questions on testing?

Posted on: Thu, 08/09/2007 - 10:15am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Here it is August. Almost one year since first finding out about 3yo DD's MFA's. She has recently seen a ped's gastroenterologist because she has BM's anywhere from 4-10x a day. On average 6 to 8. They wondered if she has a malabsorbtion problem? Well all labs and stool samples were negative. No Celiac or parasites etc. I was very happy about that.

I'm first wondering if anybody else has a child that has a lot of tummy pain and frequent BM's? Wierd question I know. My DD is now on a probiotic, just to see if her system can regulate itself in 30 days. Then we will report back to Gastro. Don't know if it's connected to allergies??

Second question is: I am having another ImmunoCap drawn on DD tomorrow. Initial blood test showed no peanut, SPT was 3+ for peanut. Some say SPT is not as reliable, some say the other way around. If this ImmunoCap is neg for peanut, would I be pretty safe to assume she is not PA? Or does she have to have another SPT?

She is so gray area. She starts 3 school in 5 weeks and I want to know what to tell the school.
I haven't been real pleased with her allergist who avoids testing and told us to never give her peanuts, eggs, pork, tree nuts, shellfish, milk (intolerant) again. He said, "does she really need it? you'll find out if she's still allergic when she eats something by mistake and reacts or doesn't react."

I just want to know what we're really dealing with. We have treated her as PA (and the other stuff) for almost a year now. If she is truly not allergic, why would I want to put her through this? she already hates peanuts and says they are bad and yucky. I'm afraid the damage is done if she isn't allergic. Then I guess, what's the difference?

Sorry it was long. I've been doing alot of thinking...........

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Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

Posted on: Fri, 08/10/2007 - 1:25am
lilysmom's picture
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Joined: 07/20/2007 - 09:00

As for your allergist, I would seek another one, that is not the answer you want to hear esp if she is MFA and there may be more foods that could be causing her BMs. I do know this there are Mast Cells in the GI tract that can react to foods and other allergens. If the probiotic doesn't regulate her, maybe you can ask the gastro to caprast test her for the foods you mentioned and then add any other foods. Keep a food diary as well and see if within 15-60 minutes after eating something she has a BM, its tough playing detective but we all know we need to be the advocates. I hope this helps. Sorry you are going through this, it doesn't sound like your allergist is supportive at all.
Catherine

Posted on: Fri, 08/10/2007 - 1:35am
chanda4's picture
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Joined: 12/14/2006 - 09:00

I 2nd the *find a new allergist* suggestion. That might be worth it in the long run. I do believe in testing, you can't go through life avoiding the *unknown*...you need some answers!
As for the bm's...I have 4 kids that also would have 4-8 bm's a day(sometimes even up to 12 a day), for years! I've been told they have problems absorbing protein in many foods, that they have Unexplainded Toddler Diarrhea, that it's food allergies...we've been to allergists and GI docs(even been suggested the probiotic, which I passed on). Stool tests were always normal.
IMO as long as your child is gaining and growing...how often they poop shouldn't be an issue. And they do seem to outgrow it around age 3-5(in my kids at least). I know this is stressful, is your daughter doing well other then having alot of bm's?? Does she look healthy, gaining weight(even if slowly, but NOT losing)?? I would look into further allergy testing, see if it's not just a reaction to eating something, I do think you ned to know for sure if waht allergies you are dealing(not just "avoid everything"..that's crazy). Good luck, wish I could help more, HUGS
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Chanda(mother of 4)
Sidney-8 1/2(beef and chocolate, grasses, molds, weeds, guinea pig, hamster & asthma)
Jake-6 1/2(peanut, all tree nuts, seeds(all-sesame, sunflower, poppy, pine nut) beef, chicken, eggs, coconut(also avoiding legumes), trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-4 (peanut, tree nuts, milk, soy, egg, beef and pork, cats, dog, guinea pig, hamster, grass, mold, dust mite and EE)
Savannah-1 1/2 (milk, beef and egg, dog(avoiding peanuts, tree nuts, strawberries, seeds, legumes and corn)

Posted on: Fri, 08/10/2007 - 5:11am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Thanks. Just had another ImmunoCap drawn this morning. Depending on what that shows, we will have a SPT done too. I will be talking to pediatrician next week again and will explore perhap a new allergist.
The bummer of it is that this is actually the second allergist and the first time we saw him we liked him alot. Then the last time he gives us the "just avoid forever" speech and I felt like I was left with my mouth hanging open!
Anyway, since starting the probiotic (which we thought we'd try since it can't hurt her)
She has been going even more! Then I realized, just today, that it does have casein and whey in it and since my daughter is milk intolerant (not lactose as far as we know)it could be that part of the milk that is causing her tummy to be upset.
Hmmmmm...... something to talk to the GI about I guess.
thanks!
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Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

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