scared again today

Posted on: Fri, 04/20/2001 - 9:17am
Claire's picture
Joined: 04/19/2000 - 09:00

pHi I have a thread for this type of thing somewhere,but can not find it. Anyway I took the kids out shopping today. We were in the Guitar store because Christopher loves it there. When all of a sudden the owner and her little girl comes walking from the backroom. I was looking at how adorable the child looked all dressed up and things like this. I notice that Christopher is looking very pal. He said he could smell a weird smell but could not figure it out. He said it smelled odd and sweet. I noticed the lady was eating a big bag of peanuts and her little girl had mixed in a good sized bag. I got a whiff and told the kids to run from the store because the lady was touching all of the merchandise. I have never gone anywhere without the epi-pen until today and realized I left it in the bathroom at home. If anything had ever happened to Christopher I don't think I could have forgiven myself. I took the pen from my purse because I needed to let my husband take it when the two were going somewhere. We have usually got at least 5 epi-pens but I am in the middle of getting new ones at the pharmacy. That is another long story. Christopher admitted that he was scared because he thought he was going to have a reaction. I am shocked that nothing happened. The only good thing is Christopher was up towards the front and I was in the back near her. So maybe the distance helped. I have never been so scared because we were a long way from known territory to us. Take care and i just needed to get this out of my head with people that can relate. Thanks claire/p

Posted on: Fri, 04/20/2001 - 10:38am
BENSMOM's picture
Joined: 05/20/2000 - 09:00

Claire, that must have been so terrifying to realize you didn't have your epipen! I'm so glad your son was ok. Maybe you can reassure Christopher that he protected himself with his sense of smell, and it was good for him to mention it and trust his body and instincts. That is how he will deal with this allergy.
[This message has been edited by BENSMOM (edited April 20, 2001).]

Posted on: Fri, 04/20/2001 - 12:30pm
Claire's picture
Joined: 04/19/2000 - 09:00

bensmom, Thank you for the words of encouragment that I needed to hear. You know I just reread my post and started to fill right up. I just am feeling so happy that nothing happened and relieved to have people from this web site to talk to. I do know that I am going to call the store soon and explain that it was a life threatening situation to us. I think they should realize no eating should also mean the owners and employees. For some reason the peanut grease is more dangerous than the soda a customer may bring in. I was so speechless and panicking at the time so I never addressed the store help. Thank you for letting me have you people to talk with about this. Claire

Posted on: Fri, 04/20/2001 - 12:51pm
Anonymous's picture
Anonymous (not verified)

Glad to hear no reaction, Oh but the fear of this without the EpiPen... We all try so hard to always have it with us... Last time we had mishap was when DH took PA son to ball practice and game and I left for FAN conference earier in the a.m. so I wasn,t there to remind. Thankfully nothing happened and I didn't know about it until they got back home.

Posted on: Fri, 04/20/2001 - 2:13pm
KIM I's picture
Joined: 11/29/2000 - 09:00

My PA son is only 3. His allergist gave him a special back pack to keep his epi and benadryl in. When we go anywhere I ask him if he has his backpack. If he doesn't he will go get it. But just in case we would forget the backpack I keep epi and benadryl in my purse and in my car. Once the weather changes I know I won't be able to keep the meds in the car any longer.
Clair I dread the day we forget the epi. I know it will happen sometime. Thank goodness Christopher was OK. Kim

Posted on: Fri, 04/20/2001 - 11:46pm
torontosue's picture
Joined: 06/08/2001 - 09:00

I'm not sure if this will be of any help to you, but we went through a few "forgotten" epi-pen episodes too, luckily all turned out well. Both times it was dh who forgot to remind him to wear it.
After this we made up a HUGE stop sign poster and across it wrote...."STOP, do you have your epipen?" We pasted this to the back of our door. My son was young at the time and couldn't read but the stop sign would be enough of a reminder and we would notice it too. We also bought a small hook and he has now become accustomed to taking off his pouch and hanging it right next to the entrance, as finding the darn thing was more work then remembering to put it on sometimes. I can't remember a time when he forgot it since doing this. Now we don't even put the sign on the door, it's just a habit, I think hanging it right by the door helped the most.

Posted on: Sat, 04/21/2001 - 12:02am
Head Cook's picture
Joined: 11/19/2000 - 09:00

We have a hook by the door too. We did just have a trip over an hour away where we forgot it, though. It ruined our day. My son grabbed the fanny pack but then tied the shoes and left it on the garage floor. We realized when we arrived at the museum and it was just this horrendous feeling. We stayed at the museum, but only after we looked at the map and got our bearings for the closest fire station and hospital. We headed straight home afterwards and he was afraid to even chew a stick of gum while we were out. Knowing that epi-pen could mean life or death makes it quite a heavy duty emotionally charged fanny pack!!!

Posted on: Sat, 04/21/2001 - 1:30am
ImStillSharon's picture
Joined: 02/28/2001 - 09:00

Yep we have all done this!
When I had my second reaction, my epipen was in my office and I was at the other end of the building!!! AND I AM A NURSE!!!!!!
Don't kick yourself....I'm just thrilled that nothing happened and that your child is fine ....

Posted on: Sat, 04/21/2001 - 5:19am
Claire's picture
Joined: 04/19/2000 - 09:00

Thank you to all of you people for helping me feel o.k. I wanted to kick myself for my panicking and not telling the woman why we were leaving. She will be getting a call from me just to let her know that I really planned on allowing him to purchase an item and she made it so unsafe. The Guitar he wants is in there but now I want to make sure it will be safe of peanut grease. I think these people will listen to me because the gentleman was nice. He probably never even heard of the allergy and thought I was a nut running around the way I did. I am going to explain to them there should be no food on the things in there,because nothing is packaged and the customers are free to try them out. Well thank you to all claire

Posted on: Sat, 04/21/2001 - 8:45am
anonymous's picture
Joined: 05/28/2009 - 16:42

So glad to hear Christopher was okay. We have forgotten our pack a couple times... it sent chills up my spine every time I realized it.
I just have a couple questions, if you don't mind. I was wondering if Christopher's sensitivity has always been that high, or if it has gotten worse over time??
Does Christopher attend a school that allows peanut products?
If his sensitivity has increased over time, do you think that exposures have caused it - i.e. PB in school, if that's allowed??
I ask because our son is touch sensitive, but we're not sure about airborne. He'll start Kindergarten in 2002. I'm worried that just being around PB every day will increase his sensitivity to the point of being airborne reactive.
Again, I'm so glad Christopher was okay. Take care,

Posted on: Sat, 04/21/2001 - 10:07pm
Claire's picture
Joined: 04/19/2000 - 09:00

Lam, as for Christopher changing in his reactions any NO. He has always been as bad. He was very fortunate in school because the kids parenets had so much respect for our situation so he was not really around peanut butter. However there was PB in his school. I know that he missed a lot of school in Elementary due to asmatic conditions. I would imagine due to the allergy. He is in JR.High and has missed hardly any school,and when he was absent it was minor things this year. The thing is there is no PB in this school.I now think it was due to the fact that in elementary school there was exposure enough to get him ill. He has only had few accidental bad reactions from eating nuts. These were from mistaking. We have never had any nuts in our home and neither has my family so he is never exposed to them. We have made this such a life style that being careful is so day-day and we never realize it anymore. My little guy had a small bag of chips yesterday and Christopher wanted to know if he could have a drink of his Soda because Christopher didn't have one of his own. I grabbed the chips from Stephen and read the ingredients,and he says to me" is it safe for Chris". The woman I was with was just amazed at this little 3 year old.and hear it never even surprised methat he would say this. The thing Lam is that when your child starts school and you need to deal with the issues of the PB. Please be understanding of the children,because they have no clue. I have seen a lady actually scold a child for eating PB. We also need to realize that they aren't aware like we are so be sure not to yell at them if you see something like this. Talk with the teachers and parents. Feel free to stand up at school meetings and make everyone aware I do. Take care claire


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