PLEASE HELP MY DS!!

Posted on: Thu, 01/12/2006 - 9:13am
mistey's picture
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This is a really long post, so please forgive me. We are desperate right now and need help. I am currently going to try to see if I can contact Dr. Sampson- if anyone has any ideas on how to do that please let me know.

Here's our story:

On Friday morning, ds said that he had a stomach ache, which MAY or MAY not be a factor. It was his 2nd day back to school since Christmas Break, so we figured that he just didn't want to go back to school.

At 3:30, as I was walking out of work, my daycare person called. She said that Ds had woken up from nap coughing, and now he was saying his stomach hurt. I rushed to the daycare to find Ds lying on the floor screaming that his stomach hurt and that he needed a treatment. I asked if he was having trouble breathing or if his lungs hurt, and he said no. I attempted to give him a treatment and the nebulizer was broken. He was crying so hard, that I just called 9-11. The ambulance came and said that his pulse-ox was fine and he didn't need a treatment. I told them to give him one anyway, which they did. When they were done they said that he could go home because he was fine. When he tried to stand up, he fell over and started vomiting. I asked for him to be taken to the hospital.

In the ER his vomit had a red tinge to it. I asked about it, and they asked what Ds had eaten and he said, "Jello". I asked if it could be blood, and they kept insisting it was Jello. Then the diareah started. I can't even describe to you the HORRIFIC amount of it that came out, and it was pure liquid- bright red. It was coming every 3-4 minutes at some point and an adult diaper couldn't even hold it. They were giving me blankets to put under him. I would estimate that he lost around 2 gallons of fluids (yes, 2 GALLONS). The ER dr gave him an IV and after about an hour of this, he said that Ds could go home. He wrote out the release papers and took his IV fluids out. He told dh to go out and warm up the car. While dh was warming up the car, I held a blanket out to the nurse. I asked her if she would take her son home with this amount of bloody stuff coming out of her son. I KNEW this was wrong, and I said so. But what can you do?! The nurse said, "Let me talk AGAIN to the doctor to see if he will consider a stool blood test". The doctor came back and tested the stuff, and SURPRISE it was blood. They decided to "watch him" for about an hour. He then began having a seizure. It was the scariest moment of my life. I have held both parents as they died and I have never been as frightened as I was at that moment. I ran to the nurse and told her he was convulsing, and she yelled, "OH S**T!!" FINALLY some people started moving around there. I can't tell you how long he seized, but I can tell you to me it seemed like forever. The ER doc says 3 minutes, but I do NOT believe that.

Well, they stopped the seizure. According to my sister (who is a nurse in the pediatric intensive care unit in a different hospital), they had to use 4 times the standard amount of fluid to revive him, along with many other drugs, including atavan. They sent in pediatric intensive care specialitists. The first guy just couldn't figure out what was going on. I said, "Has anyone checked his sugar?" They did and it was EIGHTEEN. His fever was 103. So then they worked on these issues.

Ds then went into a coma and stayed in one for 2 days. His kidneys shut down and we thought we were going to have to transfer him to Chicago to have an on-site nephrologist. But a new doctor came in. She was WONDERFUL and we feel that she is the person God gave the power to save our son. She stayed at the hospital for the first 24 hours without leaving. She stayed in the room with us for 3-4 streaches of time. She held Ds and rocked him. She stroked his head. She truely is an incredible woman. At 30 minutes before the doctor gave him to have some urine output before being transferred, Ds produced 3 tiny drops of urine. JOY!!!

He was having problems keeping the 2 IVs in and the nurses were unable to draw any blood, so he had to have a central line put it. The doctor did this herself. She also was the one to put in the IVs because no one else could get them in. This allowed more fluid to be put into his body more quickly and also they could draw blood from it.

Late Saturday night Ds eyes opened. We had no idea what type of damage the seizure had caused, so I immediately said, "What is your name, sweetheart?" and he stated his name and then said my name. Those words out of that child's mouth were the sweetest I have ever heard. Everyone in the room started crying.

Today, Ds can walk a few steps and has eaten a few things. He is on his way to getting better, and we hope to take him home soon because the drs want him out of the hospital, where infection risk is much greater. From my understanding, we have a long road ahead of us, but we're going to take him home and he is alive and speaking, and we couldn't be more thrilled.

So what WAS THIS?! There are differences in opinions. There have been over 15 doctors consulted in this case. Some feel that it was some type of bacteria/virus. They cultured for everything and it came out negative. They also want the whole family to have genetic testing because maybe it was something not so major, but Ds's body, for some reason, possibly genetic, reacted to it differently that someone else.

The other school of thought is that it was an allergic reaction. Of couse we cannot pinpoint the food that would be the culprit, even though we have tried. This possibility terrifies us because in this situation, an EPI pen wouldn't save him. We have always thought of the EPIS as our lifeline. But there was no airway problems at any time (which is very odd since Ds has such severe asthma). And there was a fever, which is not usually indicated, from my understanding, in an allergic reaction.

So any insight that any can give would be VERY MUCH appreciated.

Posted on: Thu, 01/12/2006 - 9:18am
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No clue here. Just wanted you to know I read your story with my jaw hanging open, what a horrible experience for all of you. I hope everything continues to improve, hopefully if they cultured enough "stuff" something will come back to tell you what it was.

Posted on: Thu, 01/12/2006 - 9:28am
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Your poor, poor son. How absolutely horrible. I can't imagine. Big Hugs to all of you. Good for you for standing up to that idiot doctor. As we all know there are good doctors and bad doctors and in that kind of situation you have to fight.
To be honest, this sounded like an infection or even poison. Obviously, I'm not a doctor and if specialists couldn't figure it out, well, I sure don't presume to. But that's immediately what it sounded like to me. How old is your son? Did they screen him for accidental poisoning?
Allergies do not cause fever as far as I know. Convulsions sound like he was completely dehydrated (and dehydration leads to convulsions, coma, death). If he lost that much fluid so quickly that seems to me certainly to be the cause.
Fever, vomitting, stomach ache, diarrea, I'd surely say infection or poison.
Poor you. Prayers sent your son's way for a speedy and full recovery.
Barb

Posted on: Thu, 01/12/2006 - 9:53am
mistey's picture
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Thanks. We could use all the prayers we can get!
I have a friend whose stepmother is a physician and she also asked about the toxins. They ran a tox screening and it came back negative. So did ecoli, salmonella, shigella (this is what they thought it was) and I don't even remember the others. All negative at the 72 hour mark.

Posted on: Thu, 01/12/2006 - 10:01am
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Oh my God! I'm so sorry this happened. How terrifying for all of you. Yes, you need to find an answer. For peace of mind...
My ds had a febrile seizure at 15 months old. Maybe that is partially what happened here? The febrile seizure is caused by a SPIKE in the temp. (not how high it goes). Basically, the brain can't process the spike fast enough and causes a seizure. Scary as **** but rarely causes any harm.
How old is your son? Supposedly febrile seizures are outgrown by age 5.
Take care and speedy recovery to your son!

Posted on: Thu, 01/12/2006 - 10:12am
mistey's picture
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Ds turned 4 three weeks ago.

Posted on: Thu, 01/12/2006 - 10:12am
barb1123's picture
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Mistey,
Seems that they screened for bacteria infections how about viruses. There are some very nasty viruses running around these days. My GP calls them the "Mystery" Viruses. I think the correct term is Nonspecific viral infection. Basically, they don't know what it is, just that it's a virus. From what my GP told me a CBC will give an indicator of whether it's a viral or bac infection. Loosely, a high white BC would indicate bac infection, high red BC viral.
My 3 year old had a viral infection last year that was unreal. I was very worried. 106 for 7 days. It responded to Calpol (Tylenol equivalent?) but each time the Calpol dose started wearing off it shot back up to 106. Didn't eat anything for a week. Drank like a fish. Complete lethargy. No vomitting though. I didn't admit him as at that time of year I'd be worried about what he would have caught in the hospital. GP came out and checked on him after hours. Gave me a list of symptoms to bring him to hospital if they developed.
I guess my point is sometimes viruses can be more harmful than anything and they never really know what they are.
Hugs.

Posted on: Thu, 01/12/2006 - 10:17am
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O.K., I'm crying for you! I'm so sorry this happened and all I can offer is my support and my prayers. I hope things get better soon

Posted on: Thu, 01/12/2006 - 10:19am
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OMG Mistey, how awful for your family [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] Hugs to all of you, I can't imagine going through that.
If Sampson is as accessible as his nutritionist (she's answered a few questions for me after I met her at a seminar even though we're not a patient), just send him this email, and I'd bet they'd fit you in.
Any chance it could have been a combination of a reaction and a virus? And both were so severe because they happened at the same time and his immune system went haywire?
I'm so glad he's talking and walking. I'm sure trying to figure out what happened so it doesn't happen again seems really daunting, especially after the time you've all had. Sending my prayers and hugs too. Please keep us posted. Meg

Posted on: Thu, 01/12/2006 - 10:29am
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I have no idea what it could be, but wanted to add my sympathy for your ordeal and prayers for answers and a speedy and complete recovery. I cannot believe how terrifying your experience was! How awful. I hope you can figure it out so you can know what caused this. becca

Posted on: Thu, 01/12/2006 - 10:43am
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No advice, but did they do stool cultures?

Posted on: Thu, 01/12/2006 - 10:43am
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mistey, wow, I am so sorry. How horrible. I have no advice for you, but I hope they can figure it out. You have just got to be a complete wreck. Take care and keep us posted.

Posted on: Thu, 01/12/2006 - 10:55am
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How horrible! It really does sound like Salmonella or shigella or what about meningitis? Did they do a spinal tap? Also, is he current on immunizations? If not, then it could be a whole bunch of other things. It doesn`t sound like a reaction to me. So glad to hear he is doing better.

Posted on: Thu, 01/12/2006 - 10:59am
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I'm no expert but the first thing that came to my mind was Diabetes.

Posted on: Thu, 01/12/2006 - 11:09am
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From what I've read, it does sound like shigellosis. I also ran across this:
"Diagnosis is made by culturing stool specimens.
Shigella usually do not survive very long outside the human body, thus lab specimens should be processed rapidly."
Is it possible that the test results were not accurate due to delayed handling of the sample?
Cathy

Posted on: Thu, 01/12/2006 - 11:17am
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You people are simply awesome. I post something and less than an hour later there is 14 replies. I really can't thank you all enough. I'm scared to death and just wanting help. So thank you.
There were stool, urine and blood cultures run the night in the ER. All negative at 72 hours.
A spinal tap was NOT done. They might as well have done one, he was in a coma for 2 days and was poked more times than imaginable before a central line was put in.
He has been screened for Diabetes last year. Those tests came back negative.

Posted on: Thu, 01/12/2006 - 11:20am
mistey's picture
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Also, the people who think it was a reaction are the pediatric intensivists (both of them) and now our allergist through Chilren's Memorial Hospital is saying that it might be a reaction as well.

Posted on: Thu, 01/12/2006 - 11:33am
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Misty,
First of all, I'm glad your son is better. Secondly,I'm sure this was not an allergic reaction. As a parent of a PA allergic child and also a gastrenterologist(although I only see adults) I can assure you this was some type of infectious illness. It would fit very well with enterotoxigenic E. Coli. A possible reason the cultures were not indiciative of this is because we all have harmless strains of E. Coli in our bodies but unless the lab specifically was directed to look for this particular strain, it could have been read out as normal stool flora (bacteria). The fact that the kidneys were affected goes along with E. Coli infection in this age group. It is not at all uncommon in daycares. The seizure most likely was a result of his high fever and blood sugar of 18, neither of which are typical of allergic reactions. I'm glad he made a full recovery. I'm sorry you all had to enudure that.

Posted on: Thu, 01/12/2006 - 11:35am
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oops, can't even spell my own specialty...gastroenterologist.

Posted on: Thu, 01/12/2006 - 11:41am
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Perezrap, can`t the seizure cause the sugar to drop? The sugar was 18 after the seizure, right?

Posted on: Thu, 01/12/2006 - 11:43am
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Oh my gosh! That is so horrible and scary. I'm glad your son has been getting better and your experience sounds like a nightmare.
The only thing I can mention is my daughter had rotavirus when she was two. That was just about the scariest diarrhea episode I've ever seen, which is like pints and quarts of water coming out. My daughter ate red jello and later on I thought she had an enormous amount of some type of rectal bleeding/blood in her stool, something like that. Severe dehydration was a worry. She had to see the pediatrician, and I remember the daycare providers saying ..."We've never seen anything like it." (And they've seen tons of kids in that center through the years.) That was in reference to the type of diarrhea she had.

Posted on: Thu, 01/12/2006 - 12:06pm
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I don't know what the sugar was before the insident, but the sugar was 18 AFTER the seizure.
Ds did have Rotavirus when he was 1 or 2. At the time I thought it was terrible. But I had no idea.
One of the most troubling things about this is that I have been told (even though it is debatable) that an Epi Pen will not HELP my child if this is going to be his reaction "type" if you will. I have CLUNG to the fact that if we Epi quickly enough, it could save his life. Now I have been told that the Epi could have KILLED him because his heart rate went over 200 (but blood pressure became unbelievably low). They said that if it raised his heart rate he could have easily passed away from the Epi.
The anxiety that we are feeling is unreal. My dh and I are terrified. And no one has any answers for us almost a week later [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

Posted on: Thu, 01/12/2006 - 12:08pm
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Oh my! I too read this with jaw hanging open. I am SO glad to know he is doing better. My DD just finished with a nasty bout of the flu...TERRIBLE DIARHHEA, 105 fevers and from what I learned from the doctors, it IS possible to have bloody diarhhea from a very nasty infection...although my dd had NOTHING like what your poor son had. I, too wouldn't rest well even after his recovery. That is just so very unusual. I hope you and your family can get some answers. Many many hugs.
jill
------------------
Jill
DD, 5, TNA
DS, 18 mo. EA, MA

Posted on: Thu, 01/12/2006 - 12:12pm
e-mom's picture
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Quote:Originally posted by mistey:
[b]And no one has any answers for us almost a week later [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] [/b]
I'm betting it's because the reason your son had seizures and then into a coma could be a hospital error with the force of fluids.

Posted on: Thu, 01/12/2006 - 12:19pm
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I'm not sure what you mean by force of fluids?
They were giving him fluids and then took the IV out to send us home (yes, I have kept the discharge papers). He had the seizure while not on ANY fluids. They then had to start an IV while he was in full blown sizure, which was not an easy task on a dehydrated toddler.
I also must add that the ER dr also had us give ds apple juice while in the ER to get his fluids back up. Needless to say, this only made the vomiting worse. He blamed dh for giving it to him too quickly.

Posted on: Thu, 01/12/2006 - 12:27pm
e-mom's picture
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Quote:Originally posted by mistey:
[b]I'm not sure what you mean by force of fluids?
They were giving him fluids and then took the IV out to send us home (yes, I have kept the discharge papers). He had the seizure while not on ANY fluids. They then had to start an IV while he was in full blown sizure, which was not an easy task on a dehydrated toddler.
I also must add that the ER dr also had us give ds apple juice while in the ER to get his fluids back up. Needless to say, this only made the vomiting worse. He blamed dh for giving it to him too quickly.[/b]
You said the seizure happened after giving him the IV of fluids.
Wouldn't he have been hydrated from receiving the IV fluids?
Another question, why would they have been sending him home if he was, in fact, dehydrated?

Posted on: Thu, 01/12/2006 - 12:29pm
e-mom's picture
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Forcing fluids = rehydrating via IV

Posted on: Thu, 01/12/2006 - 12:44pm
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The doctor not testing your son's stool cultures after he expelled [b]"pure liquid- bright red. It was coming every 3-4 minutes at some point and an adult diaper couldn't even hold it. They were giving me blankets to put under him. I would estimate that he lost around 2 gallons of fluids (yes, 2 GALLONS)"[/b] would have sent up red flags for me as it did you.
I think the reason you haven't heard back from them is because the hospital/doctor screwed up.

Posted on: Thu, 01/12/2006 - 12:53pm
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mistey, where do you live?

Posted on: Thu, 01/12/2006 - 1:02pm
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I'm in total agreement with you, e-mom. The doctor screwed up. Totally. That's why I kept the discharge papers. I have been told by another doctor that if we took him home like the dr recommended, my precious little boy would no longer be with us.
The fluids. He lost SO MUCH fluid. I don't think that they gave enough before taking out the IV. And then they did NOT reinsert the IV after the blood was detected in the stool. The IV wasn't reinserted until after he went into the seizure.
After the intensivist came (she was in Hoffman Estates at the time) she had them put in two IVs with as much fluid as possible. Then the central line was put in. This leads me to believe that he was not adequately hydrated in the ER. But I'm no doctor.
The Epi thing is killing me, though. I have always lived under the rule it's better to give than not to give. Now I've been told that in certain circumstances it could kill him. I am so confused and miserable and just want my baby to get better.

Posted on: Thu, 01/12/2006 - 1:03pm
mistey's picture
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Southwest suburbs of Chicago.

Posted on: Thu, 01/12/2006 - 1:13pm
e-mom's picture
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Don't beat yourself up over the Epi use.
There are many circumstances where using an Epi when it shouldn't be given will kill someone. It should [b]never[/b] be thought of as a quick life saving treatment for all circumstances.

Posted on: Thu, 01/12/2006 - 1:21pm
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I don't have any insight into your DS' situation, but I wanted to type a response. I literally was crying reading your post. What a horrible ordeal---and that is an understatement. I can't imagine how frightening that hospital stay was. I also cannot believe you got such grossly negligent care. That's preposterous that you had to keep thinking of things and asking them to check them. Thank goodness you are such an intelligent, well-informed person who was willing to speak up and wasn't intimidated by the "experts." When things settle down a bit, please consider filing complaints against that horrible doctor. He should not be practicing emergency medicine, in my opinion.
I hope that they figure out what caused your DS' "episode," for lack of a better term. Hopefully it was something that will never pose an issue again, and hopefully he makes a full recovery. Many of the symptoms can be signs of an allergic reaction (as well as other things), but like you said, allergic reactions don't cause fever. My guess would be that it was something else, but I'm not a medical professional. My best wishes go out to you and your whole family!
------------------
Mookie---Mom to Devin (PA, born 2004) and Brendan (PA, TNA, SA; born 1999)

Posted on: Thu, 01/12/2006 - 9:05pm
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Hi, I don't really have any advice at all, but just wanted to say that my thoughts and best wishes are with you, and wishing your son a speedy recovery
Take care
Rach

Posted on: Thu, 01/12/2006 - 10:02pm
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Oh, Mistey, I am so sorry for all that you and ds have been through! What a nightmare! I, like the others, am just stunned by it all. I really don't have any insight regarding the cause, but it does sound like the ER dr. really messed up, which of course would lead them to try to cover that up. What an example you are to us all of standing up for your child. I'm so glad that you were finally sent a wonderful caring dr. - to actually hold your child, what a gift that is! I also am so glad to hear that ds is improving.
It can be so hard to continue to be strong but know that you and ds are being lifted up in prayer - for complete recovery, for strength, for insight for you and drs.
Please keep us updated on his progress.
------------------
Jamie - mom to:
Morgan (dd-13) - NKA
Ethan (10) - asthma, enviromental allergies
Carson (5) - PA/TNA/EA/Soy
- enviromental allergies, slight asthma?

Posted on: Thu, 01/12/2006 - 10:58pm
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Mistey,
I have absolutely no insight whatsoever, but just wanted to send you and your family a big {{{hug}}} after an absolutely unspeakable ordeal. I'm just sort of speechless right now.
Please keep us posted and let us know how your little guy is doing.
Amy

Posted on: Thu, 01/12/2006 - 11:02pm
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No advice either, but you any your little boy will be in my prayers. I cried (in my office) reading your post. No child or family should have to go through that. Hang in there and I am glad he is feeling better.

Posted on: Thu, 01/12/2006 - 11:15pm
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Mistey,
If the ER doctor messed up, do you think it would be beneficial to get an opinion of another doctor outside the hospital as to what happened? It sounds like someone who would specialize in infectious diseases and an allergist (is that why you mentioned Dr. Sampson?)
I would be going absolutely crazy waiting a week and still not having any answers, my heart really goes out to you!
You mentioned the discharge papers...they don't usually say much right? What about the hospital records? Could you request a copy of those with all the test results etc?
Still thinking of you all today and hoping you have answers soon. Meg

Posted on: Thu, 01/12/2006 - 11:23pm
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Mistey,My heart goes out to you and your family during trying time.
My first thought when I read your post was the Red dye in the jello.,other then that I really have no clue.
(((hugs)))sending a angel your way.
[img]http://www.TimeshareWeb.net/public/angel_9.gif[/img]
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Love this site
Synthia

Posted on: Thu, 01/12/2006 - 11:38pm
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I am so sorry. I was shaking reading what happened. How is your son today?
I just wanted to send your son, you, and your family my best wishes and prayers.

Posted on: Thu, 01/12/2006 - 11:59pm
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I have no advice to you either but I think you should continue to seek out other opinions and don't stop until you're satisfied...call in whatever "big guns" you can find and I agree get a COMPLETE copy of the hospital records asap. Please know we're thinking of you and your son and please update us when you can.
Melissa

Posted on: Fri, 01/13/2006 - 12:01am
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Wow. This brought tears to my eyes. How frightening for you and your family. I too will pray for your son's full recovery.
You should pat yourself on the back for following your maternal instincts. You saved his life. What a lesson for all of us to learn.

Posted on: Fri, 01/13/2006 - 12:38am
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I am sure you are busy with your little one, but I am thinking of you and hope you have good news to share today. Prayers. Becca

Posted on: Fri, 01/13/2006 - 1:18am
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Good lord, Mistey! What an awful experience. Were I you, I would pay close attention to what Perezrap posted and try to take heart. This really doesn't sound like an allergic reaction, and the epi WILL help him if he does have one.
Also, I feel pretty certain that someone must have ripped that ER doctor a new one over the way he treated your son. A lot of people at that hospital know that he screwed up. He must have been called in by his superiors and told to explain himself. I'm guessing he's a resident, and still has a lot to learn.
Hopefully he and some of the other medical folks involved will learn something from this. I have no doubt your little guy was the main topic of discussion during Grand Rounds.
Hugs to you and your family. I hope your child is on his feet and playing again soon.

Posted on: Fri, 01/13/2006 - 2:24am
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Misty, I am sorry I didn't respond after reading your post last night. I was too overwhelmed to even know what to say. Of course, I am so sorry about what you went through, and hope he doing well.
The first thing I thought of while reading it, before I got all the way through, was Norwalk virus. I know that a few years ago, a healthy teenage boy in the Phoenix area went to bed feeling fine. He came down with Norwalk virus during the night, and in the morning his parents found him dead in the bathroom. That virus is that bad. I hope they find out what happened, to put your mind at rest if for no other reason.
Someone posted about getting an outside doctor to look into what happened. I agree. It is your right to get a copy of your child's medical records. Ask for ALL of them, every scrap of paper. Get two copies (I'm not sure whether they are required to make you multiple copies, but you can make your own copies of whatever they give you). Keep one set for yourself. THen give one copy to a good doctor that you feel you can trust. Depending on what is in that information, the doctor may or may not determine what caused the problem to begin with, but he/she will be able to pinpoint what the ER doctor did wrong, and what could have been done better. I am not usually one to think of suing, and think frivolous lawsuits are the scourge of our society. But I believe that this kind of thing is the reason malpractice law exists.
You could also look into contacting the state board of medical examiners. They have the power to pull a doctor's license if they deem him too imcompetent, but as importantly, they keep track of this type of this kind of thing and could spot a pattern.

Posted on: Fri, 01/13/2006 - 3:09am
Deansdad's picture
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Joined: 01/06/2005 - 09:00

This is his dad.
He is doing very well. Once he got home he seemed to perk up a bit and started walking more. I think he was getting depressed listening to all the people talking about him. At one point he looked up at me and said,

Posted on: Fri, 01/13/2006 - 3:40am
mistey's picture
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Joined: 01/18/2004 - 09:00

I want so much to thank all of you for your positive thoughts and prayers. We truely could use all that we can get!
Thank you for the statements about all that I did to help my son, but the praise for that doesn't belong to me. I'm an intelligent person, but I am not trained in the medical field. God himself was the only one who saved my ds that night. I give Him all the credit.
Anyway- my ds. He is at hime right now and is doing much better. He is watching Spiderman right now [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] .
We pray that the worst is behind us now and that something like this NEVER happens again. Of course in order to be able to stop it from occurring again it would definately help to know WHAT IN THE WORLD IT WAS!!
The anxiety is a little better today (and it's daytime, which always helps!). I have to say, though, that everytime he coughs or says something hurts I get this knot in my stomach and break out in a cold sweat. Hopefully someday soon that will diminish.
As far as aftercare, we really don't have any. What should we do any differently that we weren't already doing? We don't know. How to prevent it again? We don't know. Was it a reaction? We don't know.
Still the issue with the Epi is one of the more difficult aspects for me. I will now question it's usage where I never did before. And we all know what happens when we question it's usage when it is needed. It's a very difficult situation.

Posted on: Fri, 01/13/2006 - 4:20am
barb1123's picture
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Joined: 04/08/2000 - 09:00

Mistey,
Glad to hear your darling son is home and doing better. He was in my prayers and thoughts last night and today.
I'm wondering if you asked any of the doctors if the dehydration caused the seizures and coma as it is my understanding that dehydration is extremely dangerous and can easily cause seizures and coma and if untreated death. If he lost that much fluid I would say he was severely dehydrated and removing the IV was a very very dangerous thing to do to the poor child.
I hope you get answers. I understand your worry about the Epi. Personally, if it had been my son, I wouldn't have administered Epi given these symptoms, if there was no breathing impairment or circulatory collapse I would have just assumed it was a very bad bug and gotten him to hospital just as you did.
Unfortunately a lot of hospitals leave things in the hands of interns and residents and the consultants are "on call". It is a ridiculous situation and very frightening in a life or death situation with your precious child.
I hope he continues to recover and has no lasting ill-effects. Have confidence in yourself. You did a great job. Your son is safe and alive.
Hugs
Barb

Posted on: Fri, 01/13/2006 - 5:28am
Deansdad's picture
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Joined: 01/06/2005 - 09:00

He has started throwing up again today. The doctor is admitting him again to the hospital for observation. Any ideas?

Posted on: Fri, 01/13/2006 - 5:50am
Momcat's picture
Offline
Joined: 03/15/2005 - 09:00

You said some of the doctors suspected a bacterial infection--was your son treated with antibiotics?
You may want to read more about shigellosis. These sites seemed to have good info:
[url="http://www.rehydrate.org/dd/su44.htm"]http://www.rehydrate.org/dd/su44.htm[/url]
[url="http://www.cdc.gov/ncidod/dbmd/diseaseinfo/shigellosis_g.htm"]http://www.cdc.gov/ncidod/dbmd/diseaseinfo/shigellosis_g.htm[/url]
[url="http://www.cdc.gov/ncidod/dbmd/diseaseinfo/shigellosis_t.htm"]http://www.cdc.gov/ncidod/dbmd/diseaseinfo/shigellosis_t.htm[/url]
All the best,
Cathy
------------------
Mom to 6 1/2 yr old PA/TNA daughter and 3 yr old son who is allergic to eggs.
[This message has been edited by Momcat (edited January 13, 2006).]

Posted on: Fri, 01/13/2006 - 6:00am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Deansdad:
[b]His Allergist is also from a different hospital in Chicago (Children

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