I have been a silent reader and true fan of this email site since my son was diagnosed with level 6-anaphlactic severe-PA/TNA at 22 months. This site is one of my key resources and due to it's freedom of speech has kept me sane during this learning experience. The stories while teary eyed are truly touching and hit close to home. My son is great, smart, social, athletic and the best boy ever. Sometimes more overly cautious or emotional but I would consider nothing less since many children with food allergies must grow up faster while walking on egg shells. His severe allergy to peanuts/tree nuts I feel is harder for me now than for him. Today I can filter out harm but as I read the many posts I worry as time passes and Kindergarten starts what will I do? He is in a peanut/tree nut safe pre-school that we have worked etensively in educating them on the severity of food allergies. I am preparing myself for the schools and trying to find the best and safest way for him to lead a normal life (whatever that is)... I guess my purpose for writing today is to share that I am scared for what lies ahead. I just finished reading a thorough 504 plan and was astonished as to all the fine print safety watch outs that I truly had not thought about- drinking from water fountains, playing on playground equipment etc. I feel I like many parents who chose to read this feel they too are on top of issues and safety for their child. Yet, something new or unexpected pops up on a continuous basis. I guess I need to find where the balance lies. Why is a vaccine 10 years away? What does it take to expedite this process? Oh I pray every night for a safe tomorrow.
Thank you for listening. Continue your posts because they are read and have helped me through tough times.
Thank you, Leslie
On Apr 10, 2002
Welcome! I also lurked for months, simply reading and absorbing, before I finally joined and started posting. I find this site an invaluable resource for support - and I'm sure with your experience to share, we will be getting support from you before long! Glad you're here. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
On Apr 24, 2002
I tried responding to your e-mail but it got returned, some kind of delivery failure - and I used the "reply" button so I know it was the correct address. Hmmmm... [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img]
Anyway, this was my e-mail response. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
What a lovely surprise to find your e-mail this morning. Thanks very much for your kindness. I'm so glad you are using that letter to help explain our situation to people who sometimes can't "get it". I hope it helps pave the way to your son's safety. Looking forward to reading more of your posts. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]