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Posted on: Tue, 04/29/2003 - 6:37am
Bootsy's picture
Joined: 11/13/2002 - 09:00

My dd is allergic to soy in addition to pn and others including garlic - a real tough one to avoid. Anyway, when she was initially skin tested, she tested negative to soy - but the bloodtest classified her as a 2. She tested a 3 to milk so the allergist told us to switch her to soy milk. We did for almost a year. During the course of the year her eczema got worse so we did another blood test and lo and behold, her soy allergy had gone to a 3. Luckily her milk allergy had gone to zero. We now avoid soy - except for lechithin and oil and her skin has much improved. We are hoping that she will outgrow the soy - but I cannot even imagine having to avoid soy oil as it is in everything!!

Posted on: Tue, 04/29/2003 - 7:04am
erik's picture
Joined: 05/15/2001 - 09:00

I have never had any problems with soy. I am PA only.

Posted on: Tue, 04/29/2003 - 10:54am
Anonymous's picture
Anonymous (not verified)

river, I'm so sorry to hear of your son's reaction. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I hope both of you are okay. I thought it was wonderful of you to post the information here for other people to read because this might possibly help other people that experience *mystery* reactions that are NOT PA related (or even ones that are). You also pointed out how this affected your family, especially since you had been reaction free for 5 years. I am so sorry. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
This has nothing to do with soy allergy, but as everyone knows my kids were invited to a bowling birthday party on Easter Sunday. In the bowling thread that I had started when Jesse was supposed to go with his school, I had received really mixed replies about him going into a bowling alley.
The day of the party, both kids had a virus just starting and Jesse had his asthma flaring up. It wasn't enough to keep them away from the party, but what I realized, after posting about his anaphylactic reaction here in December month, that I would have to be on high alert re his PA because his immune system was already compromised with the virus and the asthma flare up (I wouldn't have known these things if I hadn't posted here about his reaction in December month).
As it turned out, the only peanut thing in the whole bowling alley were some Reese's Peanut Butter Cups which none of the people in our group purchased. There were no little machines selling loose peanuts and even though the bowling alley was licensed for liquour and beer, there were no peanuts on the bar area part.
I was really pleased. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] But I do have to say I was on high alert re his allergy, going into a strange situation for us, when he had a virus and asthma flare up. Had I not posted here and received such wonderful response, I wouldn't have known as much. I had even thought that morning that perhaps it wasn't worth it and he should stay home. So, I thank everyone here for that.
river, thank-you for sharing what must have been a terrible experience for both you and your son. I honestly believe that the sharing of experiences here does help other people and sometimes it's a subconscious thing but people just remember, oh yes, that's what happened.
The Crisco shortening - was it white or was it the yellow one they have?
I have several questions still (containable in this thread [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] ) from the responses that another member and I received from Anaphylaxis Canada re PA and soy allergy. I'll try to raise them later.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 04/29/2003 - 11:37am
WoozerMom's picture
Joined: 12/28/2000 - 09:00

As a person who has been PA/TNA all her life, I will just throw in a little more confusion.
As a baby I was allergic to cows milk, and could only drink goats milk. Mother worked and nursing was just not popular then among the more "enlightened women." How things have changed.
Now I have a tiny allergy to cows milk and drink at least 12 oz. daily.
As a young child, I had a horrid allergy to wheat. Now I have a tiny allergy to milk.
I have a little allergy to so many things that a few years ago, they took me off everything and added foods back one at a time, in hopes of finding a trigger food that caused some of my respiratory problems. Nothing was the trigger. Now I am allowed to eat many of the foods to which I am allergic, but in small amounts.
I have been avoiding lots of legumes, however, due to having PA and also having an allergy to peas. I have continued to develop new allergies all my life. I thought that perhaps if I limited my soy and legume intake, I might be able to avoid becoming allergic. Don't know if this is sensible or not, but since many of the doctors know so little about the allergy process, I just tend to make my own decisions.
Having recently been taken off hormones, a doctor recommended the soy products on the market, but I have decided to stay away from them.
I personally think that dealing with a soy allergy is so much more difficult than my peanut allergy. I don't want to take a chance.
Odd thing happened the other night -- there were tiny pieces of walnut in some ice cream I had at a banquet. I was remiss in paying attention to what I was eating. But I didn't have a reaction other than a mild itch in my mouth. What a relief! I will still avoid them, but it is good to know it was not a severe reaction.

Posted on: Tue, 04/29/2003 - 2:39pm
Anonymous's picture
Anonymous (not verified)

Okay, this is what confuses me about what Anaphylaxis Canada wrote to the other PA.com member:-
There are peanut-allergic individuals who have gone on to develop a sensitivity to some soy products. Many can tolerate soy oil, but not other soy products such as soy protein isolate, soy (e.g. tofu, soy milk, etc.), hydrolyzed plant protein (from soy). It would be best for an allergist to diagnose the individual.
What is soy protein isolate?
What is hydrolyzed plant protein from soy?
How do I know when I look at the margarine contained if it is one of the soy products that I'm *supposed* to avoid if I was dealing with a soy allergy?
They didn't mention this specifically, or perhaps they did and I can't understand because I don't understand, but what about soy lecithin as well?
I am totally confused by all of this.
I think, for me, since I am so confused by this, if I was confronted with a soy allergy, I'd either have to get unconfused really quickly and do a lot of research or I would simply avoid all soy products.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 04/29/2003 - 5:11pm
Liz's picture
Joined: 01/17/1999 - 09:00

Hi all,
I was diagnosed initially with pa, and subsequently with soy and most other legumes. Haven't found one yet that I can eat without some kind of reaction, but they can't test for everything.
I avoid ALL soy products. If the label says soy or if the label says 'vegetable' without specifying, it stays on the store shelf. Needless to say, most commercially prepared foods are a no-no.
When I eat out, the level of itch that I get tells me how exposed I was. If I find it intolerable, I never eat there again.
I cook at home a lot, and make my own substitutes for commercial products.
In a sense, I enjoy this because I am forced to eat cream and butter....
It all comes back to your comfort level. I find that I may react to soy oil, I usually react to soy lecithin, and sometimes I react to chicken having been fed soy in its diet.
It is survivable though, and in some ways, a lot cheaper on the food budget, even if more time is spent cooking.

Posted on: Tue, 04/29/2003 - 10:48pm
maddiesmom's picture
Joined: 12/20/1999 - 09:00

Liz- Thank you for your post-it is nice to hear from someone else who reacts to the supposed "non allergic" soy, soy lecithin, like my daughter.
She seems to get GI symptoms when exposed to soybean oil or soy lecithin. It is interesting that you mentioned the chicken...I gave her chicken breasts the other night and she got upset stomach. My hubby and I were discussing the fact that if the animals were fed a soy based diet, can she get the traces?!? I am most concerned with the fact that her allergist said that if her #'s keep going up, she quite possibly could eventually have an anaphalxis reaction when exposed to soy.
Liz-how allergic are you to soy? Have you been rast tested and if so, what level are you? (if you don't mind my asking).
I find that with the soy allergy-my grocery bill has DOUBLED because I am having to buy a lot of products that are soy free (organic). Since I am not Martha Stewart and cannot make a lot of snack items in my gourmet kitchen! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 04/30/2003 - 2:06am
nancy023's picture
Joined: 12/12/2002 - 09:00

Since my son does tolerate the soy oils and lecithin o.k., we feed him those, but not anything that says soy or vegetable protein (in any form), soy flour, or soy fiber. There are some other soy names that are less common, but I can't find my FAAN card that lists them right now. When he was first diagnosed, I didn't know which of the oils would be o.k.-- hydrogenated, partially hydrogenated, etc. They all seem to be o.k.
Has anyone wondered if exposing a soy allergic child to minute amounts of the protein in the soy oil would actually help him to outgrow the allergy, like desensitizing through allergy shots? The main reason I still feed my son the food with the soy oils and lecithin is the fact that his diet is so limited already--he's allergic to peanuts, treenuts, all legumes, soy, non-cooked egg, whole wheat, turkey, and has recently outgrown his chicken allergy. Since the allergist seems to think he is outgrowing his soy allergy, I wondered if actually feeding him the oil and lecithin is helping that, not that I would recommend others do the same.

Posted on: Wed, 04/30/2003 - 3:58am
Francine7's picture
Joined: 12/30/2002 - 09:00

My 22-mo son is allergic to pn & soy. His soy allergy is fairly mild & his pn allergy is severe (anaphylactic reaction at 12 mos). From what I've read & been told by my son's allergist, this relationship makes perfect sense, as pn & soy are both legumes. As a precaution, I have my son off all legumes.
I was tipped off to his food allergies when he developed eczema on his face & diaper area before 12 mos. He basically had incurable diaper rash. He also didn't sleep well at night - sometimes he slept thru the night & sometimes he didn't, but I couldn't figure out what was different. After taking him off all soy & legumes this cleared up. He was skin tested for soy & blood tested for pn. The allergist thinks he will outgrow the soy but not the pn. Also, there is a connection between allergies, the immune response & children w/ eczema.
Yes, some people can tolerate soy products such as soy lecithin & soybean oil (which are in everything!) b/c theoretically, these don't contain the soy protein. But, I try to stay away from all soy products (which is extremely difficult!).
Soy is so pervasive in everything now, that I believe, just as w/ pns, that the over-exposure must be contributing to the rise in soy allergies. I did drink a lot of soy milk & pb while pregnant & nursing my son. And, I've recently discovered that the diaper cream & massage oil I used on my son as an infant contained pn oil (AAAaargh! live & learn!).

Posted on: Wed, 04/30/2003 - 4:33am
Anonymous's picture
Anonymous (not verified)

Since my allergies developed as an adult I always worry about developing more. Soy is my fear, so although I don't totally avoid it, I try not to overdo it.
My sister (also adult on-set allergies) is allergic to soy. Actually, she has a lot of food allergies, but soy is the worst reactions and hardest to avoid for her. Initially her doctor told her lecithin and some other form of soy were OK for her to eat, but when she kept having reactions I suggested she eliminate them as well. She now know she cannot tolerate any form of soy.


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