PLEASE HELP

Posted on: Mon, 02/14/2000 - 1:38pm
cpoole's picture
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Joined: 02/14/2000 - 09:00

Hello. My 9 1/2 month old daughter has just been diagnosed as having a peanut allergy. The daycare provider we use gave her a cracker with peanut butter on it and within 15 minutes, she had broken out in hives and had itchy watery eyes. She called my husband at work and he immediately picked her up and took her to the doctor. They told us to give her Benadryl and come back the next day. She was fine after the Benadryl. We went for allergy testing and it was confirmed that she is allergic to peanuts.
My question is this: Where do we start? How can we get a list of products to avoid. How can we know which restaurants it will be safe to take her to?
I would appreciate any advice. Thank you.

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Posted on: Mon, 03/20/2000 - 3:03am
kristene's picture
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Joined: 09/27/1999 - 09:00

pSorry, I am from Texas. Maybe somebody else can help???/p

Posted on: Tue, 02/15/2000 - 12:02am
Hope's picture
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Joined: 07/29/1999 - 09:00

Hello cpoole....
This may seem overwhelming for quite a while..take each day as it comes.
First find yourself a pediatric allergist and get a prescription for some epipens. You need 1 Epipen for every 15 min. you are away from medical help, it is good to have at least two on hand in case one malfunctions (it can happen). We have 6.
Unfortunately there is no difinitive list of foods to avoid. You need to start reading the labels of everything you buy. We have a rule 'no label - no eat'. We just don't take the chance.
When my daughter was diagnosed at 13 months I went into a long period of denial, I didn't even get the prescription filled. I was sure there was a mistake. Then I found this board and I got scared into action. Now I am prepared - all the time.
As for restaurants, birthday parties, school, playgroups etc...check out the other postings on this board. Most of these topics have been discussed and you will find information to help you make decisions you are comfortable with.
These boards are great...we all share the same thing...we love our children and they have allergies. Use the support you will find here and stay safe... [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Hope

Posted on: Tue, 02/15/2000 - 3:47am
Gerbrand's picture
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Joined: 02/08/2000 - 09:00

In the Netherlands there are very detailed lists availabale with products on it that do or do not contain peanut. The listst are very good. Keeping my son Lukas on a strict diet, we can 100% avoid difficulties. We order a new list everu year.
The dietlist is about the only thing that is taken good care of in the Netherlands. For the rest, PA is not known very well in my country.
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Posted on: Tue, 02/15/2000 - 12:54pm
Chris PeanutAllergy Com's picture
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Joined: 04/25/2001 - 09:00

Please post (and send me an e mail) with what you can tell us about this list, also please include where you acquired it. I would like to find out how it is produced, how accurate they feel it is, what can be learned from it to see if it can be duplicated elsewhere or to see if parts of it are worth duplicating etc.
Thanks.
------------------
Stay Safe,
[email]"Chris@PeanutAllergy.Com"[/email]

Posted on: Tue, 02/15/2000 - 5:57pm
Gerbrand's picture
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Joined: 02/08/2000 - 09:00

Chris,
The lists I refere to are on strict docters-prescription. If the docter states that a patient suffers a certain foodallergy, one can call with 'Nederlandse Voedsel Allergie Stichting' (Duthc Food Allery Associaton) and ask for al list of products that do or do not contain peanut, milk, egg (or combinations)or what ever. The lists are only on docters-prescription, because the producers think they give some information concerning their products (what is in it, how do you make it).
The list mentions for example that my son Lukas can eat chocolatebars from Hema, but not from Super, soup of Unox is allowed, but soup of Aldi not.
Not al the products are on the list of course. Producers have to give their coorporation. Happily all big and welknown producers do cooperate.
Therefor the list is so detailed, that I can not think of a PA-product that can not be replaced by a product from the list.
Our only (small) problem (but big for a 2-year old boy to understand) is that every summer there are new ice-creams, and it takes some time before a product is on the list.
My problem for the future will be that I expect it to be difficult for Lukas to eat in a restaurant. It is my expectation that talking to the restaurantmanager in front will in some cases not lead to the result I wish. This has everything to do with PA being very unknown in the Netherlands. It takes quit an effort to convince people that eating peanuts can couse a quick death.
Later this week I will give you the adress of the NVAS in the Netherlands. I hope this will lead to the situation that more people in my country hear from PA-allergy.
I guess the list will not suite very well for PA-patients abroad. Many products are specific Dutch products. The same is that it is not a big help for me to receive a food-warning concerning specific American products.

Posted on: Mon, 12/22/2003 - 10:16pm
attlun's picture
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Joined: 06/13/2003 - 09:00

Hi and Welcome! We had sold our house and were living with my parents while we were looking for a new one, when we found out about Trevor's PA. At the time, we didn't know how serious PA was, and there was PB in the house and everything! I don't know how to post a link, but if you go to the FAAN website, I think they have some articles that you can print off of there about the dangers of contamination. Good luck at getting your mom to understand the danger! How old is your daughter? Our allergist gave us several articles to pass out to family/friends last time we were there. Maybe you could get some articles from the doctor too.
------------------
Tina
Trevor 8/6/01
Harmony 1/22/03
Baby #3 due June 24, 2004!

Posted on: Wed, 12/24/2003 - 8:52am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Welcome Lara!
Try these links: [url="http://www.foodallergy.org"]www.foodallergy.org[/url]
[url="http://www.foodallergyinitiative.org"]www.foodallergyinitiative.org[/url]
Try doing a search on this site as well.
Good luck!
Amy
[This message has been edited by Going Nuts (edited December 24, 2003).]

Posted on: Wed, 12/24/2003 - 12:47pm
Chris PeanutAllergy Com's picture
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Joined: 04/25/2001 - 09:00

Be sure to check other threads such as the one linked below. You can also call the PeanutAllergy.Com office for help. We are on eastern standard time. Our contact information can always be found by clicking on the "Our contact info" on the [url="http://www.PeanutAllergy.Com"]www.PeanutAllergy.Com[/url] home page.
Here is a link. [url="http://www.peanutallergy.com/address.htm"]http://www.peanutallergy.com/address.htm[/url]
Stay Safe,
[email]Chris@PeanutAllergy.Com[/email]
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum17/HTML/000815.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum17/HTML/000815.html[/url]

Posted on: Wed, 05/05/2010 - 6:45am
Nicole Smith_Allergicchild.com's picture
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Joined: 04/29/2010 - 12:36

I wonder if your allergist can suggest other parents dealing with food allergies in your area as a "support group"?
I think it would be helpful to have others who might be able to help you with your country's laws about food labeling, safe foods, etc.
There are many resources online from the USA such as the Food Allergy & Anaphylaxis Network (FAAN) at www.foodallergy.org and Food Allergy Initiative (FAI) at www.faiusa.org. They have information available for the recently diagnosed.
Hope this helps!
PS - I wrote a book called "Allie the Allergic Elephant: A Children's Story of Peanut Allergies" that your daughter might enjoy when she gets a little older! It's available on my site at www.allergicchild.com.

Posted on: Wed, 05/05/2010 - 5:57pm
youngnconfusedmum's picture
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Joined: 05/05/2010 - 00:07

Thanks a lot for the links and ideas!I've been trawling the net for information and came across your website as well.It was very helpful.Thanks again!!

Posted on: Mon, 05/10/2010 - 4:16am
tnelson's picture
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Joined: 05/10/2010 - 10:37

We have a 12 year old with multiple allergies, and we still feel confused sometimes. Don't worry, though, you will find a way to handle it. Learning something new is difficult for anyone. Just have patience and take it one meal at a time. Thanks to www, finding products and support is much easier. You are not alone.
The first thing to do is find a few choices for safe products to always have on hand. Then at least you know you have something to feed your daughter.
Then you can start finding other resources to continue the journey.
Namaste products are wheat/gluten/nut/dairy free and can be ordered online.
You might also be able to rely on fruits and vegetables to keep your little one going. Our child eats almost every veggie there is as a result of her allergies. This has been a great side effect for her!
Just remember to keep breathing, and keep reading!
All the best,
Tara

Posted on: Tue, 02/08/2011 - 10:00pm
cervonil's picture
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Joined: 04/28/2010 - 12:30

That is correct, manufacturer's are only required to put all foods in the ingredients - they do not have to put "May contains" due to being made on the same equipment or in the same facility as an allergen. Was she tested for anything else, or just peanuts? I'm thinking the lasagna had egg, dairy and wheat in it as well, and maybe she has another allergy you are not aware of. If it was from peanut contamination, that is scary b/c none of those ingredients should be contaminated with peanut. Have you gotten all peanut/peanut butter out of your house? I got rid of everything - beater, bowls, cookie sheets, pans. I was worried something was used for peanuts/peanut butter and might not be 100% residue free.

Posted on: Wed, 02/09/2011 - 1:25am
cdnsmith's picture
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Joined: 02/07/2011 - 09:45

Thank you cervonil for your reply. My daughter was has been eating eggs, wheat and milk without problems, so i don't believe it was from that. I just read the sauce label again and it did have coconut oil in it, could it have been from that? I have gotten rid of PB and any nuts in the house. And i will make sure to clean everything well, i really do not cook with nuts of peanuts anyway. I cannot afford to get rid of everything that i cook with. I also got rid of any shellfish, because she is also allergic to that. I think i am going to call the allergist and see what they say, maybe she does have another allergy i am not aware of, thank you.deanne

Posted on: Wed, 02/09/2011 - 2:17am
cervonil's picture
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Joined: 04/28/2010 - 12:30

coconut could be a possibility. My son had a mild reaction once, a very swollen lip, and I never did find out what it was. He did use a blistex that might have been contaminated - but when it happened I got the ingredients and had him tested for coconut (b/c it was in the blistex) and sesame. He tested negative for both. Sometimes these things happen and you never find out why. I keep a journal of all his reactions, just so I can track them and remember precisely what happened. I also write everything he came into contact with that day (in case it was something earlier in the say, and not even the lasagna) That is actually how I remembered he had used a blistex, for a few days I kept focusing on the food.

Posted on: Thu, 02/10/2011 - 5:48am
cdnsmith's picture
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Joined: 02/07/2011 - 09:45

Thank you again for your reply,
she was also tested for walnut and almond which were both negative. so now i don't think it was coconut, not sure. I called the allergist and they want to see her again. I am going to request test for egg, and not sure what else to ask, maybe coconut. I will start keeping a journal because i do have a terrible memory, so that is a good idea, thanks. Any idea what else i should ask her to be tested for?

Posted on: Thu, 02/10/2011 - 6:53am
cervonil's picture
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Joined: 04/28/2010 - 12:30

This is tricky. this is my feeling, and my allergists feeling - don't test for things that they've been eating fine already. Like when we had that swollen lip I thought about testing for the top 8 - but he eats milk, wheat etc with no problems, and if he did get a positive test result (could be a false positive) I would be panicked and would take that it of his diet unnecessarily. Since we were baking cookies and using eggs, they suggested I test for egg (he had never eaten an actual egg before - but eats them in baked products. Well he did test positive to eggs - but she said as long as he is eating eggs in baked products we can continue to do so. So it's a tough call. I'd go with whatever your allergist suggests. And also like I said you might just never find out, might be one of those fluke things. But if she continues to have these itchy reactions than you will know something is really up and needs to be eliminated from her diet. Ack, sorry so long!

Posted on: Fri, 02/11/2011 - 5:13am
cdnsmith's picture
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Joined: 02/07/2011 - 09:45

Thank you so much for all of your help. I guess i have a LOT of homework to do, have no idea when i'm going to have the time, but with help from others like you hopefully it will get easier, Deanne

Posted on: Fri, 02/11/2011 - 5:31am
cervonil's picture
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Joined: 04/28/2010 - 12:30

I also wanted to mention that in the beginning I was a freaking mess. It was at the end of pre-school and we barely left the house all summer. I was nervous to take him anywhere. I mean I really over reacted but i was "paralyzed with fear" as a friend said. And I was overwhelmed calling companies. I was frustrated, mad, scared, angry....you name it. Many times I'd get off the phone crying, yelling about it to my husband. It is a very difficult thing to adjust to. I will tell you that it DOES get easier. And you do get less paranoid. What you end up with, hopefully, is 100% diligence. 100% reading lables, and 100% always have his epi-pen on hand. That is really the best you can do. I don't know how to tell you to handle those few few months better, because I was a disaster, but it has been 10 months now and I can tell you it really is easier. PM me any time you'd like. I'll let you know a few companies that I have been pleased with. Plus I have a list of books that I got from the library that I loved and were helpful.

Posted on: Mon, 02/21/2011 - 10:03am
slk70@sbcglobal.net's picture
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Joined: 02/11/2011 - 15:08

My allergist told me that many PA kids are also allergic to eggs. My son is Pa and used to be allergic to eggs (they can grow out of eggs- if they avoid it). I'd probably have them do all food testing just to make sure.
GOOD LUCK

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