RAST score/Anaphalaxis

Posted on: Tue, 01/30/2007 - 4:21am
SallyL's picture
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Joined: 02/20/2006 - 09:00

I understand from what I've read that if you're allergic to peanuts, you're at risk of anaphalaxis. I'm just curious to hear if anyone with low scores here has had anaphalaxis...and how low was the score?

I guess I'm feeling lately that I'm being overly protective since my DD has never reacted to peanuts (we found out about it before she was given peanuts through her egg allergy reaction). Even thought it's been almost two years, I still feel some denial about the PA - we had no idea! I guess it won't give me comfort knowing other have reacted with a low RAST but I guess it will make me feel like I'm not an overprotective lunatic! (my comfort zones aren't super tight, but we don't let her have traces either).

Knowing that others have reacted lower will also help me be able to convince the inlaws that I'm not crazy too! LOL

Hope that makes sense...

Posted on: Tue, 01/30/2007 - 4:40am
chloesmommy's picture
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Joined: 03/01/2006 - 09:00

Chloe reacted (anaphl.) at 16months...This was on a tiny reese pieces..Her skin test was small as far as the wheel and the rast was 2.7 ku\l...So unfortuantely, yes you can still have severe reaction with low numbers...Sad to say I was in denial at first..But she was retested again and it confirmed...Now at three her rast went up to 23.58 ku\l....with no known exposure since 16 month episode...I find the whole thing complicated and scary!!!!Im sorry you are in the same situation...I just keep hoping and praying for something/someone to finally come through with a MIRACLE...

Posted on: Tue, 01/30/2007 - 5:22am
saknjmom's picture
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Joined: 04/02/2003 - 09:00

We've had ana reaction at age 4, no rast at that time. No reactions since...RAST age 6.5 low, but skin test high.
We do not discuss test results with family because they do not necessarily mean more or less allergic, but they may interpret it that way.
Do not worry about being "overprotective". Better than not paying attention and having a reaction! You don't have to justify your comfort zones to anyone! I think we have "mommy feelings" that we should listen to.

Posted on: Tue, 01/30/2007 - 5:30am
chanda4's picture
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Joined: 12/14/2006 - 09:00

I was really trying to grasp the severity of my sons allergies by asking these same questions...what is a high positive in RAST, what is the size of the wheal for it to be a severe reaction etc.....
then someone posted to me.... a positive is a postive. Which means, the next reaction could be anaphylaxis, you just never know. So now I tell our family, yes he is allergic to all nuts and peanuts and eggs....any of those foods could possibly kill him...end of story!
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Tue, 01/30/2007 - 10:07am
dgood's picture
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Joined: 03/27/2004 - 09:00

Luckily, my 3 year old has been reaction-free from peanuts, but she tested low for eggs on her 3rd birthday(under 2.8 on the CAP RAST test) had an anaphalactic reaction 9 months later to a few tiny chewy sweet tarts that contained egg. Her score went up to 31 after her reaction. We test her again in March so I'm hoping it went down.
Just goes to show you the level /score has nothing to do with the level of reaction. My daughter almost passed out and was throwing up violently with a few body hives. Her blood pressure was dropping. The Epi worked like magic!

Posted on: Wed, 01/31/2007 - 3:23am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

SallyL, What was the RAST score for your DD? Just curious.
Kara

Posted on: Wed, 01/31/2007 - 7:54am
BriandBrinasmom's picture
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Joined: 10/20/2006 - 09:00

My son has low CAP/RAST scores and has had several bad reactions where he's needed an Epi. I don't have the actual scores in front of me, but they were only Class 2/3. However, he has MFA and asthma, which perhaps makes a difference.

Posted on: Thu, 02/01/2007 - 12:19am
NicoleinNH's picture
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Joined: 06/21/2003 - 09:00

Suburbia
[This message has been edited by NicoleinNH (edited June 10, 2007).]

Posted on: Fri, 03/02/2007 - 3:36pm
niche LH's picture
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Joined: 02/06/2007 - 09:00

Nicole
sounds like we are somewhat in the same situation. My DS now almost 5 just had his 2nd cap rast and it was 87 his first ~3 yrsold was 24. No nuts for him before that due to cousin w PA. I am just trying to deal with this new # - have you heard of reactions in kids with high scores that were not say multi-system / epi pen ER? - I am pretty much scared to death at this point... I know they say higher score doesn't mean anything reation wise but somehow it still scares me more...
Nichele
DS 4 PA TNA
DD 8 months old- taking 20 panel test allergic to either rice, soy or dairy - not sure yet

Posted on: Fri, 03/02/2007 - 9:05pm
NicoleinNH's picture
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Joined: 06/21/2003 - 09:00

n
[This message has been edited by NicoleinNH (edited June 10, 2007).]

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