Our Peanut Allergy - School Proposal Plan

Posted on: Mon, 07/21/2003 - 8:41am
LL's picture
LL
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We had one heck of a time trying to make plans before next year begins regarding our child attending a new school for (First Grade) next year.

Without laboring the story -- here is our (written) proposal to the school.

I have no idea they will recieve it. So far it

Posted on: Mon, 07/21/2003 - 10:34am
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Thank you for sharing and offering your personal insight. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
MommaBear

Posted on: Mon, 07/21/2003 - 11:19am
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Sure.
[This message has been edited by LL (edited July 21, 2003).]

Posted on: Mon, 07/21/2003 - 11:23am
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[

Posted on: Mon, 07/21/2003 - 11:34am
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?
Yes. I was very reminded of my own children in the last paragraph. Hence the " [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]"
I was very unprepared when I walked into our first district meeting. And the second. And the third. I had no idea what I was up against. It wasn't until much, much, much later I realized how unprepared I had been.
One thing I wish I had done was let them lay their cards out in the first meeting. It would have helped me plan accordingly. Are they going to allow you to record the meetings? We were allowed to record them.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Mon, 07/21/2003 - 9:08pm
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Geez. Record them? Is this what I have to look forward to?
I hope it doesn't come to that. But my husband is a reporter and takes copious notes in detail for a living - so I guess under those kinds of circumstances I would rely on him for that.
Isn't it awful that we have to be like this with school? You'd think they would just bite the bullet and realize that Peanut Allergies are not going away and try to work with us to create a livable, safe routine for us all.
I am so tired of all the emotional baggage that goes with it all, I really am.
Oh, well. She's my kid, and I need to remind myself that she's worth it all.
LL

Posted on: Tue, 07/22/2003 - 1:25am
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Thanks LL. As a former school system rep, ask if you can tape. MommaBear is right. When you want to tape, they will want to tape. They may ask to bring an attorney. Being prepared will help you get what you need for your child.

Posted on: Tue, 07/22/2003 - 4:31am
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You are very prepared. I also took the plan from the Massachusetts Deapartment of Education manual on "Managing Life Threatening Food Allergies in Schools" and the FAAN plan. If you are a FAAN member you can nominate your school to get a copy for free. I also researched on the nurses association website and found many good articles of what should be done by nurses to protect students. Hope this helps.

Posted on: Tue, 07/22/2003 - 5:16am
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Quote:Originally posted by busymom:
[b] I also researched on the nurses association website and found many good articles of what should be done by nurses to protect students. Hope this helps. [/b]
LL,
I put together a post a while back containing links to threads on the board that discussed such topics. In some threads were discussions about what busymom references. If you want me to reraise it, let me know. I think it is entitled "Some Links That Mention Nurses". I am not sure.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 07/22/2003 - 5:22am
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Thanks, but you don't have to -- believe me, I've been reading tons of past emails here which have contained lots of good info I used for my own draft!
But thanks anyway!
LL

Posted on: Tue, 07/22/2003 - 6:56am
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LL, is there any reason you have not formally requested a 504 plan for your child? I'm also in California and have had no trouble getting them implemented at the two public schools my daughter has attended. Good luck! Miriam

Posted on: Tue, 07/22/2003 - 8:55am
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You know, I brought the subject up to the school nurse and the principal and the principal snapped at me "You're not enrolled in school, yet!" -- The school nurse was more accomidating about my request for it - but neither seem to want to go there as of yet -- I think they are still afraid of me, of what I will expect of them and they are holding back what they will commit to doing until I meet with them in person -- the day before school begins.
If you are wondering why I would want to go to this school, it does have a terrific reputation academically and artistically and these are the reasons I'm sticking it out with them even though it hasn't been smooth sailing about any of this.
My child has been underchallenged at the local kindergarten and while it would be alright to go back there -- I really want to find a school where the teachers share a real passion for learning -- I had thought this new school, in a nearby district would be just the place for us all. Until I tried to broach the subject of the dreaded Peanut Allergy -- That's when the principal made no secret that she wished I'd stay where I was and not trouble her with my child's allergy. She never said it that way, but that was the general tone and resistance I got from her over the past month or so. And I'm holding back here- since one never knows who reads these things.
Let's just say that off line I may have harsher words about it all.
LL

Posted on: Wed, 08/20/2003 - 3:46pm
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Quote:Originally posted by LL:
[b]We had one heck of a time trying to make plans before next year begins regarding our child attending a new school for her (First Grade) next year.
Without too much laboring the story too much at this point, here is our (written) proposal to the school --- We mailed it off to them this week and school as it is suppose to start Aug. 6th.
I have no idea if the proposal will go as planned or how they will recieve it. So far it

Posted on: Wed, 08/20/2003 - 4:05pm
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LL,
I'm also in California, and have also had a challenging time working w/our school and school district.
After spending much time here at PA.com, and reviewing advocacy material, as well as from personal experience, things did not start to move satisfactorily for us until we made a formal written request for a Section 504 evaluation. The formal written request compels the school to act; otherwise they open themselves up to the complaint process if you were to ultimately have to file a complaint with the Office of Civil Rights due to procedural violations on their part.
Since our first meeting (with just the local 504 team - which was a disaster), we have held a series of meetings throughout the summer that included district representation. We had two tape recorders running at these meetings, and their attorney was present at one of the meetings. Taping the meetings has been helpful; we have covered much ground over the last [b]6 hrs[/b] of meetings, that when we "haggle" over revisions, it has given us the ability to re-visit what was discussed and remind everyone when the document starts to depart from previously agreed-to accommodations.
We found that we had to hope for the best, but unfortunately, prepare for the worst!

Posted on: Thu, 08/21/2003 - 2:09am
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Quote:Originally posted by Nutternomore:
[b]
We found that we had to hope for the best, but unfortunately, prepare for the worst! [/b]
I am so about good potholders! Completely agree.

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