Peanut Cap Rast is high!

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I am really sad my son had a cap rast of 1.2 6 months ago. Now it is coming back at a 19.1. So I went from hoping that he will outgrow his allergy to him having it lifelong. I know it could have happened at anytime but I am in shock right now. She said that it was a cap via or they use a up-john system. Does anyone know what this means? Any info would help. I have signed up to be in the study but there is a huge wait list! About 50 ppl. I know nothing changes and we do what we have to to keep him safe! Just really confused! Well I guess I can feel happy that he outgrew his egg.

On Feb 2, 2007

"Upjohn" (mentioned in last paragraph) makes Rast tests (sometimes Pharmacia and Upjohn is listed) and there is a test the Immunocap- maybe that's what she meant??? Here's one article -there are more if you search by "upjohn rast".

[url="http://www.isitallergy.com/Updates/Press-Release/pr07.html"]http://www.isitallergy.com/Updates/Press-Release/pr07.html[/url]

On Feb 2, 2007

I'm sorry to hear of the RAST jumping up. I've never heard of any of those terms though...sorry.

On Feb 2, 2007

Sorry to hear it. Your story is one of the few that sticks with me. I remember reading how the number dropped and was so low. I thought you would be one to come on here one day and say it was outgrown. Maybe it was a different test than the others you've had? Someone had posted about variations even within the same lab on the same sample. Maybe this one is erroneous?

I wanted to mention about the egg. In the other post I think you said you gave egg in baked goods? and no reaction. Keep in mind some people CAN tolerate this amount but not straight up eggs like scrambled/quiche/etc.

Again, sorry about the numbers.

On Feb 2, 2007

I think she may have said CAP-FEIA [url="http://www.njc.org/news/y2002/food-challenge-why.aspx"]http://www.njc.org/news/y2002/food-challenge-why.aspx[/url] CAP-FEIA (as by Pharmacia and Upjohn Diagnostics)

[url="http://www.allerg.qc.ca/peanutallergy.htm"]http://www.allerg.qc.ca/peanutallergy.htm[/url] the above is a good reference on testing procedures as well

Sorry about the hard news.

On Feb 2, 2007

His SPT for eggs was negative. Do some children still react to egg after neg spt? The Dr said to give him whole eggs at home.

I am handling it better now. My husband finally got home from work so I have him to lean on. Plus, he poured me a glass of my favorite wine.

I just need to calm down and realize that it is a food allergy and as long as we moniitor what goes in it should be fine. I don't know why but I started worrying about parks, ball parks, public places... things I didn't think of before. I don't know why. I guess I feel guilty or something. But I am not going to stop going to those places he enjoys so much. The dr said he isn't more allergic now then he was and all along he could have gone into anaphylaxis. I do understand that. I was hopeful thinking.

Plus, my son has sensative skin and all day today I was like he's having a reaction if he got red cheeks. I am going back to my allergist here and request a test through LabCorp where he got the 1.2 before. I will wait so the trauma of being stuck so many times on Tuesday wears off.

Thanks for listening!

On Feb 2, 2007

You are at the right place (Duke)- I guess the balance is as I've heard it said " not living in fear, but a healthy respect for the allergy"- easier said than done as a parent though. A good support network such as medical staff at Duke/family and education makes it much more manageable when those concerns start to creep in. Take Care.

On Feb 2, 2007

From what I've learned on here and elsewhere: people feel most comfortable with a neg RAST and a neg SPT. Then a food challenge at a hospital. I don't want to worry you more than you are right now. I just wanted to throw this out there for you to consider.

On Feb 2, 2007

Quote:

Originally posted by mommamia8: [b]Someone had posted about variations even within the same lab on the same sample. Maybe this one is erroneous? [/b]

That was me. [url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/008965.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/008965.html[/url]

On Feb 3, 2007

The dr said based on history of never a reaction before finding out about egg allergy-meaning never reacted found out allergic through SPT. She has a suspicion that he was never allergic. He is eating cookies now with egg and we will try egg tomorrow and hope nothing happens. We will definetly have benadryl and epi pen ready. She said she was ok with it and for us to have him test at home. Oh now I am nervous! Will let you know how it goes!

On Feb 4, 2007

Well, he won't eat the eggs, but no reaction from them in his mouth. He took a bite in his mouth swished it again and then he spit it out. He said: yucky taste. I don't like eggs. I guess we will continue to feed him products with eggs an as he gets older he will hopefully eat them. I have some neices and nephews that have never liked eggs either. My daughter all but cried when she saw eggs on her plate this morning. She took 2 bites and acted like she was gagging on them. We will try again another day!

On Feb 4, 2007

My dd hates eggs also. She outgrew her egg allergy two years ago and I want to be sure it doesn`t come back, so I want to have her keep eating egg. I found that making pancakes is a good way to get her to eat them. 1 egg for 3 pancakes (it`s a little higher than the recipe calls for, but she definitely cannot taste the egg).

On Feb 4, 2007

He won't eat pancakes either. Just doesn't like them. He is a very finicky eater and he is 3. Any other ideas to hide the eggs? He will eat the cookies and cakes, but I don't know what else to make. I figure if he is eating something with eggs it will be ok, but the dr said to make sure he eats them. My daughter outgrew and didn't like eggs but didn't become allergic again. She was never allergy tested b/c I didn't know to do that. She is 8. But I also didn't need a test to see the hives and blood red eyes. Pediatrician then said to give benadryl and never mentioned allergy testing. This is such a big step that I don't want him to become allergic again.

On Feb 4, 2007

Quote:

Originally posted by josh'smom: [b]He won't eat pancakes either. Just doesn't like them. He is a very finicky eater and he is 3. Any other ideas to hide the eggs? He will eat the cookies and cakes, but I don't know what else to make. I figure if he is eating something with eggs it will be ok, but the dr said to make sure he eats them. My daughter outgrew and didn't like eggs but didn't become allergic again. She was never allergy tested b/c I didn't know to do that. She is 8. But I also didn't need a test to see the hives and blood red eyes. Pediatrician then said to give benadryl and never mentioned allergy testing. This is such a big step that I don't want him to become allergic again.[/b]

how about french toast? with maybe some cinnamon added? it's one of the only ways my 4 year old will eat eggs; she also will spit out scrambled, etc. usually 2 pieces of toast will use up one whole egg batter.

On Feb 4, 2007

My DD doesn't like scrambled eggs but loves hardboiled eggs (mostly the white but will eat a little of the yolk now)- we use an egg slicer and I pop the yolks out and put a few yolks and all the egg whites on her plate- they then look like little white egg "rings" - I think that's part of the appeal to her. Don't know if you've tried hardboiled or not?

On Feb 4, 2007

Well, my son has had so much sweets today. Do you think this will count towards his egg total today. He has had @7 cookies (Pillsbury valentine ones) they were still cooling and he went in the kitchen and ate a bunch before I noticed. Then at CiCi's Pizza my husband handed him a brownie. Talk about a sweet tooth [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Feb 4, 2007

This came up with our allergist (about making sure she eats some egg so that the allergy would not come back), and he said that mayonaise would take care of it, since it has egg. So I just make sure at least once a week (usually more often), I make her something with mayonaise (chicken salad sandwich, BLT, etc). I don`t think cookies really count, because the protein is probably broken down by then (although raw cookie dough would be an option, if you are okay with the idea of raw egg). By the way, the allergenic part is the white, so maybe if you could make something with just the egg whites?

On Feb 4, 2007

Don't mean to fully hijack, but: The brownies at CiCi's are safe for PA? What kind are they?

DS just had brownies for the first time a few weeks ago, and he's in love. It's part of that "if chocolate, assume unsafe--unles proven otherwise" thing I've got going. But if the brownies at CiCi's are safe, that's good to know.

On Feb 4, 2007

yes the brownies are safe at CiCi's look under Restaurant and there is a post about it. Also, my husband asked at the manager and he assured us that there were no peanuts or treenuts in there food. It was such a nice experience to know that my son could eat whatever he wanted at the restaurant and the best part was that he was free. 3 and under eat for free. I would call your local CiCi's and make sure they are and then take your DS and let him enjoy!

I will try the mayo tomorrow. Maybe he will eat some of that. I am going to hard boil some eggs tonight for egg salad. I am hoping he will at least try something with egg.

Wouldn't he have had a reaction to the scrambled egg in his mouth?

On Feb 4, 2007

They are chocolate brownies with powdered sugar on top and very yummy!

On Feb 4, 2007

I just had to comment, don't be mad carefulmom...but my son is allergic to the white AND the yolk....so maybe eating the whole egg for this would be best??? Good luck

the raw cookie dough sounds like the yummiest, I miss that!!!

EDIT...hmmm, my son must be weird...his white was .85(cap-rast) and 30/10(spt) and yolk was 1.54(cap-rast) and 10/3(spt)....I would love for him to outgrow it, how wonderful for you to be buying ranch dressing and mayo!!!! I'd give anything for a turkey sandwich with mayo...mine is always dry!!! (because I'm nursing my egg allergic daughter!!) HUGS [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ Chanda(mother of 4) Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma) Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma) Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig) Savannah-1 (milk and egg)

[This message has been edited by chanda4 (edited February 04, 2007).]

On Feb 4, 2007

I`m not mad at all! If someone is allergic to egg, it is recommended that they not eat any of it, because it is pretty much impossible to give them yolk that has no white. But if your child hates egg, they outgrew the allergy and you want to make sure they continue to be allergic, if you just give the white, that is less egg that you have to try to get them to eat and it is where the allergenic protei is. If your son had a cap rast to egg yolk and to egg white, the egg yolk cap rast would probably be very low compared to the egg white cap rast. But definitely if someone is allergic to egg, it would not be safe to separate the white from the yolk and just give them the yolk (sort of like taking a dessert with peanuts on top, taking off the peanuts, and giving the remainder to a pa child---we would never do that!).

On Feb 4, 2007

Do you think that salad dressing with the egg in it would work? or I could make the ranch with the packet with the mayo? He loves salad so maybe I could make salad witht that!

On Feb 4, 2007

I am sorry about your results.. I understand how you must feel. Chloe was a 2.7 one year, 3.58 the next year and then at three year old check up i had them do the rast again since they were taking blood for cbc/lead...it went to 23.5..that was in just six months...Doesnt make any sense to me at all...It crushed my hope of her outgrowing!!!! I still pray for that miracle..Good luck

On Feb 4, 2007

Quote:

Originally posted by josh'smom: [b]Do you think that salad dressing with the egg in it would work? or I could make the ranch with the packet with the mayo? He loves salad so maybe I could make salad witht that!

[/b]

That sounds like a really good idea. Salad dressing with egg or ranch with mayo. How I would love to have ranch dressing, but the mix has milk in it, right? I really miss ranch dressing.

About the peanut, dd was 34 at age 9, 15 at age 10, and 12 at age 11. I have no idea why it is falling. Maybe yours will drop too.

On Feb 4, 2007

Carefulmom The Rast going down like that is great! Maybe it will keep falling and you won't have to worry about it anymore. Does she react to buttermilk? Since my son has been allergic to eggs, we actually prefer Italian now. Even my 8 yr old who was a die hard everything smothered in Ranch. Hopefully she will outgrow her allergies or a treatment will become available. I can't wait for that day! He has had Ranch w/o problem with egg yolk in it for months.

chloesmommy I know how crushed you felt. That instant panic. Hopefully both of our childrens scores will go down-back to where they were. Were they run from the same lab? Mine were run at different labs. Duke uses the same machines as Mayo clinic so it is probably right. The low one was done by Labcorp. I am going to get it done again by LabCorp to see if it is up at that lab too, but he was so tramatized when they couldn't get blood that it will be a while before I do it again.

On Feb 4, 2007

From what I have read, they do not outgrow peanut at this late age (age 11). But now that it has fallen twice in a row (all done at the same lab), I am starting to hope.

She is allergic to milk, so anything with milk---buttermilk, cheese, yogurt, etc. I am really really sick of Italian dressing.

On Feb 5, 2007

I'm sure that eating a cookie that contains egg would work just as well. After all, would you have given her one when you were strictly avoiding? My guess is no. They proteins are not broken down enough from baking to make it non allergenic.

She could be a lucky child now to get a special treat to keep her allergy from coming back. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

Nevertheless, My son outgrew egg at age 3 and it has never returned. Though he does eat egg containing products intermittantly, I have never made a concious effort to make sure that it was once a week. We will occasionally make scrambled eggs or pancakes on weekends (that sort of thing) but it's not [i]every[/i] weekend.

On Feb 5, 2007

No luck with the salad dressing or chicken salad w/ mayo. He spit it out. I bought Eggo waffles so I will let you know how it goes.

On Feb 6, 2007

They were all with Lab Corp..Yes, I hope the results go down to where they were too..Or better yet...a vaccine or miracle...Wishful thinking tonight!!!

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