Research

Posted on: Tue, 11/14/2000 - 12:57am
msfz's picture
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Joined: 04/08/2000 - 09:00

My allergist asked me if he could submit my name for peanut allergy research. The research is being done at Childrens Memorial Hospital in Boston. He had very little information, only that it would involve a peanut challenge at the end and he assumed one at the beginning (to see what the difference was). He did know that it would require regular visits to Boston for desensitation injections.

I told him I would be interested. BTW - I am 41.

Have any of you heard of this study?

Posted on: Tue, 11/14/2000 - 3:15am
cheri's picture
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Joined: 05/20/2000 - 09:00

Quote:Originally posted by msfz:
[b]My allergist asked me if he could submit my name for peanut allergy research. The research is being done at Childrens Memorial Hospital in Boston. He had very little information, only that it would involve a peanut challenge at the end and he assumed one at the beginning (to see what the difference was). He did know that it would require regular visits to Boston for desensitation injections.
I told him I would be interested. BTW - I am 41.
Have any of you heard of this study?
[/b]
The only thing I know about this study is that they are researching a vaccine and the study is being done at 7 well known hospitals. They are looking for people between the ages of 12-60. I am not sure but I think they are looking for pa people who have had a reaction of some kind in the past. What they hope to come up with is a vaccine against pa to help desensitize the allergy so it is not as life threatening. If you find out anymore please be sure to keep us all posted. Good Luck!
Cheri

Posted on: Tue, 11/14/2000 - 4:00am
Heather's picture
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Joined: 10/08/2006 - 09:00

Try this:
[url="http://www.peanutallergyresource.com/"]http://www.peanutallergyresource.com/[/url]
Click on the "study" button.
If you could qualify to participate, we parents along with our children, would be eternally grateful!
[This message has been edited by Heather (edited November 14, 2000).]

Posted on: Tue, 11/14/2000 - 4:01am
e-mom's picture
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Joined: 04/23/2000 - 09:00

MSFZ--please keep us posted on this one!!!
Thanks!!

Posted on: Wed, 11/15/2000 - 10:33pm
Caring Mom's picture
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Joined: 10/12/2000 - 09:00

Msfz,
I would be interested to find out more info on this because, people like you can help our children for the future-I did hear about this vaccine they were trying to come up with because, my pediatrician told me & I am taking my son to Mt. Sinai in NYC-I would never have my child challenged but, if I were allergic I would do it for the children.
Maybe I am being selfish but, I can't take any chances with my son.
I commend you if you are willing to do this & I would be grateful if you did do all this because, this would mean so much for us moms & people with PA.
Please keep us posted & GOOD LUCK!!!!
Ronna

Posted on: Thu, 03/08/2007 - 3:57am
doofusclo's picture
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Joined: 12/03/2006 - 09:00

Thanks that is kind of what I expected. I would like them to find an answer for everyone. I pray about it and support the research, but I also try to get my three year old to understand the gravity of this situation that she might have for a life time.
Thanks again. Cindy

Posted on: Thu, 03/08/2007 - 7:03am
Adele's picture
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Joined: 01/31/2005 - 09:00

My sister has a friend her age (almost 60) with a peanut allergy. The friend's PA used to be much worse until she participated in a research program. I can't remember the name now - but when my sister told me about it, I found reference to the company here on PA.com.
My sister's friend went from being extremely sensitive to mildly sensitive. She said that now, she could eat a Snickers bar, but doesn't. She still avoids peanuts.
If there was something available like this for me, you can bet I would volunteer. I would like my peanut tolerance level raised so I don't have to worry about an accidental ingestion.

Posted on: Thu, 03/08/2007 - 10:42am
Adele's picture
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Joined: 01/31/2005 - 09:00

The research study that my sister's friend participated in was at the National Jewish Hospital in Denver. I don't remember the name of the drug but the company manufacturing it either went out of business or took it off the market. I think it was pre-Xolair - possibly Tanox?
I believe she participated in this study in 2000.
[This message has been edited by Adele (edited March 08, 2007).]

Posted on: Thu, 03/08/2007 - 2:40pm
McCobbre's picture
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Joined: 04/16/2005 - 09:00

I have other adult onset LTFA--shellfish and sesame--and I do find hope. I'm very excited about the immunological research going on that was reported about a year and a half ago. I'm about to start taking Xolair. It's for asthma, yes, but you better believe I have strong hope that I won't have the airborne reactions I do now. I hope that I can eat grilled food at a restaurant again.
If there's hope out there in research, why not claim it for myself?
[This message has been edited by McCobbre (edited March 09, 2007).]

Posted on: Thu, 03/08/2007 - 2:58pm
ajgauthier's picture
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Joined: 04/13/2005 - 09:00

I'm ok being PA...and I'll be ok with it if there never is a cure or something to make me less sensitive to traces.
It'd be nice though, to have something (drug or desensitization method) that would make me less sensitive to traces. Knowing that I could have a tolerance for say, a smidge of peanut, means I could eat out anywhere I wanted without worry of cross-x, could eat bakery items, could eat at other's houses freely and without concern.
That'd be the big change for me...more peace of mind when eating out and trying new foods.
So, I guess I have hope, but I'm not counting on it.
Adrienne
------------------
30-something survivor of severe peanut/tree nut allergy

Posted on: Sat, 03/10/2007 - 6:15am
doofusclo's picture
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Joined: 12/03/2006 - 09:00

Thanks again for your replies. Since my daughter has food allergies I have kind of decided that is what my charity/research money will go too. I want a better solution then Epi pens for all people with food allergies. I want everyone to be able to go out to eat and not have to worry about cross contamination. The fact that adults with PA still have hope of a better solution gives me more hope. Thanks again, Cindy

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