RE-TESTING/FOOD CHALLENGE/PEANUTS

Posted on: Mon, 01/28/2002 - 5:49am
STACIE's picture
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Joined: 01/28/2002 - 09:00

MY DAUGHTER HAS BEEN SYMPTOM FREE FOR 2 YEARS NOW .WE ARE CURRENTLY SCHEDULED TO DO A "FOOD CHALLENGE" AT CHILDRENS HOSPITAL IN PHILADELPHIA. THIS IS WHERE THEY WILL FEED HER SMALL AMOUNTS OF PEANUT BUTTER OVER THE COURSE OF THE DAY. ALTHOUGH A LITTLE NERVOUSE ABOUT IT I LOOK FORWARD TO KNOWING FOR SURE IS SHE HAS OUTGROWN THIS ALLERGY. HAS ANYONE HEARD OF THIS BEFORE?

Posted on: Mon, 01/28/2002 - 8:07am
smack's picture
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Joined: 11/14/2001 - 09:00

Stacie,
My son has been PA for 2 years now. At his last years appointment where he was tested for other nuts and again for peanuts (and tested Positive again to peanuts but not tree nuts) the allergist mentioned perhaps doing a Food Challenge at the next visit. I wasn't very informed then about the whole allergy thing.
Now, he will go this Wednesday, for what I don't know, other than he developed environmental allergies this past fall.
So, with perhaps that getting tested I WILL NOT LET HIM DO A FOOD CHALLANGE. OR SCRATCH TEST AGAIN. My son reacts to smelling peanut butter cups now, so with that in mind, I am not letting my allergist do a Food Challange.
I am in Canada, and for a while was thinking maybe the U.S. allergists are a little more level headed with this allergy thing. Read up on Food Challenges and you will perhaps think a little differently.
Sorry to sound a little harsh but I'm still P.O'd about this whole thing about Food challenges after I learned how serious the outcome can be. And, only if they have tested negative to peanuts and wait at least a year would some allergists even try.

Posted on: Tue, 01/29/2002 - 3:55am
STACIE's picture
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Joined: 01/28/2002 - 09:00

SMACK - THANKS FOR YOUR INPUT ON THE FOOD CHALLENGE. I DEFINETELY WILL DO SOME RESEARCH BEFORE NEXT MONTH. I GUESS I'M NOT REALLY TOO NERVOUSE ABOUT IT BECAUSE MOLLY'S REACTION WAS FAIRLY MILD. SHE JUST GOT HIVES AND WAS REALLY ITCHY UNTIL SHE HAD BENEDRYL AT THE DOCTORS OFFICE. WITH THE 2ND SKIN SCRATCH TEST (I THINK THAT'S WHAT THEY CALLED IT) SHE WAS ONLY A 2+. WE EAT PEANUT BUTTER IN THE HOUSE AND SHE HAS NEVER HAD A REACTION TO THAT SO I'M THINKING THAT HER ALLERGY IS MILD OR MAYBE THAT SHE HAS OUTGROWN IT. THANKS AGAIN...STACIE

Posted on: Thu, 01/31/2002 - 6:56am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

stacie,
I am also going to do a food challange (mine
is scheduled in May). My challenge will also be peanut butter. Although I am nervous it is the only way to tell for sure if my son is ana to this food. As he is starting school next year it will be good to know if he needs special lunch seating, bus seating, etc. I feel that if it is done in a doctors office it will be safe (of course, I'm still scared to death!!) Let me know how you make out

Posted on: Thu, 01/31/2002 - 11:49pm
smack's picture
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Joined: 11/14/2001 - 09:00

Me again,
Stacie and rscollo2 did you have a Cap Rast done? If so what were the scores and do you know what they mean?
Our allergist did say if my son has a 15 or less on the Cap Rast that he would like to do a Food Challenge. He said if he opens the jar of peanut butter in the room and my son reacts then the Challenge would be over.
Let me know, I'm so torn up on this, on one hand I want to know if he is anaphylactic to peanuts or just simply non-life-threatning allergic. On the other hand, I don't want him to have what he is allergic to in case it makes his allergy worse.

Posted on: Fri, 02/01/2002 - 6:08am
nicoleg's picture
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Joined: 03/30/2001 - 09:00

Is there a non-life-threatening form of this allergy? I thought we were all supposed to consider pa as anaphylactic. Does this go back to test results? Past reaction history? Is there any way to know or do we just always assume the worst could happen?

Posted on: Tue, 02/05/2002 - 5:31am
STACIE's picture
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Joined: 01/28/2002 - 09:00

RSCOLLO2,
MY DAUGHTER IS STARTING SCHOOL NEXT YEAR TOO. THAT IS WHY I INITIATED THIS RE-TEST. I JUST ASSUMED THEY WOULD DO ANOTHER SKIN PRICK TEST AND THAT WOULD DO IT. SURPRISE SURPRISE...I WAS VERY SURPRISED WHEN THE ALLRGIST SAID THAT ALTHOUGH SHE TESTED POSITIVE ON THE SKIN PRICK TEST THAT SHE STILL COULD HAVE OUTGROWN THE ALLERGY. WAS YOUR SONS ALLERGIC REACTION SLIGHT WHEN IT OCCURRED? MY DAUGHTER ONLY HAD PEANUT BUTTER ONE TIME AND COMPARED TO OTHERS I HAVE HEARD ABOUT IT WAS MINIMAL. I HEAR THEY COULD GET WORSE WITH EVERY EXPOSURE THOUGH SO THAT IS WHY I AM A LITTLE NERVOUSE ABOUT DOING THE CHALLENGE. MY DOCTOR WOULD NOT DO IT IN THE OFFICE - HE REFERRED ME TO A SPECIALIST AT A HOSPITAL ABOUT 2 HOURS FROM MY HOUSE. ANOTHER PROBLEM IS SHE CAN'T DO THE TEST (THAT WE HAVE BEEN WAITING FOR FOR A FEW MONTHS) IF SHE HAS A COLD. AND OF COURSE HER LITTLE BROTHER WOKE UP WITH A COLD TODAY SO MOST LIKELY SHE WILL GET IT TOO AND THEN WE WILL HAVE TO WAIT ANOTHER THREE MONTHS...THE WAITING IS THE HARD PART NOW. KEEP IN TOUCH AND LET ME KNOW HOW YOU MAKE OUT....STACIE

Posted on: Tue, 02/05/2002 - 5:42am
STACIE's picture
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Joined: 01/28/2002 - 09:00

SMACK - I DIDN'T HAVE A CAP TEST DONE - I DON'T THINK. ACTUALLY I NEVER HEARD OF IT. WHAT IS IT? IT'S NOT THE SKIN PRICK TEST IS IT? MY DAUGHTER HAD A 2+ I THINK ON THE SKIN PRICK TEST. THE ONLY REACTION WAS THE AREA AROUND THE SCRATCH SWELLED UP. SHE TESTED NEGATIVE TO ALL TREE NUTS AND SESAME SEEDS. WE EAT PEANUT BUTTER IN OUR HOUSE ALREADY SO I KNOW SHE WON'T REACT TO THE SMELL. YES - I DEFINETELY WANT TO KNOW FOR SURE WEATHER IT IS LIFE THREATENING OR NOT. UP UNTIL NOW THAT IS EXACTLY HOW WE HAVE APPROACHED IT AND REASONABLY SO. IF WE DON'T HAVE TO PUT HER AND EVERYONE ELSE AROUND HER THRU THIS I DON'T WANT TO. I THINK IT WOULD BE NEGLEGENT TO NOT DO THIS TEST FOR HER. BELIEVE ME THOUGH - IF MY KID HAD A SERIOUS (LIKE BREATHING DIFFICULTY) REACTION HER FIRST TIME TO PEANUT BETTER I WOULD NOT DO IT. I'LL LET YOU KNOW HOW WE MAKE OUT.

Posted on: Tue, 02/05/2002 - 5:48am
STACIE's picture
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Joined: 01/28/2002 - 09:00

NICLOEG - I DON'T REALLY KNOW IF THERE IS A NON-LIFE THREATENING FORM OF THIS ALLERGY OR NOT. I DO KNOW THAT THERE ARE VARYING DEGREES OF IT THOUGH. MY DAUGHTER JUST GOT A REALLY ITCHY RASH ALL OVER HER BODY. THE DOCTOR GAVE HER BENEDRYL AND IT PASSED IN A SHORT AMOUNT OF TIME. HE DID INFORM US THAT IT WAS A LIFE THREATENING ALLERGY FOR SOME PEOPLE AND WE NEEDED TO TREAT IT AS IF IT WERE FOR HER TOO. THEY SAID THAT EVERY EXPOSURE TO PEANUTS WOULD INCREASE HER CHANCES OF HAVING A MORE SEVERE REACTION. WE JUST NEVER GAVE HER PEANUTS/PEANUT BUTTER/PRODUCTS MANUFACTURED IN A FACILITY WHERE PEANUT PRODUCTS WERE MANUFACTURED OR ANY TREE NUTS. WE DO THOUGH EAT PEANUT BETTER IN THE HOUSE AND SHE HAS NEVER REACTED. WE STILL DO TREAT THE ALLERGY THIS WAY AND ARE ANXIOUSLY WAITING FOR THE FOOD CHALLENGE.

Posted on: Tue, 02/05/2002 - 2:28pm
ConcernedMom's picture
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Joined: 01/31/2001 - 09:00

I will be interested to know if you do an oral challenge, too, and how it turns out if you do. I just posted yesterday about this same topic because we talked to our allergist about doing an oral challenge as well. My doctor and his resident who was working with him kind of shrugged their shoulders as if to say that oral challenges were no big deal. Of course, they said they would only do such a test in a hospital setting just in case anything went wrong. He didn't mention doing a CAP RAST test, but from the advice people gave me, it sounds like a good idea to do that first. It's a blood test, so you would not be exposing your child to peanuts like you do in a scratch test, therefore there is no risk in getting the CAP RAST. My daughter has never had the blood test done, but I think it gives you some level as to how sensitive a person is to peanuts. If you have a high CAP RAST score, it would take very little peanut to cause a reaction. A very low score could mean the allergy has been outgrown. I think I will ask to get the blood test done first, and then go from there on whether or not do the oral challenge.
I agree with your thinking about school, I want to know before she starts school how allergic she is (or if she still is allergic at all!) I don't want everyone in her class having to ban anything that has peanuts if they don't really need to. I know for some kids who have had life threatening reactions, they have to be in peanut-free classrooms, but I'm not sure all PA kids do.

Posted on: Tue, 02/05/2002 - 9:41pm
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Joined: 05/28/2009 - 16:42

I am presently searching for the information I have regarding keeping a PA child free from exposure for 4.5 years to increase their chance of "outgrowing" it. I'll keep looking.
I also wanted to know if my child was still allergic, and how much so, before he starts school. Our allergist will not re-test him, blood or otherwise. She said there is no chance he has outgrown it. BUT, (2 years ago) she did do, at my request, a "touch" test, if you will. She put a VERY small amount of peanut butter on his back - so he couldn't scratch if it began to itch - and within 20 minutes he had hives at that area. When she went to clean that area, she used an alcohol wipe, and the PB ended up smeared ALL OVER his back. By the time we got home, his back was fire engine red, and terribly itchy. We gave him Benadryl and a good bath right away. He was fine after that. (This, BTW, is the MAIN reason we believe using wipes does not sufficiently clean off PB.) My questions were answered - we found out he was still allergic, and to contact, as well, and he really wasn't put into extreme danger to find out.
HTH,
Take care,
Tammy
[This message has been edited by Lam (edited February 06, 2002).]

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