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Posted on: Thu, 01/12/2006 - 12:06pm
mistey's picture
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Joined: 01/18/2004 - 09:00

I don't know what the sugar was before the insident, but the sugar was 18 AFTER the seizure.
Ds did have Rotavirus when he was 1 or 2. At the time I thought it was terrible. But I had no idea.
One of the most troubling things about this is that I have been told (even though it is debatable) that an Epi Pen will not HELP my child if this is going to be his reaction "type" if you will. I have CLUNG to the fact that if we Epi quickly enough, it could save his life. Now I have been told that the Epi could have KILLED him because his heart rate went over 200 (but blood pressure became unbelievably low). They said that if it raised his heart rate he could have easily passed away from the Epi.
The anxiety that we are feeling is unreal. My dh and I are terrified. And no one has any answers for us almost a week later [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

Posted on: Thu, 01/12/2006 - 12:08pm
lilpig99's picture
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Joined: 12/22/2005 - 09:00

Oh my! I too read this with jaw hanging open. I am SO glad to know he is doing better. My DD just finished with a nasty bout of the flu...TERRIBLE DIARHHEA, 105 fevers and from what I learned from the doctors, it IS possible to have bloody diarhhea from a very nasty infection...although my dd had NOTHING like what your poor son had. I, too wouldn't rest well even after his recovery. That is just so very unusual. I hope you and your family can get some answers. Many many hugs.
jill
------------------
Jill
DD, 5, TNA
DS, 18 mo. EA, MA

Posted on: Thu, 01/12/2006 - 12:12pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Quote:Originally posted by mistey:
[b]And no one has any answers for us almost a week later [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] [/b]
I'm betting it's because the reason your son had seizures and then into a coma could be a hospital error with the force of fluids.

Posted on: Thu, 01/12/2006 - 12:19pm
mistey's picture
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Joined: 01/18/2004 - 09:00

I'm not sure what you mean by force of fluids?
They were giving him fluids and then took the IV out to send us home (yes, I have kept the discharge papers). He had the seizure while not on ANY fluids. They then had to start an IV while he was in full blown sizure, which was not an easy task on a dehydrated toddler.
I also must add that the ER dr also had us give ds apple juice while in the ER to get his fluids back up. Needless to say, this only made the vomiting worse. He blamed dh for giving it to him too quickly.

Posted on: Thu, 01/12/2006 - 12:27pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Quote:Originally posted by mistey:
[b]I'm not sure what you mean by force of fluids?
They were giving him fluids and then took the IV out to send us home (yes, I have kept the discharge papers). He had the seizure while not on ANY fluids. They then had to start an IV while he was in full blown sizure, which was not an easy task on a dehydrated toddler.
I also must add that the ER dr also had us give ds apple juice while in the ER to get his fluids back up. Needless to say, this only made the vomiting worse. He blamed dh for giving it to him too quickly.[/b]
You said the seizure happened after giving him the IV of fluids.
Wouldn't he have been hydrated from receiving the IV fluids?
Another question, why would they have been sending him home if he was, in fact, dehydrated?

Posted on: Thu, 01/12/2006 - 12:29pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Forcing fluids = rehydrating via IV

Posted on: Thu, 01/12/2006 - 12:44pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

The doctor not testing your son's stool cultures after he expelled [b]"pure liquid- bright red. It was coming every 3-4 minutes at some point and an adult diaper couldn't even hold it. They were giving me blankets to put under him. I would estimate that he lost around 2 gallons of fluids (yes, 2 GALLONS)"[/b] would have sent up red flags for me as it did you.
I think the reason you haven't heard back from them is because the hospital/doctor screwed up.

Posted on: Thu, 01/12/2006 - 12:53pm
momma2boys's picture
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Joined: 03/14/2003 - 09:00

mistey, where do you live?

Posted on: Thu, 01/12/2006 - 1:02pm
mistey's picture
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Joined: 01/18/2004 - 09:00

I'm in total agreement with you, e-mom. The doctor screwed up. Totally. That's why I kept the discharge papers. I have been told by another doctor that if we took him home like the dr recommended, my precious little boy would no longer be with us.
The fluids. He lost SO MUCH fluid. I don't think that they gave enough before taking out the IV. And then they did NOT reinsert the IV after the blood was detected in the stool. The IV wasn't reinserted until after he went into the seizure.
After the intensivist came (she was in Hoffman Estates at the time) she had them put in two IVs with as much fluid as possible. Then the central line was put in. This leads me to believe that he was not adequately hydrated in the ER. But I'm no doctor.
The Epi thing is killing me, though. I have always lived under the rule it's better to give than not to give. Now I've been told that in certain circumstances it could kill him. I am so confused and miserable and just want my baby to get better.

Posted on: Thu, 01/12/2006 - 1:03pm
mistey's picture
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Joined: 01/18/2004 - 09:00

Southwest suburbs of Chicago.

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