please help me...Just back from new allergist.

Posted on: Tue, 04/23/2002 - 3:30am
KATHYANN's picture
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Joined: 09/29/2001 - 09:00

pJust came back from allergist #3 and he also will not do a rast test on James...Now this one says that he can eat peanut oil, can eat Chick fil a and that he even uses peanut oil on the patients to help with eczema. i thought we had to be careful of all peanut oil, even in shampoos and soaps etc.. He says maybe in a year when he's 5 he will do the rast but feels like the other 2 that it will not show anything and that all we need to know is that he definetly is allergic.. I also asked him about the temp. of the epi jr. since we live in florida and are planning a trip to Sea World , he says you can just bring it as is and that even if you were to accidently leave it in the glove compartment that it would still be effective for about 6 months. The others said if that were to happen get a new one immediatly. please help me with all this , my head feels like its on fire right now.. is he right about the peanut oil? Do I need a rast done?Thanking you in advance for keeping me sane. Kathy Ann/p

Posted on: Tue, 04/23/2002 - 4:00am
Heather2's picture
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Joined: 09/25/2001 - 09:00

Well, here's my 2 cents worth. Dey Pharmaceuticals, who makes the EpiPens, has said that extreme heat and extreme cold can potentially affect the firing mechanism of the pen. I know the first time I left my EpiPen overnight in the car, I called Dey and asked them what to do, they said get another one. I can also tell you that my sons pediatrician, who is allergic to bees, used to keep his EpiPen in the glove box of the car all the time - then he test fired it into an orange and it malfunctioned. As far as the peanut oil - there is a difference between cold pressed and hot pressed peanut oil. One is safe and one is not. I think the difference comes in the way the oil is extracted from the peanut. Because it is so hard to tell the difference, or to know if the person you are asking can tell the difference, we avoid all peanut oil. Someone else on this board probably knows more about that than I do. As far as the RAST goes - the only reason I can think to do a RAST year after year would be to have a CAP RAST done (the more sensitive, reliable form of the test) to establish a base line count of IGE and then the next year see if that count goes up, down or stays the same. If it goes down, the chances of outgrowing the allergy go up. Hope that helps.
P.S. I know some people buy those little insulated baby bottle holders for their EpiPens to keep them cool in the summer heat.
[This message has been edited by Heather2 (edited April 23, 2002).]

Posted on: Tue, 04/23/2002 - 4:07am
Marla H's picture
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Joined: 02/26/2002 - 09:00

I would question this allergist's comments about the Epi-Pen, but he may be right that refined peanut oil is not usually a problem--that's what I've read in a number of articles. Still I can't imagine why anyone would put it on their skin when there are so many other dry skin products out there that definitely are not allergenic. About the RAST, my son, who was initially diagnosed at 3, did not have it until he was 13 (just last month), but it turned out to be very high. No test, either skin or blood, is 100% accurate or predictive, so the allergist just may not want you to raise false hopes or get hung up on the numbers. We had a negative RAST on cod, to which my son has had an anaphylactic reaction, and indeed he had a (mild) reaction in the allergist's office when we exposed him to cod there (though he did not ingest it). That's why you need to not get hung up on living by the RAST numbers. The bad advice on the Epi-Pen, however, would make me doubt that this allergist is well informed, so I would definitely seek out yet another one.

Posted on: Tue, 04/23/2002 - 12:19pm
Kim M's picture
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Joined: 06/09/2001 - 09:00

Regarding the peanut oil, you will most frequently hear that cold pressed oil is not safe, but that heat pressed is. However, Corvallis Mom, who is a chemist, has done some investigation of this premise, and if I recall one of her postings she concluded that she was not confident that even the heat pressed oil would be 100% free of the peanut protein. So I think that is a question for your comfort zone.
As to the blood test, I agree that if you already know that your child is allergic to peanuts there is not much reason to have one. The only reason I would have one done on my daughter is if she continues to be reaction free, to see if she has outgrown the allergy.
All that aside, though, if this were our allergist, I agree that the incorrect advice about the epipens and high temperatures would make me a little uncomfortable with accepting his advice in the future.

Posted on: Tue, 04/23/2002 - 1:53pm
lisa from Australia's picture
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Joined: 04/02/2002 - 09:00

Kathy Ann
It is scary when they tell you that it is okay to use peanut oil on the skin (and yes p/n oil does appear in shampos etc). What happens is child licks their skin? My infant welfare nurse told me peanut oil would be good for my daughters dry skin (she is now 9 has pa and eczema) and I told her in no uncertain terms that I would not be using it due to my pa. Her reply "I'm not asking you to eat it." Of course I wasn't going to eat it. I just didn't know what reaction I might have if I got it on my skin. I knew what it would do if I ate it. Fancy not being able to kiss my baby if she had peanut oil on her skin? Fortunately in Australia we have one of the best childrens hospitals in the world (Royal Childrens in Melbourne were I live) and the allergy clinic there is very good. Re Epi pen I keep mine in my handbag (I also have one in the bathroom) and I check it reguarly for any signs of discoloration and the useby date. They don't have long 'shelf life' any way (we can get it over the counter at the chemist without perscription but has to be ordered in).

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