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Posted on: Fri, 01/13/2006 - 1:43pm
rebekahc's picture
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Joined: 12/02/1999 - 09:00

Have they checked his cortisol levels? A minor illness can turn into a major crisis (with many of the symptoms you described) if his cortisol is too low...
So sorry to hear he's back in the hospital - hopefully they'll keep him an figure this all out!
With prayers,
Rebekah

Posted on: Fri, 01/13/2006 - 3:32pm
Just Looking's picture
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Joined: 09/14/2003 - 09:00

My instinct would be E. coli. I know it can often cause kidney failure.
Thank God you trusted your gut and your ds is doing better.

Posted on: Fri, 01/13/2006 - 4:01pm
ahensley's picture
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Joined: 08/23/2005 - 09:00

Our prayers are with you.
Andrea

Posted on: Fri, 01/13/2006 - 5:13pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Carefulmom:
[b]C difficile and pseudomembranous colitis are the same thing. Pseudomembranous colitis is the disease and C difficile is the bacteria that causes it. [/b]
In my field, c difficile is probably the most common cause of it, but I understand there are other causes, although less common.
[url="http://www.emedicine.com/med/topic2743.htm"]http://www.emedicine.com/med/topic2743.htm[/url]
per the link:
[i]"Rare cases have been related to Staphylococcus aureus, Salmonella species, Clostridium perfringens, Yersinia species, Shigella species, Campylobacter species, cytomegalovirus, Entamoeba histolytica, and Listeria species." [/i]
General Disclaimer: I am not offering advice in any manner or form. I do not guarantee the accuracy, currentness or content of the link in this post.

Posted on: Fri, 01/13/2006 - 8:44pm
Greenlady's picture
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Joined: 06/30/2004 - 09:00

Mistey - your son and your whole family are in my prayers.

Posted on: Sat, 01/14/2006 - 2:28am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Has a physician discussed a CT of the abdomen? It's not meant as advice, I'm only wondering.

Posted on: Sat, 01/14/2006 - 3:55am
Danielle's picture
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Joined: 04/08/2003 - 09:00

Wow, I am so so sorry. I will continue to keep you in my thoughts. Bless you heart.
2 thoughts.... I am in agreement that the ER Dr. messed up and badly. Can't believe that he would even consider letting him go when he had lost that much red fluid so rapidly.
My friend who is severely allergic to wool gets a high fever and i have read threads where a fever can accompany an allergy but i DON'T think thise was an allergic reaction.
Anyway, good luck and post about how you are doing.

Posted on: Sat, 01/14/2006 - 7:26am
pgrubbs's picture
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Joined: 10/27/2003 - 09:00

My prayers are with you.

Posted on: Sat, 01/14/2006 - 9:21am
mistey's picture
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Joined: 01/18/2004 - 09:00

Thank you all so much. Once again I am overwhelmed by your support. Ds came back home tonight. Once again he just perks right back up as soon as he is feeling better. But when it's bad, it *bad*.
Dh and I looked up the information all you gave us. The doctors are still very puzzled. They only did one stool sample (I asked this after a post earlier). Today they did another one.
Here's some answers/comments to the questions some of you posted:
Shigellosis- to me this still sounds TOTALLY possible
Cryptosporidium- also VERY possible. My dh has a master's degree in hydrogeology and actually mentioned this. It is resistant to chlorine because it has a hard outter shell.
Colitis- doctor said this was not it
Appendicitis-yes, they checked for this. No go.
Public health department was not contacted. Our dr said that because he is not showing any strain of any type of illness they could not contact them with any info about ds. We asked about any type of illness that they might have info about, and she said that if there was an outbreak of something we would have heard it on the news.
Purpura- very interesting question, Melissa. I had the very type of purpura when I was 7 or 8 years old that you mentioned. I did bring this up to the doctors, and no one really made anything of it. But my sister, who is a PICU nurse and teaches at a University called today to remind me of the fact that I had this. Very strange timing. But he has had no rash at all.
Immunizations are all up to date. He even had the 21 pnemonia shot because he didn't develop immunity from the 3 strain shot. He was re-titered for it and shows now that he developed immunity with the 21 shot.
Cortisol has been mentioned, but I'm not sure in what capacity.
No one has mentioned a CT of the abdomen. He had an Xray of it looking for intusussuption (sp?). Everything looked ok.
So for now we are taking it one day at a time. Thanks again for the thoughts & prayers. They are needed and appreciated.

Posted on: Sat, 01/14/2006 - 9:53am
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Joined: 03/12/2004 - 09:00

I'm so glad he's home again Mistey [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I've checked this thread a bunch of times today hoping you'd give us good news. Let's hope he turned a corner and won't have any more episodes! Meg

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