recent retest results

Posted on: Tue, 08/07/2007 - 6:11am
amy2's picture
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Joined: 09/02/2000 - 09:00

Well, we knew it wasn't going to change that much, at least we knew it wouldn't go down, but go up? My son just retested for peanut/tree nut. His peanut went up, past the high level. Our lab's scale is 17.6 - 50 is the high range, 2 years ago he was at 35. Now, 60.1. That scares me even more now. He has been so isolated from peanut, no exposure since he was 3, 7 years ago. (knock wood.) And his level rises that much? It makes me and him very sick. He is so tired of it. I just keep telling him, you could have something so much worse. Some kids have to deal with a lot more that food allergies..We have been told he won't outgrow this, he has always tested high. But, I worry, I am a Mom after all.. With his levels so high, it scares me, the what ifs...

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Amy (mom of 2)
Son PA/TNA
Daughter PA/TNA

Posted on: Tue, 08/07/2007 - 6:35am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

Screw the high scores. Dont worry about them.
Positive is positive, and you deal with avoiding. End of story.
Tell him, it is what it is.. some kids wear glasses, some have red hair, some have one leg... some have food allergies.
Its just the way it is...
jason
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[b]* Beyond Obsessed * [/b]

Posted on: Tue, 08/07/2007 - 6:45am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I understand the impulse to 'comfort' yourselves by saying "it could be _______. We should be [i]more grateful.[/i]"
And while it is certainly true to a point, I think it minimizes all the ways in which my child find MLTFA a major, life-limiting pain in the backside for me to say that to her... Now, I don't let her wallow in self-pity. That isn't healthy. But I don't draw comparisons and tell her to 'suck it up' either. A PA sucks, no doubt about it.
But it is what it is. I focus instead on what FAs have [i]given[/i] our family-- (lord knows they take plenty away).
Example: because we never fly, we've actually [i]seen[/i] some wonderful, interesting scenery as we drive on vacations. Because she has to say 'no thanks' to most unexpected treats, she often gets BIGGER treats to make up for it.
(I mean, [i]that's[/i] got to be pretty great no matter what your age.)

Posted on: Tue, 08/07/2007 - 7:19am
BENSMOM's picture
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Joined: 05/20/2000 - 09:00

Agree with Jason--don't worry about the numbers. Ben tests off the charts and has never reacted. The number doesn't mean a whole lot. A trend down can mean you're outgrowing it, but means nothing unless it goes negative (below .35). But I don't think a trend up means much of anything. It's the reaction history that matters and it sounds like he hasn't reacted in 7 yrs. No need to worry any more than usual.

Posted on: Tue, 08/07/2007 - 9:27am
blackcml@cox.net's picture
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Joined: 12/19/2005 - 09:00

That is tough news. You must be doing a great job though with no reactions happening. Just keep up the good work you are both doing, and we'll all hope for a cure someday!
Christina

Posted on: Tue, 08/07/2007 - 11:14am
amy2's picture
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Joined: 09/02/2000 - 09:00

Thanks everyone, yes, when he was starting to "self pity" I told him, "listen, this is what it is. You knew that it wasn't going down. And, PA is only a small part of who you are, but, it is a part of you, and you have to deal." I have always told both my kids that PA is a part of their life that they have to accept, and take control of it, not let it control you..Also, yes, numbers don't mean much, positive is positive. Our allergist says that too, but still, there is always that little hope inside that next time he's tested, it will go down..There's always hope right? Thanks for the nice words everyone!
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Amy (mom of 2)
Son PA/TNA
Daughter PA/TNA

Posted on: Tue, 08/07/2007 - 12:20pm
lilpig99's picture
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Joined: 12/22/2005 - 09:00

I knew Jason would be one of the first to respond here [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img].
I would tend to say the same. That is, nothing has changed, really you know? I know it just doesn't feel like the ship is moving in the same direction and while we understand the frustration, you'll continue on this journey.
I'm sorry you didn't get the results you were hoping for. Hugs...

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