Reasonable expectations???

Posted on: Fri, 08/15/2003 - 3:03am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

Im basing this on my own thoughts and feelings, and some things Ive read recently in other peoples posts.

Most of us have a hard time knowing when to use the epi-pen vs. benedryl, etc. It is a very scary thing to have to determine , whether it is an actual reaction, and how to treat it.

So my question is, is it reasonable to expect to send our children to school and expect the nurse, teacher, or whoever it may be to be as vigilant as us, and to make a life or death decision?

My sons school has been very helpful, and he will have an aide , but Im starting to wonder if I should expect someone who is hired out of the blue, with one day training to make the right decisions?

This is starting to get really scary for me and I just wondered what everyone else thought.

Posted on: Fri, 08/15/2003 - 3:40am
ajinnj's picture
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I personally do not think it is a reasonable expectation. My mother would always go in and talk to the nurse/ teacher and teach them how to use the epi pen and what to look for in the event of a reaction. I did not have a peanut free classroom. But my mom also taught ME to be responsible for MY allergies/ severe asthma. From the time I could talk I knew not to eat anythiny that my mom didn't give me. I knew when and how to use my epipen. I never had a reaction at school. FYI I am contact sensitive but not airborne.
Allison
[This message has been edited by ajinnj (edited August 15, 2003).]

Posted on: Fri, 08/15/2003 - 12:59pm
momma2boys's picture
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Allison, thanks for responding. I have worked very closely with the school nurse and will hopefully do the same with the aide when hired.
I just have my doubts because this is pretty much a lifestyle for us, that most people dont understand. It involves so much more than most people realize.
I usually follow my intuition, but now Im not sure if its intuition, or normal fear.
Thanks for your input

Posted on: Fri, 08/15/2003 - 1:10pm
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Joined: 04/14/2003 - 09:00

Momma2boys - Our school nurse informed me she will not have to decide between epi or Benadryl in case of a reaction. My DD will receive the epi-pen is there is a known or suspected ingestion of nuts and then 911 will be called. I sometimes worry that she may be given the epi when Benadryl will be enough, but according to our doctor and many other opinions, the epi should be given anyhow. I wish I could be as a matter-of-fact as our school nurse! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Maggie

Posted on: Fri, 08/15/2003 - 1:58pm
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[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001008.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001008.html[/url]
In the hopes of conveying the relationship between "Reasonable Expectations" and "Raising the Standard of Care". Perhaps there is a way to achieve a [i]common ground[/i].

Posted on: Sat, 08/16/2003 - 2:40am
ajinnj's picture
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I definitely think that the nurse MUST be willing to give the epi. I don't think the teacher should be required (after all they are teachers not nurses), however it would be nice for his teacher to be willing. The teacher should defintely be well educated in PA and what to look for and ways to "reduce the risk", but you are right no one will be as careful as you. That is why your son MUST be educated.
Allison

Posted on: Sun, 08/17/2003 - 12:24pm
momma2boys's picture
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Quote:Originally posted by ajinnj:
[b]I definitely think that the nurse MUST be willing to give the epi. I don't think the teacher should be required (after all they are teachers not nurses), however it would be nice for his teacher to be willing. The teacher should defintely be well educated in PA and what to look for and ways to "reduce the risk", but you are right no one will be as careful as you. That is why your son MUST be educated.
Allison[/b]
Allison, All the staff will be trained by an RN from the local hospital. My son is very educated and never eats anything without asking me. He will have an aide with him at all times.
Now, my BIG fear is not if they will give the Epi Pen once they realize he is reacting. It is WILL they realize he is having a reaction in time to give the Epi. I mean , if hes eating and just starts vomiting, will they think he just has the flu? (which he may) or will they consider it may be a reaction?
These are things that I worry about happening at home so it scares me that something Ive never had to do might happen there.
I just dont know someone unaware will handle this.
Just plain scary to me. Even the nurse told me she wakes up in the middle of the night thinking of scenarios of what could happen to him. Sometimes I also feel guilty because I know this is a scary responsiblity to lay on all of them.
Well thanks for responding.

Posted on: Thu, 08/21/2003 - 7:36am
ElizabethsMom's picture
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Here is some PA-Free food for thought.... Our allergist insists on Epi first, questions later. Benadryl to accompany Epi but not trusted to stop a reaction. Through experience he has seen too many cases of anaphylaxis judged incorrectly with disastrous results. He was/is particularly insistent that peanut reactions are too tricky to judge accruately and he would not trust many fellow physicians to be able to gauge the severity of PA reactions. Our plan is for Epi-pens during a reaction. Better safe than dead.

Posted on: Thu, 08/21/2003 - 11:53am
momma2boys's picture
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Elisabethsmom,
That sounds like a great idea. I would still worry whether or not they actually realized he was having a reaction or not. I mean, if they vomit, do you do epi? What if its only the stomach flu? Im not questioning you or your allergist, just playing devils advocate so I can drive myself nuts!! Thanks

Posted on: Thu, 08/21/2003 - 2:08pm
wendysco's picture
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I'd have to say I'd rather they stick my child with the epi for the flu and send him to the ER. Odds are in favor of vomiting d/t PN than barfing up lunch because of the flu. I have left strict instructions that if anyone thinks ds or dd is reacting (2 1/2 and 19 mos) they are to give epi and call an ambulance. I think as mom's we are clued in better to our kids' allergies, especially if they are multiple allergic, I don't think anyone could or should distinguish between my kids having hives from "too much dog" or a PN exposure. Granted my kids are younger and can't verbalize as well as your child can, that's where hopefully your child will be in tune with his allergies enough to say something on his own behalf.

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