retesting for PA by allergist

Posted on: Sun, 12/12/2004 - 10:03am
mamagaona's picture
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Joined: 12/29/2000 - 09:00

Regular visit with allergist this past Saturday. He is well known for PA issues and speaks in the area all the time. Name of Viksman.
Anyway there he was checking out dd and discussing her allergys shots and all seemed fine when he suddenly mumbles almost to himself ( with heavy Russian accent), "ya know, some kids grow out of this peanut allergy" When was the last time she was tested.
So here we are scheduled for testing next month. Poor dd is all excited. I am pretty realistic. I have no idea what triggered this, but now I have to go along with it.
Thanks for listening,
Arlene

Posted on: Sun, 12/12/2004 - 11:04am
Carefulmom's picture
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Our allergist said the same thing. Dd is getting tested in Feb (to coincide with when she needs a cap rast for milk). Our allergist said with strict avoidance the latest studies show that the chance of outgrowing the pa is 50%. The 20% is for all people, many of whom don`t strictly avoid. People on this board are probably more allergy aware than the average pa person. Many of the people who post here, including me, know pa people or parents of pa children who are nowhere near as cautious as most of us on this board are. So the 20% who outgrow it, includes those who strictly avoid and those who don`t, those who read every ingredient label and those who don`t, those who let their kids have airborne exposures and those who don`t, etc. But for those who practice strict avoidance, with a 50% chance of outgrowing it, why not retest?

Posted on: Sun, 12/12/2004 - 12:15pm
MICHELE03142002's picture
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Joined: 03/15/2003 - 09:00

My dd also sees Dr. Viksman in his Toms River office - he also mentioned a chance of outgrowing her peanut allergy, although I am not that hopeful. DD has not been tested in almost 2 1/2 years, but I'll let you know what he says when we see him next.

Posted on: Sun, 12/12/2004 - 10:57pm
nicolimom's picture
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Joined: 02/04/2004 - 09:00

Hey, small world! We also see Dr Viksman in the Manalapan office! We love him!
I hope for good news for you. I was wondering when the last time your dd had a peanut reaction? Wondering if that is playing a part in retesting.....Did he say he was going to do a skin test?

Posted on: Mon, 12/13/2004 - 1:16am
BS312's picture
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Joined: 09/05/2001 - 09:00

Arlene-
Why do you have to go along with it? Please be careful. A peanut challenge ALMOST KILLED our daughter.

Posted on: Mon, 12/13/2004 - 1:46am
williamsmummy's picture
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Joined: 03/26/2002 - 09:00

Arlene said TESTED, not challenged.
have you posted about your daughters reaction any where on this board, just curious!
sarah

Posted on: Mon, 12/13/2004 - 5:49am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

[quote]Originally posted by Carefulmom:
[B]Our allergist said the same thing. Dd is getting tested in Feb (to coincide with when she needs a cap rast for milk). Our allergist said with strict avoidance the latest studies show that the chance of outgrowing the pa is 50%. The 20% is for all people, many of whom don`t strictly avoid.
I have to disagree with you here. My daughter's levels dropped from 92 (a class6) to 42 (class 4) in just a year. I called Dr. Wood to discuss the results and why she dropped so significantly. Basically, he told me it had NOTHING to do with strict avoidance. He wished it did but the research shows that it doesn't. He told us the odds of her outgrowing it are slim to none and while he is pleased with her decrease in numbers, they really don't say much except maybe her immune system is doing what it should.
At the FAAN conference in Baltimore, they again stated that the 20% outgrowing PA are those who are a class 1 to start with and that strict avoidance has nothing to do with it.
We avoid EVERYTHING that is contaminated by peanuts and tree nuts.

Posted on: Mon, 12/13/2004 - 2:06pm
Carefulmom's picture
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Was the FAAN conference in Baltimore within the last month? The study our allergist quoted came out last month or the month before. This was different from what he said as recently as last July (2004). The October or November study about the 50% for those who strictly avoid is hot off the press.

Posted on: Mon, 12/13/2004 - 8:16pm
nicolimom's picture
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The thing about 'strictly avoiding' sure is depressing to me. We've had a few reactions this year, but they were contact reactions. and there was nothing we could have done to avoid them, for the most part. One time my son was sitting in a shopping cart and started welting up, another was after drinking bottled water(I guess there was some residue on the outside of the bottle?) the last time was when his grandfather came over and was playing with him, and my son got a bad contact reaction. And to top it off, his grandpa said he didn't eat any nuts that day. (sigh) I guess his chances for outgrowing it aren't very good....

Posted on: Tue, 12/14/2004 - 2:46am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Quote:Originally posted by Carefulmom:
[b]Was the FAAN conference in Baltimore within the last month? The study our allergist quoted came out last month or the month before. This was different from what he said as recently as last July (2004). The October or November study about the 50% for those who strictly avoid is hot off the press.[/b]
Well, I spoke to Dr. Wood in September and he assured me that strict avoidance had nothing to do with her decrease in the numbers and he basically told me in no uncertain terms that her odds of outgrowing it were slim to none.
I found this article: [url="http://www.telegraph.co.uk/health/main.jhtml?xml=/health/2004/11/10/hpeanut10.xml"]http://www.telegraph.co.uk/health/main.jhtml?xml=/health/2004/11/10/hpeanut10.xml[/url]
It was written as of 10/04 and it still clearly states that only 20% of kids are outgrowing the allergy. Everything I have read states this same statistic. I would think DR. Wood would have known in September if the statistics were going to change as those studies take YEARS to complete. If it was to be released in November, he would have known about it in September.

Posted on: Tue, 12/14/2004 - 11:31am
BS312's picture
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Joined: 09/05/2001 - 09:00

For Sarah-
I think of a challenge as a type of test. Arlene didn't specify.
DD's reaction was a nightmare. At age four she had a negative CAP-RAST to peanut (after previous positive skin and CAP-RAST tests, and no history of exposure). The allergist was sure she had outgrown her peanut allergy. It turns out that this was probably a lab error and her CAP-RAST probably wasn't really negative, but we didn't know it at the time.
The allergist gave her a tiny amount of peanut butter in his office. We waited 15 minutes; nothing happened. Then he gave her a whole teaspoon of peanut butter. If I had been more educated about peanut allergy, I never would have allowed him to do that. She had full-blown anaphylaxis with hives, face and throat swelling, severe wheezing and shortness of breath, very runny nose, abdominal pain, and she passed out briefly. We almost lost her. It took five shots of epinephrine to save her life. Several hours later she had a recurrence of the same symptoms, but not as severe (a biphasic reaction).
We developed a great respect for her condition and lost all respect for her allergist that day. I wish someone had warned us of what to expect from a peanut challenge before he almost killed our daughter.

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