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Posted on: Tue, 07/20/1999 - 10:50am
anonymous's picture
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Joined: 05/28/2009 - 16:42

pMcouchie - I am so sorry to hear about your husbands health problems! You must feel the weight of the world on your shoulders!/p
pI feel like this website gives me the ability to "let it all out" so that I can get back to the business of raising my children as normal as possible. It is not an easy thing to do but it gets better after I have had my "PA.COM" fix! [img]http://client.ibboards.com/peanutallergy/smile.gif[/img]/p
pI loved everyones suggestions about giving the responsibility to the children as they are able to handle it. Thinking about it leads me to believe that this may be the only way I can live with him being out of my sight. /p
pI am very much like the person who posted that they tend to "smother" their child. I admit completely that I do it. My parents and husband think that I am trying to "make up" for this happening to Spencer./p
pThanks for the suggestions!/p
p------------------br /
Kelly Mbr /
Another Mom in Michigan/p

Posted on: Tue, 07/20/1999 - 11:19pm
SteveW's picture
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Joined: 04/08/1999 - 09:00

pMcouchie,/p
pYou are absolutely right. There are always people in worse situations. I work in a children's hospital. Anytime I start feeling life isn't fair, I think about (or see) people much worse off. For example, the 1-2 pound neonates who have a high probability of major developmental problems. Patients who have many different kinds of cancer, patients who have/need transplants or brain surgery, patients confined to wheel chairs and can never function on their own. /p
pThis puts my problems in perspective./p

Posted on: Wed, 08/04/1999 - 3:19pm
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Joined: 02/04/1999 - 09:00

pHi Cathy!br /
i am a 35 year old mother of 3 boys; 6, 41/2 and 10 monthes old. I am PA and have lived with this alldergy my entire life. My reactions now are quick and severe. My oldest son is also PA. It was no great surprise to us as he is a typical allergenic child. My father-in law also has mild PA - we really double whammied our children! Our second son has been tested twice and shows no allergic response. It is still too early to tell about the baby.br /
I feel it is somewaht easier to deal with a PA child having lived with this my entire life. We are facing Grade 1 this year and that means lunch at school. I am presently getting together as much info as possible. I live in the Bay area, California or, "the land of peanuts"! It is exhausting to try to make change so for the present time I am focussing only on my son and how to change all school policies.br /
I am curious about how your allergist explains PA in your child when you would not have ingested any and I imagine you never gave any to your son?br /
I feel that education is the key. Everyone I have come into contact with is very supportive. We are hoping for a great year at school. Hope to hear from you, Cynthia....../p
p------------------/p

Posted on: Thu, 08/05/1999 - 4:17am
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Joined: 07/11/1999 - 09:00

pHi Cynthia!br /
The way both allergists explained my son's RAST is that even though it is uncommon, it can happen that you have never been exposed and still test positive. One thing I have come to see is that there is so much drs don't know about allergies, especially food allergies. Yes, rationally I know I have an easier time dealing with and understanding my son's PA, since I am myself. However, from a totally selfish point of view, I feel that if I wasn't PA, I would be blissfully ignorant (until a reaction happened). When I got the call from the dr that my son was PA, I truly felt like I was handed a death sentence, because in a flash, I knew how his life (and his brother's and father's) would change. I do hope that I will be able to make his path a little easier, since I've been down the road he'll be on. Yes, I agree educating is important, but what I have found is that you really can only rely on yourself with any certainty. So, my goal is to get my son to understand how to deal with this as quickly as possible. Not that I wish PA on anyone, but it's nice to talk to a mom who's in the same (leaky) boat!/p

Posted on: Tue, 08/17/1999 - 12:40am
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Joined: 04/15/1999 - 09:00

pIt's great to hear from PA adults because it lets us know that this is a manageable allergy. I have also given my 5 yr old PA son more responsibility for his allergy. He carries his own Epipen in an "epibelt" which he wears around his waist. He also knows to ask if food is safe if anyone offers him something to eat and knows he doesn't take food from anyone he doesn't know. Another one of our rules is absolutely no sharing of snacks and food at school, etc. and no drinking from water fountains becauses of the chances of there being traces of peanuts. We were even able to send him to two seperate day camps for one week periods this summer. The counsellors were very well informed of the allergy and use of epipen and one of his counsellors also had the same allergy which gave me great peace of mind. We will be facing our biggest challenge in September with him entering grade one and the question of staying for lunch. I believe that our greatest defense is EDUCATION and I am certainly working on this at his school. I find the ones who are most willing to help and listen and the other kids in his class - they have been great and certainly look out for each other. Stay safe./p

Posted on: Wed, 08/18/1999 - 4:18am
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Joined: 08/09/1999 - 09:00

pSue B wrote that her son will ask if food is safe before eating it, and won't accept food from anyone he doesn't know./p
pAs an adult PA person, I would modify those instructions a bit due to personal experience. Asking if food is safe does not insure that it is - I once had a person tell me there were pecans, not peanuts, in some popcorn - I ate a tiny bite, and when I returned from the ER, I asked the person again. He said "Yes, I said peanuts. Pecans? Is there s difference?". Another person swore up and down that her chocolate brownies had walnuts. I took a tiny bite, and when I got back from the ER, she looked in her garbage and found the bag - MIXED NUTS. These people were well aware of why I was asking. Also, a person can be telling the truth that there are no peanuts or peanut butter in an item, but there is butter/margerine/jam in it which is contaminated with PB. /p
pSo my new protocol is that I simply don't eat ANYTHING unless I read the ingredients on the bag (although I have since modified that so that I don't eat any snack foods at all), or I made it myself in my own kitchen. Sounds pretty stringent, and very difficult for a child, but even given these precautions I have still had two allergic reactions in the past 6 months! /p
pIt's important that your child have snacks etc. made by you which he can eat when others are having a special snack like birthday cake or something at school. I find I run into trouble when I am starving and didn't bring anything safe with me./p
pGood luck!/p

Posted on: Thu, 08/19/1999 - 3:55pm
Momma Kitty's picture
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Joined: 04/04/1999 - 09:00

pFAN puts out a helpful booklet called "Letting Go: Teaching a Child Responsibility". My PA daughter is only 4 and I have been working with her since 18 mos. As she grows older I'm finding my stress level higher due to loosing complete control as she enter school age, birthday parties, and really wants play-dates. This booklet gave me some ideas on how to deal with the next several years and teaching her to take care. It's a steep bumpy (and tiring)road ahead but hopeful when she is a PA adult I will have done right./p

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