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Posted on: Tue, 05/06/2003 - 10:45am
Anonymous's picture
Anonymous (not verified)

Gail W., off topic, so I apologize immediately. I was wondering what my *approach* is that bothers you. I understand that you said that it is your problem, but I'd just like to know what my approach is exactly and what it is about it that bothers you. Is it the never-ending questions or something else?
Many thanks and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Tue, 05/06/2003 - 11:08am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Cindy,
Quote:Originally posted by Gail W:
[b]I just needed a little space.
Gail[/b]
I'll keep your invitation for a discussion about this in mind. Thanks.
[This message has been edited by Gail W (edited May 06, 2003).]

Posted on: Tue, 05/06/2003 - 11:39pm
SueQ's picture
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Joined: 01/22/1999 - 09:00

I'm not one to post regularly, but I've been a member here for many years. I checked the boards regularly and find them very useful.
That being said, I'd like to share my reasons for NOT sending money in to PA.com like I do to FAAN.
First of all, when I joined, there was no mention of a fee. Then one day (sorry, I don't have links just my memory) I remember seeing Chris posting that he and his wife quit their jobs to devote their time to PA issues and were asking for members to send money to support them in their efforts.
Now, I'm not criticizing Chris for doing this. It is his decision and these boards were a great idea. However, I can not see sending money to an individual without any legal non-profit standing. I also have no way of knowing what the Papkee's are doing with whatever money they receive through donations to PA.com. I'm not saying that they aren't using it for good, I'm just saying I've never seen any accounting for it. If they had a non-profit status it would be easier for all of us to feel comfortable sending in donations.
Although I feel these boards are very valuable, I have no idea how much they cost to run. I'm a software developer and have my own web site which costs somewhere around $30 a month, although I have no discussion boards on it. I would think with the volume on these boards the storage costs could be more than a typical static website.
Again, I am not criticizing the creators of this site. It was a fantastic idea that obviously helps thousands of us communicate. However, I don't even understand how a company can legally solicit "donations". Chris, if you could please let us know how this all works!

Posted on: Wed, 05/07/2003 - 6:07am
becca's picture
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Joined: 05/22/2001 - 09:00

Hmmm. I never really gave this whole .com thing much thought. I have also asked some specific questions and never gotten answers. I know Chris is working on an ice cream venture, and I asked in a thread twice(and he posted later about his needs again) where it would be located and was never answered.
I think I might hold onto my money(or some of it at least) until I see some of Chris's responses to all of these questions raised in this thread.
I too, see all the good stuff here on the boards, but in my 2+ years here, Chris has not been very visible.
What are the dues/mebership fees paying for?
Sorry Gail! You might regret this thread for possibly *changing* my mind! becca

Posted on: Wed, 05/07/2003 - 7:05am
arachide's picture
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Joined: 08/16/2000 - 09:00

I've been following this thread closely. May I chime in here?
I recently sent in my $25US (which as Cayley's Mom said is roughly $40 out of my Canadian pocket). I too felt I was paying to use the message boards... something no other similar allergy group has.
That said though, other than the boards, I have never seen evidence of how my financial participation in this site has improved the cause of peanut allergy education/advocacy. I'm very uncomfortable with this and believe I too will no longer pay "member" fees to this site. I particularly agree with DebO and Carolyn that paying to be on an unmoderated site is not worth it in many circumstances.
I'm very happy and comfortable being a paid member of Anaphylaxis Canada (a registered charity), though they do not have discussion boards, I AM INFORMED of how my money is being spent on allergy issues.
I must say many here have made some very thought-provoking points.
Chris?

Posted on: Wed, 05/07/2003 - 7:05am
smack's picture
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Joined: 11/14/2001 - 09:00

I look at it differently.
I like this web-site and am willing to pay $37.00 a year to use it.
The alerts and recalls Chris keeps up to date with a little help from whoever gets there first [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
I could go on and on and I don't have a lot of money to throw around either, but I feel this is an appreciation gift I give every year.
I don't care how Chris and his family use it but I'm getting a feeling that a lot of people here don't pay so they probably use it to maintain the boards.
Your welcome.

Posted on: Wed, 05/07/2003 - 7:12am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by becca:
[b]What are the dues/mebership fees paying for?
Sorry Gail! You might regret this thread for possibly *changing* my mind! becca [/b]
No apology EVER necessary. It all depends on Chris' answers for me, too. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 05/07/2003 - 10:21pm
Gail W's picture
Offline
Joined: 12/06/2001 - 09:00

Quote:Originally posted by erik:
[b]
Now, I hope Nick sees that you are still making a sporadic visits so that he may do the same as well [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img][/b]
erik,
Check out the "I've decided to come back and post, so there!" thread. Nick is back!!!

Posted on: Thu, 05/08/2003 - 4:53am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

I haven't had a chance to post my response here yet, but better late than never.
These boards, particularly the Manufacturer's Forum have definitely been instrumental in tightening up my "zone". The result was that for the first time since being diagnosed, I was able to report to Kevin's allergist that he has not had even one reaction in this past year - not smell, touch, cross-contamination - nada (knock wood, salt over my shoulder, poo-poo-poo). For that reason, I will continue to support PA.com because there simply is nothing else like it.
That said, of course I would prefer a switch to non-profit status, with an accounting of how contributions are spent.
Great thread - I'll be watching for new developments.
Amy

Posted on: Thu, 05/08/2003 - 8:40am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Check the "Members" board to read responses from Chris for the first 4 questions.
Thank you Chris.
Gail

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