Peanut Oral Challenge

Posted on: Thu, 07/12/2007 - 6:58am
NPenny's picture
Joined: 12/05/2005 - 09:00

My son is 9 years old and was diagnosed with a severe peanut allergy when he was 18 months old. For over 8 years we have told him that eating peanuts would make him very sick and could even kill him. The school has been great, he is on a 504 plan, eats at a peanut free table, and is known throughout the school as the kid with the peanut allergy. We had skin testing done a week ago that came back negative, I received a call today that his RAST testing has also come back negative.

We are now waiting on a call to schedule the oral challenge.

Needless to say we are all scared to death! Has anyone else been through this?
How do you convince someone to eat something they have been told may kill them? When is a good time to contact the school to let them know of the change?

Posted on: Thu, 07/12/2007 - 7:26am
kjtran's picture
Joined: 10/23/2006 - 09:00

WOW! That is great that is tests came back so far negative!! My son just turned 8. We were tested at age 2...then told to come back before he started kindergarten and still positive. We went back at 1st grade still positive...dr. said probably won't outgrow, no need to keep testing...but he would continue to provide new letters at beginning of each school year. We skipped last year...but I really want to keep testing him, hoping, praying that he has outgrown. Keep us posted! I would be nervous too, but it will be under medical supervision. Take it slow, let us know!

Posted on: Thu, 07/12/2007 - 8:59am
kandomom's picture
Joined: 01/12/2006 - 09:00

Fabulous that both tests are negative and actually eating a peanut (product) is the next step.
Since he is 9, I'm sure if you explain the negative results he will understand. And it is absolutely reasonable if he is not looking forward to tasting peanut.
Personally, I don't think there is a need to rush- this is new info, give him time to digest it. Then let him tell you when he feels ready to do the challenge in the drs office.
I think it is OK if the challenge does not happen right away and he has time to get used to the idea that he will eat something he has been warned against for as long as he can remember. Break the challenge down in steps. Eg. 1st it (pb) will be smeared on your skin. Then we wait. Then it is smeared on your lip- we wait etc.
Congratulations on the negative tests!

Posted on: Thu, 07/12/2007 - 11:25am
McCobbre's picture
Joined: 04/16/2005 - 09:00

Welcome to the boards and congratulations on the test results.
If you do a search on "challenge"--even if you limit it to the main board--you are bound to come up with threads detailing others' experience with challenges.
I wish you the best of luck. I hope your son has outgrown this thing.

Posted on: Thu, 07/12/2007 - 12:09pm
16pamom's picture
Joined: 05/16/2007 - 09:00

my doctor suggested the oral challenge he said that he would never do one if he thought the patient would have a reaction. well what do you know my daughter went full blown ana right there in the allergist office, low bp, huge lips, huge tongue, tight chest, hives, and then the epi and off to the hospital for a night. so it all depends on your comfert level. my allergist apologized and said that he has never heard of the negative blood work and posotive oral. good luck
my daughter was fifeteen,and started reactiong to it so we ran the test. and it was not good. but i hope it goes well with your son.hey maybe he wont even like the taste.pb makes kim want to gag (i think because she knows what it can do)

Posted on: Thu, 07/12/2007 - 12:51pm
NPenny's picture
Joined: 12/05/2005 - 09:00

Wow! Thank you all for your replies. In response to kjtran....your testing schedule sounds very similar to ours. My son was tested prior to kindergarten, then again in 1st grade and they were both very positive. He did not have any testing prior to 2nd or 3rd grade. I requested another round of testing at our appointment last week and here we are!
I really don't look for my son to ever want to "eat" peanut butter, but what a relief it would be to let our guard down a little.
To kandomom....I am grateful for your break down of the test....that is not how they explained it to us. They said they would immediately give him a cracker with PB on it. Hopefully they do it in steps as you explained!
I wonder if any one has been positive...then negative and then positive again later in life???
Thanks again for the replies!

Posted on: Thu, 07/12/2007 - 8:57pm
alliedhealth's picture
Joined: 06/10/2006 - 09:00

Ideal performance of an Oral challenge for safety reasons would be in a major medical center by an allergist who regularly performs these- they can be blinded or unblinded to the amount of protein used. However, this would be a measurable weighed amount usually in an item that your child will eat- often weighed out in mg. of peanut flour and increased slowly over time in a stepwise manner. You can search on Woods, Burks, Sampson for their suggestions and review past posts about safe/ unsafe challenges

Posted on: Mon, 07/16/2007 - 7:46am
momster's picture
Joined: 06/29/2007 - 09:00

My son age 10 has had negative Rast for a few years but always tested positive on skin tests. Last month he accidently ate a candybar with peanuts with no reaction. We are doing an official challenge this week. The allergist proposed his skin reactivity was a false positive affected by an allergy to birch. I might add his allergy was mild, never given an epipen although we have carried it faithfully, also he has not had a reaction since age 2. I am not nervous as he has already had an unofficial challege. He seems to be one of the lucky ones to out grow it.

Posted on: Fri, 08/24/2007 - 6:28am
mckennakatesmom's picture
Joined: 09/07/2004 - 09:00

My dd passed a peanut challenge August 15, 2006 shortly after her 4th birthday following a CAP RAST of <.10 and a negative skin test. She ate peanut butter in increasing amounts over the course of about 6 hours in her allergist's office (connected to the hospital). It was only the third peanut challenge the allergist had done as she would only try if almost certain the child would pass. My daughter was the only child she had ever challenged who had actually reacted to peanuts (rather than being diagnosed with PA through testing only).
DD just turned five in July and we celebrated one year of no PA last week. She eats peanut butter several times a week (only in our home under my direct supervision). We still carry epis everywhere and she will not be allowed to eat nuts at school. We mostly are just able to put our guard down at restaurants, birthday parties, same factory, etc. We are still avoiding with our 2 year old son, NKA.
We are so thankful to God that he healed DD and we pray for everyone still dealing with this. I have had many opportunities to share my experience with food allergies with other families. I live in a small community, and still there are more and more kids here being diagnosed with food allergies.
Anyway, just wanted to give some hope that it does happen. There are kids who do outgrow peanut allergy and that is my hope for every child who has it.

Posted on: Fri, 08/24/2007 - 3:46pm
jw's picture
Joined: 06/29/2003 - 09:00

Best wishes for a successful challenge. Regarding becoming positive again after outgrowing, the doctor should still provide EpiPens for at least a couple years. The allergy is more likely to return if you don't eat peanut products. I believe monthly is minimal requirement, with a weekly dose of peanut butter being preferred. If you challenge successfully, search the boards for the exact recommendations.

Posted on: Sun, 08/26/2007 - 3:52pm
nothankyou's picture
Joined: 07/19/2007 - 09:00

when your son was diagnosed at 18 months old, what was the reason. Had he had an ana reaction, or was he tested for some other reason?


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