" his epipen. If he catches me "forgetting" it he gets a treat. A couple of times I really forgot it, and he caught me.

On Jun 10, 2001

I am just so emotional sometimes when my kids come to play in my life. Today I was cleaning my kitchen when Christopher wanted a treat. now please remember that I always read everything that is edible and nothing gets by me usually. Today I am not really concentrating on myself cleaning,but on Christopher picking up a bag of barbcue chips that I alwasy purchase,and he loves. I catch a glimpse and he is reading the lable carefully and taking a good look at the package. The chips were totally safe,but I was so impressed with him and his patience and understanding of everything we have taught him. I just turned to him gave him a kiss on the shoulder and said to him"you may have thought I was crazy at times when I would panick and reread,but I guess It taught you the importance". Now remind you he is 15 and cool at times. He doesn't want mom to see she is right. He gave me this nod and said "yea mom I guess you weren't crazy,but sometimes you worry to much". I guess we are teaching them with everything we do. I was really proud of him. Take care claire

On Jun 11, 2001

dear jesse"s dad,

BRILL! WILL TRY THIS, THANKS!!! SARAH

On Jun 11, 2001

We never seem to forget to much around here,because I have a 10 year old daughter. I am totally amazed at this child. I get ready to go and she has the bags all packed. She is in the car naming what she packed and sure enought she grabs the extra epi-pen. I usually keep that one home,but i just let her go because at least she was thinking. She packs half the house. My husband thinks she has watched me to long. I forget more than she does. She even remembered my 3 year olds extra clothes that I left on the chair when I went to find my keys. Maybe she could make the game for myself that if I forget I get the treat. Take care claire

On Jun 11, 2001

Claire, this relates to an earlier part of this thread when you were talking about Christopher doing track. My 12 year old Nigel is going to be in a relay race at a track meet tomorrow for the first time ever (a friend asked him two weeks ago) and is now talking about taking up track next year. I confess I never thought at all about the baton having something on it. I have been more concerned because he is always so congested even with Beconase and Allegra, especially in the spring and summer, and he does have occasional wheezing and shortness of breath due to asthma. I wondered did you take Christopher in for a checkup before signing up for track, and does he take his inhaler before exercising? Thanks.

On Jun 11, 2001

Christopher's asthma is not an excersice induced asthma. It is an allergic Asthma. That is how the doctor described it to me anyway. If he was exposed to any food he is allergic to and was treated for anaphalaxis he would go into asthma for the next 3 to 6 months. What i mean is it would be uncontrollable for that time period. The baton is something that you could handle without any one even knowing about. Just before the race if your son is willing like mine is. Give him a was in wipe and he can do a quick wipe of the baton. Christopher felt that it was fine to do. None of the kids will even know. What is amazing is how many are eating pb cups before the race. I don't know what the connection is to racing an PB energy,but the kids were always eating it somewhere. Yes I always have a physical before every sport he plays. Best wishes to you Claire

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