perhaps worse than before...

Posted on: Thu, 09/06/2007 - 3:43am
KaraLH's picture
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Ok, I'll try to make it as brief as possible. Dd had SPT done on Tuesday. They did it with a needle scratch. Different than at the other office we went to a year ago. Horrible experience. Dd Screamed for 20 minutes while I tried to keep her flat, she had blood all over the place and of course she itched like crazy.

They tested for 10 things. 4 were positive.The good news was this time she was neg for peanuts, as was her Immunocap. Also neg for wheat again, even though blood test was slightly elevated. (same as a year ago)Bad news is she tested positive for shellfish, almonds and cashews. Almonds and cashews have never been tested for. Shellfish was neg on Immunocap but with her history of MFA's, agg and pork being the worst, and peanuts being positive a year ago, he figures even if they were false positives it's best to avoid yet.

OK, so I guess going into it I had hoped peanut would be neg and that would be enough to say- 'Oh last year it must have been false positive, let's do a challenge and be done with it!" Then all I'd be dealing with would be egg and pork allergies and milk and preservative intolerances. Instead she comes up neg for peanuts and positive for tree nuts and shellfish. HOW FRUSTRATING.

Now we still have to treat her as egg, peanut, treenut, shellfish and he wants her to avoid all fish now too. Plus the pork, milk and preservative stuff.

Is there anyone else who is told to avoid fish even if they are only allergic to shellfish.

And is there anyone who can eat peanuts if they are just tree nut allergic??

Just wondering. Sorry I just had to vent.

Kara

Posted on: Thu, 09/06/2007 - 4:22am
lmw's picture
lmw
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Joined: 11/12/2005 - 09:00

DD was allergic to just almonds and hazelnuts when she was 8. As we weren't told any differently, she still ate all other nuts, and peanuts. At 18 she started reacting to peanuts, and then most of the other tree nuts. No nuts at all now!
I really don't know what I'd do, if starting this now. Probably avoid all nuts right from the start and hope for the best.

Posted on: Thu, 09/06/2007 - 4:38am
Adele's picture
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Joined: 01/31/2005 - 09:00

Blood all over the place for a scratch test? This just doens't sound right.

Posted on: Thu, 09/06/2007 - 5:12am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

They pricked her with a 14 gauge needle after putting the allergen drops on her back. Then of course every scratch and prick bled. An it kind of smeared around and ran when she wiggled.
Kara
just made it look worse than it probably really was.

Posted on: Thu, 09/06/2007 - 11:34am
Daisy's picture
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Joined: 01/16/2006 - 09:00

Sorry y'all had such a rotten day. What a bummer.
As far as the fish, most is cross-contaminated with shellfish unless you buy the fish from a catfish farm/tilapia farm or catch it yourself.
On a more positive note, there is much more of a chance of outgrowing at least some of her allergies since she is still a child.
Hang in there,
Daisy

Posted on: Thu, 09/06/2007 - 11:47am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Thanks Daisy!
The one thing that keeps me going is the hope of outgrowing. She already outgrew beef and chicken. Those were short lived. No more hives or stomach pains from those. So we'll give it another year and then see where she's at. But I guess as of now I'll be sticking around!!!!
Kara

Posted on: Thu, 09/06/2007 - 11:57am
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Joined: 12/14/2006 - 09:00

yuck for the blood all over, and scratching with a needle, were they out of the little tooth-pick looking thing??? Sorry about the results too...so far no experience with shellfish(allthough no one eats it anyways!!!) HUGS
------------------
Chanda(mother of 4)
Sidney-8 1/2(beef and chocolate, grasses, molds, weeds, guinea pig, hamster & asthma)
Jake-6 1/2(peanut, all tree nuts, all seeds(sesame, sunflower, poppy, pine nut) beef, chicken, eggs, coconut, green beans/all beans, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-4 (peanut, tree nuts, milk, soy, egg, beef and pork, cats, dog, guinea pig, hamster, grass, mold, dust mite and EE)
Savannah-1 1/2 (milk, beef and egg, dog(avoiding peanuts, tree nuts, strawberries, seeds, legumes and corn)

Posted on: Thu, 09/06/2007 - 12:18pm
KaraLH's picture
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Joined: 10/11/2006 - 09:00

NO, she said she always use the needle and "it looks more intimidating than it really is". Yeah, tell that to my dd who is screaming her head off! She screamed and cried so hard she broke little blood vessels around her eyes.(not uncommon for her,but still.....) That was Tuesday and you can still see it!
Thanks-
Kara

Posted on: Thu, 09/06/2007 - 12:21pm
Daisy's picture
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Joined: 01/16/2006 - 09:00

Quote:Originally posted by KaraLH:
[b]Thanks Daisy!
The one thing that keeps me going is the hope of outgrowing. She already outgrew beef and chicken. Those were short lived. No more hives or stomach pains from those. ...
Kara[/b]
Yes, my allergist said if my allergies had been taken seriously when I was a child (horrible stomach pains, later with bloody diarrhea), I might have outgrown some of them. [i]I was tested briefly, but my parents only thought of allergies as sniffles and never really pursued it. Ditto on my Ped.[/i]
My old allergist said the stomach pains are really a classic childhood symptom and should have been recognized by a good Ped.
I commend all of the parents on this board for being so pro-active about their kids allergies. My Mom feels really bad now. I'm sure I would have had *some* allergies anyway, but after so many years of GI damage my immune system is not happy.
Take care,
Daisy

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