25 posts / 0 new
Last post
Posted on: Fri, 06/11/1999 - 3:41am
Shan's picture
Joined: 04/05/1999 - 09:00

Thanks Kelly. Wow, I'm really confused now. The allergist told us to give her an Epi shot at the first sign of a reaction. It seems alot of you just give Benedryl for mild reactions. But, how do you know if it is going to stay mild or get worse? The allergist told me it will only progress...Do I just give her a shot at the first sign of a hive? They did yesterday. She did pull at her head and scream though first just like she did the first time it happened. My dd is only 21 pounds. I wonder why your allergist felt 25 pounds was too small? I will call the EMT. That is hard to believe some don't carry Epis. That is scary. I also didn't think to note the time when it happens. I probably won't remember though, but I hope I do! As for giving the second shot-my dd hasn't had a problem so far with breathing, just face swelling (which I quess if bad enough could cause her not to breath), hives, screaming and pulling (which I quess is because she itches?). I worry that since her weight is so small I could give her too much Epi and her heart could freak out. Yesterday her heart was racing like mad after the shot. Any thoughts? Today she still has a small rash. Does anyone else have a rash after the reaction that lasts very long? Kelly, I hope Spencer's rash goes away soon. Shan

Posted on: Fri, 06/11/1999 - 5:18am
Tammy James's picture
Joined: 06/01/1999 - 09:00

Shan, I just read through all these messages. You've been given a lot of great advice!! Our allergist told us that our son's reaction to the peanut skin test was so bad he considers it to be rare. We suspected the allergy at 15 months, and he was tested and confirmed at 18 months. Our allergist told us to give him the Epi/Benedryl even if we only SUSPECT that he ate something with peanuts. He said that waiting to see what kind of reaction he had would be a bad idea. Give the Epi/Bene, then head to the ER, give another Epi if the hospital is more than 15 mins. away. As far as I'm concerned, it's life and death, and waiting is death for my son. I recently took a child CPR class because I thought it might help. The technician told me that once the airway is swelled shut, CPR will not help. You cannot be TOO safe. My son cannot have a safe cookie that has touched an unsafe cookie, and he even reacts to the smell of peanuts. His first reaction was vomitting, and his second was vomitting and wheezing, and those were just after a tiny lick of peanut butter! He never showed any outward sign, such as hives. I have heard, and was told by the Dr. that each reaction gets worse. It is a frightening thing to have to deal with... again, don't ever think you're being TOO safe. There is no such thing!! About the rash, as I said, our son never got hives, but his reaction to the skin test was the size of a 50 cent piece, and it stayed on his back for at least a week. I was talking to someone about the whole situation just after we found out about it, and mentioned the epinephrine injection. This person told me that she had to use one before and that it made her shake all over - almost seisure-like. I'm glad she told me, because if that would happen without my knowing, I would probably freak out! Has anyone experienced this kind of reaction? We haven't had to use the Epi/Bene yet - Thank God!! Take care, Shan, and keep up with this site - it's wonderful!!

Posted on: Fri, 06/11/1999 - 7:35am
Kelly Morse's picture
Joined: 03/13/1999 - 09:00

Shan - To me the rash seems to last forever. SORRY! Of course it doesn't really it just seems that way because nothing I ever do seems to make it better except time.
Before we knew of Spencers terrible allergy to Eggs (and peanuts and soy), I would cook French Toast for my daughter and then touch him and cause a reaction. Because at first it was just a rash (and I was so inexperienced in this area of parenting) I never caught on that I was causing it to happen. The rash seemed to last for weeks and then I would make French Toast again and it would start all over.
I feel the pain in your e-mails over your decisions. I have done that to myself for three years over my daughters kidney problems and it has gotten me nothing but bad nerves and a stomach ache. Before she was born I would blaim myself by saying that surely I did something wrong during my pregnancy and then after she was born I only got harder on myself. You are a GREAT MOM and doing everything you can for your child.
Keep your chin up!

Posted on: Fri, 06/11/1999 - 11:12am
Valerie's picture
Joined: 01/27/1999 - 09:00

Hi Shan,
I understand your dissapointment over the positive reaction. Our son had a negative CAP RAST (blood) test 2 years after his reactiona and positive skin test. Our allergist won't even consider oral challenge until two skin tests are completely negative. Our hopes were way up and then he reacted to the second skin test.
We have been told to give the Epi, benadryl and prelone (steroid) immediately if he ingests peanuts. You never know how long is too long to wait. We use Zyrtec for animal allergies but benadryl for food reaction. Our son doesn't seem to have any side effects from the Zyrtec and you only give one dose every 24 hours. I gave him the Epi once for a very mild reaction. He was absolutely fine, I however was a wreck. The major side effects of Epi affect adults more than children according to the drug insert, our Pedi and our allergist. We have been assured that it will do no harm to give it even if it's not needed. We have been told to repeat it after 15 minutes if the reaction is worsening. It's also important to have at least two epi pens on hand in case one malfunctions. Our son was prescribed the epi pen jr at 1 year old and I know several other people who have also been given them for children around 20 pounds.
Good luck!

Posted on: Fri, 06/11/1999 - 11:25am
dhumphries's picture
Joined: 02/02/1999 - 09:00

Hi Tammy and all,
My son's skin test reaction was also off the charts according to our allergist (also about the size of a half dollar). We were told to give the benadryl/epipen combination when suspected pnt ingestion has incurred.
As far as the fear of reaction from the epinephrine, I will tell you that my son who was fifteen months old at the time received two epinephrine injections in about a one hour time frame during his first and only exposure, and I did not notice ANY adverse side affects. Based on this experience, I will not hesitate nor be afraid to administer the epi when I need to.
Good luck and Stay Safe

Posted on: Sat, 06/12/1999 - 7:28am
Shan's picture
Joined: 04/05/1999 - 09:00

Thanks Valerie and Debbie. You both gave me info that I needed. Shan [img]http://client.ibboards.com/peanutallergy/smile.gif[/img]

Posted on: Mon, 06/14/1999 - 2:50am
DebO's picture
Joined: 03/15/1999 - 09:00

I just want to add one more comment. The epipen may hurt a little bit to give her, but it has no major side effects and will not actually hurt her long term. No hospital is going to criticize you or reject you for taking a child with a known anaphylactic allergy to emergency for observation after an exposure to peanuts - but if you don't use the epipen and decide to wait and see how bad the reaction is it may end up being too late! Because of this, I have decided that with my daughter if she does not eat peanuts but touches them I will try using benadryl but have the epipen ready and still go the emergency. If she actually eats or licks anything she gets the epipen and goes to emergency. I feel better taking her to a hospital so that if things get worse they can respond more quickly.
One more note - my daughter goes to daycare, and the policy for them is any exposure (even if it is just touch) and she gets the epipen and goes to emergency. I don't want them having to observe, wait and see how bad it gets, etc. It is easier to just say use the epipen and go to emegency. I use this rule for babysitters too.
Remember - you can't be too careful!

Posted on: Thu, 06/17/1999 - 8:55am
Holly Gunning's picture
Joined: 02/01/1999 - 09:00

I haven't been using the computer for a while and I just read your post at parentsoup. And now I have read all these posts and I am crying too. Your poor baby.
ps for Kelly Morse
I read your post where you mention using Benadryl several times a week. I live in England so please correct me if I have missunderstood but Benadryl is basically an antihistamine syrup right? I ask because a friend of mine recently visited their allergist and was told to save her daughter's Piriton (a UK brand pediatric anti-histamine) for serious reactions. The suggestion was that if it was used too often for minor reactions it would not be as effective in an emergency. I have not heard this anywhere else but I thought I should mention it.

Posted on: Thu, 06/17/1999 - 12:52pm
Shan's picture
Joined: 04/05/1999 - 09:00

Hi Holly. I hope you and your family are doing well. We are doing OK now. My dd got her MedicAlert bracelet today and is doing fine. Thanks for your post.
I do have another question for everyone-the ped today told us after the EpiPen to call 911, but the allergist told us to just go the ER. We live about fifteen minutes away. Any thoughts?

Posted on: Thu, 06/17/1999 - 3:49pm
EILEEN's picture
Joined: 04/06/1999 - 09:00

Benadryl acts faster than Zytrec.
Zytrec is longer-acting than Benadryl.
Give Benadryl first.
These are two different drugs and you can use both at the same time but give Benadryl first ( it should act within 10-15 mintues, Zytrec takes up to 1 hour to act).


Peanut Free Store

More Articles

You already know that if you or your child has a peanut allergy you need to avoid peanut butter. Some...

There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...

Are you looking for peanut-free candies as a special treat for a child with...

Do you have a child with peanut allergies and an upcoming birthday? Perhaps you'd like to bake a...

Most nut butters provide all the same benefits: an easy sandwich spread, a great dip for veggies, a fun addition to a smoothie. But not...