Not enough research?

Posted on: Fri, 02/21/2003 - 5:58am
KUStudent's picture
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Joined: 02/21/2003 - 09:00

Hi all! I am new to posting, but I wanted to stop just reading the postings and introduce myself. I am a graduate student at the University of Kansas and I am thinking of starting a project on PA. I was wondering if any parents would mind telling me a few things about how PA may have affected their child, socially, educationally, etc. I am trying to come up with a list of salient questions for parents about PA and children.
Thanks so much!

Posted on: Wed, 02/26/2003 - 5:08am
McMelon's picture
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Joined: 09/21/2002 - 09:00

I would have to say the worst part of this for my 4 and 6yo has to be they have mentioned their fears about dying from pa. My dd would sometimes cry when all the other kids were able to eat cupcakes and she was given apples at school. After our first trip to the er, she was actually afraid to eat much of anything for fear of the "shot again". She is still much thinner than she was last year but not a concern with her dr. We just found out about these allergies in Oct. 02. So I believe we are probably in the adjusting phase you could say. I hope this helps. if you hav3e any specific questions please ask.

Posted on: Wed, 02/26/2003 - 2:00pm
mae's picture
mae
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Joined: 07/12/2002 - 09:00

Ds is very accepting of his allergy - he understands it and lives it every day.
Socially - lack of inclusion affects him greatly. Very few B-day invites/missing out on some class food treats/not being able to have dessert in restaurants... having to eat in the "peanut free room" with the grade ones (he's grade 3)..
I'll add more later
mae

Posted on: Thu, 02/27/2003 - 3:19am
kelly01's picture
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Joined: 03/19/2001 - 09:00

Hi KUstudent:
I would like to help and keep coming back to this thread, but for some reason my brain is not coming up with anything!
It might get the ball rolling a bit if you asked a couple of specific questions. I know for myself that gets my mind in gear and would probably help me to come up with more questions for you to add.
Thanks,
Kelly

Posted on: Tue, 03/04/2003 - 10:38am
KUStudent's picture
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Joined: 02/21/2003 - 09:00

Thank you for responding McMelon, Mae and Kelly, your responses have been helpful! I am mostly looking for what I might miss asking PA parents about their PA kids experiences. So far I know that I have to ask about fears of other foods, fears of shots and doctors, school problems with peers, adjustment to a peanut free diet.
I am just wondering if there are everyday stressors that I am not aware of? How about after school activities and clubs, are those out because of cross-contamination with kids who do not know about a child's allergy? How else might PA affect a kid socially?
Just how much trouble is going out to restaurants in your community, or are they just not an option?
Do PA kids feel comfortable playing with other kids in their neighborhoods or towns or do they have to be restricted from visiting their friends because their houses may not b safe?
Just some thoughts about some questions that I might ask in trying to figure out what questions to ask PA parents.
Thanks again!

Posted on: Tue, 03/04/2003 - 11:17am
Riss's picture
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Joined: 05/21/2002 - 09:00

My son was turned down by a preschool because of his allergy. So a good question may be any experiences people have had regarding lack of access to programs, schools, etc.

Posted on: Wed, 03/12/2003 - 3:58pm
CVB in CA's picture
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Joined: 10/15/1999 - 09:00

Don't anyone read anything into this, these are just thoughts
Does the isloation and "difference" effect social skill development? Positively or negatively?
Is the child more independent and reaponsible than peers? Or do they go along more readily with peer pressure on everything BUT their allergy to show they are one of the crowd?
Does controlling the allergy lead to compulsive behavior in other areas of life?
Is the PA individual less trusting in relationships? With adults? Authority figures? Peers?
Do they "act out" in other ways if they are denied participation in parties, snacks or activities?
Does being accused of paranoia and talked about bother you either as a parent or PA individual?
What sort of support system has been the most helpful in dealing with the problems the allergy presents?
Is the emotional fallout from PA unique, or have aspects that are common to other chronic lifelong conditions (such as acute athsma, diabetes, etc.)?
Do you think there is post traumatic stress from anaphylaxsis reactions?

Posted on: Thu, 03/13/2003 - 5:02am
ABreitner's picture
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Joined: 07/02/2002 - 09:00

Since my son is just 2 1/2 I don't thing he is aware yet of how PA influences his life. We don't go anywhere without the Epi and Benedryl, so even a walk to the park to play envolves bring his emergency kit. We don't go as many places like zoos, hands on museums, etc not only because of the possibility of peanuts at these places but because it is so difficult to eat out if we are away longer then planned (he does have multiple food allergies). My first child who is 10 years older then my PA child had a multitude of fun experiences by this age. My first child has the benefit of being in a school program for gifted kids and I believe part of her knowledge came from early exposure to all kinds of stimulating activities and events. My PA child is not able to benefit from the same type of experiences that enriched my daughters imagination. I am certain that my stress level impacts my children and I am very stressed about food allergies. Even at this age my son feels excluded from the social aspects of meals. He knows his food is often different, not only from ours (not always!) but from his peers the one day a week he goes to day care. The rule is that he only eats what I bring - no exceptions. But what if one day the rest of the kids are eating bananas and I did not pack a banana for him because I did not know. He knows he likes bananas and gets them at home but on that day he is eating peaches while everyone else eats bananas. He feels different. What impact does that have on him?

Posted on: Tue, 03/18/2003 - 12:08pm
momma2boys's picture
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Joined: 03/14/2003 - 09:00

you should go to living with allergies and read the post by munchkins mom. last I checked it was on page 8. Its very enlightening and heartfelt.

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