PA w/out Epi-pen?

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Has anyone been diagnosed with a peanut allergy but NOT been prescribed an epi pen?

Angie

On Apr 29, 2005

My son was not prescribed an Epi Pen by our first allergist, until I insisted on one. His response was, "Yeah, you should probably have one". Had I not been educated enough to ask for one, he wouldn't have given him one.

BTW, Welcome. Were you or your child diagnosed and not given one? If so, I would insist upon one.

On Apr 29, 2005

Angie,yes, one of my son's classmates I just found out this school year is allergic to peanuts. The goofy thing is that she has not let the school know and she said she was not prescibed an epi-pen and that her doctor was not concerned about the allergy. I was totally floored. I actually posted this topic about my vent with this mother before. Long story, lots of issues. Anyways, she tells me that he doesn't need it because when her son has breathing issues from a reaction she just gives him his puffer ( he is asthmatic).

Enough of my story, is this what happened to you? Did your doctor not prescribed an epi-pen for you or your child??? I definitely would be concerned. I would suggest a second opinion. As you will read on these boards, that epi-pen may mean life or death. I don't mean to scare you.

Hope this helps Pam

On Apr 29, 2005

That is exactly how Nathan Walters and Sabrina Shannon both died. They both had an anaphylactic reaction and a puffer was used instead of an epi. Eventually they used the epi, but by then it was too late as the blood pressure had dropped too far. If someone is wheezing due to anaphylaxis, you cannot see the blood pressure dropping. That is why everyone should have an epi.

On Apr 29, 2005

Thanks for the responses! So my allergist was not the only idiot! My dd was diagnosed with peanut allergy along with milk, egg, soy and pecan. I thought nothing of the epi not being prescribed at first. Then the more research I done, the more I questioned it. I called yesterday and asked the nurse. Her response was "Sometimes the dr writes a prescription, some situations he doesn't. He may not have thought about it." [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] (Gee Thanks!) She also said "maybe he thought b/c of her age, she didn't need one. However, if she would feel more comfortable I will call in a prescription." (Jayci is 14mths) The nurse said the most important thing was to educate any caregivers to not give her anything with peanuts. DUHH! Right before we hung up the phone she said that if I want to come by, she will show me how to admininster the epi-pen. (I would hope so!) Sorry for the long vent. I would have thought an Allergist would have know better!!!

Angie

On Apr 29, 2005

Yikes. My first allergist told us that we didn't really need an Epi, that my son didn't REALLY have a reaction from peanut oil at Chick-Fil-A, etc. And he's actually known a bit for his interest in research in PA and is progressive in other ways.

His partner, who has four kids, is my age, and had a MUCH better bedside manner with my PA son was the one who said OK to getting him tested (he was a 9.8), prescribed the Epi, and told us never to eat at Asian restaurants, ice cream parlors, etc. Then the first one acted fine. But he never admitted to screwing up in the first place.

I tried to get transferred to the second, wonderful doctor, but no luck. And things worked out in the end. They just didn't work in the beginning--until I pushed.

On May 1, 2005

Quote:

If someone is wheezing due to anaphylaxis, you cannot see the blood pressure dropping. That is why everyone should have an epi.

Carefulmom, is it really possible to tell when blood pressure is dropping? How do you know? Thanks!

------------------ [i][b]Peanut Slayer[/b][/i]

On May 1, 2005

You cannot tell when the blood pressure is dropping (unless someone is standing there with a blood pressure cuff). I think if someone passes out due to anaphylaxis as Nathan Walters and Sabrina Shannon both did, that means probably the blood pressure has dropped. But by then it is too late because the epi may not work. (Obviously if you find your child passed out you should still use it, but it would be better to use it before that happens). Anyhow, since you cannot tell if the blood pressure is dropping, if someone uses a puffer for an anaphylactic reaction, it will help the breathing, but it won`t help the anaphylactic reaction itself. That is why in this hypothetical situation that the person who started this thread posted about, they should have an epi. I just discussed this at length at a 504 meeting two weeks ago. I told them if dd is eating and has a sudden "asthma attack" after being fine all morning to use the epi, as it is probably an anaphylactic reaction.

[This message has been edited by Carefulmom (edited May 01, 2005).]

On May 1, 2005

Carefulmom, separate, wanted to know how things were going with you re a couple of things - school and the legal thing. I hope you're okay. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I was very fortunate when my son was diagnosed in an ER that he was immediately prescribed an Epi-pen.

It's almost like luck of the draw or something.

I was one of the fortunate ones.

There are children at my son's school now that do not carry Epi-pens and I am not clear if they have any in their homes or not (I don't want to know really).

However, even being prescribed the Epi-pen wasn't enough. Education and acceptance that your child has a LTFA has to go into the parcel too. We managed to have an Epi-pen (and use it) but our child also nearly died because of ignorance and denial.

I would like to see doctors err on the side of caution. For example, I have a SIL who says she has a bee sting allergy. No Epi-pen. Well, of course she would never mention that to a doctor because she never sees one, but if she ever did, I would like to see the doc write out a 'script for the Epi regardless "just in case".

I have managed to meet quite a few people who do have different anaphylactic allergies and yet have no Epi-pens.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On May 2, 2005

Thanks csc, I`ll email you off board, tonight or tomorrow.

On Aug 4, 2005

i recently talked to two different people about my childs peanut allergy and both of these people told me that they have a grandchild that has peanut allergies. i asked them if they were given an Epi-pen and they didnt have any idea. they just said they have to watch what they feed them. i was really floored about this. this is from two different people and the children are both under the age of five. i told them as soon as my childs test results came back that the doctor told us to get the epi-pen right away. they didnt seem to really know much about it and they watch the children often so i would think that they would know if thy had an epi-pen or not. Do you think that most pediatricians don't really understand how severe PA is? Theresa

On Aug 4, 2005

I was not only given a prescription for 10 epi pens for my son in ER, but his pediatrician the next day asked me if I had a prescription and the allergist two weeks later asked the same thing. We msut have been lucky. I can't understand how a dr would allow a patient to leave the office without epi pens! And, shame on a parent who wouldn't insist! Change drs!

On Aug 4, 2005

Interesting thread.

Edited to add: Oops, I just reread the question and realized I read it wrong. But my answer still applies to some that don't carry epi....precription or not.

I've met some PA people that don't carry epi. Three were adults that have been PA all their lives and felt they knew how to avoid PN's because they 'knew what not to eat' or 'could taste PN's and would spit it out'. None of them carried epi because of the expense of refilling their epi prescriptions every year.

There are probably tons of PA people out there that don't carry epi because they don't have the money. Look at how many peope in the U.S. can't afford medical insurance. Last count I heard was 40 million.

[This message has been edited by Adele (edited August 04, 2005).]

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