passed 1st part of oral peanut challenge

Posted on: Mon, 05/06/2002 - 7:32am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

pThis morning my 5 year old son took an oral challenge at our allergist office. He was diagnosed at 1 year with this and several other food allergies. He was very distressed when the doctor told him that he was going to actually eat peanut butter! I was a wreck. He started with giving him a small dab to eat and waited 15 minutes, checking for hives, swelling, breathing, etc. After that he continued increasing the amount until we were up to a teaspoon. The last dose was 2 teaspoons back to back (now I was really a wreck. NO REACTION!!! However for the next two weeks I have to continue to give him at least a tablespoon every morning . If everything goes well it will be confirmed he has outgrown it. The doctor did say that 4 out of 100 kids will regrow the allergy although ( I didn't want to hear that) And Tonight we need to keep a good eye on him in case of a delayed reaction. So..... so far so good. I'm sure that tommarrow morning I will be nervous to have to give him more, but keep my fingers crossed, that I have kicked one allergy and move on with the rest. Please wish me luck/p
pRobyn/p

Posted on: Mon, 05/06/2002 - 7:42am
smack's picture
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Joined: 11/14/2001 - 09:00

Good Luck to your son!
Can you give us some insight on his first reaction and any tests he had from 1 year old till now to warrant a challenge.
Thanks a bunch and this is really great news. Also, that's interesting that the teaspoon is giving every morning, this sounds like research data I and everyone else can learn from to track to see if this is truly outgrown.

Posted on: Mon, 05/06/2002 - 8:15am
Lisa V's picture
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Joined: 03/12/2002 - 09:00

I love hearing stories like yours. Congratulations. I,too, would like to hear his allergic history to compare to my own young PA son.

Posted on: Mon, 05/06/2002 - 12:17pm
Dawn's picture
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Joined: 02/22/1999 - 09:00

Wow!! Congratulations!! I hope y'all turn out to be one of the truly lucky ones. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
I am also interested in details...did your son ever have the CAP-Rast? If so, what was his level? How many reactions has he had? Was his skin prick score high? I'm sorry I'm being so nosy! Our allergist feels my son is ready for a challenge and I am petrified. And honestly, the part I am scared about is that "4 in 100" kids becoming allergic again. I don't know if I can put my son on that roller coaster. I am so worried that he will think he's okay and then have a reaction away from an Epi-pen, because, really, if he's outgrown the allergy, I can't see being allowed to get a prescription for "just in case". I am such a nervous nelly!!
p.s. I am really impressed that you did the challenge and wish you all the luck in the world...I hope my own nervousness doesn't come off as sounding like a challenge is wreckless. I truly want to do it too. I think I'm hoping you'll help talk me into it. [img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img]
[This message has been edited by Dawn (edited May 06, 2002).]

Posted on: Tue, 05/07/2002 - 12:56am
Anonymous's picture
Anonymous (not verified)

Congratulations
Good Luck
You're my knew hero :-) That's the bravest thing I've ever heard of. Please let us know how things go.

Posted on: Tue, 05/07/2002 - 2:15am
rscollo2's picture
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Joined: 11/11/1999 - 09:00

Well, here is the news. We had hives this morning. But we did NOT have wheezing, sneezing, itching, running eyes, etc. A few hives around his mouth. The allergist said this is still okay. His skin is sensitive but hopefully (as we will see over the next two weeks) he can have it without a fatal reaction. So I am a bit dissappointed but as long as he only has hives I can feel safer about sending him to school next year and not freak out when I see kids eating pbj sandwiches. A little background, His first allergic reaction was to eggs at 1 year (hives, running nose, etc) Then we had the same reaction to peanut butter a few weeks after. After that we became a tree nut, peanut, egg free house. He has had small reactions to the unknown (haven't we all) and has had a ana reaction to (get this) Sheeps milk. His cap rast for egg and peanut have gone down over the years which is why I needed to find out if it was truly fatal or not. After the two weeks , depending on if we get that far, I will ask the allergist about products which have the "may contain" statement. How I wish he could just eat everything!!!! But IF he cannot, just knowing (hopefully) that it is not fatal will be good enough for me. I will keep posting.
Also, I know challenges are VERY SCARY!!! But if your allergist thinks it is a good time to do it, I think you should put your trust in them. It is better than not really knowing. (easy for me to say AFTER my challenge)

Posted on: Tue, 05/07/2002 - 4:36am
Anonymous's picture
Anonymous (not verified)

Glad to hear things went well this am.
Hope it continues better and better.
Anna

Posted on: Tue, 05/07/2002 - 5:58am
jamieb's picture
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Joined: 05/01/2001 - 09:00

My 2 year old DS has a similar profile. Eggs and peanuts at 1 year after hives, wheezing etc... He miraculously outgrew the egg in 6 months with a food challenge confirming it. His peanut is at .65 on a CAP RAST. We go back in June for further testing and POSSIBLY a peanut challenge if the numbers are even lower!!!!
Your story is very encouraging.
Wonder what your son's CAP RAST level was to encourage your allergist to do a challenge.

Posted on: Tue, 05/07/2002 - 6:33am
smack's picture
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Joined: 11/14/2001 - 09:00

Yes,
I would like to know that as well, what was your son's Cap Rast score?
Thanks for the update Robyn, I'm no allergist but if he is showing signs like hives doesn't that mean he still is allergic and if your one of the ones who believe that it's only mild.....well can't that change at any time.
I know from reading those that say their allergy to peanuts was mild growing up but now it's severe(life threatening).
I know your questions are probably the same and kudos to you for being strong throughout this challenge to investigate whether your son has outgrown this allergy, but I have to differ when you say you want to find out if it's fatal or not since All that I have read say Nobody ever truly knows if it's fatal or when it can turn fatal....their are a few more telltale signs of having more of a definite life threatening reaction like asthma, previous anaphylaxis shock to the allergen, maybe more that I can't think of right now because I have to go make supper.
Anyway, hopefully we will hear from you soon!

Posted on: Tue, 05/07/2002 - 10:04pm
Marla H's picture
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Joined: 02/26/2002 - 09:00

I couldn't agree more with what Smack has said. To me hives are an indication of allergy, and all the scientific research points to the inability of doctors to predict which reaction will be "mild" and which will be life-threatening. If my son were having a hives reaction like that, no matter what the doctor said, I would stop giving him the food period (and maybe get a second and even third opinion). This really goes to the heart of my suspicion about much of the latest hoopla about outgrowing PA--ingesting it once or even a few times without incident doesn't seem to mean that the allergy is necessarily gone forever. I am no fanatic but the hives are a bad sign, so be very careful.

Posted on: Tue, 05/07/2002 - 11:02pm
Anonymous's picture
Anonymous (not verified)

Hmmm. I guess I read this differently. I thought the concern was how safe will school be, not can he now start regularly eating PB. As an adult I would never do the oral test because I would always be afraid the allergy was just sleeping not gone. However, if I had a child with the allergy I might consider it to feel some measure of security while at school.

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