Ped refuses to give referal

Posted on: Fri, 09/19/2003 - 12:24am
cutey patootey's picture
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Joined: 09/15/2003 - 09:00

Hi everyone,

My name is Jessica, I'm new here... I posted an intro a couple days ago. I have a problem and I wonder if anyone has any advice, or has had something simalar happen.

I've had 2 doctors in the practice that we go to flat out refuse to give my son a referral to an allergist. They both said that we've done the rast test, he has a diagnosed peanut allergy (along with soy, wheat, eggs, strawberries and a bunch of non food stuff too) and that there's no reason to see an allergist because they won't tell me anything new.

Is it that important to see the allergist? I feel like I have so many unanswered questions. They said that the only allergy worth any attention is the PA and not to worry at all about the rest of it, but I know he has reactions (not as severe as the PA, but still noticable) to the other things, esp wheat and soy. I feel like I need help with how to deal with those things, as well as more concrete info on how to deal with the PA (although I've gotten so much info from this site and the food allergy network!).

Would an allergist help me with these things? Or am I expecting too much and the peds are right? I have no options to switch doctors because we have medicaid and they are the only practice in my area that takes medicaid patients.

Any help is much appreciated!!

Jessica with Julian 4 PA and Skye 19mo no
known allergies (is that NKA?... not sure of my acronyms yet LOL)

Posted on: Fri, 09/19/2003 - 1:25am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Hi Jessica,
I guess it really depends on the allergist. Some are better than others about counselling - my own gave me very little info, but my friend's allergist (Dr. Sampson in NYC) give hours worth of advice and counseling on label reading, nutrition, etc.
A decent allergist though should be more current on any allergy-related information. What would be the harm in giving you a referral? So frustrating!
Welcome to PA.com. I hope you find lots of good information here.
Amy

Posted on: Fri, 09/19/2003 - 2:42am
Joanne's picture
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Joined: 02/22/1999 - 09:00

Have you checked with your health care plan to see if you can appeal the ped's decision not to give you a referral?

Posted on: Fri, 09/19/2003 - 3:14am
Claire's picture
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Joined: 04/19/2000 - 09:00

An option that may be of help to you is this. We had my little boy tested because of my oldest having the allergy. Because we never had nuts in the house we had no way in knowing if the younger one had an allergy to pb. We asked our own Dr. to perform tests on him. He sent us to the hospital for a complete blood test on him. Maybe your Dr. would do that. If not I reccomend you call your insurance company and explain your concern. Insurance companies are not that bad to deal with from what i have experienced. Take care and good luck. claire

Posted on: Fri, 09/19/2003 - 3:15am
LaurensMom's picture
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Joined: 05/23/2001 - 09:00

What makes me a little nervous is a doctor telling you that you won't learn anything new. That scares me...it is a very closed minded approach. They are not in the "industry", if you will, of food allergies. There are allergists who specialize in food allergies. Not to say that you will get a good allergist. There are good ones and bad ones. We've had both.
Did they give you an epi-pen at least?
Did you consider a 2nd opinion at another practice? Odds are that if these doctors practice together they have the same style of practicing medicine.
Keep us posted.

Posted on: Fri, 09/19/2003 - 7:00am
California Mom's picture
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Joined: 07/14/2000 - 09:00

This makes me extremely angry. I cannot imagine how frustrated I would feel in your shoes. You may or may not get different/better information from an allergist. However, there is no way to know unless you get that opportunity.
I think checking with the insurance company (if you can call Medicaid that) is a really good idea.
Best of luck!
Miriam

Posted on: Sat, 09/20/2003 - 5:25am
cutey patootey's picture
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Joined: 09/15/2003 - 09:00

Thank you all!
I've talked some more with one of the docs about this and I got the impression that they have sent people down to him before and those people have come back disappointed with the experience. I went on the internet and did some research and found a couple of food allergy specialists in New Hampshire... not too far from us in Maine. I will call my practice back and see if they will refer me to one of them. I just feel like there is more info out there and I want to absorb it all, I'm like a sponge! And I'll be d@mned if these doctors are going to stand in my way.
Thank you for your words of support, I'll keep you updated!
Jessica

Posted on: Thu, 09/25/2003 - 6:41am
anonymous's picture
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Joined: 05/28/2009 - 16:42

I had this problem when she was first diagnosed with asthma. His nurse sort of got an attitude with me when I called back, but I was just adament about it. I told them I thought that he was a great Ped., but with something this serious, I wanted her to see someone who deals with it more.
There are specialties for a reason. His are childhood illnesses in general. Our kids have to deal with this forever.

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